Re: Please help. I can't go on like this.

[Guest guest]

I recorded a lot of them

and made MP3s out of them so that I could play them when I want..

.

A brilliant idea.. !!

Dianne

[Guest guest]

For anyone that has wondered just how insane I am.... I've also started recording my favorite books, reading them myself, so that I could turn them into MP3s to listen to while I work... the sound editor allows me to change the sound of my voice and do the editing.... One problem though, I've only been doing this 'a bit here and a bit there' and my voice changed! When I was more hypo, when I first started, my voice was deeper... so now the newer stuff doesn't sound quite the same.... but it's still kinda fun... when you can't afford to buy audio books and the library always seem to have the ones you want on reserve when you have a chance to go to town!! heheheheh

Topper ()

On Tue, 18 Oct 2005 21:38:17 +0100 "Dianne Lam" writes:

I recorded a lot of them and made MP3s out of them so that I could play them when I want..

.

A brilliant idea.. !!

Dianne

[Guest guest]

For anyone that has wondered just how insane I am.... I've also started recording my favorite books, reading them myself, so that I could turn them into MP3s to listen to while I work... the sound editor allows me to change the sound of my voice and do the editing.... One problem though, I've only been doing this 'a bit here and a bit there' and my voice changed! When I was more hypo, when I first started, my voice was deeper... so now the newer stuff doesn't sound quite the same.... but it's still kinda fun... when you can't afford to buy audio books and the library always seem to have the ones you want on reserve when you have a chance to go to town!! heheheheh

Topper ()

On Tue, 18 Oct 2005 21:38:17 +0100 "Dianne Lam" writes:

I recorded a lot of them and made MP3s out of them so that I could play them when I want..

.

A brilliant idea.. !!

Dianne

[Guest guest]

When I was more hypo,

when I first started, my voice was deeper... so now the newer stuff doesn't

sound quite the same

Isn’t that extraordinary

!! I guess if we recorded our voices more often we might learn something from

it.. ( unless we were The Queen , who sounds the same always ! Hahah!)

Dianne

[Guest guest]

Free T4 5.89 reference 0.8 - 1.6 NG/DL

>

> TSH ultra sensitive <0.01 reference 0.4 - 5 UIU/ML

>

> TSI 173 reference <130

>

> My heart rate was 140, BTW.

>

> So the ER doctor sent me to an endo (Doc #4) and I am on

>

> Atenolol 100mg 2x/day

>

> Methimazole 45mg/day in 2 doses

You have graves disease..one of the common symptoms of grave's

disease is insomnia.

I do suggest you take a look at the Grave's support forum here on

Yahoo as they can help you understand what is going on.

Methimazole should also be taken 3 times a day not twice. So I would

take 15 mg three times a day.. It will help bring your numbers down

quicker. When your numbers come down symptoms of being in overdrive

will calm down and you should be able to sleep better.

Kats3boys

[Guest guest]

Free T4 5.89 reference 0.8 - 1.6 NG/DL

>

> TSH ultra sensitive <0.01 reference 0.4 - 5 UIU/ML

>

> TSI 173 reference <130

>

> My heart rate was 140, BTW.

>

> So the ER doctor sent me to an endo (Doc #4) and I am on

>

> Atenolol 100mg 2x/day

>

> Methimazole 45mg/day in 2 doses

You have graves disease..one of the common symptoms of grave's

disease is insomnia.

I do suggest you take a look at the Grave's support forum here on

Yahoo as they can help you understand what is going on.

Methimazole should also be taken 3 times a day not twice. So I would

take 15 mg three times a day.. It will help bring your numbers down

quicker. When your numbers come down symptoms of being in overdrive

will calm down and you should be able to sleep better.

Kats3boys

[Guest guest]

TSI 173 reference <130

This is the antibody test for Graves..

>

> Whack one of the docs on the head and demand to have your adrenals

> tested.

>

> He won't do it go to the next...

>

> I might not be right... .but you were very hyper.... and that can

lead to

> adrenal fatigue.....

>

> I went through the same BS. I was in storm.... Not being able to

sleep

> sucks.... it does something to your head and your body gets to the

point

> where it just can't go....

>

> icky... don't even like thinking back to those days..... For me,

my brain

> never shut off... it went 24/7

>

> .... so.... did they tell you why you are hyper? I didn't see that

they

> checked antibodies... to determine if this is a Hashi hyper swing

or

> Grave's.... or something else... for me it was a something else....

>

> As the thyroid levels come down with the meds, that 'manic' stuff

will

> slack off.. but it does take some time for the stuff to slow down,

how

> long since you've been on the blockers?

>

> In the mean time... are you at least laying down quietly to allow

your

> body some time to rest even if it's not able to go into sleep mode

and

> repair stuff?

>

> Oh... sorry... Hi, ... welcome.... I just got animated when

I read

> your post..... Same kind of crap was done to me... Symptoms being

ignored

> for too long....

>

> Topper ()

>

> On Tue, 18 Oct 2005 10:23:32 -0700 " Kacher " <mkacher@m...>

> writes:

> I have what you might call total, complete, 100% insomnia. Due

to two

> very

> bad doctors, I wound up in the hospital emergency room because of

it. The

>

> bright side to that is at least it finally got my thyroid

diagnosed.

>

> T3/T-uptake 48.2 reference 25-40

>

> T3 Total 732.89 reference 60-181 NG/DL

>

> T4 >22 reference 5 - 12 U/DL

>

> Free T4 5.89 reference 0.8 - 1.6 NG/DL

>

> TSH ultra sensitive <0.01 reference 0.4 - 5 UIU/ML

>

> TSI 173 reference <130

>

> My heart rate was 140, BTW.

>

> So the ER doctor sent me to an endo (Doc #4) and I am on

>

> Atenolol 100mg 2x/day

>

> Methimazole 45mg/day in 2 doses

>

> The only good news is that my heart rate is down to half of what

it was.

> It's usually around 70 now.

>

> The insomnia is just getting worse though, and I can't get any

help. The

> endo won't talk to me about it. I went to yet another a regular

doc (Doc

> #5)

> who tried to help (with more pills) but gave up and sent me to

a " sleep

> specialist " (Doc #6) who just did more of the same (more pills.)

>

> There is a long list of medications that do not help. Lunesta,

Restoril,

> Ambien, Seroquel, Ativan, Rozarim, Trazodone. Some of these helped

for a

> day

> or two before they stopped working entirely. Some never worked at

all. (I

>

> got not even one minute of sleep on them.)

>

> I can take a sleepless night. I just can't take two or three or

four

> sleepless nights in a row. (And I mean sleepless. I don't sleep.

Period.)

>

> The docs don't seem to grasp the problem. If I don't sleep, I

can't

> function. I can't go to work. If I don't go to work and actually

produce,

> I

> lose my job. No job leads to no money, and no health insurance.

And then

> I

> can't see any of these doctors any more.

>

> They don't get that insomnia was my original complaint. It got so

bad I

> wound up in the ER. I really could not care less about my thyroid

right

> now

> with the insomnia still going on. I need to know what is wrong

with me.

> What

> ELSE is wrong with me. I can't get any of the docs to help though.

>

> I can't go on like this. I don't know where to turn to get help.

What do

> I

> do now?

>

[Guest guest]

TSI 173 reference <130

This is the antibody test for Graves..

>

> Whack one of the docs on the head and demand to have your adrenals

> tested.

>

> He won't do it go to the next...

>

> I might not be right... .but you were very hyper.... and that can

lead to

> adrenal fatigue.....

>

> I went through the same BS. I was in storm.... Not being able to

sleep

> sucks.... it does something to your head and your body gets to the

point

> where it just can't go....

>

> icky... don't even like thinking back to those days..... For me,

my brain

> never shut off... it went 24/7

>

> .... so.... did they tell you why you are hyper? I didn't see that

they

> checked antibodies... to determine if this is a Hashi hyper swing

or

> Grave's.... or something else... for me it was a something else....

>

> As the thyroid levels come down with the meds, that 'manic' stuff

will

> slack off.. but it does take some time for the stuff to slow down,

how

> long since you've been on the blockers?

>

> In the mean time... are you at least laying down quietly to allow

your

> body some time to rest even if it's not able to go into sleep mode

and

> repair stuff?

>

> Oh... sorry... Hi, ... welcome.... I just got animated when

I read

> your post..... Same kind of crap was done to me... Symptoms being

ignored

> for too long....

>

> Topper ()

>

> On Tue, 18 Oct 2005 10:23:32 -0700 " Kacher " <mkacher@m...>

> writes:

> I have what you might call total, complete, 100% insomnia. Due

to two

> very

> bad doctors, I wound up in the hospital emergency room because of

it. The

>

> bright side to that is at least it finally got my thyroid

diagnosed.

>

> T3/T-uptake 48.2 reference 25-40

>

> T3 Total 732.89 reference 60-181 NG/DL

>

> T4 >22 reference 5 - 12 U/DL

>

> Free T4 5.89 reference 0.8 - 1.6 NG/DL

>

> TSH ultra sensitive <0.01 reference 0.4 - 5 UIU/ML

>

> TSI 173 reference <130

>

> My heart rate was 140, BTW.

>

> So the ER doctor sent me to an endo (Doc #4) and I am on

>

> Atenolol 100mg 2x/day

>

> Methimazole 45mg/day in 2 doses

>

> The only good news is that my heart rate is down to half of what

it was.

> It's usually around 70 now.

>

> The insomnia is just getting worse though, and I can't get any

help. The

> endo won't talk to me about it. I went to yet another a regular

doc (Doc

> #5)

> who tried to help (with more pills) but gave up and sent me to

a " sleep

> specialist " (Doc #6) who just did more of the same (more pills.)

>

> There is a long list of medications that do not help. Lunesta,

Restoril,

> Ambien, Seroquel, Ativan, Rozarim, Trazodone. Some of these helped

for a

> day

> or two before they stopped working entirely. Some never worked at

all. (I

>

> got not even one minute of sleep on them.)

>

> I can take a sleepless night. I just can't take two or three or

four

> sleepless nights in a row. (And I mean sleepless. I don't sleep.

Period.)

>

> The docs don't seem to grasp the problem. If I don't sleep, I

can't

> function. I can't go to work. If I don't go to work and actually

produce,

> I

> lose my job. No job leads to no money, and no health insurance.

And then

> I

> can't see any of these doctors any more.

>

> They don't get that insomnia was my original complaint. It got so

bad I

> wound up in the ER. I really could not care less about my thyroid

right

> now

> with the insomnia still going on. I need to know what is wrong

with me.

> What

> ELSE is wrong with me. I can't get any of the docs to help though.

>

> I can't go on like this. I don't know where to turn to get help.

What do

> I

> do now?

>

[Guest guest]

TSI 173 reference <130

This is the antibody test for Graves..

>

> Whack one of the docs on the head and demand to have your adrenals

> tested.

>

> He won't do it go to the next...

>

> I might not be right... .but you were very hyper.... and that can

lead to

> adrenal fatigue.....

>

> I went through the same BS. I was in storm.... Not being able to

sleep

> sucks.... it does something to your head and your body gets to the

point

> where it just can't go....

>

> icky... don't even like thinking back to those days..... For me,

my brain

> never shut off... it went 24/7

>

> .... so.... did they tell you why you are hyper? I didn't see that

they

> checked antibodies... to determine if this is a Hashi hyper swing

or

> Grave's.... or something else... for me it was a something else....

>

> As the thyroid levels come down with the meds, that 'manic' stuff

will

> slack off.. but it does take some time for the stuff to slow down,

how

> long since you've been on the blockers?

>

> In the mean time... are you at least laying down quietly to allow

your

> body some time to rest even if it's not able to go into sleep mode

and

> repair stuff?

>

> Oh... sorry... Hi, ... welcome.... I just got animated when

I read

> your post..... Same kind of crap was done to me... Symptoms being

ignored

> for too long....

>

> Topper ()

>

> On Tue, 18 Oct 2005 10:23:32 -0700 " Kacher " <mkacher@m...>

> writes:

> I have what you might call total, complete, 100% insomnia. Due

to two

> very

> bad doctors, I wound up in the hospital emergency room because of

it. The

>

> bright side to that is at least it finally got my thyroid

diagnosed.

>

> T3/T-uptake 48.2 reference 25-40

>

> T3 Total 732.89 reference 60-181 NG/DL

>

> T4 >22 reference 5 - 12 U/DL

>

> Free T4 5.89 reference 0.8 - 1.6 NG/DL

>

> TSH ultra sensitive <0.01 reference 0.4 - 5 UIU/ML

>

> TSI 173 reference <130

>

> My heart rate was 140, BTW.

>

> So the ER doctor sent me to an endo (Doc #4) and I am on

>

> Atenolol 100mg 2x/day

>

> Methimazole 45mg/day in 2 doses

>

> The only good news is that my heart rate is down to half of what

it was.

> It's usually around 70 now.

>

> The insomnia is just getting worse though, and I can't get any

help. The

> endo won't talk to me about it. I went to yet another a regular

doc (Doc

> #5)

> who tried to help (with more pills) but gave up and sent me to

a " sleep

> specialist " (Doc #6) who just did more of the same (more pills.)

>

> There is a long list of medications that do not help. Lunesta,

Restoril,

> Ambien, Seroquel, Ativan, Rozarim, Trazodone. Some of these helped

for a

> day

> or two before they stopped working entirely. Some never worked at

all. (I

>

> got not even one minute of sleep on them.)

>

> I can take a sleepless night. I just can't take two or three or

four

> sleepless nights in a row. (And I mean sleepless. I don't sleep.

Period.)

>

> The docs don't seem to grasp the problem. If I don't sleep, I

can't

> function. I can't go to work. If I don't go to work and actually

produce,

> I

> lose my job. No job leads to no money, and no health insurance.

And then

> I

> can't see any of these doctors any more.

>

> They don't get that insomnia was my original complaint. It got so

bad I

> wound up in the ER. I really could not care less about my thyroid

right

> now

> with the insomnia still going on. I need to know what is wrong

with me.

> What

> ELSE is wrong with me. I can't get any of the docs to help though.

>

> I can't go on like this. I don't know where to turn to get help.

What do

> I

> do now?

>

[Guest guest]

We've got a phone that you say the person's name into and if my voice drops it won't recognise it - I still notice it happening from time to time during the day, but then it feels different when I talk - almost like I'm having to force the words out, somehow:-)))) Love Chris

When I was more hypo, when I first started, my voice was deeper... so now the newer stuff doesn't sound quite the same

Isn’t that extraordinary !! I guess if we recorded our voices more often we might learn something from it.. ( unless we were The Queen , who sounds the same always ! Hahah!)

Dianne

[Guest guest]

We've got a phone that you say the person's name into and if my voice drops it won't recognise it - I still notice it happening from time to time during the day, but then it feels different when I talk - almost like I'm having to force the words out, somehow:-)))) Love Chris

When I was more hypo, when I first started, my voice was deeper... so now the newer stuff doesn't sound quite the same

Isn’t that extraordinary !! I guess if we recorded our voices more often we might learn something from it.. ( unless we were The Queen , who sounds the same always ! Hahah!)

Dianne

[Guest guest]

We've got a phone that you say the person's name into and if my voice drops it won't recognise it - I still notice it happening from time to time during the day, but then it feels different when I talk - almost like I'm having to force the words out, somehow:-)))) Love Chris

When I was more hypo, when I first started, my voice was deeper... so now the newer stuff doesn't sound quite the same

Isn’t that extraordinary !! I guess if we recorded our voices more often we might learn something from it.. ( unless we were The Queen , who sounds the same always ! Hahah!)

Dianne

[Guest guest]

it feels different when I talk - almost like I'm

having to force the words out, somehow:-)))) Love Chris

Yes, I know exactly what you mean.. do you find you

have to repeat yourself to shop assistants etc ? (

Dianne

[Guest guest]

it feels different when I talk - almost like I'm

having to force the words out, somehow:-)))) Love Chris

Yes, I know exactly what you mean.. do you find you

have to repeat yourself to shop assistants etc ? (

Dianne

[Guest guest]

it feels different when I talk - almost like I'm

having to force the words out, somehow:-)))) Love Chris

Yes, I know exactly what you mean.. do you find you

have to repeat yourself to shop assistants etc ? (

Dianne

[Guest guest]

No, Dianne, I've not noticed that, but I am slightly self conscious of my voice at times, thinking it sounds very gruff, but the main problem is when the phone won't recognise it LOL! Do you have to repeat yourself with shop assistants then? Love Chris

it feels different when I talk - almost like I'm having to force the words out, somehow:-)))) Love Chris

Yes, I know exactly what you mean.. do you find you have to repeat yourself to shop assistants etc ? (

Dianne

[Guest guest]

No, Dianne, I've not noticed that, but I am slightly self conscious of my voice at times, thinking it sounds very gruff, but the main problem is when the phone won't recognise it LOL! Do you have to repeat yourself with shop assistants then? Love Chris

it feels different when I talk - almost like I'm having to force the words out, somehow:-)))) Love Chris

Yes, I know exactly what you mean.. do you find you have to repeat yourself to shop assistants etc ? (

Dianne

[Guest guest]

No, Dianne, I've not noticed that, but I am slightly self conscious of my voice at times, thinking it sounds very gruff, but the main problem is when the phone won't recognise it LOL! Do you have to repeat yourself with shop assistants then? Love Chris

it feels different when I talk - almost like I'm having to force the words out, somehow:-)))) Love Chris

Yes, I know exactly what you mean.. do you find you have to repeat yourself to shop assistants etc ? (

Dianne

[Guest guest]

try melatonin, you can get it at any drugstore.

[Guest guest]

try melatonin, you can get it at any drugstore.

[Guest guest]

try melatonin,

you can get it at any drugstore.

I am missing

the thread here ! Sorry … what does it do ?

Dianne

[Guest guest]

try melatonin,

you can get it at any drugstore.

I am missing

the thread here ! Sorry … what does it do ?

Dianne

[Guest guest]

Do you have to repeat yourself with shop assistants

then? Love Chris

Yes, & NOT ONLY THEM … Boo hoooooo makes one feel

so inadequate.. & yet if it is something I SHOULDN’T have said, they are on to it in a flash

... L

I had a total loss of voice for a while once.. and I

had therapy for it.. She told me I was all tensed up & I must relax my

diaphragm… which I did , and that was the end of my waistline L

Voice did come back eventually , but now & again

I do find it is not strong enough to be clear. Sigh….

Dianne

[Guest guest]

Do you have to repeat yourself with shop assistants

then? Love Chris

Yes, & NOT ONLY THEM … Boo hoooooo makes one feel

so inadequate.. & yet if it is something I SHOULDN’T have said, they are on to it in a flash

... L

I had a total loss of voice for a while once.. and I

had therapy for it.. She told me I was all tensed up & I must relax my

diaphragm… which I did , and that was the end of my waistline L

Voice did come back eventually , but now & again

I do find it is not strong enough to be clear. Sigh….

Dianne

[Guest guest]

Do you have to repeat yourself with shop assistants

then? Love Chris

Yes, & NOT ONLY THEM … Boo hoooooo makes one feel

so inadequate.. & yet if it is something I SHOULDN’T have said, they are on to it in a flash

... L

I had a total loss of voice for a while once.. and I

had therapy for it.. She told me I was all tensed up & I must relax my

diaphragm… which I did , and that was the end of my waistline L

Voice did come back eventually , but now & again

I do find it is not strong enough to be clear. Sigh….

Dianne