Re: Early Intervention blues and seizure?????????

[Guest guest]

--- In , " crazyates9573 " <crazyates9573@y...>

wrote:

>>While his

> speech needed some mild improvement, school officials saw no need

> for occupational therapy. They could not believe that my son had

> ever been diagnosed with Autism, they wanted a written diagnoses

> from his pediatrician. Well, lets just say this was not easy to come

> by. The Physician that " diagnosed " or reffered us to ACH no longer

> worked with our Pediatric Clinic and since he never made a record of

> this refferal or diagnoses in my sons file, none of the other

> pediatricians wanted to put themselves on the line by giving him the

> diagnoses.

Based on my previous message, I would be overjoyed with this result. Why do you

need your son's former dx?

I tried to get Social Security Disability to give the

> info to the school and what do you know, we have to be re-evaluated

> by the Disability people. No biggie right? These people know what

> they are dealing with, besides they paid for years of early

> intervention for my son based on their findings. Well, they did the

> evaluations and found that my son no longer qualifies for

> disability. Why? Didn't say.

I am very tempted to say congratulations! Why do you need him to qualify as

disabled?

> After nearly four years without Sensory Integration from an

> Occupational Therapist my son has been on a downhill ride, he

> suffers at school, lacks the social skills needed for 3rd grade and

> is failing most subjects.

Can you obtain these services privately without an autism dx? I sure would try.

Or, if you can definitively relate the loss of OT with this problem, you can

fight to have it put back in his IEP.

Does he even have a current IEP?

> he said " all the time Mom, can I go now? " I say yes, but I am left

> wondering what the heck is going on with my child? Has anyone had

> similar experiences?

Might be worth an MRI or whatever other test. It definitely sounds like he has

a biomedical issue happening. Have you addressed

metals or virus with him?

Dana

[Guest guest]

I would have him checked for seizures. My son's seizures looked just like

this--BUT before you go for the seizure medications, see if his taurine

levels are low, and if they are, supplement. My son's seizures have

disappeared since we started supplementing with taurine. (Many

mercury-toxic kids become taurine deficient.)

Barb

[ ] Early Intervention blues and seizure?????????

> My 8yr old son was diagnosed with mild autism and PDD at age 2, We

> placed him in an early intervention program which is opperated by

> Arkansas Children's Hospital. He truly blossomed in the full time

> health care environment. At age 3 1/2 He was approved on the first

> application for Social security Disability, they sent there people

> out to his school did the evaluation and stated that my son was

> disabled from birth and diagnosed this disability as autism. He

> received speech therapy, and occupational therapy with sensory

> integration. By the time he started kindergarten, he appeared to the

> average joe, to be a perfectly normal 5yr old boy. His OT had ended

> about 6 months prior to kindergarten due to the fact that he had met

> all of the possible goals under medicaid's guidlines, this being the

> case, he no longer qualified for the sensory intergration that falls

> under OT. Speech would continue into elementary school. While his

> speech needed some mild improvement, school officials saw no need

> for occupational therapy. They could not believe that my son had

> ever been diagnosed with Autism, they wanted a written diagnoses

> from his pediatrician. Well, lets just say this was not easy to come

> by. The Physician that " diagnosed " or reffered us to ACH no longer

> worked with our Pediatric Clinic and since he never made a record of

> this refferal or diagnoses in my sons file, none of the other

> pediatricians wanted to put themselves on the line by giving him the

> diagnoses. I tried to get Social Security Disability to give the

> info to the school and what do you know, we have to be re-evaluated

> by the Disability people. No biggie right? These people know what

> they are dealing with, besides they paid for years of early

> intervention for my son based on their findings. Well, they did the

> evaluations and found that my son no longer qualifies for

> disability. Why? Didn't say. I am assuming that it has to do with

> the fact that my 8 year old son has struggled though years of early

> intervention to reach a state of " normal " they consider adequate.

> After nearly four years without Sensory Integration from an

> Occupational Therapist my son has been on a downhill ride, he

> suffers at school, lacks the social skills needed for 3rd grade and

> is failing most subjects. Most recently, I have discovered that he

> experiences what looks like a person getting a cold chill, but his

> eyes kind of flutter for a second. He almost looks like a mechanical

> robot for a split second then he shakes his head a bit and he is

> back to normal. When I asked him what just happened, he described it

> as " this bzzzz that goes on my head and then the picture is gone. " I

> asked him if he gets the picture back and he replied " sometimes,

> sometimes not, but usually no. " When I asked how often this happened

> he said " all the time Mom, can I go now? " I say yes, but I am left

> wondering what the heck is going on with my child? Has anyone had

> similar experiences?

>

>

>

> =======================================================

>

[Guest guest]

My son suffers from petit mal seizures . His seizures typically began with a

stare than occasionally he would flutter his eyes. His medication has been

amazing for him , he is much more here. We had a regular (nonprovoked) EEG which

in the scheme was a pretty easy test. There is an increased risk (pretty high

on some reports) of subcortical seizures in children on the spectrum. Your

son sounds so much like my little one that if his EEG were negative I would even

talk to a neurologist about a sleep deprived one . Good luck.

[Guest guest]

My son had convulsions and seizures. The ketogenic diet for 3-6 months

stopped all that. It's basically all organic whole foods with mainly meat

and fats.Lots of Essential Fatty acids also.

R