Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I know exactly how you feel but I do want to caution you. So many things that sound horrible to us really aren't so bad after all. We don't understand " doctor speak " nor do we have medical degrees to totally understand what is being written. I would try to remain calm (tough to do I know) and wait to talk to your doctor. I do think you have a right to know EXACTLY what the tests show and would make sure he tells you in " little people speak *lol* " . I have just found out I have to have 4 MRI's because my neuro thinks I might have MS...now that scares me to death and of course I've looked it up on the internet which has only freaked me out even more. Who is your neuro? I see Dr. Harney in . Anne Neuro developments Howdy -- Been keeping my head down, working, sleeping, so I'm sorry I haven't been keeping up with much. It's like my FM has been cutting me some slack -- haven't felt as achy as usual, although still needing lots of sleep. I got my MRI and MRA results yesterday (head). The radiology clinic where I had them done didn't get them to my neurologist in time for my first appt, so I thought I'd get them myself and bring them next week just in case. They scared me to death. I feel sure that if any of this was truly serious somebody would have told me. But it was so hard to read them -- so scary I wish I hadn't gotten them. Better off not wondering about them. Evidently I have two somethings that the radiologist said might be cysts, he wasn't sure -- one is in the sphenoid sinus (back of the head), and the other is in the left ventricle of the brain. He did not suggest tumors, and I'm sure that they are certainly not, or that neurosurgeon would have said something. But the radiologist did suggest several things that my neurosurgeon never passed along to me, and I'm bothered by that. First off, the presence of cysts -- my sinuses are in very poor shape, and now I can see why! I'm trying to get in to see an otolaryngologist to see about having a sinus lavage. But there were vascular (vein) problems that the neurosurgeon also did not tell me about. They may be minor problems, but it makes me angry/scared/frustratrated that he did not tell me anything. None of the major veins have problems at all, but he thought I had something he called " acquired microvascular disease. " I have not been able to find out even *vaguely* what this is, except what it sounds like -- something funky with my smaller veins. These tests were done in June. I have been having so many neuro weirdnesses going on in the past month, I guess I'll ask my neurologist (not to be confused iwth the neurosurgeon I saw last summer) if I can have another MRI of the head. And I couldn't help it -- can't help it -- I feel so scared in the pit of my stomach. I know I should just let it lie, not worry about it until the time comes, but it was a HUGE shock to read some of that stuff. Most of it, to be honest, I am so far from understanding that it doesn't mean squat to me. But some of it made sense, and what did, scared me. And made me mad, too. Boy am I going to talk frankly with this neurologist next week. I want to know EVERYTHING. If anybody knows what any of this means, please let me know? I'm nto as scared today, but man, I hate not knowing. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I know exactly how you feel but I do want to caution you. So many things that sound horrible to us really aren't so bad after all. We don't understand " doctor speak " nor do we have medical degrees to totally understand what is being written. I would try to remain calm (tough to do I know) and wait to talk to your doctor. I do think you have a right to know EXACTLY what the tests show and would make sure he tells you in " little people speak *lol* " . I have just found out I have to have 4 MRI's because my neuro thinks I might have MS...now that scares me to death and of course I've looked it up on the internet which has only freaked me out even more. Who is your neuro? I see Dr. Harney in . Anne Neuro developments Howdy -- Been keeping my head down, working, sleeping, so I'm sorry I haven't been keeping up with much. It's like my FM has been cutting me some slack -- haven't felt as achy as usual, although still needing lots of sleep. I got my MRI and MRA results yesterday (head). The radiology clinic where I had them done didn't get them to my neurologist in time for my first appt, so I thought I'd get them myself and bring them next week just in case. They scared me to death. I feel sure that if any of this was truly serious somebody would have told me. But it was so hard to read them -- so scary I wish I hadn't gotten them. Better off not wondering about them. Evidently I have two somethings that the radiologist said might be cysts, he wasn't sure -- one is in the sphenoid sinus (back of the head), and the other is in the left ventricle of the brain. He did not suggest tumors, and I'm sure that they are certainly not, or that neurosurgeon would have said something. But the radiologist did suggest several things that my neurosurgeon never passed along to me, and I'm bothered by that. First off, the presence of cysts -- my sinuses are in very poor shape, and now I can see why! I'm trying to get in to see an otolaryngologist to see about having a sinus lavage. But there were vascular (vein) problems that the neurosurgeon also did not tell me about. They may be minor problems, but it makes me angry/scared/frustratrated that he did not tell me anything. None of the major veins have problems at all, but he thought I had something he called " acquired microvascular disease. " I have not been able to find out even *vaguely* what this is, except what it sounds like -- something funky with my smaller veins. These tests were done in June. I have been having so many neuro weirdnesses going on in the past month, I guess I'll ask my neurologist (not to be confused iwth the neurosurgeon I saw last summer) if I can have another MRI of the head. And I couldn't help it -- can't help it -- I feel so scared in the pit of my stomach. I know I should just let it lie, not worry about it until the time comes, but it was a HUGE shock to read some of that stuff. Most of it, to be honest, I am so far from understanding that it doesn't mean squat to me. But some of it made sense, and what did, scared me. And made me mad, too. Boy am I going to talk frankly with this neurologist next week. I want to know EVERYTHING. If anybody knows what any of this means, please let me know? I'm nto as scared today, but man, I hate not knowing. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I know exactly how you feel but I do want to caution you. So many things that sound horrible to us really aren't so bad after all. We don't understand " doctor speak " nor do we have medical degrees to totally understand what is being written. I would try to remain calm (tough to do I know) and wait to talk to your doctor. I do think you have a right to know EXACTLY what the tests show and would make sure he tells you in " little people speak *lol* " . I have just found out I have to have 4 MRI's because my neuro thinks I might have MS...now that scares me to death and of course I've looked it up on the internet which has only freaked me out even more. Who is your neuro? I see Dr. Harney in . Anne Neuro developments Howdy -- Been keeping my head down, working, sleeping, so I'm sorry I haven't been keeping up with much. It's like my FM has been cutting me some slack -- haven't felt as achy as usual, although still needing lots of sleep. I got my MRI and MRA results yesterday (head). The radiology clinic where I had them done didn't get them to my neurologist in time for my first appt, so I thought I'd get them myself and bring them next week just in case. They scared me to death. I feel sure that if any of this was truly serious somebody would have told me. But it was so hard to read them -- so scary I wish I hadn't gotten them. Better off not wondering about them. Evidently I have two somethings that the radiologist said might be cysts, he wasn't sure -- one is in the sphenoid sinus (back of the head), and the other is in the left ventricle of the brain. He did not suggest tumors, and I'm sure that they are certainly not, or that neurosurgeon would have said something. But the radiologist did suggest several things that my neurosurgeon never passed along to me, and I'm bothered by that. First off, the presence of cysts -- my sinuses are in very poor shape, and now I can see why! I'm trying to get in to see an otolaryngologist to see about having a sinus lavage. But there were vascular (vein) problems that the neurosurgeon also did not tell me about. They may be minor problems, but it makes me angry/scared/frustratrated that he did not tell me anything. None of the major veins have problems at all, but he thought I had something he called " acquired microvascular disease. " I have not been able to find out even *vaguely* what this is, except what it sounds like -- something funky with my smaller veins. These tests were done in June. I have been having so many neuro weirdnesses going on in the past month, I guess I'll ask my neurologist (not to be confused iwth the neurosurgeon I saw last summer) if I can have another MRI of the head. And I couldn't help it -- can't help it -- I feel so scared in the pit of my stomach. I know I should just let it lie, not worry about it until the time comes, but it was a HUGE shock to read some of that stuff. Most of it, to be honest, I am so far from understanding that it doesn't mean squat to me. But some of it made sense, and what did, scared me. And made me mad, too. Boy am I going to talk frankly with this neurologist next week. I want to know EVERYTHING. If anybody knows what any of this means, please let me know? I'm nto as scared today, but man, I hate not knowing. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I agree with this. They have a technical name for EVERY symptom or condition that a person has. When I was diagnosed with a sleeping disorder (no REM) he called it " Idiopathic Hypersomnalence " sounds pretty bad huh? It means " she is really tired and we don't know why " . The Idiopathic just means that they don't know why. You could have a red spot on your arm from where you slept and they would call it " hyper edema limbitis " (I just made that up Anyway, with my daughter they have used scary language and it was not any thing abnormal. They said she had some heart issue and called it a scary name (I can't remember it now) and I was really concerned, only to find out, it was just a description of her heart but it is common in 50% of all babies. It was a description of her, but not a disease or abnormality, just a characteristic. Sincerely, Pamela Rauch Neuro developments Howdy -- Been keeping my head down, working, sleeping, so I'm sorry I haven't been keeping up with much. It's like my FM has been cutting me some slack -- haven't felt as achy as usual, although still needing lots of sleep. I got my MRI and MRA results yesterday (head). The radiology clinic where I had them done didn't get them to my neurologist in time for my first appt, so I thought I'd get them myself and bring them next week just in case. They scared me to death. I feel sure that if any of this was truly serious somebody would have told me. But it was so hard to read them -- so scary I wish I hadn't gotten them. Better off not wondering about them. Evidently I have two somethings that the radiologist said might be cysts, he wasn't sure -- one is in the sphenoid sinus (back of the head), and the other is in the left ventricle of the brain. He did not suggest tumors, and I'm sure that they are certainly not, or that neurosurgeon would have said something. But the radiologist did suggest several things that my neurosurgeon never passed along to me, and I'm bothered by that. First off, the presence of cysts -- my sinuses are in very poor shape, and now I can see why! I'm trying to get in to see an otolaryngologist to see about having a sinus lavage. But there were vascular (vein) problems that the neurosurgeon also did not tell me about. They may be minor problems, but it makes me angry/scared/frustratrated that he did not tell me anything. None of the major veins have problems at all, but he thought I had something he called " acquired microvascular disease. " I have not been able to find out even *vaguely* what this is, except what it sounds like -- something funky with my smaller veins. These tests were done in June. I have been having so many neuro weirdnesses going on in the past month, I guess I'll ask my neurologist (not to be confused iwth the neurosurgeon I saw last summer) if I can have another MRI of the head. And I couldn't help it -- can't help it -- I feel so scared in the pit of my stomach. I know I should just let it lie, not worry about it until the time comes, but it was a HUGE shock to read some of that stuff. Most of it, to be honest, I am so far from understanding that it doesn't mean squat to me. But some of it made sense, and what did, scared me. And made me mad, too. Boy am I going to talk frankly with this neurologist next week. I want to know EVERYTHING. If anybody knows what any of this means, please let me know? I'm nto as scared today, but man, I hate not knowing. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I agree with this. They have a technical name for EVERY symptom or condition that a person has. When I was diagnosed with a sleeping disorder (no REM) he called it " Idiopathic Hypersomnalence " sounds pretty bad huh? It means " she is really tired and we don't know why " . The Idiopathic just means that they don't know why. You could have a red spot on your arm from where you slept and they would call it " hyper edema limbitis " (I just made that up Anyway, with my daughter they have used scary language and it was not any thing abnormal. They said she had some heart issue and called it a scary name (I can't remember it now) and I was really concerned, only to find out, it was just a description of her heart but it is common in 50% of all babies. It was a description of her, but not a disease or abnormality, just a characteristic. Sincerely, Pamela Rauch Neuro developments Howdy -- Been keeping my head down, working, sleeping, so I'm sorry I haven't been keeping up with much. It's like my FM has been cutting me some slack -- haven't felt as achy as usual, although still needing lots of sleep. I got my MRI and MRA results yesterday (head). The radiology clinic where I had them done didn't get them to my neurologist in time for my first appt, so I thought I'd get them myself and bring them next week just in case. They scared me to death. I feel sure that if any of this was truly serious somebody would have told me. But it was so hard to read them -- so scary I wish I hadn't gotten them. Better off not wondering about them. Evidently I have two somethings that the radiologist said might be cysts, he wasn't sure -- one is in the sphenoid sinus (back of the head), and the other is in the left ventricle of the brain. He did not suggest tumors, and I'm sure that they are certainly not, or that neurosurgeon would have said something. But the radiologist did suggest several things that my neurosurgeon never passed along to me, and I'm bothered by that. First off, the presence of cysts -- my sinuses are in very poor shape, and now I can see why! I'm trying to get in to see an otolaryngologist to see about having a sinus lavage. But there were vascular (vein) problems that the neurosurgeon also did not tell me about. They may be minor problems, but it makes me angry/scared/frustratrated that he did not tell me anything. None of the major veins have problems at all, but he thought I had something he called " acquired microvascular disease. " I have not been able to find out even *vaguely* what this is, except what it sounds like -- something funky with my smaller veins. These tests were done in June. I have been having so many neuro weirdnesses going on in the past month, I guess I'll ask my neurologist (not to be confused iwth the neurosurgeon I saw last summer) if I can have another MRI of the head. And I couldn't help it -- can't help it -- I feel so scared in the pit of my stomach. I know I should just let it lie, not worry about it until the time comes, but it was a HUGE shock to read some of that stuff. Most of it, to be honest, I am so far from understanding that it doesn't mean squat to me. But some of it made sense, and what did, scared me. And made me mad, too. Boy am I going to talk frankly with this neurologist next week. I want to know EVERYTHING. If anybody knows what any of this means, please let me know? I'm nto as scared today, but man, I hate not knowing. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I agree with this. They have a technical name for EVERY symptom or condition that a person has. When I was diagnosed with a sleeping disorder (no REM) he called it " Idiopathic Hypersomnalence " sounds pretty bad huh? It means " she is really tired and we don't know why " . The Idiopathic just means that they don't know why. You could have a red spot on your arm from where you slept and they would call it " hyper edema limbitis " (I just made that up Anyway, with my daughter they have used scary language and it was not any thing abnormal. They said she had some heart issue and called it a scary name (I can't remember it now) and I was really concerned, only to find out, it was just a description of her heart but it is common in 50% of all babies. It was a description of her, but not a disease or abnormality, just a characteristic. Sincerely, Pamela Rauch Neuro developments Howdy -- Been keeping my head down, working, sleeping, so I'm sorry I haven't been keeping up with much. It's like my FM has been cutting me some slack -- haven't felt as achy as usual, although still needing lots of sleep. I got my MRI and MRA results yesterday (head). The radiology clinic where I had them done didn't get them to my neurologist in time for my first appt, so I thought I'd get them myself and bring them next week just in case. They scared me to death. I feel sure that if any of this was truly serious somebody would have told me. But it was so hard to read them -- so scary I wish I hadn't gotten them. Better off not wondering about them. Evidently I have two somethings that the radiologist said might be cysts, he wasn't sure -- one is in the sphenoid sinus (back of the head), and the other is in the left ventricle of the brain. He did not suggest tumors, and I'm sure that they are certainly not, or that neurosurgeon would have said something. But the radiologist did suggest several things that my neurosurgeon never passed along to me, and I'm bothered by that. First off, the presence of cysts -- my sinuses are in very poor shape, and now I can see why! I'm trying to get in to see an otolaryngologist to see about having a sinus lavage. But there were vascular (vein) problems that the neurosurgeon also did not tell me about. They may be minor problems, but it makes me angry/scared/frustratrated that he did not tell me anything. None of the major veins have problems at all, but he thought I had something he called " acquired microvascular disease. " I have not been able to find out even *vaguely* what this is, except what it sounds like -- something funky with my smaller veins. These tests were done in June. I have been having so many neuro weirdnesses going on in the past month, I guess I'll ask my neurologist (not to be confused iwth the neurosurgeon I saw last summer) if I can have another MRI of the head. And I couldn't help it -- can't help it -- I feel so scared in the pit of my stomach. I know I should just let it lie, not worry about it until the time comes, but it was a HUGE shock to read some of that stuff. Most of it, to be honest, I am so far from understanding that it doesn't mean squat to me. But some of it made sense, and what did, scared me. And made me mad, too. Boy am I going to talk frankly with this neurologist next week. I want to know EVERYTHING. If anybody knows what any of this means, please let me know? I'm nto as scared today, but man, I hate not knowing. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I agree with this. They have a technical name for EVERY symptom or condition that a person has. When I was diagnosed with a sleeping disorder (no REM) he called it " Idiopathic Hypersomnalence " sounds pretty bad huh? It means " she is really tired and we don't know why " . The Idiopathic just means that they don't know why. You could have a red spot on your arm from where you slept and they would call it " hyper edema limbitis " (I just made that up Anyway, with my daughter they have used scary language and it was not any thing abnormal. They said she had some heart issue and called it a scary name (I can't remember it now) and I was really concerned, only to find out, it was just a description of her heart but it is common in 50% of all babies. It was a description of her, but not a disease or abnormality, just a characteristic. Sincerely, Pamela Rauch Neuro developments Howdy -- Been keeping my head down, working, sleeping, so I'm sorry I haven't been keeping up with much. It's like my FM has been cutting me some slack -- haven't felt as achy as usual, although still needing lots of sleep. I got my MRI and MRA results yesterday (head). The radiology clinic where I had them done didn't get them to my neurologist in time for my first appt, so I thought I'd get them myself and bring them next week just in case. They scared me to death. I feel sure that if any of this was truly serious somebody would have told me. But it was so hard to read them -- so scary I wish I hadn't gotten them. Better off not wondering about them. Evidently I have two somethings that the radiologist said might be cysts, he wasn't sure -- one is in the sphenoid sinus (back of the head), and the other is in the left ventricle of the brain. He did not suggest tumors, and I'm sure that they are certainly not, or that neurosurgeon would have said something. But the radiologist did suggest several things that my neurosurgeon never passed along to me, and I'm bothered by that. First off, the presence of cysts -- my sinuses are in very poor shape, and now I can see why! I'm trying to get in to see an otolaryngologist to see about having a sinus lavage. But there were vascular (vein) problems that the neurosurgeon also did not tell me about. They may be minor problems, but it makes me angry/scared/frustratrated that he did not tell me anything. None of the major veins have problems at all, but he thought I had something he called " acquired microvascular disease. " I have not been able to find out even *vaguely* what this is, except what it sounds like -- something funky with my smaller veins. These tests were done in June. I have been having so many neuro weirdnesses going on in the past month, I guess I'll ask my neurologist (not to be confused iwth the neurosurgeon I saw last summer) if I can have another MRI of the head. And I couldn't help it -- can't help it -- I feel so scared in the pit of my stomach. I know I should just let it lie, not worry about it until the time comes, but it was a HUGE shock to read some of that stuff. Most of it, to be honest, I am so far from understanding that it doesn't mean squat to me. But some of it made sense, and what did, scared me. And made me mad, too. Boy am I going to talk frankly with this neurologist next week. I want to know EVERYTHING. If anybody knows what any of this means, please let me know? I'm nto as scared today, but man, I hate not knowing. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I agree with this. They have a technical name for EVERY symptom or condition that a person has. When I was diagnosed with a sleeping disorder (no REM) he called it " Idiopathic Hypersomnalence " sounds pretty bad huh? It means " she is really tired and we don't know why " . The Idiopathic just means that they don't know why. You could have a red spot on your arm from where you slept and they would call it " hyper edema limbitis " (I just made that up Anyway, with my daughter they have used scary language and it was not any thing abnormal. They said she had some heart issue and called it a scary name (I can't remember it now) and I was really concerned, only to find out, it was just a description of her heart but it is common in 50% of all babies. It was a description of her, but not a disease or abnormality, just a characteristic. Sincerely, Pamela Rauch Neuro developments Howdy -- Been keeping my head down, working, sleeping, so I'm sorry I haven't been keeping up with much. It's like my FM has been cutting me some slack -- haven't felt as achy as usual, although still needing lots of sleep. I got my MRI and MRA results yesterday (head). The radiology clinic where I had them done didn't get them to my neurologist in time for my first appt, so I thought I'd get them myself and bring them next week just in case. They scared me to death. I feel sure that if any of this was truly serious somebody would have told me. But it was so hard to read them -- so scary I wish I hadn't gotten them. Better off not wondering about them. Evidently I have two somethings that the radiologist said might be cysts, he wasn't sure -- one is in the sphenoid sinus (back of the head), and the other is in the left ventricle of the brain. He did not suggest tumors, and I'm sure that they are certainly not, or that neurosurgeon would have said something. But the radiologist did suggest several things that my neurosurgeon never passed along to me, and I'm bothered by that. First off, the presence of cysts -- my sinuses are in very poor shape, and now I can see why! I'm trying to get in to see an otolaryngologist to see about having a sinus lavage. But there were vascular (vein) problems that the neurosurgeon also did not tell me about. They may be minor problems, but it makes me angry/scared/frustratrated that he did not tell me anything. None of the major veins have problems at all, but he thought I had something he called " acquired microvascular disease. " I have not been able to find out even *vaguely* what this is, except what it sounds like -- something funky with my smaller veins. These tests were done in June. I have been having so many neuro weirdnesses going on in the past month, I guess I'll ask my neurologist (not to be confused iwth the neurosurgeon I saw last summer) if I can have another MRI of the head. And I couldn't help it -- can't help it -- I feel so scared in the pit of my stomach. I know I should just let it lie, not worry about it until the time comes, but it was a HUGE shock to read some of that stuff. Most of it, to be honest, I am so far from understanding that it doesn't mean squat to me. But some of it made sense, and what did, scared me. And made me mad, too. Boy am I going to talk frankly with this neurologist next week. I want to know EVERYTHING. If anybody knows what any of this means, please let me know? I'm nto as scared today, but man, I hate not knowing. Best, Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 I know you're both so right. I knew I shouldn't even READ it, because it would be filled with this medicalese that would sound awful to me. I'm actually pretty good with most medical terminology, but I'm speaking in broad terms -- now when you get to the nitty-gritty of neuro-speak, you've lost me. Like this -- " There is increased T2 and FLAIR signal seen in the deep white matter of the left frontal lobe and left parietal lobe with extensive atrophy of the left parietal deep white matter and intact overlying gray matter. These findings are suggestive of periventricular leukomalacia related to a developmental vascular insult, I cannot definitively rule out acquired microvascular disease. " Excuse me -- translation please??? LOLOL! T2? FLAIR? What do those stand for? At the same time, you say " extensive atrophy " and I know what THAT means. And what in God's good green earth is a " developmental vascular insult? " Somebody cussed at my veins when I was a baby??? It's two pages of this kind of talk, and I do not understand 90% of it. So I guess I'll just wait till next week, talk to my neuro dude (I see Dr. D'Cruz in Lubbock), and maybe eventually find out what that all means. *HUGS* THank you guys for bringing me back to earth -- when I hear about white matter I start thinking about Alzheimer's, and oh man, can I go to town from there. Yeesh. I need to think about something else, like where I'm going to find a nice new menorah in Lubbock, TX. *more hugs* Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 I know you're both so right. I knew I shouldn't even READ it, because it would be filled with this medicalese that would sound awful to me. I'm actually pretty good with most medical terminology, but I'm speaking in broad terms -- now when you get to the nitty-gritty of neuro-speak, you've lost me. Like this -- " There is increased T2 and FLAIR signal seen in the deep white matter of the left frontal lobe and left parietal lobe with extensive atrophy of the left parietal deep white matter and intact overlying gray matter. These findings are suggestive of periventricular leukomalacia related to a developmental vascular insult, I cannot definitively rule out acquired microvascular disease. " Excuse me -- translation please??? LOLOL! T2? FLAIR? What do those stand for? At the same time, you say " extensive atrophy " and I know what THAT means. And what in God's good green earth is a " developmental vascular insult? " Somebody cussed at my veins when I was a baby??? It's two pages of this kind of talk, and I do not understand 90% of it. So I guess I'll just wait till next week, talk to my neuro dude (I see Dr. D'Cruz in Lubbock), and maybe eventually find out what that all means. *HUGS* THank you guys for bringing me back to earth -- when I hear about white matter I start thinking about Alzheimer's, and oh man, can I go to town from there. Yeesh. I need to think about something else, like where I'm going to find a nice new menorah in Lubbock, TX. *more hugs* Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 I know you're both so right. I knew I shouldn't even READ it, because it would be filled with this medicalese that would sound awful to me. I'm actually pretty good with most medical terminology, but I'm speaking in broad terms -- now when you get to the nitty-gritty of neuro-speak, you've lost me. Like this -- " There is increased T2 and FLAIR signal seen in the deep white matter of the left frontal lobe and left parietal lobe with extensive atrophy of the left parietal deep white matter and intact overlying gray matter. These findings are suggestive of periventricular leukomalacia related to a developmental vascular insult, I cannot definitively rule out acquired microvascular disease. " Excuse me -- translation please??? LOLOL! T2? FLAIR? What do those stand for? At the same time, you say " extensive atrophy " and I know what THAT means. And what in God's good green earth is a " developmental vascular insult? " Somebody cussed at my veins when I was a baby??? It's two pages of this kind of talk, and I do not understand 90% of it. So I guess I'll just wait till next week, talk to my neuro dude (I see Dr. D'Cruz in Lubbock), and maybe eventually find out what that all means. *HUGS* THank you guys for bringing me back to earth -- when I hear about white matter I start thinking about Alzheimer's, and oh man, can I go to town from there. Yeesh. I need to think about something else, like where I'm going to find a nice new menorah in Lubbock, TX. *more hugs* Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, Oh hon, I wish I could help ya out on this. I'm such a dummy sometimes when it comes to all the jargon. I just wanted to say to try to keep your head up and that you are in my prayers. If you need anything, feel free to email me. Take care hon. Love and Prayers, Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, Oh hon, I wish I could help ya out on this. I'm such a dummy sometimes when it comes to all the jargon. I just wanted to say to try to keep your head up and that you are in my prayers. If you need anything, feel free to email me. Take care hon. Love and Prayers, Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I'm reading the prescription that I'm to take to the MRI people and it reads " MRI head and spine...double dose gd and flair...r/s MS...r/s Myelopathy. I'm convinced that I'm going to drop dead any day now *lol* I told my mom that he must really think I have MS because that's what he's looking for on the MRI...do I buy a wheel chair now?? YIKES!!!! I do tend to be a little bit of a drama queen =) Anne Re: Neuro developments I know you're both so right. I knew I shouldn't even READ it, because it would be filled with this medicalese that would sound awful to me. I'm actually pretty good with most medical terminology, but I'm speaking in broad terms -- now when you get to the nitty-gritty of neuro-speak, you've lost me. Like this -- " There is increased T2 and FLAIR signal seen in the deep white matter of the left frontal lobe and left parietal lobe with extensive atrophy of the left parietal deep white matter and intact overlying gray matter. These findings are suggestive of periventricular leukomalacia related to a developmental vascular insult, I cannot definitively rule out acquired microvascular disease. " Excuse me -- translation please??? LOLOL! T2? FLAIR? What do those stand for? At the same time, you say " extensive atrophy " and I know what THAT means. And what in God's good green earth is a " developmental vascular insult? " Somebody cussed at my veins when I was a baby??? It's two pages of this kind of talk, and I do not understand 90% of it. So I guess I'll just wait till next week, talk to my neuro dude (I see Dr. D'Cruz in Lubbock), and maybe eventually find out what that all means. *HUGS* THank you guys for bringing me back to earth -- when I hear about white matter I start thinking about Alzheimer's, and oh man, can I go to town from there. Yeesh. I need to think about something else, like where I'm going to find a nice new menorah in Lubbock, TX. *more hugs* Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ SEND POST TO: fibromyalgia-cfs HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html LIST OWNER: -owner Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 Em, I'm reading the prescription that I'm to take to the MRI people and it reads " MRI head and spine...double dose gd and flair...r/s MS...r/s Myelopathy. I'm convinced that I'm going to drop dead any day now *lol* I told my mom that he must really think I have MS because that's what he's looking for on the MRI...do I buy a wheel chair now?? YIKES!!!! I do tend to be a little bit of a drama queen =) Anne Re: Neuro developments I know you're both so right. I knew I shouldn't even READ it, because it would be filled with this medicalese that would sound awful to me. I'm actually pretty good with most medical terminology, but I'm speaking in broad terms -- now when you get to the nitty-gritty of neuro-speak, you've lost me. Like this -- " There is increased T2 and FLAIR signal seen in the deep white matter of the left frontal lobe and left parietal lobe with extensive atrophy of the left parietal deep white matter and intact overlying gray matter. These findings are suggestive of periventricular leukomalacia related to a developmental vascular insult, I cannot definitively rule out acquired microvascular disease. " Excuse me -- translation please??? LOLOL! T2? FLAIR? What do those stand for? At the same time, you say " extensive atrophy " and I know what THAT means. And what in God's good green earth is a " developmental vascular insult? " Somebody cussed at my veins when I was a baby??? It's two pages of this kind of talk, and I do not understand 90% of it. So I guess I'll just wait till next week, talk to my neuro dude (I see Dr. D'Cruz in Lubbock), and maybe eventually find out what that all means. *HUGS* THank you guys for bringing me back to earth -- when I hear about white matter I start thinking about Alzheimer's, and oh man, can I go to town from there. Yeesh. I need to think about something else, like where I'm going to find a nice new menorah in Lubbock, TX. *more hugs* Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ SEND POST TO: fibromyalgia-cfs HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html LIST OWNER: -owner Quote
Guest guest Posted November 30, 2001 Report Posted November 30, 2001 At 12:36 PM 11/30/2001 -0600, Anne Scarborough wrote: >I do tend to be a little bit of a drama queen =) Oh I am sure that I do too! LOL! And man, I hope you do NOT have MS. That is one of the things they are looking for for me, too. I do have some plaque deposits, so I was upset to see that; it may be totally unrelated, but it sorta freaked me. And look up " arachnoid cyst, " oh my God, it sounds like my head will explode by the time I'm 40. LOLOLOL If any of you have seen " Miss Congeniality, " you'll know why I'm now saying " Dalai Lama, Dalai Lama " over and over again. LOLOL And there's always " Kindergarten Cop. " " Probably a tumor. " " It's NOT A TUMUH! " *warm hugs to you great folks* Em ~~~~~~~~~~~~~ It is the tale, not he who tells it. ~~~~~~~~~~~~~ Quote
Guest guest Posted December 2, 2001 Report Posted December 2, 2001 << I have just found out I have to have 4 MRI's because my neuro thinks I might have MS...now that scares me to death and of course I've looked it up on the Internet which has only freaked me out even more. >> My sister and a couple of close friends have MS. My sister for at least40 years and is still hanging in there. She does what the doctor tells her and she is taking those new shots which are working wonders on people with MS. One of the others I see a lot of as we live in the same city. She also takes the shots but she does not follow her doctors instructions. She drinks to much, smokes to much and does not take the rest that she is supposed to be getting. Stays of late partying and all ready had some complications. The other friend lives a bit far away but does pretty well. She does smoke and once in a while parties to late but is doing great. What I am trying to say is that you have to do what is necessary for your health with MS. Do as your doctor tells you to if you have MS. Some of the things that I listed above are not necessary and I am not saying that you drink, smoke and all the rest because I do not know. They are just examples of the sort of thing that you need to do and not to do. My sister has been in remisson for 30 years until just lately. They put her on the shots and she is doing fine. You can do and live well with MS. My sister is ample proof of that. Take care, Irene Books may well be the only true magic Alice Hoffman Quote
Guest guest Posted December 2, 2001 Report Posted December 2, 2001 << I have just found out I have to have 4 MRI's because my neuro thinks I might have MS...now that scares me to death and of course I've looked it up on the Internet which has only freaked me out even more. >> My sister and a couple of close friends have MS. My sister for at least40 years and is still hanging in there. She does what the doctor tells her and she is taking those new shots which are working wonders on people with MS. One of the others I see a lot of as we live in the same city. She also takes the shots but she does not follow her doctors instructions. She drinks to much, smokes to much and does not take the rest that she is supposed to be getting. Stays of late partying and all ready had some complications. The other friend lives a bit far away but does pretty well. She does smoke and once in a while parties to late but is doing great. What I am trying to say is that you have to do what is necessary for your health with MS. Do as your doctor tells you to if you have MS. Some of the things that I listed above are not necessary and I am not saying that you drink, smoke and all the rest because I do not know. They are just examples of the sort of thing that you need to do and not to do. My sister has been in remisson for 30 years until just lately. They put her on the shots and she is doing fine. You can do and live well with MS. My sister is ample proof of that. Take care, Irene Books may well be the only true magic Alice Hoffman Quote
Guest guest Posted December 2, 2001 Report Posted December 2, 2001 << I have just found out I have to have 4 MRI's because my neuro thinks I might have MS...now that scares me to death and of course I've looked it up on the Internet which has only freaked me out even more. >> My sister and a couple of close friends have MS. My sister for at least40 years and is still hanging in there. She does what the doctor tells her and she is taking those new shots which are working wonders on people with MS. One of the others I see a lot of as we live in the same city. She also takes the shots but she does not follow her doctors instructions. She drinks to much, smokes to much and does not take the rest that she is supposed to be getting. Stays of late partying and all ready had some complications. The other friend lives a bit far away but does pretty well. She does smoke and once in a while parties to late but is doing great. What I am trying to say is that you have to do what is necessary for your health with MS. Do as your doctor tells you to if you have MS. Some of the things that I listed above are not necessary and I am not saying that you drink, smoke and all the rest because I do not know. They are just examples of the sort of thing that you need to do and not to do. My sister has been in remisson for 30 years until just lately. They put her on the shots and she is doing fine. You can do and live well with MS. My sister is ample proof of that. Take care, Irene Books may well be the only true magic Alice Hoffman Quote
Guest guest Posted December 3, 2001 Report Posted December 3, 2001 Thanks Irene! I only know of one person who had MS...a friends father and he died of it. Not exactly an encouring example =( My party days are over and have been for a long time. I'm lucky if I can stay awake long enough to see the news *lol* I rarely drink, never smoked, etc... I will do what the doctor tells me. I won't know anything though until Dec. 27th. Anne Re: Neuro developments << I have just found out I have to have 4 MRI's because my neuro thinks I might have MS...now that scares me to death and of course I've looked it up on the Internet which has only freaked me out even more. >> My sister and a couple of close friends have MS. My sister for at least40 years and is still hanging in there. She does what the doctor tells her and she is taking those new shots which are working wonders on people with MS. One of the others I see a lot of as we live in the same city. She also takes the shots but she does not follow her doctors instructions. She drinks to much, smokes to much and does not take the rest that she is supposed to be getting. Stays of late partying and all ready had some complications. The other friend lives a bit far away but does pretty well. She does smoke and once in a while parties to late but is doing great. What I am trying to say is that you have to do what is necessary for your health with MS. Do as your doctor tells you to if you have MS. Some of the things that I listed above are not necessary and I am not saying that you drink, smoke and all the rest because I do not know. They are just examples of the sort of thing that you need to do and not to do. My sister has been in remisson for 30 years until just lately. They put her on the shots and she is doing fine. You can do and live well with MS. My sister is ample proof of that. Take care, Irene Books may well be the only true magic Alice Hoffman Quote
Guest guest Posted December 3, 2001 Report Posted December 3, 2001 Thanks Irene! I only know of one person who had MS...a friends father and he died of it. Not exactly an encouring example =( My party days are over and have been for a long time. I'm lucky if I can stay awake long enough to see the news *lol* I rarely drink, never smoked, etc... I will do what the doctor tells me. I won't know anything though until Dec. 27th. Anne Re: Neuro developments << I have just found out I have to have 4 MRI's because my neuro thinks I might have MS...now that scares me to death and of course I've looked it up on the Internet which has only freaked me out even more. >> My sister and a couple of close friends have MS. My sister for at least40 years and is still hanging in there. She does what the doctor tells her and she is taking those new shots which are working wonders on people with MS. One of the others I see a lot of as we live in the same city. She also takes the shots but she does not follow her doctors instructions. She drinks to much, smokes to much and does not take the rest that she is supposed to be getting. Stays of late partying and all ready had some complications. The other friend lives a bit far away but does pretty well. She does smoke and once in a while parties to late but is doing great. What I am trying to say is that you have to do what is necessary for your health with MS. Do as your doctor tells you to if you have MS. Some of the things that I listed above are not necessary and I am not saying that you drink, smoke and all the rest because I do not know. They are just examples of the sort of thing that you need to do and not to do. My sister has been in remisson for 30 years until just lately. They put her on the shots and she is doing fine. You can do and live well with MS. My sister is ample proof of that. Take care, Irene Books may well be the only true magic Alice Hoffman Quote
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