Guest guest Posted September 7, 2006 Report Posted September 7, 2006 Janice, Where are you located? Those transplant stories sound like the rosiest scenarios I've ever heard, if a transplant can be rosy. The waiting list and time depends very much on where you are. When I met with the transplant team they told me that I should begin speaking to family about being living donors because of the long waiting list in Boston. They also thought that because part of my liver is relatively healthy but my common hepatic duct is blocked, that I might not develop cirrhosis (and a correspondingly high MELD score) in time for a cadaveric transplant, before infections took their toll. I have worked with chemicals all my adult life. However, PSC is much more strongly correlated with inflammatory bowel disease than with any occupation. Many of our members are parents of children and teenagers with PSC, and their chemical exposures must be quite small compared to mine. That said, being a stickler for proper handling of chemicals is always a good idea, and could save someone's life, and the environment. Martha (MA) 43, UC 1979, PSC 1992 I understand, from the doctors, that patients with PSC seem to receive a liver faster than those with hepatitis or chirrosis. 's doctor has two other patients with this disease and both received their transplants last year and are doing wonderful. The each only had to wait approx. 2 weeks and recouperated rather quickly. In fact, they both were back at their jobs within 2 - 4 weeks post surgery. I am curious as to how many other chemical operators have PSC. I still have to wonder if genetics plays a role, too. Quote
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