Re: Sorry another question

July 10, 2004

Hi Billie,

Sorry I missed this question earlier. Actually I'm still on

prednisone...in the process of weaning off of it.

The neph felt the inflammation was being caused by the 3+ grams of protein I

was spilling and possibly from a constant infection in my system somewhere.

My white blood count was constantly elevated until I went on a series of

mass doses of antibiotics, my last set of labs showed a normal white count

for the first time in almost a year. I started prednisone treatment back on

Sept 30, 2003 and have been slowly weaned down to my current 7.5mg. I'll be

on it for another few months so nearly a year of treatment by the time I'm

done. I'm getting a bit nervous about going off the pred now (it's one of

those drugs you fear going on but when you get great results from the stuff

you fear going off it. I'm so fickle). I'm worried about things starting

to rapidly decline once off the stuff as I have the aggressive form of IgAN,

but I figure if that happens I had a year of stability that I wouldn't have

had without the pred. I know things could stay stable for a long time to

come but I also know things could progress quickly again....my family and I

are preparing for the worst and hoping for the best. )

Amy

> Amy how long were you on the treatment for inflammation and

> did and do you know what caused the inflammation? All my bp

> meds were changed to see if that was causing the nephritis

> but really no way of knowing what caused it. Maybe it was all that

> starr fruit I ate last year including the seeds not knowing better.

> Thanks for the info. Billie

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