Guest guest Posted November 7, 2003 Report Share Posted November 7, 2003 Kari - read either Shaw or McCandless's books. But in a nutshell, many of these kids are unable to fully digest gluten (grain protein) and casein (dairy protein), in fact, in Dr. 's book, Special Diets for Special Kids, she talks about how these undigested proteins (gluten and casein) break down to a morphine like level. Yes, there are some kids that get high on foods. She along with Shaw and McCandless mention that other culprits can be soy and corn. I know that when I took my son off the offending foods, stims drastically reduced. It takes a long time to get all of this stuff out of their system. McCandless mentions about 8 months to clear out of body. Kath Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Unfortunately, this does not hold true for all autistic kids. For those that it does work for, the diet is nothing short of miraculous. However, some kids have different problems and the gfcf diet does not affect them. Try it for 6 months, 100% - if things don't change, cross it off your list and go on to something else. > Autistic children with this problem don't fully digest the gluten > and casein proteins which then form opiates in their bodies. They > actually get a " high " from certain foods. (I actually watched my > then 4 year old son get " drunk " on pizza after being gfcf for 6 > months.) Opiates are addicting and food producing opiates are no > exception. When you eliminate the foods there is often a period of > withdrawal (for us it was about 3 weeks) where EVERYTHING gets > worse! But, in the long run, it is SO WORTH IT! After 3 years of > gfcf I had a son who went from special ed and little hope for his > future to a near normal kid. Sure was much easier to parent the > latter version of him too after the withdrawal period and > improvements. > > Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Or try digestive enyzmes instead <A HREF= " www.enzymestuff.com " >www.enzymestuff.com</A> We are off this diet 2.5 yeasr with HNI enzymes and with far more impovements > Unfortunately, this does not hold true for all autistic kids. For those > that > it does work for, the diet is nothing short of miraculous. However, some > kids > have different problems and the gfcf diet does not affect them. Try it for 6 > > months, 100% - if things don't change, cross it off your list and go on to > something else. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Autistic children with this problem don't fully digest the gluten and casein proteins which then form opiates in their bodies. They actually get a " high " from certain foods. (I actually watched my then 4 year old son get " drunk " on pizza after being gfcf for 6 months.) Opiates are addicting and food producing opiates are no exception. When you eliminate the foods there is often a period of withdrawal (for us it was about 3 weeks) where EVERYTHING gets worse! But, in the long run, it is SO WORTH IT! After 3 years of gfcf I had a son who went from special ed and little hope for his future to a near normal kid. Sure was much easier to parent the latter version of him too after the withdrawal period and improvements. Deborah > I'm sure this is pretty basic, but was wondering what is the scientific meaning behind having problems with wheat and/or dairy? Something to do with how the body has problems processing certain proteins? And is it true, that sometimes these children almost develop a type of craving for these foods? My friend's son who stims and show's Asperger symptoms is insanely obsessed with carbs. He almost gets shakey for them. He is 10 years old. I am also very concerned about him becoming diabetic at this rate. > His mom is open to ideas, so any input would be greatly appreciated. And have any of you had to pull the carb plug on a child seeming obsessed with carbs? Can't imagine it would be a pretty picture. He is in special classes and all, but have to wonder how much of this might be linked to his dietary consumption. > Thanks, > Kari > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 2-3 years? You are likely to see improvements in any case in 2-3 years. By then you'd be so used to doing the GFCF that coming off it would be very hard. We did the GFCF for 3 years and then started with the houston enzymes. I still don't give gluten because we are low-carb anyway, but we do use raw goat's milk and/or yogurt made from that same milk (but obviously it is heated so it is not raw when it is yoghurt, although it is hydrolysed from the lactic acid bacteria). Anyway, I see no difference between when we did the gfcf and now, using the enzymes. he continues to improve at the same rate and he continues to have phenol issues -- which No Fenol helps with but does not totally eradicate. Cow's milk is probably going to be problematic however you try it, but goat's milk doesn't have the same protein structure so some people might manage with that. Here in England you can buy buffalo milk, which is an A2 strain of milk. Some people might be able to use that but I don't bother because you cannot buy it raw and, anyway, I like the goats' milk. Of course, there is no reason to insist on using milk at all if that is your choice and if you don't want to mess with the enzymes (which are tricky to start for many, and/or are not always tolerated). GFCF is fine as long as you watch the sugar and starch intake. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 --- In , " Kari Trautman " <karitrautman@e...> wrote: > I'm sure this is pretty basic, but was wondering what is the scientific meaning behind having problems with wheat and/or dairy? Something to do with how the body has problems processing certain proteins? Inability to digest proteins is a common problem for autistic kids. >>And is it true, that sometimes these children almost develop a type of craving for these foods? Yes. >> My friend's son who stims and show's Asperger symptoms is insanely obsessed with carbs. This sounds like a yeast problem. Carbs feed yeast http://www.danasview.net/yeast.htm http://www.pecanbread.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Are you saying this child went from no eye contact and no language -- not even able to sign -- to normal eye contact and normal language in 6 months? How old is he? marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 I would not limit efforts on GFCF to a six month trial. The latest research from Reichelt et al. presented at the 2003 DAN! Conference showed benefit being seen in the second and third year of the diet. Also, enzymes (papain and bromelain, etc.) do not scavenge all gliadimorphin or caseimorphin from the blood stream. Without sounding harsh, I believe the only reason NOT to do the GFCF diet is if you are trying a different dietary intervention such as the specific carbohydrate diet. God Bless! Re: [ ] Re: wheat and dairy link to autistic behaviors Or try digestive enyzmes instead <A HREF= " www.enzymestuff.com " >www.enzymestuff.com</A> We are off this diet 2.5 yeasr with HNI enzymes and with far more impovements > Unfortunately, this does not hold true for all autistic kids. For > those > that > it does work for, the diet is nothing short of miraculous. However, some > kids > have different problems and the gfcf diet does not affect them. Try it for 6 > > months, 100% - if things don't change, cross it off your list and go > on to > something else. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 often I find those that say the diet doesn't work for had other things other then just gluten and casein that need to come out. for example soy or corn are big ones. we wouldn't have seen the big results we had with out taking out rice, addressing yeast issues, supplements for things that were off. there are tests that are out there to help you optimize your results with the diet, I encourage all parents to use them. I have a live example and I hope she jumps in to write something personal, but I ran into a mother who tried the diet for a year and didn't see results with it. I showed her my son and told her how far he had come in just 6 months and encouraged her to have some testing done through our dr. and then retry the diet based on what she tested for. we had her do a couple of things OATS test through great plains lab- this was to test for yeast, bacteria, vitamin levels that were off ect IGE test - to see if other foods were a problem other then just gluten and casein IGG test- to also see what foods were getting through the gut and irritating her son so she knew what to rotate out comprehensive stool analysis- again for yeast, bacteria and parasites hair metal tests and eventually a challenge DMSA test- to see if there are metal issues that need to be addressed what she found out from all this testing is that when she did the diet before all the food she was feeding her son was ALL stuff he still had issues with so he never saw anything get better NOW- she is seeing speech improvement, eye contact improvement and we worked out a rotation for her and the school is seeing huge improvements. all in less then a month. so testing does pay off. I know there are people on here that don't think it is important or that it's allot of money but to see the changes, quicker and know what is really going on in there body is SOOO important. she found out her kids body couldn't make certain vitamins or create things his body needed from what he was taking in. and also that he was celiac and that taking him off the diet was hurting his body. she has been able to address other gut issues that will improve his health for the rest of his life to....... I am now working as a consultant for parents to help implement the Childs diet, for rotation, figuring out what tests need to be done for your child based on what issues they are having, and for meal planning. it has gone from a helpful hobby to next month being a source of income for a stay at home mom. I have had 4 certified nutritionalist and dietitians tell me with the studies I have done with my sons issues that I have learned more then they were taught in classes and that they can't help me!!!! please explore other food issues as well before EVER giving up this diet. so many parents have lost the benefits there child can possibly get out of this diet by not looking into ALL things possible ALL the way!!! christel king wee3kings@... Re: [ ] Re: wheat and dairy link to autistic behaviors Unfortunately, this does not hold true for all autistic kids. For those that it does work for, the diet is nothing short of miraculous. However, some kids have different problems and the gfcf diet does not affect them. Try it for 6 months, 100% - if things don't change, cross it off your list and go on to something else. > Autistic children with this problem don't fully digest the gluten > and casein proteins which then form opiates in their bodies. They > actually get a " high " from certain foods. (I actually watched my > then 4 year old son get " drunk " on pizza after being gfcf for 6 > months.) Opiates are addicting and food producing opiates are no > exception. When you eliminate the foods there is often a period of > withdrawal (for us it was about 3 weeks) where EVERYTHING gets > worse! But, in the long run, it is SO WORTH IT! After 3 years of > gfcf I had a son who went from special ed and little hope for his > future to a near normal kid. Sure was much easier to parent the > latter version of him too after the withdrawal period and > improvements. > > Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 sounds like he is getting that high on it. going off will be like drug with draw but the light at the end of the tunnel is amazing. my son started to look at us and sign when we took him off. he is almost recovered with dietary intervention in just 6 months. we only have one more level to move up on the ATEC scale to be normal. and I think we are going to get that with chelating being our last kick over the edge to normalcy, if he is actually celiac which is a wheat allergies or I think rather gluten the protein in wheat it can cause juvenal diabetes. she needs to test this out before going on the diet, because you have to be consuming it while taking the test. THEN go on the diet [ ] wheat and dairy link to autistic behaviors I'm sure this is pretty basic, but was wondering what is the scientific meaning behind having problems with wheat and/or dairy? Something to do with how the body has problems processing certain proteins? And is it true, that sometimes these children almost develop a type of craving for these foods? My friend's son who stims and show's Asperger symptoms is insanely obsessed with carbs. He almost gets shakey for them. He is 10 years old. I am also very concerned about him becoming diabetic at this rate. His mom is open to ideas, so any input would be greatly appreciated. And have any of you had to pull the carb plug on a child seeming obsessed with carbs? Can't imagine it would be a pretty picture. He is in special classes and all, but have to wonder how much of this might be linked to his dietary consumption. Thanks, Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 In a message dated 08/11/2003 19:12:46 GMT Standard Time, brian.hooker@... writes: > Also, enzymes (papain and bromelain, etc.) do not scavenge all > gliadimorphin or caseimorphin from the blood stream. do you have a refernce for this? Tx MAndi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 >>>> Also, enzymes (papain and bromelain, etc.) do not scavenge all > gliadimorphin or caseimorphin from the blood stream. I do not agree with this. Is there any concrete evidence this is the case? or is it just an opinion or guess and not a fact at all? There is an abundance of research showing that enzymes DO enter the bloodstream and do blood cleansing or breakdown substances in the blood. There are some books on it describing various processes as well as clinical cases. Whether any certain enzyme product or diet eliminates all of any particular substance for any individual is going to be a case by case basis anyway, but considering that many get better results from Peptizyde than GFCF, at least some enzymes are doing a great job and outperforming a multitude of food eliminations. The reason enzymes may be great first step over food eliminations is simply because they work across the board on many different food sources and types. You don't have to guess which foods may be insufficiently broken down, or disrupt your life (or bank account) trying to work around it. They are often much easier and quicker to implement. It seems that many of the elimination diets are also based on your body not being able to sufficiently digest something. Or if digestion is impaired for whatever reason, then all foods needing that digestive path will be insufficiently digested...not just a few select ones. This is also supported by the fact that most people doing enzymes are progressively adding more and more foods into the diet and taking fewer and fewer supplements for nutrition. Whereas many on GFCF are constantly removing not just dairy and wheat, but then need to remove more and more foods, and progressively add in more and more supplements. Seems like the enzymes do a much better job at 'healing the gut' based on this pattern alone. This is not even counting the wealth of studies done on how enzymes assist with wound and tissue healing of all types. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 the Lang is still behind but the eye contact is fixed completely, all other autistic traits are now gone, we are still working on Lang though. so his dx now is Lang delayed, he signs and does some talking., and can communicate his needs. we still are working on some vit defiance and yeast issues that follow some of the autism patterns. but the stemming is very mild, no eye contact issues, no more social issues, infact you would never know he is autistic in a group of kids unless I told you he was. he was very sever when we started. very self abusive, and just sat in a corn for 6 hours straight spinning a phone. if you bothered him he went basicly, didn't answer or agnknowlege you calling his name, movies being on, or a band walking by him. it's been wonderful Re: [ ] wheat and dairy link to autistic behaviors Are you saying this child went from no eye contact and no language -- not even able to sign -- to normal eye contact and normal language in 6 months? How old is he? marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 this will not stop an opium effect though [ ] Re: wheat and dairy link to autistic behaviors >>>> Also, enzymes (papain and bromelain, etc.) do not scavenge all > gliadimorphin or caseimorphin from the blood stream. I do not agree with this. Is there any concrete evidence this is the case? or is it just an opinion or guess and not a fact at all? There is an abundance of research showing that enzymes DO enter the bloodstream and do blood cleansing or breakdown substances in the blood. There are some books on it describing various processes as well as clinical cases. Whether any certain enzyme product or diet eliminates all of any particular substance for any individual is going to be a case by case basis anyway, but considering that many get better results from Peptizyde than GFCF, at least some enzymes are doing a great job and outperforming a multitude of food eliminations. The reason enzymes may be great first step over food eliminations is simply because they work across the board on many different food sources and types. You don't have to guess which foods may be insufficiently broken down, or disrupt your life (or bank account) trying to work around it. They are often much easier and quicker to implement. It seems that many of the elimination diets are also based on your body not being able to sufficiently digest something. Or if digestion is impaired for whatever reason, then all foods needing that digestive path will be insufficiently digested...not just a few select ones. This is also supported by the fact that most people doing enzymes are progressively adding more and more foods into the diet and taking fewer and fewer supplements for nutrition. Whereas many on GFCF are constantly removing not just dairy and wheat, but then need to remove more and more foods, and progressively add in more and more supplements. Seems like the enzymes do a much better job at 'healing the gut' based on this pattern alone. This is not even counting the wealth of studies done on how enzymes assist with wound and tissue healing of all types. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 The issue that scares me is that papain and bromelain assist translocation of some proteins across the intestinal endothelium rather than prevent it. Studies done with oral bioavailability of proteins show that the amount of protein in a healthy gut that crosses the intestinal endothelium is increased by two orders of magnitudes. My own work (unpublished, sorry) has shown that bromelain and papain can be used to translocate IgG across intestinal endothelium and the IgG survives just fine. It can subsequently be assayed for using ELISA on samples directly from the blood stream. Thus, it would be difficult to imagine that 100% of any protein would be scavenged by bromelain and papain enzymes. I believe if you do a broad search in the national library of medicine, you will encounter several publications at least that should point to the translocation properties of these fruit stem enzymes. They have been contemplated for oral administration of insulin, HGH and several other protein therapeutics. This is much more than an opinion or a guess... Also, my son did not react well to these enzymes; having chronic diarhhea and developing a rash. We never cleared him of the reaction using NAET because we saw vast improvement on the GFCF diet. Also, if there is an opiate-effect, then some type of " morphin " protein is eclipsing the blood brain barrier. Hope this help! God Bless! S. Hooker, Ph.D., P.E. Staff Engineer Pacific Northwest National Laboratory MSIN K6-96 902 Battelle Blvd. Richland, WA 99352 Ph. (509) 376-4451 Fx. (509) 376-2526 Mo. (509) 366-2269 Email: brian.hooker@... Re: [ ] Re: wheat and dairy link to autistic behaviors this will not stop an opium effect though [ ] Re: wheat and dairy link to autistic behaviors >>>> Also, enzymes (papain and bromelain, etc.) do not scavenge all > gliadimorphin or caseimorphin from the blood stream. I do not agree with this. Is there any concrete evidence this is the case? or is it just an opinion or guess and not a fact at all? There is an abundance of research showing that enzymes DO enter the bloodstream and do blood cleansing or breakdown substances in the blood. There are some books on it describing various processes as well as clinical cases. Whether any certain enzyme product or diet eliminates all of any particular substance for any individual is going to be a case by case basis anyway, but considering that many get better results from Peptizyde than GFCF, at least some enzymes are doing a great job and outperforming a multitude of food eliminations. The reason enzymes may be great first step over food eliminations is simply because they work across the board on many different food sources and types. You don't have to guess which foods may be insufficiently broken down, or disrupt your life (or bank account) trying to work around it. They are often much easier and quicker to implement. It seems that many of the elimination diets are also based on your body not being able to sufficiently digest something. Or if digestion is impaired for whatever reason, then all foods needing that digestive path will be insufficiently digested...not just a few select ones. This is also supported by the fact that most people doing enzymes are progressively adding more and more foods into the diet and taking fewer and fewer supplements for nutrition. Whereas many on GFCF are constantly removing not just dairy and wheat, but then need to remove more and more foods, and progressively add in more and more supplements. Seems like the enzymes do a much better job at 'healing the gut' based on this pattern alone. This is not even counting the wealth of studies done on how enzymes assist with wound and tissue healing of all types. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 ----- From: Hooker, S Sent: Saturday, November 08, 2003 8:46 PM Subject: RE: [ ] Re: wheat and dairy link to autistic behaviors <<<<Also, my son did not react well to these enzymes; having chronic diarhhea and developing a rash. We never cleared him of the reaction using NAET because we saw vast improvement on the GFCF diet.>>>> My son also had diarhhea, but it went away eventually and he is much better with the enzymes rather than the elimination diet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 I'd like to add that after a year and a half of the diet we have reintroduced foods since July with the aid of dietary enzymes with wonderful success. Allie was so self-limiting with foods her teacher feared a feeding tube might be neccessary. Caroline, her teacher, has an adult autistic brother and is a very experienced special ed teacher who said she had only seen one other child with food aversions as severe as Allie and that child had to have a feeding tube to eat. The diet started Allie talking and healed her gut. The enzymes are saving her from starvation. Debi --- In , " kings " <wee3kings@a...> wrote: > often I find those that say the diet doesn't work for had other things other then just gluten and casein that need to come out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 how old is he? I must warn you that you may not know just how odd he is until you get full language -- my son has " normal " language (well they say that so when the test him, but it doesn't sound normal to me) and you can tell by talking to him that he's just not normal. Is he still autistic? Well, if I'm honest with myself I see that he still meets the criteria absolutely -- so yes, he is. His peers outdo him in all the things you'd expect, except in academic work. he's okay with that (so far, but we'll see). He's 7 now. At 3 he was as your son seemed to have been, so I know what it is a relief it is to see such wonderful improvement. However, I've managed without GFCF. He was GFCF for 3 years and is now on HNI enzymes and a low carb diet. We've begun chelation but are doing it very slowly (this round was 5 mg ALA only/3 hourly for example -- now don't all you chelating experts laugh at me!) I hope you continue to see great improvements. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 Hi , In your opinion, do you think the bromolain could cause blood in the stool? R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 Hi , In your opinion, do you think the bromolain could cause blood in the stool? R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 Yes it could... However, if you see bright red blood it's general from the rectum area and could be a hemorrhoid. If you do a hemocult and detect blood but with no " red color, " that may be due to improper use of enzymes. Re: [ ] Re: wheat and dairy link to autistic behaviors Hi , In your opinion, do you think the bromolain could cause blood in the stool? R ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 --- In , " Hooker, S " <brian.hooker@p...> wrote: > Without sounding > harsh, I believe the only reason NOT to do the GFCF diet is if you are > trying a different dietary intervention such as the specific > carbohydrate diet. I will agree with this statement with a modifer. For my son, he did not tolerate basically ANY foods. I used HNI enzymes and rotated foods to find what he could eat with enzymes. I discovered he could eat gluten/casein, but not artificials or orange, green, or red foods. So for my son, he did not have problems with gluten/casein with HNI enzymes, but he did still have problems with other foods. Removing those foods caused major improvement. The first thing I did after adding enzymes was to remove rice and add wheat. This caused noticeable improvement. It is not always gluten/casein which cause problems for all kids. It sure wasn't for my son. I have personally met a few kids who tolerated anything with HNI enzymes. I sure wish my son had been like that! But now my son tolerates anything even WITHOUT enzymes. This is a direct result of ALA chelation. Good luck to everyone who is trying to figure out their own child's specific issues, whether or not gfcf. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 he is 2.4 Re: [ ] wheat and dairy link to autistic behaviors how old is he? I must warn you that you may not know just how odd he is until you get full language -- my son has " normal " language (well they say that so when the test him, but it doesn't sound normal to me) and you can tell by talking to him that he's just not normal. Is he still autistic? Well, if I'm honest with myself I see that he still meets the criteria absolutely -- so yes, he is. His peers outdo him in all the things you'd expect, except in academic work. he's okay with that (so far, but we'll see). He's 7 now. At 3 he was as your son seemed to have been, so I know what it is a relief it is to see such wonderful improvement. However, I've managed without GFCF. He was GFCF for 3 years and is now on HNI enzymes and a low carb diet. We've begun chelation but are doing it very slowly (this round was 5 mg ALA only/3 hourly for example -- now don't all you chelating experts laugh at me!) I hope you continue to see great improvements. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 In a message dated 11/9/03 10:39:20 PM, wee3kings@... writes: > he is 2.4 > In that case, i would expect him to recover pretty much. You got to him very early with interventions and it would appear that such young children respond faster and more completely to dietary interventions, supps, education, etc. I would think his prognosis is VERY bright. However, there are many children who are autistic but don't appear " all that bad " until about 3. My son didn't even walk on his toes much at all until he was closer to 3, but then we didn't do any interventions until well after that time, so that's probably why: he was getting worse and we didn't realise what was going on. Marti Quote Link to comment Share on other sites More sharing options...
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