Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Dear Gaby, You are exactly where I was when I was diagnosed. 12 out of 17 glomeruli were completely dead (basically) and the remaining 5 were severely scarred and not working properly. And I have between 30 and 35% functioning left. I'm glad your doctor has been so proactive and already started you on the Procrit. As far as your biopsy goes, I think it mostly means that your remaining glomeruli are inflamed and scarred. That's it in a nutshell, and it sounds like they are probably gonna go ahead and diagnose you with IgA nephropathy. I'm glad you're with this group, but I'm sorry that you have the same problem many of us have. When is your next appt. with your kidney doctor? _____ From: gaby_portas Sent: Sunday, April 18, 2004 12:44 PM To: iga-nephropathy Subject: TOEFL and my Neph Visit on Friday !!!!!!!!!! And Everyone! I passed the exam!!!!! But you know? My BP was 115 / 77 before the exam and 15 minutes after I finished TOEFL, BP was 145/95. Could be that my BP raises when I am nervous. I know that that is very common but ... Is it too much difference? Changing subject, yesterday I saw my neph. He just gave me a shot of Procrit and some lab to do (CBC w/ Alito Diff and Comp. Metabolic (Alb, T, Bill, Ca. CO2, Creat, Cl, Alk Phos Glu, Phos, K, Protein, Sod, AST, BUN)) Also gave me my biopsy results and I am so scared. 36 glomeruli (56 was the total in my sample) are globally obsolete. None of the remainder are normal either. That means that 65% are obsolete and the remainder are not healthy. So what will happen w/ me? My diagnosis is the following, 1. Focal predominantly sclerosing and mildly proliferative glomerulonephritis w/ organized and occasional epithelial crescents, considered consistent w/ IgA Nephropathy in view if the inmunofluorescence findings. 2. Chronic active tubulointersticial nephritis - Clinical Asociation, Nonsteroidal anti-inflamatory drug use; cannot rule-out superimposed pyelonephritis. 3. Moderate arterial sclerosis and moderately severe concentric arteriolar thickening - Clinical Association Hypertension Someone knows what that means? My neph didn't explain it to me. ( I am sending hugs for all of you. Pierre in little time you will find the kidney. I am sure! Kisses. Gaby PS: I forgot to tell you, yesterday I also took my iron therapy, before that my H/H improved. It was 11.20 / 37.30 To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 I was diagnosed the first of February this year. It was a really rough month or two there. _____ From: gaby_portas Sent: Sunday, April 18, 2004 8:07 PM To: iga-nephropathy Subject: RE: TOEFL and my Neph Visit on Friday , I am sorry you have also the same........ How many time ago you was diagnosed??? Let me know it....... Kisses, Gaby Dear Gaby, You are exactly where I was when I was diagnosed. 12 out of 17 glomeruli were completely dead (basically) and the remaining 5 were severely scarred and not working properly. And I have between 30 and 35% functioning left. I'm glad your doctor has been so proactive and already started you on the Procrit. As far as your biopsy goes, I think it mostly means that your remaining glomeruli are inflamed and scarred. That's it in a nutshell, and it sounds like they are probably gonna go ahead and diagnose you with IgA nephropathy. I'm glad you're with this group, but I'm sorry that you have the same problem many of us have. When is your next appt. with your kidney doctor? To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 I was diagnosed the first of February this year. It was a really rough month or two there. _____ From: gaby_portas Sent: Sunday, April 18, 2004 8:07 PM To: iga-nephropathy Subject: RE: TOEFL and my Neph Visit on Friday , I am sorry you have also the same........ How many time ago you was diagnosed??? Let me know it....... Kisses, Gaby Dear Gaby, You are exactly where I was when I was diagnosed. 12 out of 17 glomeruli were completely dead (basically) and the remaining 5 were severely scarred and not working properly. And I have between 30 and 35% functioning left. I'm glad your doctor has been so proactive and already started you on the Procrit. As far as your biopsy goes, I think it mostly means that your remaining glomeruli are inflamed and scarred. That's it in a nutshell, and it sounds like they are probably gonna go ahead and diagnose you with IgA nephropathy. I'm glad you're with this group, but I'm sorry that you have the same problem many of us have. When is your next appt. with your kidney doctor? To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2004 Report Share Posted April 19, 2004 I was diagnosed the first of February this year. It was a really rough month or two there. _____ From: gaby_portas Sent: Sunday, April 18, 2004 8:07 PM To: iga-nephropathy Subject: RE: TOEFL and my Neph Visit on Friday , I am sorry you have also the same........ How many time ago you was diagnosed??? Let me know it....... Kisses, Gaby Dear Gaby, You are exactly where I was when I was diagnosed. 12 out of 17 glomeruli were completely dead (basically) and the remaining 5 were severely scarred and not working properly. And I have between 30 and 35% functioning left. I'm glad your doctor has been so proactive and already started you on the Procrit. As far as your biopsy goes, I think it mostly means that your remaining glomeruli are inflamed and scarred. That's it in a nutshell, and it sounds like they are probably gonna go ahead and diagnose you with IgA nephropathy. I'm glad you're with this group, but I'm sorry that you have the same problem many of us have. When is your next appt. with your kidney doctor? To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
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