Allergic to SCD - I feel so discouraged

[Guest guest]

We started SCD at the beginning of June and have seen good

behavioral results from my son (he's 3 years old). He's had better

behavior, better compliance, improved expressive and receptive

language, better compliance, etc. We had been GF/CF for 1 year

prior, and also had seen good results after removing gluten from

diet (we've remained casein free just as a precaution).

Anyway, after about 6 weeks on SCD, we did a comprehensive food

allergy test (IgG) through Immunolabs, and the test came back with

high allergies (level 3 and 4) for Almonds, cashews, walnuts, eggs,

mustard (from the homemade mayo?), brewers and bakers yeast (from

vinegar?), as well as level 1 and 2 for bananas, peas, peanuts,

tomato, lentils, onions, garlic, pecans, and about 10 other foods.

Most of this stuff is what he eats on the SCD (he also eats lots of

chicken, turkey, and beef and some veggies), but I just about had a

nervous breakdown when I saw these results. My God, how do I do

this diet without eggs, almonds, cashews and bananas? Like I said,

he's had better behavior and attention span on this diet, but I fear

that I'm causing internal damage of some sort by feeding all of

these foods that he reacts to. We had done an allergy test 1 year

ago and he had never reacted to any of these foods before.

Any suggestions? I really feel like I'm at the end of my rope and

need some encouragement. It is so discouraging to work my TAIL OFF

at cooking, research, cooking, and more research only to find that I

may be causing harm to my son (don't parents of autistic children

have enough guilt to deal with?).

Thanks in advance,

Ana

[Guest guest]

Ana,

Many SCD families have found the allergy testing to be unreliable. His gut has

not had enough time to fully heal yet...... but look at the results you are

seeing in HIM. Be sure not to give him any foods that he has visibly reacted

severely to (anaphylaxis).....I'm sure you've been avoiding those anyway. I

hope some of the other parents who've had similar test results will respond to

your message with some reassurance for you. I know some of the DAN docs are

beginning to recommend holding off on the testing for quite some time after

going on SCD because the results will be unreliable. Let's see what some of the

others say.

Patti, mom to Katera, SCD 15 months

Allergic to SCD - I feel so discouraged

<<We started SCD at the beginning of June and have seen good behavioral

results from my son (he's 3 years old).>>

<<allergy test (IgG) through Immunolabs, and the test came back with high

allergies (level 3 and 4)>>

<<My God, how do I do this diet without eggs, almonds, cashews and bananas?

Like I said, he's had better behavior and attention span on this diet, but I

fear

that I'm causing internal damage>>

[Guest guest]

> Anyway, after about 6 weeks on SCD, we did a comprehensive food

> allergy test (IgG) through Immunolabs, and the test came back with

> high allergies (level 3 and 4) for Almonds, cashews, walnuts, eggs,

> mustard (from the homemade mayo?), brewers and bakers yeast (from

> vinegar?), as well as level 1 and 2 for bananas, peas, peanuts,

> tomato, lentils, onions, garlic, pecans, and about 10 other foods.

> Most of this stuff is what he eats on the SCD (he also eats lots of

> chicken, turkey, and beef and some veggies),

Was your child consuming reacting to these foods prior to testing? The immune

system often reacts when there is no tue allergy and as healing proceeds there

may be increasing tolerance.

Carol F.

[Guest guest]

" We started SCD at the beginning of June and have seen good

behavioral results from my son (he's 3 years old). He's had better

behavior, better compliance, improved expressive and receptive

language, better compliance, etc. We had been GF/CF for 1 year

prior, and also had seen good results after removing gluten from

diet (we've remained casein free just as a precaution). "

You just said it. This is not just some nice incidental result, this

is a major, major step. Especially the language is soooo important...

Plus you have been so wonderful at intervening at such an early age.

Do focus on the results, the results are the only things that really

do matter. The rest is unimportant. Keep watching his stool like you

are no doubt doing right now. Stool is your son's physical diary, it

will tell you many things you need to know.

The testing in general is UNreliable. Writing for a laboratorium

magazine, I know for a fact that there are mix-ups in testing like

you would not believe: 30%. Furthermore, allergy testing in itself is

unreliable. Third: your child's body is still going through major

changes. Give it time. I do think that the advice some DAN!docs are

giving now is very solid (hold off testing for some months). I have

not done ANY testing for 2 years.

Marjan

Netherlands

Mom to Nick, asd, 7, SCD since jan 18 2003

, 9

Finn, 4

http://specificfoodsforspecificminds.blogspot.com/