Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 I am in a slight state of panic...and right now..feel so alone and bewildered. I don't know who or where to go to..or what to do for that matter. I am new to this illness, not just new to this place. Someone, anyone, talk to me. I need to calm down and stop feeling like I am at death's door. thanks, , I am here right now, but I don't know if you are still on. I am sure that some one has probably gotten back to you by now. Please try to stay calm. I know that's easy for me to say. I know that there are so many people on here that some one will be able to help you that know's more what they are talking about. I haven't heard of lupus doing that yet, so I will just say that there are a lot of people on here and you will have many thoughts and prayers. Some one to whine to when you are feeling blue and some one to laugh with when one of your kids does something silly or amazingly smart. We are all just about in the same boat and are looking forward to getting to know you! a C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 HELLO YVONNE, I REALLY HOPE YOU ARE OK? WE ARE OR WERE SCARED WHEN WE FOUND OUT WE HAVE LUPUS OR SOMETHING ELSE, I HAVE IT SENSE I WAS 17 YEARS OLD NOW 41 , THIS GROUP IS GREAT YOU CAN MAKE a lot OF FRIENDS HERE, SO PLEASE IF YOU FEEL YOU NEED TO CHAT IF YOU LIKE TO I CAN CALL YOU, MY NAME IS SHIRLEY I LIVE IN CALIFORNIA, BUT IT DOES NOT COST FOR ME TO CALL. SO I AM LETTING YOU KNOW THEY ARE PEOPLE HERE YOU CAN TALK TO OK HON , HUGS SHIRLEY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi ! I don't get to post all that often but I wanted to welcome you to the group. I found out in November 2002 that I had Lupus. While pregnant with my last baby I found out that I carried the antibody. I was watched very closely during the pregnancy as I had 3 prior miscarriages which they believe to have been caused by Lupus. I went thru the pregnancy without any complications and delivered a perfectly healthy baby boy. I feel so blessed. Immediately after delivery I began to have what I thought was Postpartum Depression. It worsened and lingered for months. I finally realized that I was dealing with PPD but something else was wrong. I went to my MD and was sent to a Rheumy and got the Dx. In some ways, I was relieved to be able to say I had something. I think we all were beginning to think I was losing my mind. LOL I have 2 sons, ages 10 and 20 months. I was a Legal Assistant up until I had the last baby and began to have all of my problems which prevented me from returning to work full time. I'm not sure if I will be able to go back anytime soon. I'm afraid I won't be able to get disability if I applied. I'm sure we have a lot of the same problems and concerns. I just wanted you to know you're not alone. Please feel free to email me or message me anytime you'd like to talk. I'm also looking for a friend who understands. Tracie > Hi..My name is . I am hoping to be a good friend here and > make friends as well... > > I was diagnosed with Lupus about a year and a half ago...I have been > trying to learn as much as I can about this illness. The pain is > something that I am learning to deal with....However, just this past > few days I received a discouraging report from my cardiologist. The > Lupus is attacking my heart...the left ventricle, and the mitral > valve...my heart is too stiff ..if does not relax. I am on many > meds to help with this ..and possibly to stop or at least slow down > the damage. I am so afraid. I have two girls I need to finish > raising...and I am recently divorced from a very controlling, and > abusive man. > > This afternoon my Mom and I made arrangements to see a lawyer ...I > need to give her power of attorney...just in case...and try and give > her possible guardianship.. > > Docs say they want to help me to be as independent as I can be for > as long as I can... > > I am in a slight state of panic...and right now..feel so alone and > bewildered. I don't know who or where to go to..or what to do for > that matter. > > I am new to this illness, not just new to this place. Someone, > anyone, talk to me. I need to calm down and stop feeling like I am > at death's door. > > thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi , I'm also a single mother. Some time after I was diagnosed, I had several small strokes. I have no lingering affects from them fortunately. I did, however, have all the necessary paperwork drawn up to ensure my son would be taken care of. I designated two power of attorneys and I also had a living will done because I don't want to be kept alive on a ventilator. I think making your wishes known is a good thing for everyone to do. For me, in the midst of a medical mess, it was a load off my mind. Too bad it takes something to happen to make us think of doing it. I have an aortic valve disorder; but they haven't told me it's because of the Lupus. I also have Raynaud's, Snedden's Syndrome, extensive Livedo Reticularis, Fibromyalgia, post traumatic stress disorder, irritable bowel, hip dysplagia, dysthymia, seizures, a history of stroke and a partridge in a pear tree! My meds are currently Lortab, Elavil, Procardia, Coumadin, Plaquenil, Keppra, Lexapro and Trileptal. This is a wonderful and knowledgeable group of people. I think said some time ago that the only stupid question is the one not asked. So, ask away and someone will be able to help you. You might want to go back and read some of the Refresher Posts on Lupus posts every so often. They contain a lot and will probably answer many of your questions. also maintains a website with lots of useful info. Be sure you get the rest your body needs. It is important. > Hi..My name is . I am hoping to be a good friend here and > make friends as well... > > I was diagnosed with Lupus about a year and a half ago...I have been > trying to learn as much as I can about this illness. The pain is > something that I am learning to deal with....However, just this past > few days I received a discouraging report from my cardiologist. The > Lupus is attacking my heart...the left ventricle, and the mitral > valve...my heart is too stiff ..if does not relax. I am on many > meds to help with this ..and possibly to stop or at least slow down > the damage. I am so afraid. I have two girls I need to finish > raising...and I am recently divorced from a very controlling, and > abusive man. > > This afternoon my Mom and I made arrangements to see a lawyer ...I > need to give her power of attorney...just in case...and try and give > her possible guardianship.. > > Docs say they want to help me to be as independent as I can be for > as long as I can... > > I am in a slight state of panic...and right now..feel so alone and > bewildered. I don't know who or where to go to..or what to do for > that matter. > > I am new to this illness, not just new to this place. Someone, > anyone, talk to me. I need to calm down and stop feeling like I am > at death's door. > > thanks, > > Quote Link to comment Share on other sites More sharing options...
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