Re: new member, some quick questions

[Guest guest]

,

I’m so glad there is a clinic in Dallas! I am having

trouble restraining myself since my own dx. I’m quite sure that every

problem everyone around me mentions would be cured by a gluten-free diet! When I

learn how to walk the line between offering helpful information and being a

busy-body, I hope I’ll be able to help others find health also.

You’ll be a great resource for your

gf parents now! They’re lucky to have you there. Clinics are places

parents expect to have their assumptions challenged (a little bit).

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Jennife813@...

Sent: Wednesday, January 11, 2006

11:04 AM

To: SillyYaks

Subject: Re: new

member, some quick questions

I work with SI kids in Dallas,

TX at a private clinic. I have a

new-found respect (although I already had plenty !!!!!!!!!!!!!) for those

parents having to do the gluten-free thing now that I am having to do it

myself. When I first became an OT I didn't even know what gluten was Now, I

wish a lot of my patients would try a gluten-free diet.

jennifer

[Guest guest]

,

I’m so glad there is a clinic in Dallas! I am having

trouble restraining myself since my own dx. I’m quite sure that every

problem everyone around me mentions would be cured by a gluten-free diet! When I

learn how to walk the line between offering helpful information and being a

busy-body, I hope I’ll be able to help others find health also.

You’ll be a great resource for your

gf parents now! They’re lucky to have you there. Clinics are places

parents expect to have their assumptions challenged (a little bit).

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Jennife813@...

Sent: Wednesday, January 11, 2006

11:04 AM

To: SillyYaks

Subject: Re: new

member, some quick questions

I work with SI kids in Dallas,

TX at a private clinic. I have a

new-found respect (although I already had plenty !!!!!!!!!!!!!) for those

parents having to do the gluten-free thing now that I am having to do it

myself. When I first became an OT I didn't even know what gluten was Now, I

wish a lot of my patients would try a gluten-free diet.

jennifer

[Guest guest]

I've found them at whole foods. Kerri" A. Simms" wrote: Both of our local healthfood stores stock them (we're in Virginia) but their website is www.wellshirefarms.com --maybe they would have a list of their retail locations where you are or you could ask your local store to stock them--you just might want to direct order them first and make sure you like them. Re: new member, some quick questions> > > I agree, the fishsticks are really good ( I try to feed my inner child > at least once a week with something nutritionally bankrupt). I tried > the chicken nuggets too and ewwww. They were very dry and I wasn't > really sure there was chicken in there, more like shredded and pressed > cardboard. I was disappointed because I was really craving chicken > nuggets at the time and these weren't even close. I'm going back for > more fish, though just in case I can't find them in the

future.> Lori in ATL> > >> > > > > > > >

[Guest guest]

I've found them at whole foods. Kerri" A. Simms" wrote: Both of our local healthfood stores stock them (we're in Virginia) but their website is www.wellshirefarms.com --maybe they would have a list of their retail locations where you are or you could ask your local store to stock them--you just might want to direct order them first and make sure you like them. Re: new member, some quick questions> > > I agree, the fishsticks are really good ( I try to feed my inner child > at least once a week with something nutritionally bankrupt). I tried > the chicken nuggets too and ewwww. They were very dry and I wasn't > really sure there was chicken in there, more like shredded and pressed > cardboard. I was disappointed because I was really craving chicken > nuggets at the time and these weren't even close. I'm going back for > more fish, though just in case I can't find them in the

future.> Lori in ATL> > >> > > > > > > >

[Guest guest]

I've found them at whole foods. Kerri" A. Simms" wrote: Both of our local healthfood stores stock them (we're in Virginia) but their website is www.wellshirefarms.com --maybe they would have a list of their retail locations where you are or you could ask your local store to stock them--you just might want to direct order them first and make sure you like them. Re: new member, some quick questions> > > I agree, the fishsticks are really good ( I try to feed my inner child > at least once a week with something nutritionally bankrupt). I tried > the chicken nuggets too and ewwww. They were very dry and I wasn't > really sure there was chicken in there, more like shredded and pressed > cardboard. I was disappointed because I was really craving chicken > nuggets at the time and these weren't even close. I'm going back for > more fish, though just in case I can't find them in the

future.> Lori in ATL> > >> > > > > > > >

[Guest guest]

Oh hurray, thank you from me, too. I’m

on the South Shore, Kristy, and have just been

thinking about finding a GI. My primary diagnosed me, but I might want further

testing for allergies also. I definitely don’t want to deal with the GI

personality you describe. Doesn’t it figure that we have an actual Celiac Center

right here in Boston?

We have everything else!

Stick to your guns. You know your own self

under those layers of doctor voices telling you that you’re nuts.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

============================================================================

Bingham McCutchen LLP Circular 230 Notice: To ensure compliance with IRS requirements, we inform you that any U.S. federal tax advice contained in this communication is not intended or written to be used, and cannot be used by any taxpayer, for the purpose of avoiding any federal tax penalties. Any legal advice expressed in this message is being delivered to you solely for your use in connection with the matters addressed herein and may not be relied upon by any other person or entity or used for any other purpose without our prior written consent.

============================================================================

[Guest guest]

Oh hurray, thank you from me, too. I’m

on the South Shore, Kristy, and have just been

thinking about finding a GI. My primary diagnosed me, but I might want further

testing for allergies also. I definitely don’t want to deal with the GI

personality you describe. Doesn’t it figure that we have an actual Celiac Center

right here in Boston?

We have everything else!

Stick to your guns. You know your own self

under those layers of doctor voices telling you that you’re nuts.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

============================================================================

Bingham McCutchen LLP Circular 230 Notice: To ensure compliance with IRS requirements, we inform you that any U.S. federal tax advice contained in this communication is not intended or written to be used, and cannot be used by any taxpayer, for the purpose of avoiding any federal tax penalties. Any legal advice expressed in this message is being delivered to you solely for your use in connection with the matters addressed herein and may not be relied upon by any other person or entity or used for any other purpose without our prior written consent.

============================================================================

[Guest guest]

Oh hurray, thank you from me, too. I’m

on the South Shore, Kristy, and have just been

thinking about finding a GI. My primary diagnosed me, but I might want further

testing for allergies also. I definitely don’t want to deal with the GI

personality you describe. Doesn’t it figure that we have an actual Celiac Center

right here in Boston?

We have everything else!

Stick to your guns. You know your own self

under those layers of doctor voices telling you that you’re nuts.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

============================================================================

Bingham McCutchen LLP Circular 230 Notice: To ensure compliance with IRS requirements, we inform you that any U.S. federal tax advice contained in this communication is not intended or written to be used, and cannot be used by any taxpayer, for the purpose of avoiding any federal tax penalties. Any legal advice expressed in this message is being delivered to you solely for your use in connection with the matters addressed herein and may not be relied upon by any other person or entity or used for any other purpose without our prior written consent.

============================================================================

[Guest guest]

Kristy,

After dealing with docs that do not listen my only advice is to find a new doctor. you probably can't find one much worse and hopefully you will find one that will help you.

I can also tell you the doctors that do not listen is not your problem but THEIRS! It is not anything you have done wrong and they need to listen to you. After all who is ultimately paying their paycheck? So I hope you can find one and not feel bad that you are changing.

Gluten Free makes me feel good and it taste good too!

[Guest guest]

Kristy,

After dealing with docs that do not listen my only advice is to find a new doctor. you probably can't find one much worse and hopefully you will find one that will help you.

I can also tell you the doctors that do not listen is not your problem but THEIRS! It is not anything you have done wrong and they need to listen to you. After all who is ultimately paying their paycheck? So I hope you can find one and not feel bad that you are changing.

Gluten Free makes me feel good and it taste good too!

[Guest guest]

Kristy,

After dealing with docs that do not listen my only advice is to find a new doctor. you probably can't find one much worse and hopefully you will find one that will help you.

I can also tell you the doctors that do not listen is not your problem but THEIRS! It is not anything you have done wrong and they need to listen to you. After all who is ultimately paying their paycheck? So I hope you can find one and not feel bad that you are changing.

Gluten Free makes me feel good and it taste good too!

[Guest guest]

Thanks you SO MUCH DonnaJ

I’ll give them a call right away.

Best,

Kristy

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

============================================================================

Bingham McCutchen LLP Circular 230 Notice: To ensure compliance with IRS requirements, we inform you that any U.S. federal tax advice contained in this communication is not intended or written to be used, and cannot be used by any taxpayer, for the purpose of avoiding any federal tax penalties. Any legal advice expressed in this message is being delivered to you solely for your use in connection with the matters addressed herein and may not be relied upon by any other person or entity or used for any other purpose without our prior written consent.

============================================================================

[Guest guest]

Thanks you SO MUCH DonnaJ

I’ll give them a call right away.

Best,

Kristy

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

============================================================================

Bingham McCutchen LLP Circular 230 Notice: To ensure compliance with IRS requirements, we inform you that any U.S. federal tax advice contained in this communication is not intended or written to be used, and cannot be used by any taxpayer, for the purpose of avoiding any federal tax penalties. Any legal advice expressed in this message is being delivered to you solely for your use in connection with the matters addressed herein and may not be relied upon by any other person or entity or used for any other purpose without our prior written consent.

============================================================================

[Guest guest]

Thanks you SO MUCH DonnaJ

I’ll give them a call right away.

Best,

Kristy

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

============================================================================

Bingham McCutchen LLP Circular 230 Notice: To ensure compliance with IRS requirements, we inform you that any U.S. federal tax advice contained in this communication is not intended or written to be used, and cannot be used by any taxpayer, for the purpose of avoiding any federal tax penalties. Any legal advice expressed in this message is being delivered to you solely for your use in connection with the matters addressed herein and may not be relied upon by any other person or entity or used for any other purpose without our prior written consent.

============================================================================

[Guest guest]

Thanks Laurie. I definitely will stick to

my guns. (I’m Italian and stubborn so I really don’t have a choice

in the matterJ). I just want to feel better, that’s all. Is that too much

to ask???? LOL

Good luck to you!

Kristy

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Laurie Bilyeu

Sent: Wednesday, January 11, 2006

3:03 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Oh hurray, thank you from me, too.

I’m on the South

Shore, Kristy, and have

just been thinking about finding a GI. My primary diagnosed me, but I might

want further testing for allergies also. I definitely don’t want to deal

with the GI personality you describe. Doesn’t it figure that we have an

actual Celiac Center

right here in Boston?

We have everything else!

Stick to your guns. You know your own self

under those layers of doctor voices telling you that you’re nuts.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new member,

some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

============================================================================

Bingham McCutchen LLP Circular 230 Notice: To ensure compliance with IRS requirements, we inform you that any U.S. federal tax advice contained in this communication is not intended or written to be used, and cannot be used by any taxpayer, for the purpose of avoiding any federal tax penalties. Any legal advice expressed in this message is being delivered to you solely for your use in connection with the matters addressed herein and may not be relied upon by any other person or entity or used for any other purpose without our prior written consent.

============================================================================

[Guest guest]

Thanks Laurie. I definitely will stick to

my guns. (I’m Italian and stubborn so I really don’t have a choice

in the matterJ). I just want to feel better, that’s all. Is that too much

to ask???? LOL

Good luck to you!

Kristy

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Laurie Bilyeu

Sent: Wednesday, January 11, 2006

3:03 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Oh hurray, thank you from me, too.

I’m on the South

Shore, Kristy, and have

just been thinking about finding a GI. My primary diagnosed me, but I might

want further testing for allergies also. I definitely don’t want to deal

with the GI personality you describe. Doesn’t it figure that we have an

actual Celiac Center

right here in Boston?

We have everything else!

Stick to your guns. You know your own self

under those layers of doctor voices telling you that you’re nuts.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new member,

some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

============================================================================

Bingham McCutchen LLP Circular 230 Notice: To ensure compliance with IRS requirements, we inform you that any U.S. federal tax advice contained in this communication is not intended or written to be used, and cannot be used by any taxpayer, for the purpose of avoiding any federal tax penalties. Any legal advice expressed in this message is being delivered to you solely for your use in connection with the matters addressed herein and may not be relied upon by any other person or entity or used for any other purpose without our prior written consent.

============================================================================

[Guest guest]

Thanks Laurie. I definitely will stick to

my guns. (I’m Italian and stubborn so I really don’t have a choice

in the matterJ). I just want to feel better, that’s all. Is that too much

to ask???? LOL

Good luck to you!

Kristy

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Laurie Bilyeu

Sent: Wednesday, January 11, 2006

3:03 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Oh hurray, thank you from me, too.

I’m on the South

Shore, Kristy, and have

just been thinking about finding a GI. My primary diagnosed me, but I might

want further testing for allergies also. I definitely don’t want to deal

with the GI personality you describe. Doesn’t it figure that we have an

actual Celiac Center

right here in Boston?

We have everything else!

Stick to your guns. You know your own self

under those layers of doctor voices telling you that you’re nuts.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of White, Donna M.

Sent: Wednesday, January 11, 2006

12:48 PM

To: SillyYaks

Subject: RE: new member,

some quick questions

Hi Kristy: You should look at the Beth Israel

Deaconess Celiac

Center. Dr.

is very nice and the head of the center. Melinda Dennis is the

nutritionist and is wonderful. She can really understand what you are

going through because she also had CD. Give it a try. Donna

Donna White

in Boston

new member,

some quick questions

Hi,

I am Sally, mom to (Mattie) 6 1/2 who was

just diagnosed with

Celiac through biopsy. Unfortunately, Mattie

has always had many

sensory issues regarding food (Mattie is also

special needs)So...

many of the things he likes to eat have gluten in

them and he doesn't

eat typical stuff that doesn't have gluten like

fruits and

vegetables. We are hoping that this is the

perfect opportunity to

introduce natural gluten free foods back into his

diet but think this

will take awhile!

So.. our big concern is that he will have a really

rough time at

first and I am hoping all of the experts in this

group can help us

out. His only symptom we noticed was

delayed growth. So here are a

few questions that I am sure many people have

asked so I am sorry to

do it again.

1) Is there any type of pretzel or goldfish

cracker type that is

gluten free out there? what about regular

potato chips?

2) What about something similar to

spaghettios?

3) Do I need to worry about ground

beef at all?

4) Is there a tasty white bread out

there? His staple was pb & j on

martin's potato bread, store bought vs. homemade..

I guess that's it for now, please excuse my

ignorance, brand new to

this,

thanks,

Sally

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[Guest guest]

Thanks . Ya know, it really does

make you feel like you’re asking too much and being a pain. When in

reality, the actual doctor is causing the pain because they are unable and

unwilling to listen to you. Thanks for the advice. It really helps me too be

strong and keep on truckin’.

Thanks again,

Kristy

From: SillyYaks [mailto:SillyYaks ] On Behalf Of Marvin and Bjorge

Sent: Wednesday, January 11, 2006

3:21 PM

To: SillyYaks

Subject: RE: new

member, some quick questions

Kristy,

After dealing with docs that do not listen

my only advice is to find a new doctor. you probably can't find one much

worse and hopefully you will find one that will help you.

I can also tell you the doctors that do

not listen is not your problem but THEIRS! It is not anything you

have done wrong and they need to listen to you. After all who is

ultimately paying their paycheck? So I hope you can find one and not feel

bad that you are changing.

Gluten Free makes me feel good and it taste

good too!