Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Hello, I am new to this group and was diagnosed with IgAN/FSGS in April 2002. The doctors believe I have had this for approximately 10 years prior to diagnosis. The progression has been stable ever since with the start of an ACE inhibitor. I am eager to begin reading all of the recent message traffic, and apologize if this topic has been discussed before. Has anyone had successful LASIK eye surgery or been told that you are not a candidate solely because of your IgAN? Thanks very much, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Hi , Welcome to the group! I'm sorry you have reason to be here, but am very glad you found your way here. This site has been enormously helpful to me - and I hope it is to you too. We have never discussed LASIK eye surgery - or had someone with IgAN/FSGS either! I've read papers from Japan that claim there is an disease entity that has the histological appearance of both MPGN and FSGS, but never IgAN/FSGS. Here's hoping that it continues to remain stable. If you don't mind my asking, what kind of numbers did you present with? I'm glad you raised the LASIK subject because it is one that I'd like to learn more about. I'd raise this one with both your opthalmologist and nephrologist. Anyone else here have any experience with this one? Welcome again! Cy Is LASIK Eye Surgery OK? > Hello, > > I am new to this group and was diagnosed with IgAN/FSGS in April 2002. The doctors believe I have had this for approximately 10 > years prior to diagnosis. The progression has been stable ever since with the start of an ACE inhibitor. > > I am eager to begin reading all of the recent message traffic, and apologize if this topic has been discussed before. Has anyone had > successful LASIK eye surgery or been told that you are not a candidate solely because of your IgAN? > > Thanks very much, > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Hi , Welcome to the group! I'm sorry you have reason to be here, but am very glad you found your way here. This site has been enormously helpful to me - and I hope it is to you too. We have never discussed LASIK eye surgery - or had someone with IgAN/FSGS either! I've read papers from Japan that claim there is an disease entity that has the histological appearance of both MPGN and FSGS, but never IgAN/FSGS. Here's hoping that it continues to remain stable. If you don't mind my asking, what kind of numbers did you present with? I'm glad you raised the LASIK subject because it is one that I'd like to learn more about. I'd raise this one with both your opthalmologist and nephrologist. Anyone else here have any experience with this one? Welcome again! Cy Is LASIK Eye Surgery OK? > Hello, > > I am new to this group and was diagnosed with IgAN/FSGS in April 2002. The doctors believe I have had this for approximately 10 > years prior to diagnosis. The progression has been stable ever since with the start of an ACE inhibitor. > > I am eager to begin reading all of the recent message traffic, and apologize if this topic has been discussed before. Has anyone had > successful LASIK eye surgery or been told that you are not a candidate solely because of your IgAN? > > Thanks very much, > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Pierre, I have a consultation/screening on the 29th. I've left a message for my Nephrologist, but he is very difficult to get in touch with. He works out of two hospitals (every other month) and teaches at s Hopkins. I've also spoken with my Opthamolgist, who admitted he didn't know much about how IgAN might present a problem, or if it would at all. The refractive surgeon did say that diabetics must be stable before they could have the procedure, so I'm hoping this case will be the similar. I am also going to ask about the occurrance of glaucoma later in life, especially as a result of steroid use (thanks Cy). From what I've read, I don't think LASIK would have any negative effects if glaucoma does develop as the cornea is well healed. I will definately let everyone know what I find out. I'm just keeping my fingers crossed that this isn't just another thing I can add to my long list of things I am prevented from doing because of this disease.... Thanks, > To my knowledge, this is the first time the question has come up here. It's > an interesting one too. > > Patients who are not candidates for Lasik: > > " Are being treated with medications such as steroids or immunosuppressants, > which can prevent healing, or are suffering from diseases that slow healing, > such as autoimmune disorders. " > > I just quoted the above from http://www.lasikinstitute.org/index.html > > I don't think there's much data about it in relation to a kidney disease > like IgAN. As we all know already, IgAN doesn't quite neatly fit into the > category of an autoimmune disease, but it's certainly related to the immune > system. > > Let us know what you find out from your own doctor. > > Pierre Quote Link to comment Share on other sites More sharing options...
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