Re: Diet Weaning Success.....so far...update

[Guest guest]

Hi, Rhonda,

This is so uplifting and such an inspiration for us! We leave next

Sunday for Hopkins for our daughter, 's, 2-year follow-up on

the diet. She has been completely seizure-free for 21 months, and

med-free for 6 months, and we are hoping that we will be able to

start weaning in some form and " see what happens. " Our epi wants us

to wean to an Atkins-style diet and stay there for awhile....not sure

what the folks at Hopkins will recommend. We are nervous, but also

excited at the prospect of putting the old scale away....please keep

us posted on Shan!

Carolyn, mom to , 5

>

> Just a quick update on Shan since we quit weighing her food. She's

doing

> great. No seizures have come back and she's not climbing the walls

like she

> did the first time we tried weaning when we gave her unlimited

carbs. We

> just got back from a 4 day conference where she ate in the

cafeteria every

> day. We basically gave her whatever was available in the way of

protein and

> vegetables. We continue to go lightly on the carbs but we are not

weighing

> them. I will admit that it was very nice and strange to not be

taking a

> lot of prepared food. I'll continue to keep you informed.

>

> Rhonda (mom to Shan, age 8, ketokid for 23 months, off the keto

diet for

> about 12 days)

>

>

>

>

[Guest guest]

Just to throw my two cents in... my daughter Lynden began having trouble

with the kgd after 12 months. Fine tuning was not working. We gave her

body a chance to return to a normal metabolism although her myoclonics and

atonics were almost constant. We now have her on day 3 of Atkins and she is

doing so well. Not totally seizure free but she has so much more freedom on

Atkins and her seizure control keeps on improving. Weaning by moving toward

Atkins may be a really safe thing for .

Ann Shepard

Re: Diet Weaning Success.....so far...update

Hi, Rhonda,

This is so uplifting and such an inspiration for us! We leave next

Sunday for Hopkins for our daughter, 's, 2-year follow-up on

the diet. She has been completely seizure-free for 21 months, and

med-free for 6 months, and we are hoping that we will be able to

start weaning in some form and " see what happens. " Our epi wants us

to wean to an Atkins-style diet and stay there for awhile....not sure

what the folks at Hopkins will recommend. We are nervous, but also

excited at the prospect of putting the old scale away....please keep

us posted on Shan!

Carolyn, mom to , 5

>

> Just a quick update on Shan since we quit weighing her food. She's

doing

> great. No seizures have come back and she's not climbing the walls

like she

> did the first time we tried weaning when we gave her unlimited

carbs. We

> just got back from a 4 day conference where she ate in the

cafeteria every

> day. We basically gave her whatever was available in the way of

protein and

> vegetables. We continue to go lightly on the carbs but we are not

weighing

> them. I will admit that it was very nice and strange to not be

taking a

> lot of prepared food. I'll continue to keep you informed.

>

> Rhonda (mom to Shan, age 8, ketokid for 23 months, off the keto

diet for

> about 12 days)

>

>

>

>

[Guest guest]

Rhonda and Shan,

YEAHHHHHH! Wonderful news, and I'm thrilled to hear that Shan is

doing so well. I hope your good fortune continues. I'm glad all of

your hard work is paying off....lucky Shan to have such a dedicated

Momma!

Glenna

[Guest guest]

Ditto, exactly, for me, Carolyn!

wrote:

>-Hi Carolyn!

>I don't know if you remember me- but you were a big help to us in

>starting the diet. I'm so glad to hear is still doing so

>well and I will keep my fingers crossed ( and pray!) that the wean

>goes perfectly! Good luck at Hopkins and please keep us updated

>on !

>Good luck and take care,

>

>

>

>

>

>

>

>

[Guest guest]

Hi Rhonda, I am so happy for you, this gives me hope for Kristan.

Satnam, mom to Kristan, 13 months.

>

> Just a quick update on Shan since we quit weighing her food. She's

doing

> great. No seizures have come back and she's not climbing the walls

like she

> did the first time we tried weaning when we gave her unlimited

carbs. We

> just got back from a 4 day conference where she ate in the

cafeteria every

> day. We basically gave her whatever was available in the way of

protein and

> vegetables. We continue to go lightly on the carbs but we are not

weighing

> them. I will admit that it was very nice and strange to not be

taking a

> lot of prepared food. I'll continue to keep you informed.

>

> Rhonda (mom to Shan, age 8, ketokid for 23 months, off the keto

diet for

> about 12 days)

>

>

>

>