Guest guest Posted October 9, 2006 Report Share Posted October 9, 2006 Hi everyone, my name is Marc and I appreciate being approved as a member. My mom was diagnosed with PSC in November of last year and we know very little about it. She has been sick for the last two weeks or so and is so yellow I told her she should be Marge Simpson for Halloween. She had an appointment scheduled with a Dr. Boyer at University Medical Center here in Tucson, but her refering Dr. called and said that her insurance will only cover an initial visit with him and not anything else. We hoped to get her into the Mayo Clinic in sdale but again... insurance would not cover it. Her refering Dr. does not have prior experience with this disease, only textbook knowledge and it's frustrating. I would appreciate any guiding information people may have regarding what to eat and not to eat, any supplements or vitamins she should take, (she is taking milk thistle along with Ursodiol, Cholestyramine, and Hydroxyzine however the Hydroxyzine wasn't helping much with the itching and so this Dr. prescribed 50mg dosage of Naltrexone and it really had a bad effect on her, made her very groggy and made her pass out. After we read the literature stating NOT to take if you have a serious liver condition, we called the Dr. who then prescribed the Cholestyramine.) This is just so new to us and we would really be grateful for any insight. Thank you so much again and if anyone is able to, please contact me at MAQ10970@... with any information. Wishing you all peace, love and health. Marc Quihuis Quote Link to comment Share on other sites More sharing options...
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