Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 >I'm just okay health wise. The botox has worked on my fissures > and that aspect is okay. But my arthritis is much worse. I'm > back up to higher doseages on the prednisone, along with the > Arava and Myfortic. The prednisone makes me starving hungry > and I'm eating everything I can get my hands on which means > my weight is also rising furiously. A real catch 22. Robin, hon, have you ever tried methotrexate for the arthritis? It works great for mine. Also, over the years, I've learned to tell the difference between hunger pangs induced by pred, and the 'real thing'. I cope with the pred munchies by eating lots of green-and-growing . . . sometimes swears we should just become a lettuce, celery and broccoli wholesaler given how much I eat of them. > We have sold our home at last and move in 5 weeks time to a temporary home up at Forster on the mid-north coast of New South Wales wonderful! > They don't expect to finish it until the end of February at the earliest but we are begging them to try to get it done by the end of January when my daughter and her family have to move up to start my grandson at school on January 28th. I'm not familiar with Australian real estate law / contracts; but, here in the US, you can include a completion clause [or a 'time is of the essence' clause]. Because there are financial penalties for breaking these, it really motivates the builder to get a move on. I hope this works out for you; I can't imagine sharing my house with one of my brothers for any length of time at all. [Well, actually, I CAN; which is the problem. ;>] Owens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2004 Report Share Posted October 2, 2004 Dear Thanks for your suggestions. Yes, I've tried methotrexate. It didn't really work for me and it sent my liver functions sky high. I'm now on Arava instead. I also take Myfortic as well as the Arava and prednisone for the arthritis AI symptoms. However, and I assume it is as a result of all the tension with the selling and building houses situation along with my daughter's recent marriage break-up, the arthritis is flaring again. I find that by upping the prednisone for short periods of time this helps keep the arthritis manageable under these circumstances. Fortunately I have a great specialist team who agree with me monitoring my own medication levels when I need to. I find that by being really aware of what is happening in my body all the time that I can keep the medications to a miniumum because I don't take long courses of high doseages. I try to cut back as soon as my body tells me it is able to do so. Yes, we have contracts for completion of building in Australia. The contract actually states 23 weeks but we are hoping the builders can do it quicker than that and they are promising to endeavour to do this so that we don't have to share accommodation with my daughter and kids for too long. But an added complication is that over the Christmas holidays in Australia businesses close down for 3 - 4 weeks and this is going to add to our timeframe. Ugg! (((Hugs))) Robyn Find local movie times and trailers on Yahoo! Movies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 We probably both mentioned it, and probably others did too. Hope it turns out OK for you, and something easily managed. Hugs, Kathy Robin Robin, I appreciate the feedback and agree with you that there is a great probability that this could be prednisone related or induced. Thanks for throwing this into the mesh. I guess they need to rule out the circulation first but I will definately keep the neurology consult in mind. In fact now that I think of it, I think Owens or Kathy may have mentioned this at one time. Hopefully the correct blood work has been ordered, because like you, it took a tech almost 30 minutes to get enough blood out of me yesterday in my hand. I would be most delighted if the simple answer is "you need more exercise", which after my right knee is replaced, should be possible. You and your hubby will be in my prayers as you begin the adventure of constructing your home together. I will enjoy reading your journals as you are able to send them. Thanks again for the input. Herein lies the beauty of on line support groups.Hugs,MelindaPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 We probably both mentioned it, and probably others did too. Hope it turns out OK for you, and something easily managed. Hugs, Kathy Robin Robin, I appreciate the feedback and agree with you that there is a great probability that this could be prednisone related or induced. Thanks for throwing this into the mesh. I guess they need to rule out the circulation first but I will definately keep the neurology consult in mind. In fact now that I think of it, I think Owens or Kathy may have mentioned this at one time. Hopefully the correct blood work has been ordered, because like you, it took a tech almost 30 minutes to get enough blood out of me yesterday in my hand. I would be most delighted if the simple answer is "you need more exercise", which after my right knee is replaced, should be possible. You and your hubby will be in my prayers as you begin the adventure of constructing your home together. I will enjoy reading your journals as you are able to send them. Thanks again for the input. Herein lies the beauty of on line support groups.Hugs,MelindaPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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