Re: Has anyone with PSC, pre-tx, had a child?

[Guest guest]

I've had two kids since my PSC diagnosis. A daughter who's now seven

and a son who's four. Both are healthy and happy and (I think) very

intelligent, attractive children! For me the main consideration in

deciding whether to have kids or not was whether we'd have the energy to

care for them, and whether I'd be around long enough to see them grow

up. Obviously we decided to go ahead, and so far it's worked out!

athan

[Guest guest]

I've had two kids since my PSC diagnosis. A daughter who's now seven

and a son who's four. Both are healthy and happy and (I think) very

intelligent, attractive children! For me the main consideration in

deciding whether to have kids or not was whether we'd have the energy to

care for them, and whether I'd be around long enough to see them grow

up. Obviously we decided to go ahead, and so far it's worked out!

athan

[Guest guest]

I have three kids. Two born before my diagnoses. But I certainly had

heavy symptoms. I take it one day at a time. They are energetic,

healthy and love to play sports. Some days I can hang with them and

other days they know Mama isn't feeling as well. Sometimes I think

they handle it better than my husband does. I definitely know my 8

year old daughter is much more intuitive and sympathetic with me:)

Good luck

> I've had two kids since my PSC diagnosis. A daughter who's now seven

> and a son who's four. Both are healthy and happy and (I think) very

> intelligent, attractive children! For me the main consideration in

> deciding whether to have kids or not was whether we'd have the energy

> to

> care for them, and whether I'd be around long enough to see them grow

> up. Obviously we decided to go ahead, and so far it's worked out!

>

> athan

>

>

>

>

>

>

[Guest guest]

I have three kids. Two born before my diagnoses. But I certainly had

heavy symptoms. I take it one day at a time. They are energetic,

healthy and love to play sports. Some days I can hang with them and

other days they know Mama isn't feeling as well. Sometimes I think

they handle it better than my husband does. I definitely know my 8

year old daughter is much more intuitive and sympathetic with me:)

Good luck

> I've had two kids since my PSC diagnosis. A daughter who's now seven

> and a son who's four. Both are healthy and happy and (I think) very

> intelligent, attractive children! For me the main consideration in

> deciding whether to have kids or not was whether we'd have the energy

> to

> care for them, and whether I'd be around long enough to see them grow

> up. Obviously we decided to go ahead, and so far it's worked out!

>

> athan

>

>

>

>

>

>

[Guest guest]

I have three kids. Two born before my diagnoses. But I certainly had

heavy symptoms. I take it one day at a time. They are energetic,

healthy and love to play sports. Some days I can hang with them and

other days they know Mama isn't feeling as well. Sometimes I think

they handle it better than my husband does. I definitely know my 8

year old daughter is much more intuitive and sympathetic with me:)

Good luck

> I've had two kids since my PSC diagnosis. A daughter who's now seven

> and a son who's four. Both are healthy and happy and (I think) very

> intelligent, attractive children! For me the main consideration in

> deciding whether to have kids or not was whether we'd have the energy

> to

> care for them, and whether I'd be around long enough to see them grow

> up. Obviously we decided to go ahead, and so far it's worked out!

>

> athan

>

>

>

>

>

>

[Guest guest]

Hi,

We had our son in 2000, two years after my diagnosis and about six

years after I started having overt PSC symptoms. It was a tough

pregnancy, but we made it through, and now our for all appearances

healthy son just turned six this month. I would think that the status

of the mother's health would have much more of a direct impact on the

pregancy itself. Your husband's sperm might contribute to birth

defects or genetic problems, but I'd think your fibromyalgia would be

the issue that would need discussing the most...Just my thoughts. I

had a high-risk team of OB's that was nothing short of awesome. We

wouldn't have had our son without people that specially trained

overseeing my care.

HTH,

Deb in VA

PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005...

updates: www.caringbridge.org/va/deniseb

[Guest guest]

Hi,

We had our son in 2000, two years after my diagnosis and about six

years after I started having overt PSC symptoms. It was a tough

pregnancy, but we made it through, and now our for all appearances

healthy son just turned six this month. I would think that the status

of the mother's health would have much more of a direct impact on the

pregancy itself. Your husband's sperm might contribute to birth

defects or genetic problems, but I'd think your fibromyalgia would be

the issue that would need discussing the most...Just my thoughts. I

had a high-risk team of OB's that was nothing short of awesome. We

wouldn't have had our son without people that specially trained

overseeing my care.

HTH,

Deb in VA

PSC 1998, UC 1999, Listed Ltx 2001, LDLTX 5/19/2005...

updates: www.caringbridge.org/va/deniseb

[Guest guest]

Well, I

have had two with fibro…probably actually three.  Who knows when you

actually get this stuff?  I will say this…Zoë (13) was a completely

normal pregnancy…she was a month late…due to being super tiny they

let her continue to cook…she was 6 lbs. 8 oz. when born.  Noah’s

pregnancy was a bit complicated.  I had gestational diabetes, and preeclampsia. 

Nothing that required hospitalization.  LOTS of bed rest.  Noah’s head

was engaged at 6 months and continued to grow while engaged so…as a

result when I first went to see the doctor for Aidan’s pregnancy, I was

told I could deliver a MAC truck through my hips.  (woman doctor)  With Aidan’s

pregnancy I had placenta previa and lost a twin…but that was just because

I had had so many kids.  LOL!  So again bed rest.  I did have trouble gaining

weight in the first two trimesters and had to eat baby food.  Thankfully I

never had to be hospitalized for any of it though.  Like suggested…I

also had a wonder perinatologist who took care of everything and there was

plenty with the placenta previa and the twin death.  Thankfully I got to walk

away with a baby. 

Bottom line, I don’t think my

fibromyalgia had much to do with any of it.  I think I just got lucky to have 3

beauties.

Mom of Noah (9) UC, PSC, osteopenia ‘05

Zoë (13), Aidan (5) moderately-severe

sensorineural hearing loss

but I'd think your

fibromyalgia would be

the issue that would need discussing the most...Just my thoughts. I

had a high-risk team of OB's that was nothing short of awesome. We

wouldn't have had our son without people that specially trained

overseeing my care.

HTH,

Deb in VA

 

[Guest guest]

Well, I

have had two with fibro…probably actually three.  Who knows when you

actually get this stuff?  I will say this…Zoë (13) was a completely

normal pregnancy…she was a month late…due to being super tiny they

let her continue to cook…she was 6 lbs. 8 oz. when born.  Noah’s

pregnancy was a bit complicated.  I had gestational diabetes, and preeclampsia. 

Nothing that required hospitalization.  LOTS of bed rest.  Noah’s head

was engaged at 6 months and continued to grow while engaged so…as a

result when I first went to see the doctor for Aidan’s pregnancy, I was

told I could deliver a MAC truck through my hips.  (woman doctor)  With Aidan’s

pregnancy I had placenta previa and lost a twin…but that was just because

I had had so many kids.  LOL!  So again bed rest.  I did have trouble gaining

weight in the first two trimesters and had to eat baby food.  Thankfully I

never had to be hospitalized for any of it though.  Like suggested…I

also had a wonder perinatologist who took care of everything and there was

plenty with the placenta previa and the twin death.  Thankfully I got to walk

away with a baby. 

Bottom line, I don’t think my

fibromyalgia had much to do with any of it.  I think I just got lucky to have 3

beauties.

Mom of Noah (9) UC, PSC, osteopenia ‘05

Zoë (13), Aidan (5) moderately-severe

sensorineural hearing loss

but I'd think your

fibromyalgia would be

the issue that would need discussing the most...Just my thoughts. I

had a high-risk team of OB's that was nothing short of awesome. We

wouldn't have had our son without people that specially trained

overseeing my care.

HTH,

Deb in VA

 

[Guest guest]

Well, I

have had two with fibro…probably actually three.  Who knows when you

actually get this stuff?  I will say this…Zoë (13) was a completely

normal pregnancy…she was a month late…due to being super tiny they

let her continue to cook…she was 6 lbs. 8 oz. when born.  Noah’s

pregnancy was a bit complicated.  I had gestational diabetes, and preeclampsia. 

Nothing that required hospitalization.  LOTS of bed rest.  Noah’s head

was engaged at 6 months and continued to grow while engaged so…as a

result when I first went to see the doctor for Aidan’s pregnancy, I was

told I could deliver a MAC truck through my hips.  (woman doctor)  With Aidan’s

pregnancy I had placenta previa and lost a twin…but that was just because

I had had so many kids.  LOL!  So again bed rest.  I did have trouble gaining

weight in the first two trimesters and had to eat baby food.  Thankfully I

never had to be hospitalized for any of it though.  Like suggested…I

also had a wonder perinatologist who took care of everything and there was

plenty with the placenta previa and the twin death.  Thankfully I got to walk

away with a baby. 

Bottom line, I don’t think my

fibromyalgia had much to do with any of it.  I think I just got lucky to have 3

beauties.

Mom of Noah (9) UC, PSC, osteopenia ‘05

Zoë (13), Aidan (5) moderately-severe

sensorineural hearing loss

but I'd think your

fibromyalgia would be

the issue that would need discussing the most...Just my thoughts. I

had a high-risk team of OB's that was nothing short of awesome. We

wouldn't have had our son without people that specially trained

overseeing my care.

HTH,

Deb in VA

 

[Guest guest]

I have a normal healthy child from an uncomplicated pregnancy. Most

children of people with PSC do not go on to develop the disease. I

concur with and , that it is your own health concerns that

are most likely to cause difficulties.

That said, we did not go on to have another child due to many factors

in our lives. One of them was my concern that I expected to have

health problems in future, and having a baby as well as me to care for

was going to be too much for my husband. I sometimes regret this

decision, but other times I'm sure it was the wisest thing.

I'd think your fibromyalgia would be

> the issue that would need discussing the most.

[Guest guest]

I have a normal healthy child from an uncomplicated pregnancy. Most

children of people with PSC do not go on to develop the disease. I

concur with and , that it is your own health concerns that

are most likely to cause difficulties.

That said, we did not go on to have another child due to many factors

in our lives. One of them was my concern that I expected to have

health problems in future, and having a baby as well as me to care for

was going to be too much for my husband. I sometimes regret this

decision, but other times I'm sure it was the wisest thing.

I'd think your fibromyalgia would be

> the issue that would need discussing the most.

[Guest guest]

I have a normal healthy child from an uncomplicated pregnancy. Most

children of people with PSC do not go on to develop the disease. I

concur with and , that it is your own health concerns that

are most likely to cause difficulties.

That said, we did not go on to have another child due to many factors

in our lives. One of them was my concern that I expected to have

health problems in future, and having a baby as well as me to care for

was going to be too much for my husband. I sometimes regret this

decision, but other times I'm sure it was the wisest thing.

I'd think your fibromyalgia would be

> the issue that would need discussing the most.

[Guest guest]

I have had 4 children pre PSC diagnosis I am now 55. I was always

tired and no one knew why! Even though my nature is laid back and

slapdash I really made an effort to be 'super organised'. Planing,

planing and planing e.g. meals a week ahead, having one big

supermarket buy every two weeks, saying no to commitments I knew would

be a hassel, so I could enjoy family life. We are also lucky that we

are a farming family and the children where out and about with husband

Graham on the farm a lot.

It was interesting I was talking to a specialist after my PSC

diagnosis last year and I said " at a guess how long do you think I

have had PSC, even though there will be no way we could confirm that? "

and he said " he would not be surprised if I had had it for at least 15

to 25 years " .

Best wishes

[Guest guest]

I have had 4 children pre PSC diagnosis I am now 55. I was always

tired and no one knew why! Even though my nature is laid back and

slapdash I really made an effort to be 'super organised'. Planing,

planing and planing e.g. meals a week ahead, having one big

supermarket buy every two weeks, saying no to commitments I knew would

be a hassel, so I could enjoy family life. We are also lucky that we

are a farming family and the children where out and about with husband

Graham on the farm a lot.

It was interesting I was talking to a specialist after my PSC

diagnosis last year and I said " at a guess how long do you think I

have had PSC, even though there will be no way we could confirm that? "

and he said " he would not be surprised if I had had it for at least 15

to 25 years " .

Best wishes