Re: My Neph has never mentioned a special diet or any restrictions

June 17, 2004

Jill,

Those of us on dietary restrictions is due to individual lab results. In

general, most of us are told to follow a low protein, low sodium diet, but the

amounts of protein, sodium, phosphorus and potassium allowed varies between

individuals depending on body size and lab results. You can always check with

your Neph and ask for an appointment with a dietitian if you would like more

individual guidelines.

In a message dated 6/17/2004 1:03:48 PM Pacific Daylight Time,

aj72300@... writes:

> Do all people with IGAN watch certain things like salt, etc.? I ask

> my Neph every time I go if I should be changing the way I eat and he

> always says " everything in moderation " . Just curious if there are

> things I should be avoiding.

>

> Jill G.

>

June 17, 2004

Jill,

I have never been on a diet and as far as I know it will not be

necessary unless the kidney function will decrease. I think the

advice your neph has given you sounds perfectly ok.

Doortje

> Do all people with IGAN watch certain things like salt, etc.? I

ask

> my Neph every time I go if I should be changing the way I eat and

he

> always says " everything in moderation " . Just curious if there are

> things I should be avoiding.

>

> Jill G.

June 17, 2004

Jill,

I have never been on a diet and as far as I know it will not be

necessary unless the kidney function will decrease. I think the

advice your neph has given you sounds perfectly ok.

Doortje

> Do all people with IGAN watch certain things like salt, etc.? I

ask

> my Neph every time I go if I should be changing the way I eat and

he

> always says " everything in moderation " . Just curious if there are

> things I should be avoiding.

>

> Jill G.

June 17, 2004

Jill,

I have never been on a diet and as far as I know it will not be

necessary unless the kidney function will decrease. I think the

advice your neph has given you sounds perfectly ok.

Doortje

> Do all people with IGAN watch certain things like salt, etc.? I

ask

> my Neph every time I go if I should be changing the way I eat and

he

> always says " everything in moderation " . Just curious if there are

> things I should be avoiding.

>

> Jill G.

June 17, 2004

Jill diet restrictions all depend on how your lab values are sitting. For

me, for instance, I have good potassium and phosphorus values so I don't

have to watch those yet. My neph feels that a low protein diet is needed

for people spilling large amounts of protein, though some other nephs don't

follow this course. My salt is restricted due to my blood pressure being

very high when all of this started. So my diet is 50g of protein, 1500mg

sodium, no potassium or phosphorus restrictions. Others here are on a full

renal diet due to their lab values/renal function level, others are on no

restrictions due to having very good lab values, decent renal function, and

no major b/p problems. If your neph says don't sweat it just eat a good

balanced diet then your values must be sitting in normal ranges.

I don't think we can stress enough how every patient is different when

it comes to dietary restrictions, or lack there of. There are no magic

" IgAN " diet guidelines out there, just go by what your doctor recommends.

Amy

My Neph has never mentioned a special diet or any

restrictions

> Do all people with IGAN watch certain things like salt, etc.? I ask

> my Neph every time I go if I should be changing the way I eat and he

> always says " everything in moderation " . Just curious if there are

> things I should be avoiding.

>

> Jill G.

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely supported

by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

June 17, 2004

Jill,

I have asked my neph this question every time I've seen him. His

response is to watch sodium intake (processed food and the salt shaker)

and just eat a good varied diet. I did ask about the DASH diet and he

didn't think it would have a great effect (though I am not sure how

much the UK medical profession knows about this) but it wouldn't hurt

to try it.

Last time I saw him he mentioned DASH and asked if I had been following

it. I guess he had looked into it. Due to my recent mood, and general

lack of enthusiasm, I didn't bother, though I have recently started to

follow WeightWatchers to lose those extra pounds (and hopefully reduce

the number of BP pills from five).

Adam

> Do all people with IGAN watch certain things like salt, etc.? I ask

> my Neph every time I go if I should be changing the way I eat and he

> always says " everything in moderation " . Just curious if there are

> things I should be avoiding.

>

> Jill G.

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

> supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

June 17, 2004

Jill,

I have asked my neph this question every time I've seen him. His

response is to watch sodium intake (processed food and the salt shaker)

and just eat a good varied diet. I did ask about the DASH diet and he

didn't think it would have a great effect (though I am not sure how

much the UK medical profession knows about this) but it wouldn't hurt

to try it.

Last time I saw him he mentioned DASH and asked if I had been following

it. I guess he had looked into it. Due to my recent mood, and general

lack of enthusiasm, I didn't bother, though I have recently started to

follow WeightWatchers to lose those extra pounds (and hopefully reduce

the number of BP pills from five).

Adam

> Do all people with IGAN watch certain things like salt, etc.? I ask

> my Neph every time I go if I should be changing the way I eat and he

> always says " everything in moderation " . Just curious if there are

> things I should be avoiding.

>

> Jill G.

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

> supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>

June 17, 2004

BTW, DASH diet is to with reducing blood pressure.

> Jill,

>

> I have asked my neph this question every time I've seen him. His

> response is to watch sodium intake (processed food and the salt shaker)

> and just eat a good varied diet. I did ask about the DASH diet and he

> didn't think it would have a great effect (though I am not sure how

> much the UK medical profession knows about this) but it wouldn't hurt

> to try it.

>

> Last time I saw him he mentioned DASH and asked if I had been following

> it. I guess he had looked into it. Due to my recent mood, and general

> lack of enthusiasm, I didn't bother, though I have recently started to

> follow WeightWatchers to lose those extra pounds (and hopefully reduce

> the number of BP pills from five).

>

> Adam

>

>> Do all people with IGAN watch certain things like salt, etc.? I ask

>> my Neph every time I go if I should be changing the way I eat and he

>> always says " everything in moderation " . Just curious if there are

>> things I should be avoiding.

>>

>> Jill G.

>>

>> To edit your settings for the group, go to our Yahoo Group

>> home page:

>> http://groups.yahoo.com/group/iga-nephropathy/

>>

>> To unsubcribe via email,

>> iga-nephropathy-unsubscribe

>> Visit our companion website at www.igan.ca. The site is entirely

>> supported by donations. If you would like to help, go to:

>> http://www.igan.ca/id62.htm

>>

>> Thank you

>>

June 17, 2004

BTW, DASH diet is to with reducing blood pressure.

> Jill,

>

> I have asked my neph this question every time I've seen him. His

> response is to watch sodium intake (processed food and the salt shaker)

> and just eat a good varied diet. I did ask about the DASH diet and he

> didn't think it would have a great effect (though I am not sure how

> much the UK medical profession knows about this) but it wouldn't hurt

> to try it.

>

> Last time I saw him he mentioned DASH and asked if I had been following

> it. I guess he had looked into it. Due to my recent mood, and general

> lack of enthusiasm, I didn't bother, though I have recently started to

> follow WeightWatchers to lose those extra pounds (and hopefully reduce

> the number of BP pills from five).

>

> Adam

>

>> Do all people with IGAN watch certain things like salt, etc.? I ask

>> my Neph every time I go if I should be changing the way I eat and he

>> always says " everything in moderation " . Just curious if there are

>> things I should be avoiding.

>>

>> Jill G.

>>

>> To edit your settings for the group, go to our Yahoo Group

>> home page:

>> http://groups.yahoo.com/group/iga-nephropathy/

>>

>> To unsubcribe via email,

>> iga-nephropathy-unsubscribe

>> Visit our companion website at www.igan.ca. The site is entirely

>> supported by donations. If you would like to help, go to:

>> http://www.igan.ca/id62.htm

>>

>> Thank you

>>

June 17, 2004

BTW, DASH diet is to with reducing blood pressure.

> Jill,

>

> I have asked my neph this question every time I've seen him. His

> response is to watch sodium intake (processed food and the salt shaker)

> and just eat a good varied diet. I did ask about the DASH diet and he

> didn't think it would have a great effect (though I am not sure how

> much the UK medical profession knows about this) but it wouldn't hurt

> to try it.

>

> Last time I saw him he mentioned DASH and asked if I had been following

> it. I guess he had looked into it. Due to my recent mood, and general

> lack of enthusiasm, I didn't bother, though I have recently started to

> follow WeightWatchers to lose those extra pounds (and hopefully reduce

> the number of BP pills from five).

>

> Adam

>

>> Do all people with IGAN watch certain things like salt, etc.? I ask

>> my Neph every time I go if I should be changing the way I eat and he

>> always says " everything in moderation " . Just curious if there are

>> things I should be avoiding.

>>

>> Jill G.

>>

>> To edit your settings for the group, go to our Yahoo Group

>> home page:

>> http://groups.yahoo.com/group/iga-nephropathy/

>>

>> To unsubcribe via email,

>> iga-nephropathy-unsubscribe

>> Visit our companion website at www.igan.ca. The site is entirely

>> supported by donations. If you would like to help, go to:

>> http://www.igan.ca/id62.htm

>>

>> Thank you

>>

June 17, 2004

Jill, I ditto 's comment below. In fact sometimes there is a difference of

opinion from neph. regarding how much protein the same patient should have based

on their previous experience and knowledge. I had 3 different nephologists tell

me just a little bit different ideas on how much protein I could have. Some do

not restrict as they are concerned if your protein and albumin go to low, then

you will be more prone to excess fluid. Most will tell you everything in

moderation (except the salt of course). I think the worse the renal function,

perhaps the tighter control on protein, but again depends on all the lab work

and individual. I heard one nephrologist speak at a recent conference that did

not restrict protein at all. Another one said 0.8grams per Kilo of body weight.

My neph at Mayo says moderation, but no red meat. (Fish, chicken, turkey OK) My

creatinine is normal but my urine protein was about 3 grams. I should add to

this though, just because you have a normal

serum creatinine, does not necessarily mean you have normal kidney function.

There's a better formula to assess renal function through a GFR which is easily

calculated by something called an MDRD equation. I hope I haven't totally

confused you, but I think we are all learning more and more about Ig A as time

goes on and more research is done. Bonnie

W4JC@... wrote:

Jill,

Those of us on dietary restrictions is due to individual lab results. In

general, most of us are told to follow a low protein, low sodium diet, but the

amounts of protein, sodium, phosphorus and potassium allowed varies between

individuals depending on body size and lab results. You can always check with

your Neph and ask for an appointment with a dietitian if you would like more

individual guidelines.

In a message dated 6/17/2004 1:03:48 PM Pacific Daylight Time,

aj72300@... writes:

> Do all people with IGAN watch certain things like salt, etc.? I ask

> my Neph every time I go if I should be changing the way I eat and he

> always says " everything in moderation " . Just curious if there are

> things I should be avoiding.

>

> Jill G.

>

June 17, 2004

You can find a handy MDRD calculator here:

http://nephron.com/mdrd/default.html

GFR is the same thing as % kidney function.

Nephrologists aren't very keen on having patients get malnourished because

of protein restriction. To be frank, they would rather have you on dialysis

and well-nourished a few weeks or months earlier, than have you start

dialysis later in a malnourished state. Because advanced renal failure

patients tend to not have a normal appetite, it's extremely important for

the patient on a low protein diet to follow the instructions for extra

calories and energy foods. Unfortunately, many don't and the result is

malnutrition. There is much greater risk when you start dialysis already

malnourished, or when you let yourself get malnourished while on dialysis.

The importance of this can't be stressed enough.

Pierre

Re: My Neph has never mentioned a special diet or any

restrictions

> Jill, I ditto 's comment below. In fact sometimes there is a

difference of opinion from neph. regarding how much protein the same patient

should have based on their previous experience and knowledge. I had 3

different nephologists tell me just a little bit different ideas on how much

protein I could have. Some do not restrict as they are concerned if your

protein and albumin go to low, then you will be more prone to excess fluid.

Most will tell you everything in moderation (except the salt of course). I

think the worse the renal function, perhaps the tighter control on protein,

but again depends on all the lab work and individual. I heard one

nephrologist speak at a recent conference that did not restrict protein at

all. Another one said 0.8grams per Kilo of body weight. My neph at Mayo

says moderation, but no red meat. (Fish, chicken, turkey OK) My creatinine

is normal but my urine protein was about 3 grams. I should add to this

though, just because you have a normal

> serum creatinine, does not necessarily mean you have normal kidney

function. There's a better formula to assess renal function through a GFR

which is easily calculated by something called an MDRD equation. I hope I

haven't totally confused you, but I think we are all learning more and more

about Ig A as time goes on and more research is done. Bonnie

>

June 17, 2004