RE: Barb,Best hospital for PSC in NYC

[Guest guest]

Dear Lee;

Have you thought about Mt. Sinai Medical School, Division of

Gastroenterology, in New York City?

They specialize in IBD, but also treat disease of the bile ducts:

" Mount Sinai Gastroenterology Faculty Practice Associates specialize

in the diagnosis and treatment in inflammatory bowel disease

(ulcerative colitis and Crohn's disease), colorectal and other

gastrointestinal cancers, peptic ulcer disease, gastroesophageal

reflux disease, gastrointestinal motility disorders (especially

female pelvic floor disorders), and diseases of the pancreas and

bile ducts that may require advanced endoscopic techniques. "

http://www.mssm.edu/medicine/gastroenterology/fpa.shtml

http://www.mssm.edu/medicine/gastroenterology/patient_care.shtml

http://www.mssm.edu/medicine/gastroenterology/directions.shtml

Best regards,

Dave

(father of (21); PSC 07/03; UC 08/03)

> With my son moving to NYC, I have a list of possible physicians

for him but I want to pick one that is associated with a hospital

with a good reputation for treating PSC and for liver transplants.

[Guest guest]

Dear Lee;

Have you thought about Mt. Sinai Medical School, Division of

Gastroenterology, in New York City?

They specialize in IBD, but also treat disease of the bile ducts:

" Mount Sinai Gastroenterology Faculty Practice Associates specialize

in the diagnosis and treatment in inflammatory bowel disease

(ulcerative colitis and Crohn's disease), colorectal and other

gastrointestinal cancers, peptic ulcer disease, gastroesophageal

reflux disease, gastrointestinal motility disorders (especially

female pelvic floor disorders), and diseases of the pancreas and

bile ducts that may require advanced endoscopic techniques. "

http://www.mssm.edu/medicine/gastroenterology/fpa.shtml

http://www.mssm.edu/medicine/gastroenterology/patient_care.shtml

http://www.mssm.edu/medicine/gastroenterology/directions.shtml

Best regards,

Dave

(father of (21); PSC 07/03; UC 08/03)

> With my son moving to NYC, I have a list of possible physicians

for him but I want to pick one that is associated with a hospital

with a good reputation for treating PSC and for liver transplants.

[Guest guest]

Hi Lee,

I think what I posted was the US News & World Report’s

Best Hospitals list. They list Mt Sinai

as #7 for GI disorders. You can

read that report at:

http://www.usnews.com/usnews/health/best-hospitals/rankings/specihqgast.htm

On their Honor Roll (Best of the Best) they list New York- Presbyterian Hospital at #16 – you can read that report at:

http://www.usnews.com/usnews/health/best-hospitals/directory/glance_6210024.htm

If you want a first hand recommendation – I’d ask

Penny, her doctor saved her life and she has been doing well (transplant free) ever

since.

HTH Barb in Texas

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas

Barb,Best hospital for PSC in NYC

Dear Barb,

I have been looking through all my saved emails, because I thought

you once posted a list of hospitals that were ranked by how they

treated liver disease.

I might be dreaming because I can't find it.

With my son moving to NYC, I have a list of possible physicians for

him but I want to pick one that is associated with a hospital with a

good reputation for treating PSC and for liver transplants.

Although we have been to Mayo in Rochester, he needs someone local to

keep tabs on him.

Would you let me know if you did post a list of hospitals with good

reputations?

Thanks so much

Lee

[Guest guest]

Hi Lee,

I think what I posted was the US News & World Report’s

Best Hospitals list. They list Mt Sinai

as #7 for GI disorders. You can

read that report at:

http://www.usnews.com/usnews/health/best-hospitals/rankings/specihqgast.htm

On their Honor Roll (Best of the Best) they list New York- Presbyterian Hospital at #16 – you can read that report at:

http://www.usnews.com/usnews/health/best-hospitals/directory/glance_6210024.htm

If you want a first hand recommendation – I’d ask

Penny, her doctor saved her life and she has been doing well (transplant free) ever

since.

HTH Barb in Texas

Barb in Texas - Together in the Fight, Whatever it Takes!

Son Ken (32) UC 91 - PSC 99 Listed 7/21 @ Baylor Dallas

Barb,Best hospital for PSC in NYC

Dear Barb,

I have been looking through all my saved emails, because I thought

you once posted a list of hospitals that were ranked by how they

treated liver disease.

I might be dreaming because I can't find it.

With my son moving to NYC, I have a list of possible physicians for

him but I want to pick one that is associated with a hospital with a

good reputation for treating PSC and for liver transplants.

Although we have been to Mayo in Rochester, he needs someone local to

keep tabs on him.

Would you let me know if you did post a list of hospitals with good

reputations?

Thanks so much

Lee

[Guest guest]

There are some members from the NYC area, but I wouldn't number Penny

among them. She was treated at Strong-Memorial in Rochester, NY - a

good 300 miles from NYC.

In the small town where I once lived in upstate NY, " the city "

referred to Rochester not NYC. NYC was a vacation destination not a

familiar playground.

Tim R

> ...

> If you want a first hand recommendation - I'd ask Penny, her doctor

> saved her life and she has been doing well (transplant free) ever

since.

[Guest guest]

-----Original

Message-----

In the small town

where I once lived in upstate NY, " the city " referred to Rochester

not NYC. NYC was a vacation

destination not a familiar playground.

I stand corrected,

have to remember, where I live now, “City” means a gas station and

a post office in the same place!

Barb in rural Texas

[Guest guest]

Thanks Dave,

Yes but that was where the other Bill was treated unsuccessfully. It

was sad to lose him and I guess I shouldn't judge Mt. Sinai on just

one patient but I can't help but think of him. Thanks for the links,

I will check them out.

Lee

[Guest guest]

Thanks Dave,

Yes but that was where the other Bill was treated unsuccessfully. It

was sad to lose him and I guess I shouldn't judge Mt. Sinai on just

one patient but I can't help but think of him. Thanks for the links,

I will check them out.

Lee

[Guest guest]

Thanks Dave,

Yes but that was where the other Bill was treated unsuccessfully. It

was sad to lose him and I guess I shouldn't judge Mt. Sinai on just

one patient but I can't help but think of him. Thanks for the links,

I will check them out.

Lee

[Guest guest]

Thanks Barb, this must be what I was thinking of.You and Dave have given me some reading to do.This is the worst part of moving, getting new everything.Thanks again,LeeHi Lee, I think what I posted was the US News & World Report’s Best Hospitals list.  They list Mt Sinai as #7 for GI disorders.  You can read that report at:http://www.usnews.com/usnews/health/best-hospitals/rankings/specihqgast.htm 

[Guest guest]

Thanks Barb, this must be what I was thinking of.You and Dave have given me some reading to do.This is the worst part of moving, getting new everything.Thanks again,LeeHi Lee, I think what I posted was the US News & World Report’s Best Hospitals list.  They list Mt Sinai as #7 for GI disorders.  You can read that report at:http://www.usnews.com/usnews/health/best-hospitals/rankings/specihqgast.htm 

[Guest guest]

Thanks Barb, this must be what I was thinking of.You and Dave have given me some reading to do.This is the worst part of moving, getting new everything.Thanks again,LeeHi Lee, I think what I posted was the US News & World Report’s Best Hospitals list.  They list Mt Sinai as #7 for GI disorders.  You can read that report at:http://www.usnews.com/usnews/health/best-hospitals/rankings/specihqgast.htm 

[Guest guest]

Mt Sinai had to report itself to the NYC Public Health department this

Jan (right after Bill died) because of excess numbers of infections

and deaths in the liver transplant program. They have recently resumed

doing LDLT after several years break.

5-6 years ago a friend of mine was at Mt Sinai as a patient (she was

also a professor there). It was around the time the liver donor died.

She went in with sepsis (not a GI patient), and was critically ill.

The nursing staff was very short, and assistants of some kind filled

in, but not very well. She had trouble getting meals, getting meds on

time, getting anyone to answer the call button, even getting her

temperature taken accurately on one memorable occasion. " I need

Motrin, the fever is back up " " No you don't, it's normal " ...shift

change... " Her fever's 104, why didn't she get Motrin? " . For her

needs, sometimes she had to call home, and have her husband come in to

advocate for her. She is a nice person, definitely not a whiner. She

recommends Presbyterian, where she had her babies. There's competition

for childbirth, but not for internal medicine wards, so this probably

is part of the quality control issue. I expect they have dealt with

some of these problems, otherwise how could they still be running? I

don't know how you find out about this. The doctors were good, but

everything else was a nightmare.

Martha (MA)

>

> I live outside of Utica and with the press Mt Siani had went to

Lahey outside of Boston. It is an amazing place. I would highly

recommend them.

> Marti

>

[Guest guest]

Mt Sinai had to report itself to the NYC Public Health department this

Jan (right after Bill died) because of excess numbers of infections

and deaths in the liver transplant program. They have recently resumed

doing LDLT after several years break.

5-6 years ago a friend of mine was at Mt Sinai as a patient (she was

also a professor there). It was around the time the liver donor died.

She went in with sepsis (not a GI patient), and was critically ill.

The nursing staff was very short, and assistants of some kind filled

in, but not very well. She had trouble getting meals, getting meds on

time, getting anyone to answer the call button, even getting her

temperature taken accurately on one memorable occasion. " I need

Motrin, the fever is back up " " No you don't, it's normal " ...shift

change... " Her fever's 104, why didn't she get Motrin? " . For her

needs, sometimes she had to call home, and have her husband come in to

advocate for her. She is a nice person, definitely not a whiner. She

recommends Presbyterian, where she had her babies. There's competition

for childbirth, but not for internal medicine wards, so this probably

is part of the quality control issue. I expect they have dealt with

some of these problems, otherwise how could they still be running? I

don't know how you find out about this. The doctors were good, but

everything else was a nightmare.

Martha (MA)

>

> I live outside of Utica and with the press Mt Siani had went to

Lahey outside of Boston. It is an amazing place. I would highly

recommend them.

> Marti

>

[Guest guest]

Mt Sinai had to report itself to the NYC Public Health department this

Jan (right after Bill died) because of excess numbers of infections

and deaths in the liver transplant program. They have recently resumed

doing LDLT after several years break.

5-6 years ago a friend of mine was at Mt Sinai as a patient (she was

also a professor there). It was around the time the liver donor died.

She went in with sepsis (not a GI patient), and was critically ill.

The nursing staff was very short, and assistants of some kind filled

in, but not very well. She had trouble getting meals, getting meds on

time, getting anyone to answer the call button, even getting her

temperature taken accurately on one memorable occasion. " I need

Motrin, the fever is back up " " No you don't, it's normal " ...shift

change... " Her fever's 104, why didn't she get Motrin? " . For her

needs, sometimes she had to call home, and have her husband come in to

advocate for her. She is a nice person, definitely not a whiner. She

recommends Presbyterian, where she had her babies. There's competition

for childbirth, but not for internal medicine wards, so this probably

is part of the quality control issue. I expect they have dealt with

some of these problems, otherwise how could they still be running? I

don't know how you find out about this. The doctors were good, but

everything else was a nightmare.

Martha (MA)

>

> I live outside of Utica and with the press Mt Siani had went to

Lahey outside of Boston. It is an amazing place. I would highly

recommend them.

> Marti

>