Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 Hi Friends, Kym wrote to tell me there isn't much news on little Rox yet. I'll copy in her letter so you can see what's going on. Please keep them both in your thoughts and prayers, and hope they find answers soon. Kathleen Hi Kathleen, nothing startling to report yet, the well laid plans to do the MRI and CT under one GA went out the window when the Gas doc's felt apprehensive about the distance between the two machines, unfortunately the CT was the one I really wanted and still have to wait till tomorrow for that. MRI same from Nov, syrinx to my knowledge still same, ventricles are good so no plumbing problems we think, although we had to reprogram twice and still not sure if it took the new setting. I said enough on Friday the girl was tired and sick after MRI two head xrays and a chest xray. They are concerned she is aspirating tiny peices of food and they are checking as this can be quite serious. We are being taken well care off, our own room which is fantastic instead of usual bay with six families. All our nurses and doc are same and wonderful caring souls. Today my parents will take us to aquarium for day out, nice having all my family so close, brothers, sister and all grandparents, well supported and feed regulary!!!! This is hard for them to call, but checking her weight over last two years is little scary, 14.7 in 2000, 14.35 in 2001, 14.3 when we got here 14.1 now. Not sure how they will handle that. She will still vomit is she has feeding tube or NG tube so no great answers there?? So lots of unknowns and no concrete answers yet but hopefully soonish for plan. Quote Link to comment Share on other sites More sharing options...
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