Re: I need advice in the UK

[Guest guest]

Hi

I'm so sorry for your losses. I live in the UK and have been

diagnosed with didelphic uterus (double uterus and double cervix). I

found out after going for a smear and they realised something was up

so refered me to a consultant to get my vaginal septum removed. As a

follow up they scanned me and then my medical notes afterwards said

simply " double uterus? " . As they only skimmed over the fact in my

follow up appointment I didn't really take any notice and wish I had

found out for sure what they meant then. When I got pregnant my

doctor and midwife immediately said " what does double uterus? mean?

and I wasn't able to answer them. At about 20 weeks I went to see a

consultant and she was less than sympathetic telling me any problems

would have occured at the beginning not now and spent about 2 minutes

with me. I think she was thinking I had a bicornuate or septate

looking back. Unfortunately in September my baby Toby was born

prematurely at 26 weeks and lived for a week. I had actually been

transfered to a different hospital and the staff there were

brilliant. When Toby died I immediately asked about finding out the

reasons he was born early. In November I had a laparoscopy which

confirmed everything. I was extremely lucky to get seen this soon I

think but at least now I know exactly what I have wrong even though

both consultants I have seen since say it is very possible this was

not the reason for Tobys birth and it was just one of those things.

Try to push for a laparoscopy as they really can see very little in

terms of organs on the scan - I was told that afterwards which is why

they could only put a ? on my notes. At least that way you would

know what type of uterus you have and how severe the septum is so

they know whether to do anything about it. I think the US is very

different to the UK in treatment. I have realised how differently

people are being treated to me with this pregnancy but you can at

least ask if it is worth repairing the septum or whatever it is they

do. You are right - this site is full of info - just digest as much

as you can and then at least when you go to the doctor they won't be

able to fob you off as you will know what you are talking about.

Sorry if this has gone on a bit - I just thought I should tell you

some of my history before telling you what I thought.

Good Luck with everything.

Clare

UD

EDD 25/10/04

1 angel Toby @ 26 weeks

> Please is there anyone in the group in the UK who can give any

advice

> on how I find out for sure about having a bicornuate or septate

> uterus.

> It has been mentioned as a possibility to me in scans with 2 of my

> miscarriages but never taken any further. After a 3rd miscarriage I

> am thinking that this may be why.

> This site is full of info but I'm not sure what I've read applies

in

> the UK

> Any advice on what should I do now?

[Guest guest]

Hi

I'm so sorry for your losses. I live in the UK and have been

diagnosed with didelphic uterus (double uterus and double cervix). I

found out after going for a smear and they realised something was up

so refered me to a consultant to get my vaginal septum removed. As a

follow up they scanned me and then my medical notes afterwards said

simply " double uterus? " . As they only skimmed over the fact in my

follow up appointment I didn't really take any notice and wish I had

found out for sure what they meant then. When I got pregnant my

doctor and midwife immediately said " what does double uterus? mean?

and I wasn't able to answer them. At about 20 weeks I went to see a

consultant and she was less than sympathetic telling me any problems

would have occured at the beginning not now and spent about 2 minutes

with me. I think she was thinking I had a bicornuate or septate

looking back. Unfortunately in September my baby Toby was born

prematurely at 26 weeks and lived for a week. I had actually been

transfered to a different hospital and the staff there were

brilliant. When Toby died I immediately asked about finding out the

reasons he was born early. In November I had a laparoscopy which

confirmed everything. I was extremely lucky to get seen this soon I

think but at least now I know exactly what I have wrong even though

both consultants I have seen since say it is very possible this was

not the reason for Tobys birth and it was just one of those things.

Try to push for a laparoscopy as they really can see very little in

terms of organs on the scan - I was told that afterwards which is why

they could only put a ? on my notes. At least that way you would

know what type of uterus you have and how severe the septum is so

they know whether to do anything about it. I think the US is very

different to the UK in treatment. I have realised how differently

people are being treated to me with this pregnancy but you can at

least ask if it is worth repairing the septum or whatever it is they

do. You are right - this site is full of info - just digest as much

as you can and then at least when you go to the doctor they won't be

able to fob you off as you will know what you are talking about.

Sorry if this has gone on a bit - I just thought I should tell you

some of my history before telling you what I thought.

Good Luck with everything.

Clare

UD

EDD 25/10/04

1 angel Toby @ 26 weeks

> Please is there anyone in the group in the UK who can give any

advice

> on how I find out for sure about having a bicornuate or septate

> uterus.

> It has been mentioned as a possibility to me in scans with 2 of my

> miscarriages but never taken any further. After a 3rd miscarriage I

> am thinking that this may be why.

> This site is full of info but I'm not sure what I've read applies

in

> the UK

> Any advice on what should I do now?

[Guest guest]

Hi

I'm so sorry for your losses. I live in the UK and have been

diagnosed with didelphic uterus (double uterus and double cervix). I

found out after going for a smear and they realised something was up

so refered me to a consultant to get my vaginal septum removed. As a

follow up they scanned me and then my medical notes afterwards said

simply " double uterus? " . As they only skimmed over the fact in my

follow up appointment I didn't really take any notice and wish I had

found out for sure what they meant then. When I got pregnant my

doctor and midwife immediately said " what does double uterus? mean?

and I wasn't able to answer them. At about 20 weeks I went to see a

consultant and she was less than sympathetic telling me any problems

would have occured at the beginning not now and spent about 2 minutes

with me. I think she was thinking I had a bicornuate or septate

looking back. Unfortunately in September my baby Toby was born

prematurely at 26 weeks and lived for a week. I had actually been

transfered to a different hospital and the staff there were

brilliant. When Toby died I immediately asked about finding out the

reasons he was born early. In November I had a laparoscopy which

confirmed everything. I was extremely lucky to get seen this soon I

think but at least now I know exactly what I have wrong even though

both consultants I have seen since say it is very possible this was

not the reason for Tobys birth and it was just one of those things.

Try to push for a laparoscopy as they really can see very little in

terms of organs on the scan - I was told that afterwards which is why

they could only put a ? on my notes. At least that way you would

know what type of uterus you have and how severe the septum is so

they know whether to do anything about it. I think the US is very

different to the UK in treatment. I have realised how differently

people are being treated to me with this pregnancy but you can at

least ask if it is worth repairing the septum or whatever it is they

do. You are right - this site is full of info - just digest as much

as you can and then at least when you go to the doctor they won't be

able to fob you off as you will know what you are talking about.

Sorry if this has gone on a bit - I just thought I should tell you

some of my history before telling you what I thought.

Good Luck with everything.

Clare

UD

EDD 25/10/04

1 angel Toby @ 26 weeks

> Please is there anyone in the group in the UK who can give any

advice

> on how I find out for sure about having a bicornuate or septate

> uterus.

> It has been mentioned as a possibility to me in scans with 2 of my

> miscarriages but never taken any further. After a 3rd miscarriage I

> am thinking that this may be why.

> This site is full of info but I'm not sure what I've read applies

in

> the UK

> Any advice on what should I do now?

[Guest guest]

Dear Clare

Thankyou so much for your reply - I have made an appointment with my

GP tomorrow and can now go in armed with all this info.

Hearing about your precious baby boy and understanding a little of

what you must have gone through I really hope that this time is

different - I have everything crossed for you.

Thanks again - I will watch the group for your updates and post my

news too.

> > Please is there anyone in the group in the UK who can give any

> advice

> > on how I find out for sure about having a bicornuate or septate

> > uterus.

> > It has been mentioned as a possibility to me in scans with 2 of

my

> > miscarriages but never taken any further. After a 3rd miscarriage

I

> > am thinking that this may be why.

> > This site is full of info but I'm not sure what I've read applies

> in

> > the UK

> > Any advice on what should I do now?

[Guest guest]

Dear Clare

Thankyou so much for your reply - I have made an appointment with my

GP tomorrow and can now go in armed with all this info.

Hearing about your precious baby boy and understanding a little of

what you must have gone through I really hope that this time is

different - I have everything crossed for you.

Thanks again - I will watch the group for your updates and post my

news too.

> > Please is there anyone in the group in the UK who can give any

> advice

> > on how I find out for sure about having a bicornuate or septate

> > uterus.

> > It has been mentioned as a possibility to me in scans with 2 of

my

> > miscarriages but never taken any further. After a 3rd miscarriage

I

> > am thinking that this may be why.

> > This site is full of info but I'm not sure what I've read applies

> in

> > the UK

> > Any advice on what should I do now?