Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 What about Lupus? Lymes disease? Encephalomyelitis (inflammation of the brain and spinal cord)? These have similar neurological symptoms as MS. Rhonda Re: Hi everyone !/Krystal > Yes, they did an MRI two years ago and it came back negative. The > other two doc's are not convinced..they say many people with MS don't > show up positive for years. Itching with a rash is supposed to be > Fibro or Chrone's..itching without a rash is supposed to be MS. The > eye problems..MS. The inability to grab and or release objects > periodically is supposed to be MS..there are several...I'M SO > CONFUSED !!!!!!!! LOL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 What about Lupus? Lymes disease? Encephalomyelitis (inflammation of the brain and spinal cord)? These have similar neurological symptoms as MS. Rhonda Re: Hi everyone !/Krystal > Yes, they did an MRI two years ago and it came back negative. The > other two doc's are not convinced..they say many people with MS don't > show up positive for years. Itching with a rash is supposed to be > Fibro or Chrone's..itching without a rash is supposed to be MS. The > eye problems..MS. The inability to grab and or release objects > periodically is supposed to be MS..there are several...I'M SO > CONFUSED !!!!!!!! LOL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 I have a little cousin with autisim and they are saying (docs) that what caused his is the fact that he was left in his momma too long due to another doctor having a baby that had the same delivering doc...as my cousin. So now he has autisim and they just recently found out that he is mildly retarded also. he is 6 and is in the mind state of a 4 year old...didn't learn to walk until he was 2...and is just now learning to talk clearly. I feel really sorry for him, but I am sure that he will make it just fine..he is a tough lil booger...lol Well I hope this letter finds you all having a decent day. God Bless, Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 The reason I ask is .....if they suspected MS they should have had the MRI tech inject an enhancer into you half way through the MRI. Obviously, it enhances everything and if you had MS the lesions would have showed up. I have had several MRI's in the past 3 years, probably 15 give or take one or two. I've come extremely close to screaming for them to get me out of there because my back hurt so bad. It took all I had to not scream and to hold still for those " last 5 minutes. " Rhonda Re: Hi everyone !/Krystal > - > No Rhonda, they did not inject me with anything. I suppose they will > do that if I go to the Mayo. fun fun. They just stuck me in the tube > and told me not to move. That was tough...was in a lot of pain that > day. Krystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 The reason I ask is .....if they suspected MS they should have had the MRI tech inject an enhancer into you half way through the MRI. Obviously, it enhances everything and if you had MS the lesions would have showed up. I have had several MRI's in the past 3 years, probably 15 give or take one or two. I've come extremely close to screaming for them to get me out of there because my back hurt so bad. It took all I had to not scream and to hold still for those " last 5 minutes. " Rhonda Re: Hi everyone !/Krystal > - > No Rhonda, they did not inject me with anything. I suppose they will > do that if I go to the Mayo. fun fun. They just stuck me in the tube > and told me not to move. That was tough...was in a lot of pain that > day. Krystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 The reason I ask is .....if they suspected MS they should have had the MRI tech inject an enhancer into you half way through the MRI. Obviously, it enhances everything and if you had MS the lesions would have showed up. I have had several MRI's in the past 3 years, probably 15 give or take one or two. I've come extremely close to screaming for them to get me out of there because my back hurt so bad. It took all I had to not scream and to hold still for those " last 5 minutes. " Rhonda Re: Hi everyone !/Krystal > - > No Rhonda, they did not inject me with anything. I suppose they will > do that if I go to the Mayo. fun fun. They just stuck me in the tube > and told me not to move. That was tough...was in a lot of pain that > day. Krystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Krystal wrote: > > I posted a big article on it..doesn't look like anyone read it and > they should..also Yazbak's case histories. The vacc I had was > Ruebella..post partum. It's in all the vacc's though. I've read it, I just don't agree with his theory. After working around science researchers, I just find too many unanswered questions for my tastes. I've seen other researchers who have thought of the vaccine theory and discarded it. I've seen too many shows/doctors/articles about autism and vaccines that are against vaccines causing autism. I have a friend who has a little boy with autism, and there is more evidence for a genetic connection in her family than something caused by vaccines. I'll just be happy for the day they can prove what causes these illness and how to fix them. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Krystal wrote: > > I posted a big article on it..doesn't look like anyone read it and > they should..also Yazbak's case histories. The vacc I had was > Ruebella..post partum. It's in all the vacc's though. I've read it, I just don't agree with his theory. After working around science researchers, I just find too many unanswered questions for my tastes. I've seen other researchers who have thought of the vaccine theory and discarded it. I've seen too many shows/doctors/articles about autism and vaccines that are against vaccines causing autism. I have a friend who has a little boy with autism, and there is more evidence for a genetic connection in her family than something caused by vaccines. I'll just be happy for the day they can prove what causes these illness and how to fix them. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Mine seems to have progressed very nicely in the past 30 years! But I am wondering . . . has the FM actually gotten worse, or is it (and other things) simply wearing down my body? We all know that people with FM nearly always have one or more other medical problems. Even if the FM never progressed, the effects of these other problems could cause a worsening of symptoms, making it appear that the FM was progressive. Perhaps this is what the doctors mean. I am particularly thinking of the depression and the CFS . . . for me, these have really gotten much worse over the past 6 years. Also, fibro " flares " can make it seem like the FM is progressing, when in fact we might just be having more frequent flares that last longer. Seems to me that this can create a self-repeating effect: stress causes flares which cause more stress which causes more stress, etc. What you get, in effect, is the appearance of FM progressing. This happened to me when my mother died in July, 2000. By October of that year, I was nearly bedridden and house bound. I stayed that way until about March of this year, when I slowly began to improve. The slow improvement changed in mid April, when I suddenly came out of what I term a massive flare cycle. Like I said, I'm not sure about all this . . . just theorizing from my own experiences. Jeane, who fancies herself a " thinker " rofllllllllllllllllllllll Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Mine seems to have progressed very nicely in the past 30 years! But I am wondering . . . has the FM actually gotten worse, or is it (and other things) simply wearing down my body? We all know that people with FM nearly always have one or more other medical problems. Even if the FM never progressed, the effects of these other problems could cause a worsening of symptoms, making it appear that the FM was progressive. Perhaps this is what the doctors mean. I am particularly thinking of the depression and the CFS . . . for me, these have really gotten much worse over the past 6 years. Also, fibro " flares " can make it seem like the FM is progressing, when in fact we might just be having more frequent flares that last longer. Seems to me that this can create a self-repeating effect: stress causes flares which cause more stress which causes more stress, etc. What you get, in effect, is the appearance of FM progressing. This happened to me when my mother died in July, 2000. By October of that year, I was nearly bedridden and house bound. I stayed that way until about March of this year, when I slowly began to improve. The slow improvement changed in mid April, when I suddenly came out of what I term a massive flare cycle. Like I said, I'm not sure about all this . . . just theorizing from my own experiences. Jeane, who fancies herself a " thinker " rofllllllllllllllllllllll Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 What did they do to check you for all of these? Rhonda Re: Hi everyone !/Krystal > > They checked me for all of those. Nada. > > > > What about Lupus? Lymes disease? Encephalomyelitis (inflammation > of the > > brain and spinal cord)? These have similar neurological symptoms > as MS. > > > > Rhonda > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Good luck rhonda! Don't let the dr. intimidate you tell him everything..........let us know how it goes! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Good luck rhonda! Don't let the dr. intimidate you tell him everything..........let us know how it goes! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Good luck rhonda! Don't let the dr. intimidate you tell him everything..........let us know how it goes! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 There are so many diseases that mimic other's that it's hard to tell what is what. People are misdiagnosed all the time because of this. Do I believe they are all the same disease, No. They may have similar symptoms, but they are different in the actual things they do. I go to my first Rheumatologist visit tomorrow. Oh boy! Rhonda Re: Re: Hi everyone !/Krystal > Rhonda, > Yes I very much agree with you...especially with Lyme disease. I had a > friend whom was diagnosed with MS and come to find out all along she had Lyme > Disease. Here are a few links for ya'll to check out and read. > I went to my Rheumy and DEMANDED!!! a Lyme test...she wouldn't give it to > me...and I told her it was my blood and I will choose what tests I will give > for it...and she finally gave it to me. I think it is kinda ironic that > doctors refuse to give certain kinds of tests....just a lil thought for an > evening.Hope ya'll are feeling decent..if not good. God Bless > <A HREF= " http://www.igenex.com/ " >IGeneX, Inc. > </A><A HREF= " http://www.immed.org/ " >The Institute for Molecular Medicine</A> > > Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 There are so many diseases that mimic other's that it's hard to tell what is what. People are misdiagnosed all the time because of this. Do I believe they are all the same disease, No. They may have similar symptoms, but they are different in the actual things they do. I go to my first Rheumatologist visit tomorrow. Oh boy! Rhonda Re: Re: Hi everyone !/Krystal > Rhonda, > Yes I very much agree with you...especially with Lyme disease. I had a > friend whom was diagnosed with MS and come to find out all along she had Lyme > Disease. Here are a few links for ya'll to check out and read. > I went to my Rheumy and DEMANDED!!! a Lyme test...she wouldn't give it to > me...and I told her it was my blood and I will choose what tests I will give > for it...and she finally gave it to me. I think it is kinda ironic that > doctors refuse to give certain kinds of tests....just a lil thought for an > evening.Hope ya'll are feeling decent..if not good. God Bless > <A HREF= " http://www.igenex.com/ " >IGeneX, Inc. > </A><A HREF= " http://www.immed.org/ " >The Institute for Molecular Medicine</A> > > Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 There are so many diseases that mimic other's that it's hard to tell what is what. People are misdiagnosed all the time because of this. Do I believe they are all the same disease, No. They may have similar symptoms, but they are different in the actual things they do. I go to my first Rheumatologist visit tomorrow. Oh boy! Rhonda Re: Re: Hi everyone !/Krystal > Rhonda, > Yes I very much agree with you...especially with Lyme disease. I had a > friend whom was diagnosed with MS and come to find out all along she had Lyme > Disease. Here are a few links for ya'll to check out and read. > I went to my Rheumy and DEMANDED!!! a Lyme test...she wouldn't give it to > me...and I told her it was my blood and I will choose what tests I will give > for it...and she finally gave it to me. I think it is kinda ironic that > doctors refuse to give certain kinds of tests....just a lil thought for an > evening.Hope ya'll are feeling decent..if not good. God Bless > <A HREF= " http://www.igenex.com/ " >IGeneX, Inc. > </A><A HREF= " http://www.immed.org/ " >The Institute for Molecular Medicine</A> > > Allicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Jeane wrote: By October of that year, I was nearly bedridden > and house bound. I stayed that way until about March of this year, when I > slowly began to improve. The slow improvement changed in mid April, when I > suddenly came out of what I term a massive flare cycle. I liked your letter, Jeane. I think I was in a massive flare from February until just a few weeks ago. Whenever I say this to anyone not on a support list, they wrinkle their noses and say flares don't last that long. I wish they could have been in my shoes. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Jeane wrote: By October of that year, I was nearly bedridden > and house bound. I stayed that way until about March of this year, when I > slowly began to improve. The slow improvement changed in mid April, when I > suddenly came out of what I term a massive flare cycle. I liked your letter, Jeane. I think I was in a massive flare from February until just a few weeks ago. Whenever I say this to anyone not on a support list, they wrinkle their noses and say flares don't last that long. I wish they could have been in my shoes. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Jeane wrote: By October of that year, I was nearly bedridden > and house bound. I stayed that way until about March of this year, when I > slowly began to improve. The slow improvement changed in mid April, when I > suddenly came out of what I term a massive flare cycle. I liked your letter, Jeane. I think I was in a massive flare from February until just a few weeks ago. Whenever I say this to anyone not on a support list, they wrinkle their noses and say flares don't last that long. I wish they could have been in my shoes. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Thanks. Well, she's not sure it's fibro. I have none of the trigger points, but she thinks that is because I took my pain medication this morning (I don't think so), so when I go back I am not to take it before I go. That's not going to work! I'm up at 5:30 AM and my appointment isn't til 10:30! She checked the results from the bloodwork, everything was normal or negative. She asked me if I thrash around in my sleep and my *big* mouth husband said, " yes, she was kicking her foot around last night. " So for that *one* night of kicking my foot, she wants me to go to a sleep clinic! (I was probably kicking hubbys butt in my dream!) I am not going to the sleep clinic. I cannot sleep in a strange place, I don't care if they give me something to make me sleep, it won't happen. I have no problems sleeping when I am not taking all these pills that make me tired so I end up sleeping for a few hours in the middle of the day! And I don't do anything all day, that will make you tired. I have decided to wean myself off the neurontin and I'm not taking the elavil anymore, as of tonight. I'm going to start seriously exercising like I used to. I was an exercise junkie before all this. I exercised everyday before I had the surgery and had planned to resume that once I hit the one year mark of the surgery. I exercised after I had the accident and some stupid doctor ordered me to stop, and stupidly I did. I felt *so much* better when I exercised. Rhonda Re: Re: Hi everyone !/Krystal > Good luck rhonda! Don't let the dr. intimidate you tell him > everything..........let us know how it goes! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi Rhonda According to what I've read, it isn't 'safe' to just go off Elavil. You're supposed to gradually reduce the dosage, but not stop all at once. Helpfully?? Lyndi DigitalAngel wrote: > > Thanks. Well, she's not sure it's fibro. I have none of the trigger > points, but she thinks that is because I took my pain medication this > morning (I don't think so), so when I go back I am not to take it before I > go. That's not going to work! I'm up at 5:30 AM and my appointment isn't > til 10:30! She checked the results from the bloodwork, everything was > normal or negative. She asked me if I thrash around in my sleep and my > *big* mouth husband said, " yes, she was kicking her foot around last night. " > So for that *one* night of kicking my foot, she wants me to go to a sleep > clinic! (I was probably kicking hubbys butt in my dream!) I am not going > to the sleep clinic. I cannot sleep in a strange place, I don't care if > they give me something to make me sleep, it won't happen. I have no > problems sleeping when I am not taking all these pills that make me tired so > I end up sleeping for a few hours in the middle of the day! And I don't do > anything all day, that will make you tired. I have decided to wean myself > off the neurontin and I'm not taking the elavil anymore, as of tonight. I'm > going to start seriously exercising like I used to. I was an exercise > junkie before all this. I exercised everyday before I had the surgery and > had planned to resume that once I hit the one year mark of the surgery. I > exercised after I had the accident and some stupid doctor ordered me to > stop, and stupidly I did. I felt *so much* better when I exercised. > > Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi Rhonda According to what I've read, it isn't 'safe' to just go off Elavil. You're supposed to gradually reduce the dosage, but not stop all at once. Helpfully?? Lyndi DigitalAngel wrote: > > Thanks. Well, she's not sure it's fibro. I have none of the trigger > points, but she thinks that is because I took my pain medication this > morning (I don't think so), so when I go back I am not to take it before I > go. That's not going to work! I'm up at 5:30 AM and my appointment isn't > til 10:30! She checked the results from the bloodwork, everything was > normal or negative. She asked me if I thrash around in my sleep and my > *big* mouth husband said, " yes, she was kicking her foot around last night. " > So for that *one* night of kicking my foot, she wants me to go to a sleep > clinic! (I was probably kicking hubbys butt in my dream!) I am not going > to the sleep clinic. I cannot sleep in a strange place, I don't care if > they give me something to make me sleep, it won't happen. I have no > problems sleeping when I am not taking all these pills that make me tired so > I end up sleeping for a few hours in the middle of the day! And I don't do > anything all day, that will make you tired. I have decided to wean myself > off the neurontin and I'm not taking the elavil anymore, as of tonight. I'm > going to start seriously exercising like I used to. I was an exercise > junkie before all this. I exercised everyday before I had the surgery and > had planned to resume that once I hit the one year mark of the surgery. I > exercised after I had the accident and some stupid doctor ordered me to > stop, and stupidly I did. I felt *so much* better when I exercised. > > Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Hi Rhonda According to what I've read, it isn't 'safe' to just go off Elavil. You're supposed to gradually reduce the dosage, but not stop all at once. Helpfully?? Lyndi DigitalAngel wrote: > > Thanks. Well, she's not sure it's fibro. I have none of the trigger > points, but she thinks that is because I took my pain medication this > morning (I don't think so), so when I go back I am not to take it before I > go. That's not going to work! I'm up at 5:30 AM and my appointment isn't > til 10:30! She checked the results from the bloodwork, everything was > normal or negative. She asked me if I thrash around in my sleep and my > *big* mouth husband said, " yes, she was kicking her foot around last night. " > So for that *one* night of kicking my foot, she wants me to go to a sleep > clinic! (I was probably kicking hubbys butt in my dream!) I am not going > to the sleep clinic. I cannot sleep in a strange place, I don't care if > they give me something to make me sleep, it won't happen. I have no > problems sleeping when I am not taking all these pills that make me tired so > I end up sleeping for a few hours in the middle of the day! And I don't do > anything all day, that will make you tired. I have decided to wean myself > off the neurontin and I'm not taking the elavil anymore, as of tonight. I'm > going to start seriously exercising like I used to. I was an exercise > junkie before all this. I exercised everyday before I had the surgery and > had planned to resume that once I hit the one year mark of the surgery. I > exercised after I had the accident and some stupid doctor ordered me to > stop, and stupidly I did. I felt *so much* better when I exercised. > > Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 This won't be the first time I've just stopped taking it. They tell you not to " just stop " taking it because you may have a relapse. I wasn't taking it for depression, but to help me sleep at night. Thanks for the info. though. Rhonda Re: Re: Hi everyone !/Krystal > Hi Rhonda > > According to what I've read, it isn't 'safe' to just go off Elavil. > You're supposed to gradually reduce the dosage, but not stop all at once. > > Helpfully?? > Lyndi > > Quote Link to comment Share on other sites More sharing options...
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