Re: Girl here in Appleton loses life from mito

[Guest guest]

I'm really sorry to hear this. I don't think I know this family, but it breaks my heart just the same. What form of mito did Ally have? How old was she?

[Guest guest]

I'm feeling so much emotion, from anger of this disease, sorrow for the family, helplessness, but certainly no closure. Please let and Missy know I'm thinking of them and saying a prayer, unfortunately it's all I can offer. We've lost a set of twin girls, so I can relate somewhat. Let them know their not alone, I'm sure I speak for all of us, they are in our prayers always.

Patty Kraynik

Josh Mito Myopathy

[Guest guest]

I am so sorry to read this very sad news about Ally. This disease is

relentless and destroys lives and families. My sincere condolences

go out to this family who are dealing with so much grief. I read the

news story that was sent here and it was an all too familiar account.

Prayers for strength go out to all those who knew and loved Ally,

especially her parents.

Anne - I hate this disease too!

Alice

[Guest guest]

I am so sorry to read this very sad news about Ally. This disease is

relentless and destroys lives and families. My sincere condolences

go out to this family who are dealing with so much grief. I read the

news story that was sent here and it was an all too familiar account.

Prayers for strength go out to all those who knew and loved Ally,

especially her parents.

Anne - I hate this disease too!

Alice

[Guest guest]

I'm sick . Thank you for telling me. I was just with Missy and Allie 2 weeks ago. Allie looked tired but better than the last time I had seen her. They are a wonderful family. I had no idea - absolutely none so I am glad you told me but I am devastated. She is a beautiful little girl and her family is equally as beautiful. She had been fine all of her life until she suddenly landed in the ICU a few years ago. I hate this disease.

Anne

Girl here in Appleton loses life from mito

Hi All:Just wanted to let you know that Ally Heegeman passed away on Easter Sunday in Milwaukee.Missy, her mother was on this site a while back asking some questions.She was just diagnosed last December. They were doing a test on her and had to put herunder. Ally never regained consciousness. I'm hoping to go tothe funeral just to finally meet the parents. I called them atthe end of December to talk briefly and to just show my support.If there are any messages for the parents, I will drop them offfor them at the funeral home (Anne did you meet Missy) if you feelthat would be ok. My heart just broke when I read that seeingas it is so close to home. If you want to read about it go towww.postcrescent.com and it is under the region and state section. Nerenhausenmom to LeahPlease contact mito-owner with any problems or questions.

[Guest guest]

Oh my gosh that is so awful! This disease is unbelievable, it just isn't fair! Please send my thoughts and prayers to her family, unfortunately I do have an idea what they are going through, it will never make sense to me why this has to happen.

Wayne and BlockMommy and Daddy of Aspyn RemarNovember 14, 2001 to July 15, 2003Unknown Mitochondrial Disease, Lactic Acidosis, and CardiomyopothyPlease visit Aspyn at www.aspynblock.com or www.heavens-angels.co.uk

Girl here in Appleton loses life from mito

Hi All:Just wanted to let you know that Ally Heegeman passed away on Easter Sunday in Milwaukee.Missy, her mother was on this site a while back asking some questions.She was just diagnosed last December. They were doing a test on her and had to put herunder. Ally never regained consciousness. I'm hoping to go tothe funeral just to finally meet the parents. I called them atthe end of December to talk briefly and to just show my support.If there are any messages for the parents, I will drop them offfor them at the funeral home (Anne did you meet Missy) if you feelthat would be ok. My heart just broke when I read that seeingas it is so close to home. If you want to read about it go towww.postcrescent.com and it is under the region and state section. Nerenhausenmom to LeahPlease contact mito-owner with any problems or questions.

[Guest guest]

Oh I am just sick! I am all too familar with what this family must

be feeling. If you go to the funeral, please give them a hug from me

also. Another Mom missing her Sweet Girl who is Free at last!

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[Guest guest]

I will pray for Ally's family. I am so sorry.

Girl here in Appleton loses life from mitoHi All:Just wanted to let you know that Ally Heegeman passed away on Easter Sunday in Milwaukee.Missy, her mother was on this site a while back asking some questions.She was just diagnosed last December. They were doing a test on her and had to put herunder. Ally never regained consciousness. I'm hoping to go tothe funeral just to finally meet the parents. I called them atthe end of December to talk briefly and to just show my support.If there are any messages for the parents, I will drop them offfor them at the funeral home (Anne did you meet Missy) if you feelthat would be ok. My heart just broke when I read that seeingas it is so close to home. If you want to read about it go towww.postcrescent.com and it is under the region and state section. Nerenhausenmom to LeahPlease contact mito-owner with any problems or questions.

[Guest guest]

, please give my condolences to Allie's mom and dad and family. How horrible. I hope they will understand they were doing all they could for her and not concentrate of what'if's. Damn disease!

cara

-----Original Message-----From: Sorensen Sent: Tuesday, April 22, 2003 5:44 PMTo: mito Subject: Girl here in Appleton loses life from mitoHi All:Just wanted to let you know that Ally Heegeman passed away on Easter Sunday in Milwaukee.Missy, her mother was on this site a while back asking some questions.She was just diagnosed last December. They were doing a test on her and had to put herunder. Ally never regained consciousness. I'm hoping to go tothe funeral just to finally meet the parents. I called them atthe end of December to talk briefly and to just show my support.If there are any messages for the parents, I will drop them offfor them at the funeral home (Anne did you meet Missy) if you feelthat would be ok. My heart just broke when I read that seeingas it is so close to home. If you want to read about it go towww.postcrescent.com and it is under the region and state section. Nerenhausenmom to LeahPlease contact mito-owner with any problems or questions.