RE: symptoms questions

[Guest guest]

Hi Liz;

I'm very sorry to hear about your sister's headaches, fatigue and

stuffy sinuses. Has your sister been checked for sinusitis? Sinusitis

is an " inflammation or swelling of the tissue lining the sinuses " , and

can sometimes be caused by nasal polyps. Sinusitis can often lead to

headaches and fatigue:

http://www.gwhospital.com/p10859.html

although fatigue can also be caused by liver disease.

Best regards,

Dave

(father of (21); PSC 07/03; UC 08/03)

[Guest guest]

Hi Liz;

I'm very sorry to hear about your sister's headaches, fatigue and

stuffy sinuses. Has your sister been checked for sinusitis? Sinusitis

is an " inflammation or swelling of the tissue lining the sinuses " , and

can sometimes be caused by nasal polyps. Sinusitis can often lead to

headaches and fatigue:

http://www.gwhospital.com/p10859.html

although fatigue can also be caused by liver disease.

Best regards,

Dave

(father of (21); PSC 07/03; UC 08/03)

[Guest guest]

Hi Liz;

I'm very sorry to hear about your sister's headaches, fatigue and

stuffy sinuses. Has your sister been checked for sinusitis? Sinusitis

is an " inflammation or swelling of the tissue lining the sinuses " , and

can sometimes be caused by nasal polyps. Sinusitis can often lead to

headaches and fatigue:

http://www.gwhospital.com/p10859.html

although fatigue can also be caused by liver disease.

Best regards,

Dave

(father of (21); PSC 07/03; UC 08/03)

[Guest guest]

>

> dear group,

>

> i am writing on behalf of my younger sister (16) who has had PSC since

> age 3. she has not had a transplant yet. in general, her body has

> been dealing well with the disease, and with meds she has been able to

> lead a fairly normal life. over the past 3 months, she has developped

> chronic headaches and fatigue, as well as itchy eyes and stuffy sinus

> and sore throat. allergies have been ruled out, but no one has had

> any success in reducing the headaches. despite sleeping 10-12 hours

> per night, she remains exhausted.

>

> has anyone else with PSC had similar symptoms, and what has it lead to

> both in terms of diagnosis and treatment?

>

> i suffer not knowing how to help her through this and hope that

> someone may have some suggestions.

>

> many thanks,

> -liz.

>

Hello, Liz

I've been suffering from headaches for two years now. We've all but

ruled out migraines, but I am on Topamax (given for migraines). It

works. I didn't associate the headaches with PSC. But, now that

someone else with PSC has mentioned it, well, who knows. Fatigue has

ruled lately and has always been a problelm in my case.

I've been fortunate not to have any other severe symptons since my

diagnosis. If you learn any more about the headaches, please post.

sharon (PSC 2000)

[Guest guest]

>

> dear group,

>

> i am writing on behalf of my younger sister (16) who has had PSC since

> age 3. she has not had a transplant yet. in general, her body has

> been dealing well with the disease, and with meds she has been able to

> lead a fairly normal life. over the past 3 months, she has developped

> chronic headaches and fatigue, as well as itchy eyes and stuffy sinus

> and sore throat. allergies have been ruled out, but no one has had

> any success in reducing the headaches. despite sleeping 10-12 hours

> per night, she remains exhausted.

>

> has anyone else with PSC had similar symptoms, and what has it lead to

> both in terms of diagnosis and treatment?

>

> i suffer not knowing how to help her through this and hope that

> someone may have some suggestions.

>

> many thanks,

> -liz.

>

Hello, Liz

I've been suffering from headaches for two years now. We've all but

ruled out migraines, but I am on Topamax (given for migraines). It

works. I didn't associate the headaches with PSC. But, now that

someone else with PSC has mentioned it, well, who knows. Fatigue has

ruled lately and has always been a problelm in my case.

I've been fortunate not to have any other severe symptons since my

diagnosis. If you learn any more about the headaches, please post.

sharon (PSC 2000)

[Guest guest]

>I don't know how much this applies, but I have suffered from

migraines for many years, as well as allergies, sore throats, etc.

About 8 months ago I got a mouth guard from my Dentist (called an

NTI) I wear it while sleeping. It is supposed to keep you from

clenching your teeth. My Dentist told me that it has helped about

75% of migraine sufferers who use it. I used to wake up 5 or 6

mornings a week with some sort of a headache. Now it's about 1

morning every two weeks. I have also elevated the head of my bed a

couple inches which has helped drainage (sore throat). If I feel a

headache coming on in the middle of the day, I pop in the guard and

take 2 advil, and it usually heads it off.

Stuart (Va)

PSC 2001

[Guest guest]

Liz,

Itchy eyes can be a PSC symptom, the same is true for fatigue. It doesn't necessarily mean that it is caused by PSC this time, but it is possible. I also recall that some people here have complained about headaches, but it is not a "classical" PSC symptom as far as I know.

Chaim.

-----Original Message-----From: [mailto: ]On Behalf Of lizclaire_sppwcoSent: Tuesday, November 07, 2006 11:51 PMTo: Subject: symptoms questions

dear group,i am writing on behalf of my younger sister (16) who has had PSC sinceage 3. she has not had a transplant yet. in general, her body hasbeen dealing well with the disease, and with meds she has been able tolead a fairly normal life. over the past 3 months, she has developpedchronic headaches and fatigue, as well as itchy eyes and stuffy sinusand sore throat. allergies have been ruled out, but no one has hadany success in reducing the headaches. despite sleeping 10-12 hoursper night, she remains exhausted.has anyone else with PSC had similar symptoms, and what has it lead toboth in terms of diagnosis and treatment?i suffer not knowing how to help her through this and hope thatsomeone may have some suggestions.many thanks,-liz.