Re: Re: Hi everyone !/Krystal

[Guest guest]

What about Lupus? Lymes disease? Encephalomyelitis (inflammation of the

brain and spinal cord)? These have similar neurological symptoms as MS.

Rhonda

Re: Hi everyone !/Krystal

> Yes, they did an MRI two years ago and it came back negative. The

> other two doc's are not convinced..they say many people with MS don't

> show up positive for years. Itching with a rash is supposed to be

> Fibro or Chrone's..itching without a rash is supposed to be MS. The

> eye problems..MS. The inability to grab and or release objects

> periodically is supposed to be MS..there are several...I'M SO

> CONFUSED !!!!!!!! LOL

>

>

[Guest guest]

What about Lupus? Lymes disease? Encephalomyelitis (inflammation of the

brain and spinal cord)? These have similar neurological symptoms as MS.

Rhonda

Re: Hi everyone !/Krystal

> Yes, they did an MRI two years ago and it came back negative. The

> other two doc's are not convinced..they say many people with MS don't

> show up positive for years. Itching with a rash is supposed to be

> Fibro or Chrone's..itching without a rash is supposed to be MS. The

> eye problems..MS. The inability to grab and or release objects

> periodically is supposed to be MS..there are several...I'M SO

> CONFUSED !!!!!!!! LOL

>

>

[Guest guest]

I have a little cousin with autisim and they are saying (docs) that what

caused his is the fact that he was left in his momma too long due to another

doctor having a baby that had the same delivering doc...as my cousin. So now

he has autisim and they just recently found out that he is mildly retarded

also. he is 6 and is in the mind state of a 4 year old...didn't learn to walk

until he was 2...and is just now learning to talk clearly. I feel really

sorry for him, but I am sure that he will make it just fine..he is a tough

lil booger...lol

Well I hope this letter finds you all having a decent day. God Bless,

Allicia

[Guest guest]

The reason I ask is .....if they suspected MS they should have had the MRI

tech inject an enhancer into you half way through the MRI. Obviously, it

enhances everything and if you had MS the lesions would have showed up. I

have had several MRI's in the past 3 years, probably 15 give or take one or

two. I've come extremely close to screaming for them to get me out of there

because my back hurt so bad. It took all I had to not scream and to hold

still for those " last 5 minutes. "

Rhonda

Re: Hi everyone !/Krystal

> -

> No Rhonda, they did not inject me with anything. I suppose they will

> do that if I go to the Mayo. fun fun. They just stuck me in the tube

> and told me not to move. That was tough...was in a lot of pain that

> day. Krystal

>

[Guest guest]

The reason I ask is .....if they suspected MS they should have had the MRI

tech inject an enhancer into you half way through the MRI. Obviously, it

enhances everything and if you had MS the lesions would have showed up. I

have had several MRI's in the past 3 years, probably 15 give or take one or

two. I've come extremely close to screaming for them to get me out of there

because my back hurt so bad. It took all I had to not scream and to hold

still for those " last 5 minutes. "

Rhonda

Re: Hi everyone !/Krystal

> -

> No Rhonda, they did not inject me with anything. I suppose they will

> do that if I go to the Mayo. fun fun. They just stuck me in the tube

> and told me not to move. That was tough...was in a lot of pain that

> day. Krystal

>

[Guest guest]

The reason I ask is .....if they suspected MS they should have had the MRI

tech inject an enhancer into you half way through the MRI. Obviously, it

enhances everything and if you had MS the lesions would have showed up. I

have had several MRI's in the past 3 years, probably 15 give or take one or

two. I've come extremely close to screaming for them to get me out of there

because my back hurt so bad. It took all I had to not scream and to hold

still for those " last 5 minutes. "

Rhonda

Re: Hi everyone !/Krystal

> -

> No Rhonda, they did not inject me with anything. I suppose they will

> do that if I go to the Mayo. fun fun. They just stuck me in the tube

> and told me not to move. That was tough...was in a lot of pain that

> day. Krystal

>

[Guest guest]

Krystal wrote:

>

> I posted a big article on it..doesn't look like anyone read it and

> they should..also Yazbak's case histories. The vacc I had was

> Ruebella..post partum. It's in all the vacc's though.

I've read it, I just don't agree with his theory. After working around

science researchers, I just find too many unanswered questions for my

tastes. I've seen other researchers who have thought of the vaccine

theory and discarded it. I've seen too many shows/doctors/articles

about autism and vaccines that are against vaccines causing autism. I

have a friend who has a little boy with autism, and there is more

evidence for a genetic connection in her family than something caused

by vaccines. I'll just be happy for the day they can prove what causes

these illness and how to fix them.

Darcy

[Guest guest]

Krystal wrote:

>

> I posted a big article on it..doesn't look like anyone read it and

> they should..also Yazbak's case histories. The vacc I had was

> Ruebella..post partum. It's in all the vacc's though.

I've read it, I just don't agree with his theory. After working around

science researchers, I just find too many unanswered questions for my

tastes. I've seen other researchers who have thought of the vaccine

theory and discarded it. I've seen too many shows/doctors/articles

about autism and vaccines that are against vaccines causing autism. I

have a friend who has a little boy with autism, and there is more

evidence for a genetic connection in her family than something caused

by vaccines. I'll just be happy for the day they can prove what causes

these illness and how to fix them.

Darcy

[Guest guest]

Mine seems to have progressed very nicely in the past 30 years! But I am

wondering . . . has the FM actually gotten worse, or is it (and other

things) simply wearing down my body? We all know that people with FM

nearly always have one or more other medical problems. Even if the FM

never progressed, the effects of these other problems could cause a

worsening of symptoms, making it appear that the FM was

progressive. Perhaps this is what the doctors mean. I am particularly

thinking of the depression and the CFS . . . for me, these have really

gotten much worse over the past 6 years.

Also, fibro " flares " can make it seem like the FM is progressing, when in

fact we might just be having more frequent flares that last longer. Seems

to me that this can create a self-repeating effect: stress causes flares

which cause more stress which causes more stress, etc. What you get, in

effect, is the appearance of FM progressing. This happened to me when my

mother died in July, 2000. By October of that year, I was nearly bedridden

and house bound. I stayed that way until about March of this year, when I

slowly began to improve. The slow improvement changed in mid April, when I

suddenly came out of what I term a massive flare cycle.

Like I said, I'm not sure about all this . . . just theorizing from my own

experiences.

Jeane, who fancies herself a " thinker " rofllllllllllllllllllllll

[Guest guest]

Mine seems to have progressed very nicely in the past 30 years! But I am

wondering . . . has the FM actually gotten worse, or is it (and other

things) simply wearing down my body? We all know that people with FM

nearly always have one or more other medical problems. Even if the FM

never progressed, the effects of these other problems could cause a

worsening of symptoms, making it appear that the FM was

progressive. Perhaps this is what the doctors mean. I am particularly

thinking of the depression and the CFS . . . for me, these have really

gotten much worse over the past 6 years.

Also, fibro " flares " can make it seem like the FM is progressing, when in

fact we might just be having more frequent flares that last longer. Seems

to me that this can create a self-repeating effect: stress causes flares

which cause more stress which causes more stress, etc. What you get, in

effect, is the appearance of FM progressing. This happened to me when my

mother died in July, 2000. By October of that year, I was nearly bedridden

and house bound. I stayed that way until about March of this year, when I

slowly began to improve. The slow improvement changed in mid April, when I

suddenly came out of what I term a massive flare cycle.

Like I said, I'm not sure about all this . . . just theorizing from my own

experiences.

Jeane, who fancies herself a " thinker " rofllllllllllllllllllllll

[Guest guest]

What did they do to check you for all of these?

Rhonda

Re: Hi everyone !/Krystal

>

> They checked me for all of those. Nada.

>

>

> > What about Lupus? Lymes disease? Encephalomyelitis (inflammation

> of the

> > brain and spinal cord)? These have similar neurological symptoms

> as MS.

> >

> > Rhonda

> >

[Guest guest]

Good luck rhonda! Don't let the dr. intimidate you tell him

everything..........let us know how it goes!

[Guest guest]

Good luck rhonda! Don't let the dr. intimidate you tell him

everything..........let us know how it goes!

[Guest guest]

Good luck rhonda! Don't let the dr. intimidate you tell him

everything..........let us know how it goes!

[Guest guest]

There are so many diseases that mimic other's that it's hard to tell what is

what. People are misdiagnosed all the time because of this. Do I believe

they are all the same disease, No. They may have similar symptoms, but

they are different in the actual things they do.

I go to my first Rheumatologist visit tomorrow. Oh boy!

Rhonda

Re: Re: Hi everyone !/Krystal

> Rhonda,

> Yes I very much agree with you...especially with Lyme disease. I

had a

> friend whom was diagnosed with MS and come to find out all along she had

Lyme

> Disease. Here are a few links for ya'll to check out and read.

> I went to my Rheumy and DEMANDED!!! a Lyme test...she wouldn't give it to

> me...and I told her it was my blood and I will choose what tests I will

give

> for it...and she finally gave it to me. I think it is kinda ironic that

> doctors refuse to give certain kinds of tests....just a lil thought for an

> evening.Hope ya'll are feeling decent..if not good. God Bless

> <A HREF= " http://www.igenex.com/ " >IGeneX, Inc.

> </A><A HREF= " http://www.immed.org/ " >The Institute for Molecular

Medicine</A>

>

> Allicia

[Guest guest]

There are so many diseases that mimic other's that it's hard to tell what is

what. People are misdiagnosed all the time because of this. Do I believe

they are all the same disease, No. They may have similar symptoms, but

they are different in the actual things they do.

I go to my first Rheumatologist visit tomorrow. Oh boy!

Rhonda

Re: Re: Hi everyone !/Krystal

> Rhonda,

> Yes I very much agree with you...especially with Lyme disease. I

had a

> friend whom was diagnosed with MS and come to find out all along she had

Lyme

> Disease. Here are a few links for ya'll to check out and read.

> I went to my Rheumy and DEMANDED!!! a Lyme test...she wouldn't give it to

> me...and I told her it was my blood and I will choose what tests I will

give

> for it...and she finally gave it to me. I think it is kinda ironic that

> doctors refuse to give certain kinds of tests....just a lil thought for an

> evening.Hope ya'll are feeling decent..if not good. God Bless

> <A HREF= " http://www.igenex.com/ " >IGeneX, Inc.

> </A><A HREF= " http://www.immed.org/ " >The Institute for Molecular

Medicine</A>

>

> Allicia

[Guest guest]

There are so many diseases that mimic other's that it's hard to tell what is

what. People are misdiagnosed all the time because of this. Do I believe

they are all the same disease, No. They may have similar symptoms, but

they are different in the actual things they do.

I go to my first Rheumatologist visit tomorrow. Oh boy!

Rhonda

Re: Re: Hi everyone !/Krystal

> Rhonda,

> Yes I very much agree with you...especially with Lyme disease. I

had a

> friend whom was diagnosed with MS and come to find out all along she had

Lyme

> Disease. Here are a few links for ya'll to check out and read.

> I went to my Rheumy and DEMANDED!!! a Lyme test...she wouldn't give it to

> me...and I told her it was my blood and I will choose what tests I will

give

> for it...and she finally gave it to me. I think it is kinda ironic that

> doctors refuse to give certain kinds of tests....just a lil thought for an

> evening.Hope ya'll are feeling decent..if not good. God Bless

> <A HREF= " http://www.igenex.com/ " >IGeneX, Inc.

> </A><A HREF= " http://www.immed.org/ " >The Institute for Molecular

Medicine</A>

>

> Allicia

[Guest guest]

Jeane wrote:

By October of that year, I was nearly bedridden

> and house bound. I stayed that way until about March of this year, when I

> slowly began to improve. The slow improvement changed in mid April, when I

> suddenly came out of what I term a massive flare cycle.

I liked your letter, Jeane. I think I was in a massive flare from

February until just a few weeks ago. Whenever I say this to anyone not

on a support list, they wrinkle their noses and say flares don't last

that long. I wish they could have been in my shoes.

Darcy

[Guest guest]

Jeane wrote:

By October of that year, I was nearly bedridden

> and house bound. I stayed that way until about March of this year, when I

> slowly began to improve. The slow improvement changed in mid April, when I

> suddenly came out of what I term a massive flare cycle.

I liked your letter, Jeane. I think I was in a massive flare from

February until just a few weeks ago. Whenever I say this to anyone not

on a support list, they wrinkle their noses and say flares don't last

that long. I wish they could have been in my shoes.

Darcy

[Guest guest]

Jeane wrote:

By October of that year, I was nearly bedridden

> and house bound. I stayed that way until about March of this year, when I

> slowly began to improve. The slow improvement changed in mid April, when I

> suddenly came out of what I term a massive flare cycle.

I liked your letter, Jeane. I think I was in a massive flare from

February until just a few weeks ago. Whenever I say this to anyone not

on a support list, they wrinkle their noses and say flares don't last

that long. I wish they could have been in my shoes.

Darcy

[Guest guest]

Thanks. Well, she's not sure it's fibro. I have none of the trigger

points, but she thinks that is because I took my pain medication this

morning (I don't think so), so when I go back I am not to take it before I

go. That's not going to work! I'm up at 5:30 AM and my appointment isn't

til 10:30! She checked the results from the bloodwork, everything was

normal or negative. She asked me if I thrash around in my sleep and my

*big* mouth husband said, " yes, she was kicking her foot around last night. "

So for that *one* night of kicking my foot, she wants me to go to a sleep

clinic! (I was probably kicking hubbys butt in my dream!) I am not going

to the sleep clinic. I cannot sleep in a strange place, I don't care if

they give me something to make me sleep, it won't happen. I have no

problems sleeping when I am not taking all these pills that make me tired so

I end up sleeping for a few hours in the middle of the day! And I don't do

anything all day, that will make you tired. I have decided to wean myself

off the neurontin and I'm not taking the elavil anymore, as of tonight. I'm

going to start seriously exercising like I used to. I was an exercise

junkie before all this. I exercised everyday before I had the surgery and

had planned to resume that once I hit the one year mark of the surgery. I

exercised after I had the accident and some stupid doctor ordered me to

stop, and stupidly I did. I felt *so much* better when I exercised.

Rhonda

Re: Re: Hi everyone !/Krystal

> Good luck rhonda! Don't let the dr. intimidate you tell him

> everything..........let us know how it goes!

>

>

>

[Guest guest]

Hi Rhonda

According to what I've read, it isn't 'safe' to just go off Elavil.

You're supposed to gradually reduce the dosage, but not stop all at once.

Helpfully??

Lyndi

DigitalAngel wrote:

>

> Thanks. Well, she's not sure it's fibro. I have none of the trigger

> points, but she thinks that is because I took my pain medication this

> morning (I don't think so), so when I go back I am not to take it before I

> go. That's not going to work! I'm up at 5:30 AM and my appointment isn't

> til 10:30! She checked the results from the bloodwork, everything was

> normal or negative. She asked me if I thrash around in my sleep and my

> *big* mouth husband said, " yes, she was kicking her foot around last night. "

> So for that *one* night of kicking my foot, she wants me to go to a sleep

> clinic! (I was probably kicking hubbys butt in my dream!) I am not going

> to the sleep clinic. I cannot sleep in a strange place, I don't care if

> they give me something to make me sleep, it won't happen. I have no

> problems sleeping when I am not taking all these pills that make me tired so

> I end up sleeping for a few hours in the middle of the day! And I don't do

> anything all day, that will make you tired. I have decided to wean myself

> off the neurontin and I'm not taking the elavil anymore, as of tonight. I'm

> going to start seriously exercising like I used to. I was an exercise

> junkie before all this. I exercised everyday before I had the surgery and

> had planned to resume that once I hit the one year mark of the surgery. I

> exercised after I had the accident and some stupid doctor ordered me to

> stop, and stupidly I did. I felt *so much* better when I exercised.

>

> Rhonda

[Guest guest]

Hi Rhonda

According to what I've read, it isn't 'safe' to just go off Elavil.

You're supposed to gradually reduce the dosage, but not stop all at once.

Helpfully??

Lyndi

DigitalAngel wrote:

>

> Thanks. Well, she's not sure it's fibro. I have none of the trigger

> points, but she thinks that is because I took my pain medication this

> morning (I don't think so), so when I go back I am not to take it before I

> go. That's not going to work! I'm up at 5:30 AM and my appointment isn't

> til 10:30! She checked the results from the bloodwork, everything was

> normal or negative. She asked me if I thrash around in my sleep and my

> *big* mouth husband said, " yes, she was kicking her foot around last night. "

> So for that *one* night of kicking my foot, she wants me to go to a sleep

> clinic! (I was probably kicking hubbys butt in my dream!) I am not going

> to the sleep clinic. I cannot sleep in a strange place, I don't care if

> they give me something to make me sleep, it won't happen. I have no

> problems sleeping when I am not taking all these pills that make me tired so

> I end up sleeping for a few hours in the middle of the day! And I don't do

> anything all day, that will make you tired. I have decided to wean myself

> off the neurontin and I'm not taking the elavil anymore, as of tonight. I'm

> going to start seriously exercising like I used to. I was an exercise

> junkie before all this. I exercised everyday before I had the surgery and

> had planned to resume that once I hit the one year mark of the surgery. I

> exercised after I had the accident and some stupid doctor ordered me to

> stop, and stupidly I did. I felt *so much* better when I exercised.

>

> Rhonda

[Guest guest]

Hi Rhonda

According to what I've read, it isn't 'safe' to just go off Elavil.

You're supposed to gradually reduce the dosage, but not stop all at once.

Helpfully??

Lyndi

DigitalAngel wrote:

>

> Thanks. Well, she's not sure it's fibro. I have none of the trigger

> points, but she thinks that is because I took my pain medication this

> morning (I don't think so), so when I go back I am not to take it before I

> go. That's not going to work! I'm up at 5:30 AM and my appointment isn't

> til 10:30! She checked the results from the bloodwork, everything was

> normal or negative. She asked me if I thrash around in my sleep and my

> *big* mouth husband said, " yes, she was kicking her foot around last night. "

> So for that *one* night of kicking my foot, she wants me to go to a sleep

> clinic! (I was probably kicking hubbys butt in my dream!) I am not going

> to the sleep clinic. I cannot sleep in a strange place, I don't care if

> they give me something to make me sleep, it won't happen. I have no

> problems sleeping when I am not taking all these pills that make me tired so

> I end up sleeping for a few hours in the middle of the day! And I don't do

> anything all day, that will make you tired. I have decided to wean myself

> off the neurontin and I'm not taking the elavil anymore, as of tonight. I'm

> going to start seriously exercising like I used to. I was an exercise

> junkie before all this. I exercised everyday before I had the surgery and

> had planned to resume that once I hit the one year mark of the surgery. I

> exercised after I had the accident and some stupid doctor ordered me to

> stop, and stupidly I did. I felt *so much* better when I exercised.

>

> Rhonda

[Guest guest]

This won't be the first time I've just stopped taking it. They tell you

not to " just stop " taking it because you may have a relapse. I wasn't

taking it for depression, but to help me sleep at night. Thanks for the

info. though.

Rhonda

Re: Re: Hi everyone !/Krystal

> Hi Rhonda

>

> According to what I've read, it isn't 'safe' to just go off Elavil.

> You're supposed to gradually reduce the dosage, but not stop all at once.

>

> Helpfully??

> Lyndi

>

>