Re: New and seeking guidance

January 21, 2006

,

You did a great job on the photos. She is adorable, mad but

adorable,lol. I think you are proceeding in the right way. Because of

the complex asymmetry of her head and the ridge it is definitely

worth the CT scan. If the scan comes back clear for cranio then a

band can help with alot of the asymmetry. I would however in this

case recommend using Cranial Tech. for banding, they have the

expertise needed to address a more complex case. You may end up like

some of us who get a pretty great result but are left with some

remaining asymmetry, but the correction you can get is so worth it.

If it is cranio then there are many excellent surgeons who are using

less invasive procedures now and that work with Cranial Tech. for

post surgical banding. You can look up the clinic that you might use

on their website and see the list of surgeons they work with. I hate

to be so blunt, but don't want to sugar coat things either. I don't

think that helps anyone. I will looking for your post to let us know

what the scan shows. My prayers for a good outcome are with you and

.

CAROLG

>

> OK, here are her new pictures. I tried to get them as straight on

as possible but she wasn't very cooperative.

>

> I did email the CT people and I will be sending them these pics as

well for an assessment. So, if I do end up going for a DOC band,

does that mean I have to drive 10 hours one way every week? How do

you all do this?

>

> I finally got a call from 's old ped today. (I switched peds

cuz her doc told me just to keep an eye on it and she'd see her in 2

months.) I told the doc I wasn't comfortable with doing nothing and

she said we could do a CT scan to reassure me. I didn't tell her I

already have one scheduled through her new doc. I asked her what we

could do if the the CT scan rules out craniosynostosis and it's just

plagio. Do you know what she told me?? " There's really nothing to

be done for that. She'll just grow out of it. " Now, how is it

possible that a Dr. feels this way? I'm so glad I changed docs.

Anyway, if you could take a look at her pics I would appreciate it.

>

> Thanks for the warm welcome to the group.

>

> Re: New and seeking guidance

>

> ,

> It is tough to say what is going on without the CT scan, but she

can

> have a combination of plagio shapes. Take a look in the photos

> section for some of the photo study pics and see if you can copy

the

> way they are taken, it will help give us a better view. Please

let us

> know how the scan goes.

> CAROLG

>

January 21, 2006