Re: Inga - steroids - <Anne>

[Guest guest]

> Bothe prednioslone and hydrocortisone. >

> I was at full dose (20 mg h/c or 5 mg pred) for just under 1 1/2

years.

> for a long time that was not enough and I felt like I needed more,

Inga, thanks for all that info. I'm curious as to how others have

coped with weaning off steroids. I've been on h/c for much less time

than you, a few months, and at a lower dose, mostly 15mg, now 12.5mg.

I hope to be able to come off at some point but its too early to say.

But its good to hear you dont feel too bad off them after being on

them for a while.

> I am not sure that I wouldn't still benefit for the steroids in

some

> ways, but I have really bad heart pounding when o them, like I

said,

> when the phone would wake me up.

I just read your reply to gladioli re taking h/c sublingual. I was

doing this for the same reason, I felt it was exacerbating my gut

dysbiosis but Val from NTHadrenals advised against it as it can lead

to spikes due to being quickly absorbed into the bloodstream. She was

right, I was getting a lot of adrenal symptoms, eg palpitations,

waking up early feeling anxious and panicky and these symptoms

improved a lot when I went back to swallowing. Unless you did pred

sublingual too which you said you felt fine on. I still get some of

these symptoms and they are either adrenal or iron/ferritin related

with me, and definitely affected by what I eat. I'm not aware I have

a heart problem.

>I have also developed a huge sagging

> belly roll that is unsightly, even though I am a little lighter

than I

> was before I started. I feel a lot of my muscle has wasted away

and I

> have aged a LOT. I don't know how much of this is actually

directly

> related, but it is just what has been going on.

I was worried about this but seem to be ok so far. Here is a online

test...loss of muscle tone falls under a few deficiencies, oestrogen,

testosterone, pregnenalone....

http://www.theantiagingdoctor.com/Survey.htm

Otherwise the only way is to have tests done.

> I am wondering how much of this may have also been from too much

> thyroid.

I dont know whether thyroid would cause this.

Like I have said before, my temps never came up, I never had

> any of the typical symptoms, only went downhill in some ways, yet

not

> others. It is so hard to tell, when one is used to feeling sick and

not

> right most of the time. I find i have not that much of a

sensitivity to

> what is going on, as it is always one thing or another (LOL)

Yes I know.

> I haven't really been able to afford much CO Q10m but take a lot of

> magneisum citrate....got a whole crate of it at a fire sale..only

had a

> little soot on the labels!!

Yes CoQ10 is expensive but you can get it reasonably priced at iherb

but presumably you know that. I've been taking magnesium oil from

global light and its seems to be very easily absorbed, much better

than supps, though I take mag taurate and mag chloride too. I sleep

so much better on the oil though and have felt it benefitting my head

at times eg clearer thinking.

> Yes, and I have often thought that that is why my heart seemed to

> rapidly deteriorate when I was on steroids...again, just

conjecture. It

> could have been form too much thyroid, or a combination....dunno.

My

> mom recenlty died form heart failure, and so I have to wonder if I

jsut

> have what she had only got it much worse and a lot earlier...dunno.

> (Actually, I wouldn't be surprised if she had trouble with mercury

and

> was actually still hypo and adrenally fatigued, but too late for

that)

Sorry to hear about your mum. My mum definitely has some thyroid and

adrenal issues though not serious at all and has about 10 amalgams.

She's aware of it because of me, but at the age of 66 thinks she's

too old to do anything about it, plus the cost and all the risks of

removal etc.

> > Did this only come on since you weaned

> > yourself off?

> No! While I was ON the steroids.

>

> But Anne, my story is such: 15 years ago, I was strong as an OX and

> running up hillsides for fun, and then within one week's time, I

> crashed, and was no longer able to exercise. (among other horrific

> symptoms) That got a lot better after amalgam removal, but I was

never

> able to really exercise again. This has progressively gotten worse

over

> the years and then I crashed again, and it got worse again.

>

> Mostly, I am slowly climbing back up the hill, but it is a long

journey.

Yes, same here, even if it slow, the main thing is you are improving.

Anne