Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 Glenda, yes he is working with me well. I just need to stay on top of him.(not literally LOL) He is one that needs that extra nudge. He is as forgetful as I am.LOL Great team. Have you called the dr yet. Mrs. Nag is going to be on you all day. If you have and he hasn't called back, do what I do, call every hour. He will eventually get so tired of hearing your name he will call. Maybe not in the best attitude, but he will call.LOL You know I'm here. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 , Sounds like your PCP is at least willing to work with the situation. Sounds like you got something going for you with him. Now if we could just find you a good rheumy! Sounds like he is going to work on it. Hope you get into the University soon. Thank you for keeping us up to date. Lots of Love Glenda __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 , I take 240mg of magnesium a day for my mitral valve. When I first began taking it, my mitral valve closed and was no longer leaking. When I went back to my cardiologist for check up he said my mitral valve was not leaking anymore and that wasn't supposed to happen. Said he didn't understand. I didn't say anything because I got my info on this elsewhere. lol To: Rpolychondritisegroups <Rpolychondritisegroups>Date: Thursday, November 02, 2000 4:54 PMSubject: updateGood morning everyone. Well, I'm home safe and sound. Just thought I'd give you an update on yesterday. Dr.#1 cardiologist - changed my heart med or I should say increased it because of extra beats. Put me on cholesterol med. This was the assistant not the dr. I waited 2 hours to see the dr. When I finally saw him he just said that " We " need to watch the heart valves because of the RP. Said I needed a dr at a University,(Stanford, San francisco, etc) Asked if he knew any he said no, but when I found one he would be glad to talke to him. Gave me my prescription the asst wrote without looking at it,never listened to my heart and told me to come back in 3 months. 3 minutes total. UGGGHHH!!!Dr. # 2 PCP. Didn't have to wait. He spent a good hour with me. Don't know what I accomplished. Talked about everything. Didn't have Rheummys report from 3 weeks ago, had to call and have them fax it. In the fax it stated that the metho wasnt working and that I needed to get off of the pred. My PCP asked how long was the rheummy going to wait to do this? Of course I had no answers for him. My pcp is going to check into a rheummy at a University and supposedly get back to me next week. I am to call him by Thurs if I haven't heard. He is also going to try to get me into the neurologist sooner than Nov 30th. I did get my pneumonia shot, but he was out of flu. He forgot to put my name on the list. Says he will now, but doesn't know when he will get the vacccine. Oh well. Hey, he mixes up a " pain cocktail " for chronic pain suffers, I told him it was 4pm and coctail time. He laughed. Said he has had great success with it. I will delve into that later. LOL We also talked about Neurontin, an antiseizure drug for the fibro and chiari. I was on it before for fibro and it did help. He said his hands were tied because he would have to get permission from my rheummy. I told him I was the only one he needed permission from. He still wouldn't do it. I guess he should check, but I don't think it would interfer with the RP. I will do some checking on this my self.#3 Sleep study. Well I made it through fine. Tech told me this morning that I DO snore and she saw signs of sleep apnea. Didn't know if a b pap machine or mouth piece would be recommended by Dr. She would have to take home and calibrate the material. Said I never did make it to level 4 sleep either. I will find out more when I see the dr. in two weeks. I had an appt for next week but I changed it. I think I will go see my sister for a few days and just get away from all of this. Well, that's my update. I just mopped the kitchen floor, was tired of sticking to it.LOL Think I will take it easy today. Hope everyone has a wonderful day.Lots of hugs DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Jo, thanks for the information on Magnesium I'm going to try it. What can it hurt.? Might heal something else. How are you feeling? I hope better. Please take care and thank you again for this info. hUgs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Deb- I can't help you with your question about atelectasis. Just wanted to send my blessings your way. tough times, I'm so sorry! ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
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