Re: New here...Need help making decision!

February 24, 2006

,

Welcome to the group

My dd was banded from 8.5 to 11.5 months. She was a mild/moderate case. Check out her Before and After DOC Band pictures here. The two following pictures are her also. Since the pictures are so small it's difficult to see the difference in her forehead, but you can really see a big change in her ear alignment. We were glad she got her band before her 9 mo growth spurt.

Have you gotten a consult with a provider? Cranial Technologies offers free consults. You can see their locations here. The clinicians go through extensive training so they have a good idea on plagio and if banding would be best.

You can also check out the band database here to see where some members went. Here is a great list of questions to ask a orthotist to gauge their experience level.

Good luck with your decision.

Mom to Dane (4 yo) and Cece (13.5 mo) DOC Grads

February 24, 2006

,

Welcome to the group

My dd was banded from 8.5 to 11.5 months. She was a mild/moderate case. Check out her Before and After DOC Band pictures here. The two following pictures are her also. Since the pictures are so small it's difficult to see the difference in her forehead, but you can really see a big change in her ear alignment. We were glad she got her band before her 9 mo growth spurt.

Have you gotten a consult with a provider? Cranial Technologies offers free consults. You can see their locations here. The clinicians go through extensive training so they have a good idea on plagio and if banding would be best.

You can also check out the band database here to see where some members went. Here is a great list of questions to ask a orthotist to gauge their experience level.

Good luck with your decision.

Mom to Dane (4 yo) and Cece (13.5 mo) DOC Grads

February 24, 2006

Thank you! I hope I'm posting right...I'm still getting used to this

board!

I hope I make the right choice. He ear alignment is what reall

bothers me. I don't want it to cause problems later on, in case she

needs glasses.

I will check out the pictures, and links you sent!

Thank you again!

" Chloe " 6-23-05

NC

-- In Plagiocephaly , " rmanias " <manias@...> wrote:

>

> ,

>

> Welcome to the group

>

> My dd was banded from 8.5 to 11.5 months. She was a mild/moderate

case.

> Check out her Before and After DOC Band pictures here.

>

<http://health.ph./group/Plagiocephaly/photos/view/45

e4?\

> b=9 & o=2> The two following pictures are her also. Since the

pictures

> are so small it's difficult to see the difference in her forehead,

but

> you can really see a big change in her ear alignment. We were

glad she

> got her band before her 9 mo growth spurt.

>

> Have you gotten a consult with a provider? Cranial Technologies

offers

> free consults. You can see their locations here.

> <http://www.cranialtech.com/ClinicLocations/index.html> The

clinicians

> go through extensive training so they have a good idea on plagio

and if

> banding would be best.

>

> You can also check out the band database here

> <Plagiocephaly/database?

method=repo\

> rtRows & tbl=8> to see where some members went. Here

> <http://www.cappskids.org/QuestionsForTheDoctorAndOrthotist.htm>

is a

> great list of questions to ask a orthotist to gauge their

experience

> level.

>

> Good luck with your decision.

>

> Mom to Dane (4 yo) and Cece (13.5 mo) DOC Grads

>

February 24, 2006

Thank you! I hope I'm posting right...I'm still getting used to this

board!

I hope I make the right choice. He ear alignment is what reall

bothers me. I don't want it to cause problems later on, in case she

needs glasses.

I will check out the pictures, and links you sent!

Thank you again!

" Chloe " 6-23-05

NC

-- In Plagiocephaly , " rmanias " <manias@...> wrote:

>

> ,

>

> Welcome to the group

>

> My dd was banded from 8.5 to 11.5 months. She was a mild/moderate

case.

> Check out her Before and After DOC Band pictures here.

>

<http://health.ph./group/Plagiocephaly/photos/view/45

e4?\

> b=9 & o=2> The two following pictures are her also. Since the

pictures

> are so small it's difficult to see the difference in her forehead,

but

> you can really see a big change in her ear alignment. We were

glad she

> got her band before her 9 mo growth spurt.

>

> Have you gotten a consult with a provider? Cranial Technologies

offers

> free consults. You can see their locations here.

> <http://www.cranialtech.com/ClinicLocations/index.html> The

clinicians

> go through extensive training so they have a good idea on plagio

and if

> banding would be best.

>

> You can also check out the band database here

> <Plagiocephaly/database?

method=repo\

> rtRows & tbl=8> to see where some members went. Here

> <http://www.cappskids.org/QuestionsForTheDoctorAndOrthotist.htm>

is a

> great list of questions to ask a orthotist to gauge their

experience

> level.

>

> Good luck with your decision.

>

> Mom to Dane (4 yo) and Cece (13.5 mo) DOC Grads

>

February 24, 2006

Hello to everyone! This post makes me feel better already. In

regard to your decision, if you're on the board, it sounds like you

may have a gut instinct that there is a problem?

I can only speak from experience - my daughter is 5 months old, and

I noticed the problem and tried to correct with positioning for the

last 10 weeks. The side got better and the back is worse. All of

the pediatricians in our group say that I'm crazy to get a helmet

and it will resolve on its own, and that the specialist would never

recommend a helmet. (one of the pediatricians that disagrees with

getting the helmet also told me to always follow my maternal

instincts). I can't understand why pediatricians seem lax about

this issue, but kids don't seem to usually grow out of it.

I took her in to a craniofacial specialist 6 weeks ago, and the

flattening increased, going on a scall of 10 from a 2 to 3/3.5. The

specialist says she's in a gray area, but when I asked what he'd do,

he said put a helmet on. It's scary and I hate that we have to do

this, but also feel blessed that we have an opportunity to try and

fix it. One of her eyes is slightly off - but no one sees it but me

and the doctor!, and the flattening can only be seen from one side

and the top of her head.

Initially, my husband deferred to the peds, but after discussing it

and sending him some research he now agrees, even though it's hard

to think of your baby in a helmet.

Good luck with everything and I'll keep you posted. We hope we're

doing the right thing also!!

> In a message dated 2/24/2006 10:03:47 AM Eastern Standard Time,

gradygirl79@... writes:

>

> Hi!

> I just found this board, and need some advice.

> My daughter is 8 months old, and we have seen a neurosurgeon twice

> regarding her Plagio. The Dr. told us that it was a mild case, and

we

> could do the helmet, or wait it out and maybe she'd outgrow it. I

don't

> know what to do! Her ears are 5 mm off on one side, and she has a

> slight flat spot on the right side. It's not noticeable from the

front

> view, but from the back/ top it is.

>

> My question is, is it worth it to do the helmet for a mild case? I

hate

> that she's already this old, and I still can't decide. We have a

> prescription written out for the helmet, just in case we do go

ahead

> with it. My husband is leaving the decision up to me, and I just

don't

> know if I want to put her through that! I am on the fence, and

need

> some advice!

>

> Thanks!

>

> HI!! Welcome! My son is very mild. I was told the helmet might not

even work but we are trying. I rather try it then regret it later

on. Good luck on your decision..

>

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February 24, 2006