Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Oh my gosh! Do you start the IV yourself at home! Thanks for sharing. e > Hi e, > Hope you dont mind I add my two sense in here too. > We have a mediport for our son.. the one without > mito...he has other issues. It is wonderful as long as > you make sure it is placed right. All blood draws and > IV antibiotics and even right now short term TPN we > are giving to him at home. If we hadnt had the port it > would have been a much longer hospital stay and when > we are done using it we simply take the needle out and > then its completely covered under his skin. Unlike the > broviac.. dont think I spelled that right. Anyway..for > short term needs its nice and we simply use emla cream > to numb him any time we need to access it. They taught > us how to use it and to do everything which was a bit > unnerving at first but now its easy. Hope this helps. > Kimberley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Oh my gosh! Do you start the IV yourself at home! Thanks for sharing. e > Hi e, > Hope you dont mind I add my two sense in here too. > We have a mediport for our son.. the one without > mito...he has other issues. It is wonderful as long as > you make sure it is placed right. All blood draws and > IV antibiotics and even right now short term TPN we > are giving to him at home. If we hadnt had the port it > would have been a much longer hospital stay and when > we are done using it we simply take the needle out and > then its completely covered under his skin. Unlike the > broviac.. dont think I spelled that right. Anyway..for > short term needs its nice and we simply use emla cream > to numb him any time we need to access it. They taught > us how to use it and to do everything which was a bit > unnerving at first but now its easy. Hope this helps. > Kimberley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Oh my gosh! Do you start the IV yourself at home! Thanks for sharing. e > Hi e, > Hope you dont mind I add my two sense in here too. > We have a mediport for our son.. the one without > mito...he has other issues. It is wonderful as long as > you make sure it is placed right. All blood draws and > IV antibiotics and even right now short term TPN we > are giving to him at home. If we hadnt had the port it > would have been a much longer hospital stay and when > we are done using it we simply take the needle out and > then its completely covered under his skin. Unlike the > broviac.. dont think I spelled that right. Anyway..for > short term needs its nice and we simply use emla cream > to numb him any time we need to access it. They taught > us how to use it and to do everything which was a bit > unnerving at first but now its easy. Hope this helps. > Kimberley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 I can't believe that they had to cut into her ankle to start an IV. I am more bewildered everyday by what kind of trauma our poor kids have to go through. What is TPN? Thanks for filling me in. e, mom to Abby 10 mos. > Hi e, > A femoral line is when they get the IV running in the femoral vein > in the groin and then they stitch it in. They would have to give her some > sedation to do this and it appears to me to be painful when they did it. > They have also done cut downs on Miranda, when they actually would cut into > her ankle to look for a vein and then sew that up with the IV in. > A Mediport is like a permanent IV site. There are several kinds. There > are ones that are always outside of the body ( Broviac) but in my opinion > these are much risky, although there are risks involved in everything and it > really depends on what you are using the line for. The mediport is a small > bump on Miranda chest that has a port there. When they need to start an IV > they just have to push a special needle into that port. It must be used or > flushed every 4 to 6 weeks, which for us is common so I don't feel we are > doing any unneeded sticks. we have used it for IV antibiotics, fluids and > TPN. For us, this had been a Godsend for Miranda and I have never regretted > getting it. If you want more info, let me know. > > mom to Miranda, 6 Complex IV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 I can't believe that they had to cut into her ankle to start an IV. I am more bewildered everyday by what kind of trauma our poor kids have to go through. What is TPN? Thanks for filling me in. e, mom to Abby 10 mos. > Hi e, > A femoral line is when they get the IV running in the femoral vein > in the groin and then they stitch it in. They would have to give her some > sedation to do this and it appears to me to be painful when they did it. > They have also done cut downs on Miranda, when they actually would cut into > her ankle to look for a vein and then sew that up with the IV in. > A Mediport is like a permanent IV site. There are several kinds. There > are ones that are always outside of the body ( Broviac) but in my opinion > these are much risky, although there are risks involved in everything and it > really depends on what you are using the line for. The mediport is a small > bump on Miranda chest that has a port there. When they need to start an IV > they just have to push a special needle into that port. It must be used or > flushed every 4 to 6 weeks, which for us is common so I don't feel we are > doing any unneeded sticks. we have used it for IV antibiotics, fluids and > TPN. For us, this had been a Godsend for Miranda and I have never regretted > getting it. If you want more info, let me know. > > mom to Miranda, 6 Complex IV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 I can't believe that they had to cut into her ankle to start an IV. I am more bewildered everyday by what kind of trauma our poor kids have to go through. What is TPN? Thanks for filling me in. e, mom to Abby 10 mos. > Hi e, > A femoral line is when they get the IV running in the femoral vein > in the groin and then they stitch it in. They would have to give her some > sedation to do this and it appears to me to be painful when they did it. > They have also done cut downs on Miranda, when they actually would cut into > her ankle to look for a vein and then sew that up with the IV in. > A Mediport is like a permanent IV site. There are several kinds. There > are ones that are always outside of the body ( Broviac) but in my opinion > these are much risky, although there are risks involved in everything and it > really depends on what you are using the line for. The mediport is a small > bump on Miranda chest that has a port there. When they need to start an IV > they just have to push a special needle into that port. It must be used or > flushed every 4 to 6 weeks, which for us is common so I don't feel we are > doing any unneeded sticks. we have used it for IV antibiotics, fluids and > TPN. For us, this had been a Godsend for Miranda and I have never regretted > getting it. If you want more info, let me know. > > mom to Miranda, 6 Complex IV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Hi e, TPN stands for Total Parenteral Nutrition......which is basically being fed all your nutrition by way of an IV. There are lots of children and adults who live on this when oral eating is out and tube feeding ( either Gtube, which is into the stomach or Jtube which bypasses the stomach and feeds into the jejunum) also is not tolerated for one reason or another. I hope that makes sense. -- Re: mediport- I can't believe that they had to cut into her ankle to start an IV. I am more bewildered everyday by what kind of trauma our poor kids have to go through. What is TPN? Thanks for filling me in.e, mom to Abby 10 mos.> Hi e,> A femoral line is when they get the IV running in the femoral vein> in the groin and then they stitch it in. They would have to give her some> sedation to do this and it appears to me to be painful when they did it.> They have also done cut downs on Miranda, when they actually would cut into> her ankle to look for a vein and then sew that up with the IV in.> A Mediport is like a permanent IV site. There are several kinds. There> are ones that are always outside of the body ( Broviac) but in my opinion> these are much risky, although there are risks involved in everything and it> really depends on what you are using the line for. The mediport is a small> bump on Miranda chest that has a port there. When they need to start an IV> they just have to push a special needle into that port. It must be used or> flushed every 4 to 6 weeks, which for us is common so I don't feel we are> doing any unneeded sticks. we have used it for IV antibiotics, fluids and> TPN. For us, this had been a Godsend for Miranda and I have never regretted> getting it. If you want more info, let me know.> > mom to Miranda, 6 Complex IV> Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 e, Lily once had an IV into her Leg bone. Her tibia. Once I remembered what that was called. It is I'm sure an uncommon occurrence. It was more important to get the medication in to her, to stop the seizure. It was at a " smaller hospital " and they were doing the best they could. Yes, our kids do experience a lot of trauma! Lily did it with such " style " . A large smile and her " thank-you " would always follow a poke-or an exam. Even while crying. They are inspirational! ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 e, Lily once had an IV into her Leg bone. Her tibia. Once I remembered what that was called. It is I'm sure an uncommon occurrence. It was more important to get the medication in to her, to stop the seizure. It was at a " smaller hospital " and they were doing the best they could. Yes, our kids do experience a lot of trauma! Lily did it with such " style " . A large smile and her " thank-you " would always follow a poke-or an exam. Even while crying. They are inspirational! ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 e, Lily once had an IV into her Leg bone. Her tibia. Once I remembered what that was called. It is I'm sure an uncommon occurrence. It was more important to get the medication in to her, to stop the seizure. It was at a " smaller hospital " and they were doing the best they could. Yes, our kids do experience a lot of trauma! Lily did it with such " style " . A large smile and her " thank-you " would always follow a poke-or an exam. Even while crying. They are inspirational! ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Isn't it amazing how good most of these poor kids deal with this stuff?? I am sure Miranda is so much braver than I ever will be. I always tell the Dr's and Nurses they are so lucky Miranda does not hold a grudge!!! -- Re: Re: mediport- e,Lily once had an IV into her Leg bone. Her tibia. Once I remembered whatthat was called. It is I'm sure an uncommon occurrence. It was moreimportant to get the medication in to her, to stop the seizure. It was ata "smaller hospital" and they were doing the best they could.Yes, our kids do experience a lot of trauma! Lily did it with such"style". A large smile and her "thank-you" would always follow a poke-oran exam. Even while crying. They are inspirational! ________________________________________________________________Sign Up for Juno Platinum Internet Access TodayOnly $9.95 per month!Visit www.juno.comPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Thank you for the explanation. Abby has been on TPN now for the last 3 days and I didn't even know it! e, mom to Abby 10 mos. > Hi e, > TPN stands for Total Parenteral Nutrition......which is basically > being fed all your nutrition by way of an IV. There are lots of children and > adults who live on this when oral eating is out and tube feeding ( either > Gtube, which is into the stomach or Jtube which bypasses the stomach and > feeds into the jejunum) also is not tolerated for one reason or another. I > hope that makes sense. > > > Quote Link to comment Share on other sites More sharing options...
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