Re: New to group/questions: HEMANGIONMAS

February 20, 2006

Jenna,

I wrote down my decision process because I am asked this question

often, so I will copy it here for you. I don't think much has

changed since I made my decision, but if someone notices anything

please fell free to jump in.

Here it is:

The decision is

personal, but you can always listen to feedback from other parents to

help in your decision also. Remember everything is opinion and

everyone is passionate about thier own choice,lol. I can share with

you my choice and why I made that choice.

I began my research with some pretty tough standards for a provider

to meet, they were: #1: a provider that had done the research on

plagiocephaly and was up to date on the treatment and causes and

associated risks. #2:a provider that could back up thier product with

studies proving sucess and had FDA approval. #3: a provider that

would continue that research. #4:a provider that used only fully

trained orthotists to treat the babies.#5: a provider that only

treated plagiocephaly. #6: a provider that would see my baby for a

whole person, not just an abnormal headshape. #7: a provider that had

clean, baby ( and family) friendly clinics. #8: a provider that would

be accessible to me when or if a problem should arise.

The only provider that could meet all these standards was Cranial

Technologies, so my answer was clear. That is who I used to treat my

Dominick's severe inutero plagiocephaly and I am so very glad that I

did. They not only treated his plagio, but they improved his entire

quality of life.

CAROLG

> >

> > Hello to Everyone,

> >

> > My name is Jenna and I am new to this group. My 13 week old

son,

> > Zachary, has head flattening limited to the back right side of

his

> > head. He doesn't have any facial asymmetry.

> >

> > I brought Zach to a craniofacial specialist, who thinks I should

> > watch and wait until he's about 5 months old. I don't know what

to

> > do. From what I have read, better results and shorter treatment

> > durations are seen with earlier intervention. The doctor also

> > referred me to Eastern Cranial Affiliates (ECA,)located in

> > Arlington, VA, (they also have a location in Garden City Park, NY)

> > should I choose to go the route of the helmet.

> >

> > I have heard lots of different anecdotal stories and they all

seem

> > to contradict each other. I often hear that this should mostly

> > correct on its own, I then hear that it never does. I suppose I

> > could wait until Zach is 5 months old, but then I wonder if he

will

> > have a better outcome and shorter treatment duration if I take

> > action now. Another complicating factor is that Zach has 3

> > strawberry hemangionmas on his head.

> >

> > My questions to the group are:

> > 1. Does any part of my story sound like yours and if so, what

has

> > been your experience?

> >

> > 2. Does anyone else's child have the complicating factor of the

> > hemangiomas?

> >

> > 3. Did any of you use ECA in either the Virginia or New York

> > location and if so, what was your experience?

> >

> > 4. Any other pearls?

> >

> > Thank you!

> >

> > Jenna Steckler

> > Rockville, land

> >

>

> For more plagio info

February 20, 2006