Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Rhonda - Aboslutely NO apologies for your absence are in order so TAKE EM BACK. That being said, sincere congratulations for your efforts to spread the RSD word. While I wish that your admirable efforts had been met with success, I hope that you can give yourself a good pat on the back for trying.....Sometimes the journey is as important as reaching the destination. You can sit back now (broken toe and all) and take pride in the fact that you gave it a shot. Nice going. Major kudos on getting that docs to get his ca-ca together too. Yikes....You've tackled some big stuff lately. Wanna be President? I hear there's an election on the horizon. I sure wish that we'd hear something from Mark. I'm worried about him and can't stand not hearing about how he's doing. My best to you and it's great to see you posting again. BarbaraRhonda wrote: Hello to EVERYONE.IF I havent been around for any of you, I apologize from the bottom of my heart. Ive had a lot on my plate lately and it became very overwhelming to try and do what I was doing and keep up also.I have kept in touch with Mark every single day and Jan when I can.Mark wont let me go a day without making sure Im ok. He is a wonderful guy. Im worried about Jan Loeb being in Florida after Charley. I did hear from Mark that he went to a shelter and is ok. I have went from being a go getter and trying out for the Woman's Show: Starting Over. I wanted to get on so that I could not only better my life being disabled with RSD for over 5yrs now but to also try to gain National Awareness and find someone out there who is famous in any way that may have a relative with RSD and be willing to be a spokesperson. Dont get too excited because they didnt choose me. I think they look at someone on a cane and think: This will be too hard for a person. After I went through a week of preparing and staying in a hotel overnight without much sleep, I went to the audition and wasnt chosen. I went in with the thought that I wanted this so bad because finally there would be "someone" on TV that had RSD but also knew that it was up to God. If I didnt get on the show, God has a bigger and better plan and purpose for me. After not working for over 5yrs and trying out for that show, I did realize I probably wouldnt have made it through the first week. LOLI am proud of myself for trying something that I would have never stepped out of my comfort zone to do even a year ago.The night I came home from that experience, my toe got broken (thankfully not on my right RSD foot) but with both feet out of commission, I couldnt walk for a few days. I DID find a new doctor who I love. He has been the only doctor who has admitted that a Spinal Cord Stimulator is a Crap Shoot. Sometimes it works, sometimes it doesnt. I am getting my meds and he treats me with much dignity and respect even though I dont have any insurance. I did find out there is a code of ethics that Jo spoke of and my former doctor who dismissed me after 3 1/2yrs because I had no insurance coverage sent me a letter to inform me he would continue my meds for 6 months and then review my case to take me back as a patient whether I had insurance or not. I miss posting and talking to all of you. Welcome to all the new people I see have joined. You did come to the right place for all the encouragement and support you need. And Yes, you can vent too. I havent forgotten any of you who I havent been able to talk to lately. JoAnn, Cass, , Faith, Lin, , Barbara, etc I love and miss you all and every single one of you plus the whole group are always in my thoughts and prayers. I am finally back at my pc and ready to talk and try to help anyone who needs it. I did find out by helping others, I feel better and it makes me feel like I am a giver not just a taker as this monster called RSD makes you feel. Please feel free to email me or IM me on Yahoo Messenger. I also have MSN Messenger and AOL AIM MESSENGER. If you would like to speak to me in private through email or one of these IM forms, please let me know. I thank all of you for all the faith you have had in me and all the help and support I have received here. I really wish I could have gotten on that show to help others who see it live with RSD. That was my goal but now I will look for something else to do. I have bought all three of the bears from the www.RSDHope.org site. They are wonderful as gifts and come with Birth Certificates and all profits go to research and funding for RSD. If I didnt name anyone on here that I shouldve, please forgive me. I do love you all. I am still not able to put a real shoe on my left foot where my toe is broken but that is the least of my worries at this time. I am just glad to be back.Sorry for the novel but had to update all of you. Love from your Pal In Pain,Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 Rhonda, Welcome Back!!! I applaud you for trying out for the show...however sorry that you were not chosen. I do agree that God must have another plan for you! Thanks for the update and will be looking forward to having you posting again. Teri -- Im ALSO BACK Hello to EVERYONE.IF I havent been around for any of you, I apologize from the bottom of my heart. Ive had a lot on my plate lately and it became very overwhelming to try and do what I was doing and keep up also.I have kept in touch with Mark every single day and Jan when I can.Mark wont let me go a day without making sure Im ok. He is a wonderful guy. Im worried about Jan Loeb being in Florida after Charley. I did hear from Mark that he went to a shelter and is ok. I have went from being a go getter and trying out for the Woman's Show: Starting Over. I wanted to get on so that I could not only better my life being disabled with RSD for over 5yrs now but to also try to gain National Awareness and find someone out there who is famous in any way that may have a relative with RSD and be willing to be a spokesperson. Dont get too excited because they didnt choose me. I think they look at someone on a cane and think: This will be too hard for a person. After I went through a week of preparing and staying in a hotel overnight without much sleep, I went to the audition and wasnt chosen. I went in with the thought that I wanted this so bad because finally there would be "someone" on TV that had RSD but also knew that it was up to God. If I didnt get on the show, God has a bigger and better plan and purpose for me. After not working for over 5yrs and trying out for that show, I did realize I probably wouldnt have made it through the first week. LOLI am proud of myself for trying something that I would have never stepped out of my comfort zone to do even a year ago.The night I came home from that experience, my toe got broken (thankfully not on my right RSD foot) but with both feet out of commission, I couldnt walk for a few days. I DID find a new doctor who I love. He has been the only doctor who has admitted that a Spinal Cord Stimulator is a Crap Shoot. Sometimes it works, sometimes it doesnt. I am getting my meds and he treats me with much dignity and respect even though I dont have any insurance. I did find out there is a code of ethics that Jo spoke of and my former doctor who dismissed me after 3 1/2yrs because I had no insurance coverage sent me a letter to inform me he would continue my meds for 6 months and then review my case to take me back as a patient whether I had insurance or not. I miss posting and talking to all of you. Welcome to all the new people I see have joined. You did come to the right place for all the encouragement and support you need. And Yes, you can vent too. I havent forgotten any of you who I havent been able to talk to lately. JoAnn, Cass, , Faith, Lin, , Barbara, etc I love and miss you all and every single one of you plus the whole group are always in my thoughts and prayers. I am finally back at my pc and ready to talk and try to help anyone who needs it. I did find out by helping others, I feel better and it makes me feel like I am a giver not just a taker as this monster called RSD makes you feel. Please feel free to email me or IM me on Yahoo Messenger. I also have MSN Messenger and AOL AIM MESSENGER. If you would like to speak to me in private through email or one of these IM forms, please let me know. I thank all of you for all the faith you have had in me and all the help and support I have received here. I really wish I could have gotten on that show to help others who see it live with RSD. That was my goal but now I will look for something else to do. I have bought all three of the bears from the www.RSDHope.org site. They are wonderful as gifts and come with Birth Certificates and all profits go to research and funding for RSD. If I didnt name anyone on here that I shouldve, please forgive me. I do love you all. I am still not able to put a real shoe on my left foot where my toe is broken but that is the least of my worries at this time. I am just glad to be back.Sorry for the novel but had to update all of you. Love from your Pal In Pain,Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2004 Report Share Posted August 15, 2004 Rhonda, WELCOME BACK. What show where you trying out? I have been away for awhile and trying to keep up with mail has been impossible sometimes Had to use the key alot. Sorry. Take care of that toe. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Rhonda, No need to apologize for taking some needed time for you. Sorry to hear you didn't make it on to the show, but really appreciate your dedication to getting the word out. I've also tried to reach Mark without response, and hope he is doing OK. I've not heard from Jan since the Hurricane, and hope he is OK. Welcome home. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
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