Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Melinda Hohenberger wrote: > > Hi all, > Well, the " AI " train has found its way to my neighborhood once > again, although, I don't actually know if this is an AI problem. As > many of you are aware, my feet have been " killing " me for close to > two years now and I just now am able to get someone to deal with it. Melinda, I sure hope they can find something; one of my first symptoms was burning and numbness in my feet and hands. They still haven't figured out what is causing the burning -- the numbness is from nerve damage due to the MS -- but, narcotics seem to keep it down to a dull roar. They're still hot as all get-out, though . . . if I hold a thermometer in my closed hand, it will register 102 - 104, even though my body temp is ~100. And all of this with low-normal thyroid levels. Go figure. The circulation issues is much more of a concern. Poor peripheral circulation can cause an host of troubles . . . like you needed any more, right? Fortunately, there's lots of things they can now do to help with that, once they figure out the cause. > I am hosting six thirteen and fourteen year olds for Mark's > video game birthday party. Arrival time is 4; check out time is 10 > am or I deliver them at 10:30 on the dot. Bedtime is midnite. You are a braver woman than I am, hon . . . biggest overnight party I ever let the girls have was four kids, total. And, do you REALLY think you're going to get them to bed at midnight? > He is > showing his age lately which is a new thing and bothers me. He has > always looked younger than his age; lately he looks everybit of his > 54 years. Could it just be that he's very, very tired? says that I 'age' as the day goes on . . . wake up looking late-30s; by night I look 60+. I hope he can get some rest somewhere, soon; and that the two of you can start having more than a drive-by relationship. > The kids seem to be doing better in school so far. That's great! They're getting to the age where it really does matter -- in terms of later opportunities -- how good their grades are. It can be really hard to get them to care, though; a good teacher or an interesting class can help boatloads. > Oh, last but not least--my rheumy increased the Remicade by > 100mg to 700mg every seven weeks. (Got it Tues). Yesterday, I could > get out of bed for the first time without pain since June. Yes. Oh, yes! The thought of moving without pain is wonderful! Congrats to the rheumy, and you. Hugs Owens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Melinda Hohenberger wrote: > > Hi all, > Well, the " AI " train has found its way to my neighborhood once > again, although, I don't actually know if this is an AI problem. As > many of you are aware, my feet have been " killing " me for close to > two years now and I just now am able to get someone to deal with it. Melinda, I sure hope they can find something; one of my first symptoms was burning and numbness in my feet and hands. They still haven't figured out what is causing the burning -- the numbness is from nerve damage due to the MS -- but, narcotics seem to keep it down to a dull roar. They're still hot as all get-out, though . . . if I hold a thermometer in my closed hand, it will register 102 - 104, even though my body temp is ~100. And all of this with low-normal thyroid levels. Go figure. The circulation issues is much more of a concern. Poor peripheral circulation can cause an host of troubles . . . like you needed any more, right? Fortunately, there's lots of things they can now do to help with that, once they figure out the cause. > I am hosting six thirteen and fourteen year olds for Mark's > video game birthday party. Arrival time is 4; check out time is 10 > am or I deliver them at 10:30 on the dot. Bedtime is midnite. You are a braver woman than I am, hon . . . biggest overnight party I ever let the girls have was four kids, total. And, do you REALLY think you're going to get them to bed at midnight? > He is > showing his age lately which is a new thing and bothers me. He has > always looked younger than his age; lately he looks everybit of his > 54 years. Could it just be that he's very, very tired? says that I 'age' as the day goes on . . . wake up looking late-30s; by night I look 60+. I hope he can get some rest somewhere, soon; and that the two of you can start having more than a drive-by relationship. > The kids seem to be doing better in school so far. That's great! They're getting to the age where it really does matter -- in terms of later opportunities -- how good their grades are. It can be really hard to get them to care, though; a good teacher or an interesting class can help boatloads. > Oh, last but not least--my rheumy increased the Remicade by > 100mg to 700mg every seven weeks. (Got it Tues). Yesterday, I could > get out of bed for the first time without pain since June. Yes. Oh, yes! The thought of moving without pain is wonderful! Congrats to the rheumy, and you. Hugs Owens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Melinda Hohenberger wrote: > > Hi all, > Well, the " AI " train has found its way to my neighborhood once > again, although, I don't actually know if this is an AI problem. As > many of you are aware, my feet have been " killing " me for close to > two years now and I just now am able to get someone to deal with it. Melinda, I sure hope they can find something; one of my first symptoms was burning and numbness in my feet and hands. They still haven't figured out what is causing the burning -- the numbness is from nerve damage due to the MS -- but, narcotics seem to keep it down to a dull roar. They're still hot as all get-out, though . . . if I hold a thermometer in my closed hand, it will register 102 - 104, even though my body temp is ~100. And all of this with low-normal thyroid levels. Go figure. The circulation issues is much more of a concern. Poor peripheral circulation can cause an host of troubles . . . like you needed any more, right? Fortunately, there's lots of things they can now do to help with that, once they figure out the cause. > I am hosting six thirteen and fourteen year olds for Mark's > video game birthday party. Arrival time is 4; check out time is 10 > am or I deliver them at 10:30 on the dot. Bedtime is midnite. You are a braver woman than I am, hon . . . biggest overnight party I ever let the girls have was four kids, total. And, do you REALLY think you're going to get them to bed at midnight? > He is > showing his age lately which is a new thing and bothers me. He has > always looked younger than his age; lately he looks everybit of his > 54 years. Could it just be that he's very, very tired? says that I 'age' as the day goes on . . . wake up looking late-30s; by night I look 60+. I hope he can get some rest somewhere, soon; and that the two of you can start having more than a drive-by relationship. > The kids seem to be doing better in school so far. That's great! They're getting to the age where it really does matter -- in terms of later opportunities -- how good their grades are. It can be really hard to get them to care, though; a good teacher or an interesting class can help boatloads. > Oh, last but not least--my rheumy increased the Remicade by > 100mg to 700mg every seven weeks. (Got it Tues). Yesterday, I could > get out of bed for the first time without pain since June. Yes. Oh, yes! The thought of moving without pain is wonderful! Congrats to the rheumy, and you. Hugs Owens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Is the increased hair loss related to the Remicade? I hope that they figure this out for you soon. Hugs, Kathy update, etc Hi all, Well, the "AI" train has found its way to my neighborhood once again, although, I don't actually know if this is an AI problem. As many of you are aware, my feet have been "killing" me for close to two years now and I just now am able to get someone to deal with it.Had a cpe at a new internist and she was very concerned because she couldn't feel the pulses in my feet and the capillary refill is poor. I have had incredible burning pain that no one seemed to be able to help me on except to say take neurontin and hydrocodone as needed. I found that it is worse at night but not always. Heaven forbid that I forget a dose of neurontin because payback is hell. Anyway, new doc ordered fasting lab which I had done yesterday and I am waiting to get scheduled into the heart center for some studies and also will probably have a thyroid scan. My hair has been falling out in greater quantities than my normal and my hairdresser has complained that she has been getting wads out of it when she washes it. (I still have a lot of hair left though) I am trying not to let my imagination go nuts and just wait on the results. I like the new dr--she is also board certified in infectious diseases. I am hosting six thirteen and fourteen year olds for Mark's video game birthday party. Arrival time is 4; check out time is 10 am or I deliver them at 10:30 on the dot. Bedtime is midnite. Kids are out from noon today till Monday am. Bob is off Monday (columbus day) so I am hoping to at least get a ride and lunch out of him. We are seeing each other on five minutes spurts lately; which isn't healthy. Between school and music, he is gone four nights a week off the bat and is taking a class on Sat am. That doesn't include his sentence of 45-50 hours a week at the post office. He is showing his age lately which is a new thing and bothers me. He has always looked younger than his age; lately he looks everybit of his 54 years. The kids seem to be doing better in school so far. Went to Mark's open house on Tues and Sara's is next Tues. 3 out of four teachers say Mark is with the program and fourth one said he is just a little behind. I don't think Sara is being 100% straight with me but the truth will be revealed on Tues. You can see it in her eyes!! Mark just got off of being grounded from cumputers, video games,etc for a week because he decided not to go to school last Thurs am. Wrong move. Oh, last but not least--my rheumy increased the Remicade by 100mg to 700mg every seven weeks. (Got it Tues). Yesterday, I could get out of bed for the first time without pain since June. Yes. Everyone take care. Oh, the press is saying that Mt Saint Helens has gone back to sleep....I don't think so......but I don't know so!!Hugs,MelindaPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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