Re: MRI/MRCP results look positive

[Guest guest]

Yay Jarad!

This is good news for you! I know remissions can happen with PSC. Joe was

diagnosed at age 14 with PSC and then no sign of it at age 16! Good luck to

you!

Chris

mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute pancreatitis 3/06

[Guest guest]

Yay Jarad!

This is good news for you! I know remissions can happen with PSC. Joe was

diagnosed at age 14 with PSC and then no sign of it at age 16! Good luck to

you!

Chris

mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute pancreatitis 3/06

[Guest guest]

, Although you said it yourself, ie " crazy news " I was very

excited to read your mail. Perhaps I am reading too much into it but

for most of us with PSC or with family with PSC, we always look for

great news and to me that was great news.

Rita

[Guest guest]

Thank you for the good wishes! I am a little confused but happy right

now! I'm glad I could share the good news with you!

Jarad

>

> Yay Jarad!

>

> This is good news for you! I know remissions can happen with PSC.

Joe was

> diagnosed at age 14 with PSC and then no sign of it at age 16! Good

luck to

> you!

>

> Chris

> mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute pancreatitis

3/06

>

[Guest guest]

Thank you for the good wishes! I am a little confused but happy right

now! I'm glad I could share the good news with you!

Jarad

>

> Yay Jarad!

>

> This is good news for you! I know remissions can happen with PSC.

Joe was

> diagnosed at age 14 with PSC and then no sign of it at age 16! Good

luck to

> you!

>

> Chris

> mother of Joe (32), UC 1987, J-pouch 1999, PSC, acute pancreatitis

3/06

>

[Guest guest]

Thanks Rita! I am a positive person so I always try to look towards

good things for myself and everyone. Sharing good news with you and

everyone else here, this makes me happy. I wish for everyone to be

doing well and I will always be glad to share things with you. Um, I

still have a few more tests coming up, I still have a few weird

symptoms, but things are really looking well! I'm somehow healing

myself! Thanks again,

Jarad

>

> , Although you said it yourself, ie " crazy news " I was very

> excited to read your mail. Perhaps I am reading too much into it but

> for most of us with PSC or with family with PSC, we always look for

> great news and to me that was great news.

> Rita

>

[Guest guest]

Thanks Rita! I am a positive person so I always try to look towards

good things for myself and everyone. Sharing good news with you and

everyone else here, this makes me happy. I wish for everyone to be

doing well and I will always be glad to share things with you. Um, I

still have a few more tests coming up, I still have a few weird

symptoms, but things are really looking well! I'm somehow healing

myself! Thanks again,

Jarad

>

> , Although you said it yourself, ie " crazy news " I was very

> excited to read your mail. Perhaps I am reading too much into it but

> for most of us with PSC or with family with PSC, we always look for

> great news and to me that was great news.

> Rita

>

[Guest guest]

Thanks Rita! I am a positive person so I always try to look towards

good things for myself and everyone. Sharing good news with you and

everyone else here, this makes me happy. I wish for everyone to be

doing well and I will always be glad to share things with you. Um, I

still have a few more tests coming up, I still have a few weird

symptoms, but things are really looking well! I'm somehow healing

myself! Thanks again,

Jarad

>

> , Although you said it yourself, ie " crazy news " I was very

> excited to read your mail. Perhaps I am reading too much into it but

> for most of us with PSC or with family with PSC, we always look for

> great news and to me that was great news.

> Rita

>

[Guest guest]

Hi Kim,

Goodness I am blown away by what they found (or didn't find) in the

MRI/MRCP. I am not really sure> I have a call into the doctor, he

should call back in the next couple days. Well, it is good news for

sure but quite honestly I'm still baffled. I also have some severe

skin rash, fatigue, digestive troubles, low iron, and achy achy

joints, but somehow this does not appear related to my liver, as I

used to think some of it was. I will let everyone know when I find

more out. Thanks and best of luck to you too!

Jarad

>

> Wow, great news Jarad! So you've had PSC since 1996 and now it

might

> be in remission? I didn't know that was possible,(there is lots I

> don't know) but if so, it sure gives others some hope.

>

> Can't wait to hear about the results from the other tests you have

> scheduled.

>

> Best of luck!

>

> Kim

> mom of Amber (18 of Friday)

> UC/05 PSC/06

>

[Guest guest]

Hi Kim,

Goodness I am blown away by what they found (or didn't find) in the

MRI/MRCP. I am not really sure> I have a call into the doctor, he

should call back in the next couple days. Well, it is good news for

sure but quite honestly I'm still baffled. I also have some severe

skin rash, fatigue, digestive troubles, low iron, and achy achy

joints, but somehow this does not appear related to my liver, as I

used to think some of it was. I will let everyone know when I find

more out. Thanks and best of luck to you too!

Jarad

>

> Wow, great news Jarad! So you've had PSC since 1996 and now it

might

> be in remission? I didn't know that was possible,(there is lots I

> don't know) but if so, it sure gives others some hope.

>

> Can't wait to hear about the results from the other tests you have

> scheduled.

>

> Best of luck!

>

> Kim

> mom of Amber (18 of Friday)

> UC/05 PSC/06

>

[Guest guest]

Wow, fascinating! I did not know this could happen either. Wow, then

he was re-diagnosed? Crazy! Well I have a lot of hope and faith and

I thank you for your message and wish you lots of healthy happy

times! Peace and may the force be with you,

Jarad

>

> Hi Kim!

>

> Yes there can be a remission! This may be rare, but it does

happen.

>

> Case in point: Joe was diagnosed with IBD and PSC when he was 14

years old

> but then at age 16 when another liver biopsy was done, there was

no sign of

> PSC. He was recently re-diagnosed with PSC after many years of

remission.

> Keep hopefull!

>

> Chris

> mother of Joe (32) UC 1987, J-pouch 1999, PSC, acute pancreatitis

3/06

> (they thought he had crohns at first, but that diagnosis was

changed

> eventually to UC)

>

[Guest guest]

Wow, fascinating! I did not know this could happen either. Wow, then

he was re-diagnosed? Crazy! Well I have a lot of hope and faith and

I thank you for your message and wish you lots of healthy happy

times! Peace and may the force be with you,

Jarad

>

> Hi Kim!

>

> Yes there can be a remission! This may be rare, but it does

happen.

>

> Case in point: Joe was diagnosed with IBD and PSC when he was 14

years old

> but then at age 16 when another liver biopsy was done, there was

no sign of

> PSC. He was recently re-diagnosed with PSC after many years of

remission.

> Keep hopefull!

>

> Chris

> mother of Joe (32) UC 1987, J-pouch 1999, PSC, acute pancreatitis

3/06

> (they thought he had crohns at first, but that diagnosis was

changed

> eventually to UC)

>

[Guest guest]

Wow, fascinating! I did not know this could happen either. Wow, then

he was re-diagnosed? Crazy! Well I have a lot of hope and faith and

I thank you for your message and wish you lots of healthy happy

times! Peace and may the force be with you,

Jarad

>

> Hi Kim!

>

> Yes there can be a remission! This may be rare, but it does

happen.

>

> Case in point: Joe was diagnosed with IBD and PSC when he was 14

years old

> but then at age 16 when another liver biopsy was done, there was

no sign of

> PSC. He was recently re-diagnosed with PSC after many years of

remission.

> Keep hopefull!

>

> Chris

> mother of Joe (32) UC 1987, J-pouch 1999, PSC, acute pancreatitis

3/06

> (they thought he had crohns at first, but that diagnosis was

changed

> eventually to UC)

>

[Guest guest]

Jarad,

Awesome news! How have you been treating yourself over the last 10-

11 years? Urso? Fish oil? When was the last time it was confirmed

that you had PSC (i.e. how long has it been since an

MRI/MRCP/ERCP/biopsy/blood test confirmed PSC?)?

>

> Hi, crazy news, I just heard back about the MRI I had last week. I

> saw a new GI last week, Dr. Kugelmas @ Sweedish, Denver, and he

> scheduled me for some tests. The first test was the MRI/MRCP

> (regular MRI and specifically scanning the liver). They just

called

> me and told me some things that were kind of shocking in a good

way.

>

> They said my liver looked " COMPLETELY NORMAL " !!! They did not see

> ANY PSC, no duct dialation, no hepatic abnormality. This means my

> liver looked absolutely 100% normal. I am having the doctor call

me

> so I can find out what this means, but to my knowledge, PSC is

> chronic, and I would have thought they could at least see some

trace

> of it... I'm kind of confused right now, but I know things are

> looking up!

>

> I still have a couple more tests scheduled within the next month

or

> so> one is the endoscopy so the G.I. can see why my iron is low.

He

> will concurrently check out my j-pouch (sigmoidoscopy) but the

pouch

> has been doing just fine, so I'm not too worried about this one.

> The final test is a bone density test, because I've been having so

> much joint pain. So there are symptoms and there are probably

things

> I will need to change, but the liver is doing good, so excellent

> news!!

>

>

>

> Hope all is well with everyone,

>

> Jarad

> PSC Dx 1996

> UC Dx 1999

> Jpouch 2002/3

> Soy/nut allergy Dx 2003/4

>

[Guest guest]

Jarad,

Awesome news! How have you been treating yourself over the last 10-

11 years? Urso? Fish oil? When was the last time it was confirmed

that you had PSC (i.e. how long has it been since an

MRI/MRCP/ERCP/biopsy/blood test confirmed PSC?)?

>

> Hi, crazy news, I just heard back about the MRI I had last week. I

> saw a new GI last week, Dr. Kugelmas @ Sweedish, Denver, and he

> scheduled me for some tests. The first test was the MRI/MRCP

> (regular MRI and specifically scanning the liver). They just

called

> me and told me some things that were kind of shocking in a good

way.

>

> They said my liver looked " COMPLETELY NORMAL " !!! They did not see

> ANY PSC, no duct dialation, no hepatic abnormality. This means my

> liver looked absolutely 100% normal. I am having the doctor call

me

> so I can find out what this means, but to my knowledge, PSC is

> chronic, and I would have thought they could at least see some

trace

> of it... I'm kind of confused right now, but I know things are

> looking up!

>

> I still have a couple more tests scheduled within the next month

or

> so> one is the endoscopy so the G.I. can see why my iron is low.

He

> will concurrently check out my j-pouch (sigmoidoscopy) but the

pouch

> has been doing just fine, so I'm not too worried about this one.

> The final test is a bone density test, because I've been having so

> much joint pain. So there are symptoms and there are probably

things

> I will need to change, but the liver is doing good, so excellent

> news!!

>

>

>

> Hope all is well with everyone,

>

> Jarad

> PSC Dx 1996

> UC Dx 1999

> Jpouch 2002/3

> Soy/nut allergy Dx 2003/4

>

[Guest guest]

Jarad,

Awesome news! How have you been treating yourself over the last 10-

11 years? Urso? Fish oil? When was the last time it was confirmed

that you had PSC (i.e. how long has it been since an

MRI/MRCP/ERCP/biopsy/blood test confirmed PSC?)?

>

> Hi, crazy news, I just heard back about the MRI I had last week. I

> saw a new GI last week, Dr. Kugelmas @ Sweedish, Denver, and he

> scheduled me for some tests. The first test was the MRI/MRCP

> (regular MRI and specifically scanning the liver). They just

called

> me and told me some things that were kind of shocking in a good

way.

>

> They said my liver looked " COMPLETELY NORMAL " !!! They did not see

> ANY PSC, no duct dialation, no hepatic abnormality. This means my

> liver looked absolutely 100% normal. I am having the doctor call

me

> so I can find out what this means, but to my knowledge, PSC is

> chronic, and I would have thought they could at least see some

trace

> of it... I'm kind of confused right now, but I know things are

> looking up!

>

> I still have a couple more tests scheduled within the next month

or

> so> one is the endoscopy so the G.I. can see why my iron is low.

He

> will concurrently check out my j-pouch (sigmoidoscopy) but the

pouch

> has been doing just fine, so I'm not too worried about this one.

> The final test is a bone density test, because I've been having so

> much joint pain. So there are symptoms and there are probably

things

> I will need to change, but the liver is doing good, so excellent

> news!!

>

>

>

> Hope all is well with everyone,

>

> Jarad

> PSC Dx 1996

> UC Dx 1999

> Jpouch 2002/3

> Soy/nut allergy Dx 2003/4

>