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RE: my newest diagnosis

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So sorry to hear about this Shirley. You could have told us earlier, but I know sometimes it takes awhile to adjust to a new diagnosis and we all have our ways of doing it.

Having read the sites you sent, I'm also going to mention it to my Doc at the next appt. I have "atypical" migraines. but they've never done anything beyond calling them that and years ago I did meds. since about March I've been having them about once a month and they are lasting as long as a week. The headache is bad, but the worst part is the visual stuff, and the kicking over of my constant lightheadedness to vertigo which really kicks my ass. And the headache is mostly in the occipital area. Considering that my whole illness started with the vertigo and numbness on my face and hands, and that I haven't been able to drive for so long (although I've been doing the 2 mile trip to town once or twice a week now for about a month, I'm really questioning if I should be because I am in such a fog while doing it and have to continually refocus, but it feels so damn good to get out of the house) I'm surprised that they haven't considered this diagnosis with me.

I'm so sorry to hear that this is going on with you, but I really thank you for sending the site because I am going to talk to my Doc about it.

I hope they can get it under control for you. I may have forgotten now, but I'm not sure it said how they treat it, except that they can't use vasodilators?

((((hugs))))

Kathy

my newest diagnosis

I'm long past due in telling you all about this. I was diagnosed with it in early June after my episode the end of May. But this diagnosis is my main problem now, most likely. It brings on the MS symptoms. I'll find out more after the MRI on Monday.

I was diagnosed with Basilar Artery Migraines or BAM. How appropriate huh?....lol Below are a couple of links on BAM. It isn't common, so I've read, so there isn't much info out there (that I've found anyways.) Have fun reading about my misery...lol

http://s-2000.com/bam/menu_bam.html

http://neuro-www.mgh.harvard.edu/forum_2/epilepsyf/basilararterymigraine.htmlPlease visit our website at:http://ACES_Autoimmune.tripod.com

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