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Re: Please help. I can't go on like this.

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This Grave's Disease at some of it's finest, ya know. Your metabolism is so

fast that you are metabolizing those sleep meds right out of your body

before they ever have a decent chance to work. How long has it been since

you started on the Methimazole and the beta blocker? A few days? A few

wks? When? Your system definitely needs to be slowed down. You have to

care about the thyroid thing because that's exactly why you're not sleeping.

Please help. I can't go on like this.

> I have what you might call total, complete, 100% insomnia. Due to two

very

> bad doctors, I wound up in the hospital emergency room because of it. The

> bright side to that is at least it finally got my thyroid diagnosed.

>

> T3/T-uptake 48.2 reference 25-40

>

> T3 Total 732.89 reference 60-181 NG/DL

>

> T4 >22 reference 5 - 12 U/DL

>

> Free T4 5.89 reference 0.8 - 1.6 NG/DL

>

> TSH ultra sensitive <0.01 reference 0.4 - 5 UIU/ML

>

> TSI 173 reference <130

>

> My heart rate was 140, BTW.

>

> So the ER doctor sent me to an endo (Doc #4) and I am on

>

> Atenolol 100mg 2x/day

>

> Methimazole 45mg/day in 2 doses

>

> The only good news is that my heart rate is down to half of what it was.

> It's usually around 70 now.

>

> The insomnia is just getting worse though, and I can't get any help. The

> endo won't talk to me about it. I went to yet another a regular doc (Doc

#5)

> who tried to help (with more pills) but gave up and sent me to a " sleep

> specialist " (Doc #6) who just did more of the same (more pills.)

>

> There is a long list of medications that do not help. Lunesta, Restoril,

> Ambien, Seroquel, Ativan, Rozarim, Trazodone. Some of these helped for a

day

> or two before they stopped working entirely. Some never worked at all. (I

> got not even one minute of sleep on them.)

>

> I can take a sleepless night. I just can't take two or three or four

> sleepless nights in a row. (And I mean sleepless. I don't sleep. Period.)

> The docs don't seem to grasp the problem. If I don't sleep, I can't

> function. I can't go to work. If I don't go to work and actually produce,

I

> lose my job. No job leads to no money, and no health insurance. And then I

> can't see any of these doctors any more.

>

> They don't get that insomnia was my original complaint. It got so bad I

> wound up in the ER. I really could not care less about my thyroid right

now

> with the insomnia still going on. I need to know what is wrong with me.

What

> ELSE is wrong with me. I can't get any of the docs to help though.

>

> I can't go on like this. I don't know where to turn to get help. What do I

> do now?

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This Grave's Disease at some of it's finest, ya know. Your metabolism is so

fast that you are metabolizing those sleep meds right out of your body

before they ever have a decent chance to work. How long has it been since

you started on the Methimazole and the beta blocker? A few days? A few

wks? When? Your system definitely needs to be slowed down. You have to

care about the thyroid thing because that's exactly why you're not sleeping.

Please help. I can't go on like this.

> I have what you might call total, complete, 100% insomnia. Due to two

very

> bad doctors, I wound up in the hospital emergency room because of it. The

> bright side to that is at least it finally got my thyroid diagnosed.

>

> T3/T-uptake 48.2 reference 25-40

>

> T3 Total 732.89 reference 60-181 NG/DL

>

> T4 >22 reference 5 - 12 U/DL

>

> Free T4 5.89 reference 0.8 - 1.6 NG/DL

>

> TSH ultra sensitive <0.01 reference 0.4 - 5 UIU/ML

>

> TSI 173 reference <130

>

> My heart rate was 140, BTW.

>

> So the ER doctor sent me to an endo (Doc #4) and I am on

>

> Atenolol 100mg 2x/day

>

> Methimazole 45mg/day in 2 doses

>

> The only good news is that my heart rate is down to half of what it was.

> It's usually around 70 now.

>

> The insomnia is just getting worse though, and I can't get any help. The

> endo won't talk to me about it. I went to yet another a regular doc (Doc

#5)

> who tried to help (with more pills) but gave up and sent me to a " sleep

> specialist " (Doc #6) who just did more of the same (more pills.)

>

> There is a long list of medications that do not help. Lunesta, Restoril,

> Ambien, Seroquel, Ativan, Rozarim, Trazodone. Some of these helped for a

day

> or two before they stopped working entirely. Some never worked at all. (I

> got not even one minute of sleep on them.)

>

> I can take a sleepless night. I just can't take two or three or four

> sleepless nights in a row. (And I mean sleepless. I don't sleep. Period.)

> The docs don't seem to grasp the problem. If I don't sleep, I can't

> function. I can't go to work. If I don't go to work and actually produce,

I

> lose my job. No job leads to no money, and no health insurance. And then I

> can't see any of these doctors any more.

>

> They don't get that insomnia was my original complaint. It got so bad I

> wound up in the ER. I really could not care less about my thyroid right

now

> with the insomnia still going on. I need to know what is wrong with me.

What

> ELSE is wrong with me. I can't get any of the docs to help though.

>

> I can't go on like this. I don't know where to turn to get help. What do I

> do now?

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Share on other sites

This Grave's Disease at some of it's finest, ya know. Your metabolism is so

fast that you are metabolizing those sleep meds right out of your body

before they ever have a decent chance to work. How long has it been since

you started on the Methimazole and the beta blocker? A few days? A few

wks? When? Your system definitely needs to be slowed down. You have to

care about the thyroid thing because that's exactly why you're not sleeping.

Please help. I can't go on like this.

> I have what you might call total, complete, 100% insomnia. Due to two

very

> bad doctors, I wound up in the hospital emergency room because of it. The

> bright side to that is at least it finally got my thyroid diagnosed.

>

> T3/T-uptake 48.2 reference 25-40

>

> T3 Total 732.89 reference 60-181 NG/DL

>

> T4 >22 reference 5 - 12 U/DL

>

> Free T4 5.89 reference 0.8 - 1.6 NG/DL

>

> TSH ultra sensitive <0.01 reference 0.4 - 5 UIU/ML

>

> TSI 173 reference <130

>

> My heart rate was 140, BTW.

>

> So the ER doctor sent me to an endo (Doc #4) and I am on

>

> Atenolol 100mg 2x/day

>

> Methimazole 45mg/day in 2 doses

>

> The only good news is that my heart rate is down to half of what it was.

> It's usually around 70 now.

>

> The insomnia is just getting worse though, and I can't get any help. The

> endo won't talk to me about it. I went to yet another a regular doc (Doc

#5)

> who tried to help (with more pills) but gave up and sent me to a " sleep

> specialist " (Doc #6) who just did more of the same (more pills.)

>

> There is a long list of medications that do not help. Lunesta, Restoril,

> Ambien, Seroquel, Ativan, Rozarim, Trazodone. Some of these helped for a

day

> or two before they stopped working entirely. Some never worked at all. (I

> got not even one minute of sleep on them.)

>

> I can take a sleepless night. I just can't take two or three or four

> sleepless nights in a row. (And I mean sleepless. I don't sleep. Period.)

> The docs don't seem to grasp the problem. If I don't sleep, I can't

> function. I can't go to work. If I don't go to work and actually produce,

I

> lose my job. No job leads to no money, and no health insurance. And then I

> can't see any of these doctors any more.

>

> They don't get that insomnia was my original complaint. It got so bad I

> wound up in the ER. I really could not care less about my thyroid right

now

> with the insomnia still going on. I need to know what is wrong with me.

What

> ELSE is wrong with me. I can't get any of the docs to help though.

>

> I can't go on like this. I don't know where to turn to get help. What do I

> do now?

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It's known to help you get back into a normal sleeping pattern, I think. Love Chris

try melatonin, you can get it at any drugstore.

I am missing the thread here ! Sorry … what does it do ?

Dianne

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It's known to help you get back into a normal sleeping pattern, I think. Love Chris

try melatonin, you can get it at any drugstore.

I am missing the thread here ! Sorry … what does it do ?

Dianne

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It's known to help you get back into a normal sleeping pattern, I think. Love Chris

try melatonin, you can get it at any drugstore.

I am missing the thread here ! Sorry … what does it do ?

Dianne

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Melatonin is naturally released by the body as the day darkens and our bodies naturally ready for sleep. It's a hormone. If the rhythm of the body is off due to adrenal fatigue, stress, drugs, booze, it can throw off the melatonin secretion.

It's also something that we have lots of when young and diminishing supplies as we age.

Taking Melatonin 20 to 30 minutes before bedtime can help a person fall asleep. It's not a sleeping pill, it's not a drug...

It worked for me for many years, until my body got too messed up.

I think it helps a LOT if you are using supplemental melatonin to help with sleep to follow all the other 'natural' triggers for our body to know its' time to sleep. It should be the same bed time every night. Light levels should be decreasing as it comes closer to bed time, room temps should drop... all these things help the body to start shutting things down and preparing to sleep. Curling up all snuggly in a cozy dark safe place is what our bodies naturally choose to sleep.

Topper ()

On Wed, 19 Oct 2005 16:07:22 +0100 "Dianne Lam" writes:

try melatonin, you can get it at any drugstore.

I am missing the thread here ! Sorry … what does it do ?

Dianne

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It's known to help you get back into a normal sleeping

pattern, I think. Love Chris

Right ! So is it readily available in UK do you know, or is it another

wonderful thing from the States ?

Link to comment
Share on other sites

It's known to help you get back into a normal sleeping

pattern, I think. Love Chris

Right ! So is it readily available in UK do you know, or is it another

wonderful thing from the States ?

Link to comment
Share on other sites

It's known to help you get back into a normal sleeping

pattern, I think. Love Chris

Right ! So is it readily available in UK do you know, or is it another

wonderful thing from the States ?

Link to comment
Share on other sites

It should be the same

bed time every night. Light levels should be decreasing as it comes closer to

bed time, room temps should drop... all these things help the body to start

shutting things down and preparing to sleep. Curling up all snuggly in a cozy dark

safe place is what our bodies naturally choose to sleep.

I do all the proper ‘

sleep hygiene ‘ tricks, so I think it is my melatonin which has packed up, but I

also feel there is a lunar angle to it.. I ma going to try & keep a sleep

diary, as some nights I sleep well.. just need to find the trigger..

Thanks, ..

ox

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It should be the same

bed time every night. Light levels should be decreasing as it comes closer to

bed time, room temps should drop... all these things help the body to start

shutting things down and preparing to sleep. Curling up all snuggly in a cozy dark

safe place is what our bodies naturally choose to sleep.

I do all the proper ‘

sleep hygiene ‘ tricks, so I think it is my melatonin which has packed up, but I

also feel there is a lunar angle to it.. I ma going to try & keep a sleep

diary, as some nights I sleep well.. just need to find the trigger..

Thanks, ..

ox

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Share on other sites

It should be the same

bed time every night. Light levels should be decreasing as it comes closer to

bed time, room temps should drop... all these things help the body to start

shutting things down and preparing to sleep. Curling up all snuggly in a cozy dark

safe place is what our bodies naturally choose to sleep.

I do all the proper ‘

sleep hygiene ‘ tricks, so I think it is my melatonin which has packed up, but I

also feel there is a lunar angle to it.. I ma going to try & keep a sleep

diary, as some nights I sleep well.. just need to find the trigger..

Thanks, ..

ox

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