Re: Remission/Cure of cea?

[Guest guest]

In a message dated 9-8-00 11:30:03 AM Eastern Daylight Time,

hazroots@... writes:

<< I do not want to think that I will have this condition forever and,

certainly, all the dermatologists I have spoken to about it say the same

thing - that you do not see old people with rosacea - and that rosacea

eventually burns itself out. So, at the very least, we do not have to look

forward to this condition in our twilight years! However, like , I have

been told that the condition lasts loosely for between 6 months and 20 years.

Not surprising as we have the same dermatologist! >>

That's still very depressing to me...I want to fully enjoy my life and the

constant daily battle to control rosacea gets emotionally draining...I am 35

now so say when I am 80 (maybe) it will burn itself out? Horrible

thought...Just my feelings on it...Darlene

[Guest guest]

In a message dated 9-8-00 11:30:03 AM Eastern Daylight Time,

hazroots@... writes:

<< I do not want to think that I will have this condition forever and,

certainly, all the dermatologists I have spoken to about it say the same

thing - that you do not see old people with rosacea - and that rosacea

eventually burns itself out. So, at the very least, we do not have to look

forward to this condition in our twilight years! However, like , I have

been told that the condition lasts loosely for between 6 months and 20 years.

Not surprising as we have the same dermatologist! >>

That's still very depressing to me...I want to fully enjoy my life and the

constant daily battle to control rosacea gets emotionally draining...I am 35

now so say when I am 80 (maybe) it will burn itself out? Horrible

thought...Just my feelings on it...Darlene

[Guest guest]

In a message dated 9-8-00 11:30:03 AM Eastern Daylight Time,

hazroots@... writes:

<< I do not want to think that I will have this condition forever and,

certainly, all the dermatologists I have spoken to about it say the same

thing - that you do not see old people with rosacea - and that rosacea

eventually burns itself out. So, at the very least, we do not have to look

forward to this condition in our twilight years! However, like , I have

been told that the condition lasts loosely for between 6 months and 20 years.

Not surprising as we have the same dermatologist! >>

That's still very depressing to me...I want to fully enjoy my life and the

constant daily battle to control rosacea gets emotionally draining...I am 35

now so say when I am 80 (maybe) it will burn itself out? Horrible

thought...Just my feelings on it...Darlene

[Guest guest]

Hazel-I dont know exactly what you mean about remission. I found out I had

rosacea in the begining of 1998. I had burning, itchy bumps and those flushes

seem unbearable, and a lot of redness on my cheeks. I was getting a little

depressed but my husband assured me my so called rash didnt look bad. In my

mind it what terrible!

I didnt wait too long and went to my dr. who diagnoised me with rosacea. He

treated me with metogel. I feel I was very lucky after reading about other

people in this group and the metro has worked very well for me. I have a dr.

that believes as long as I am doing well with this regime stay with it. I do

not take anti-biotics either. I do have an ocassional flare mainly if I get

stressed out which is not very often. For the most part I do ok. I have some

tiny broken veins in my checks and slight redness on my chin but no severe

bumps. I also dont really have any big triggers except for the heat. I do

carry a mister with a fan, cool scarves, etc to stay more comfortable in the

warmer weather. I also like to have my skin clean. I never worn much make up

as a younger girl. Being really fair skinned I used only a little eye liner,

mascarra and brow powder.

So nice my skin looks pretty good and I would say it has been good for over a

year. I also use metrogel/orcream 2 times a day still. I guess you would say

I am in remission. I dont feel I am the norm though especially reading all

the other posts from the group. I hope this info is helpful to some of the

others. If I left any questions unanswered feel free to let me know.

Bobbye

[Guest guest]

Hazel-I dont know exactly what you mean about remission. I found out I had

rosacea in the begining of 1998. I had burning, itchy bumps and those flushes

seem unbearable, and a lot of redness on my cheeks. I was getting a little

depressed but my husband assured me my so called rash didnt look bad. In my

mind it what terrible!

I didnt wait too long and went to my dr. who diagnoised me with rosacea. He

treated me with metogel. I feel I was very lucky after reading about other

people in this group and the metro has worked very well for me. I have a dr.

that believes as long as I am doing well with this regime stay with it. I do

not take anti-biotics either. I do have an ocassional flare mainly if I get

stressed out which is not very often. For the most part I do ok. I have some

tiny broken veins in my checks and slight redness on my chin but no severe

bumps. I also dont really have any big triggers except for the heat. I do

carry a mister with a fan, cool scarves, etc to stay more comfortable in the

warmer weather. I also like to have my skin clean. I never worn much make up

as a younger girl. Being really fair skinned I used only a little eye liner,

mascarra and brow powder.

So nice my skin looks pretty good and I would say it has been good for over a

year. I also use metrogel/orcream 2 times a day still. I guess you would say

I am in remission. I dont feel I am the norm though especially reading all

the other posts from the group. I hope this info is helpful to some of the

others. If I left any questions unanswered feel free to let me know.

Bobbye

[Guest guest]

Hazel-I dont know exactly what you mean about remission. I found out I had

rosacea in the begining of 1998. I had burning, itchy bumps and those flushes

seem unbearable, and a lot of redness on my cheeks. I was getting a little

depressed but my husband assured me my so called rash didnt look bad. In my

mind it what terrible!

I didnt wait too long and went to my dr. who diagnoised me with rosacea. He

treated me with metogel. I feel I was very lucky after reading about other

people in this group and the metro has worked very well for me. I have a dr.

that believes as long as I am doing well with this regime stay with it. I do

not take anti-biotics either. I do have an ocassional flare mainly if I get

stressed out which is not very often. For the most part I do ok. I have some

tiny broken veins in my checks and slight redness on my chin but no severe

bumps. I also dont really have any big triggers except for the heat. I do

carry a mister with a fan, cool scarves, etc to stay more comfortable in the

warmer weather. I also like to have my skin clean. I never worn much make up

as a younger girl. Being really fair skinned I used only a little eye liner,

mascarra and brow powder.

So nice my skin looks pretty good and I would say it has been good for over a

year. I also use metrogel/orcream 2 times a day still. I guess you would say

I am in remission. I dont feel I am the norm though especially reading all

the other posts from the group. I hope this info is helpful to some of the

others. If I left any questions unanswered feel free to let me know.

Bobbye

[Guest guest]

Hazel, I sure hope you are right...I know the lady I described was extreme

but in her case it has been very active for at least 60 years.

I agree with you about focusing on the positive...I can't imagine myself

combating this crap forever either...some might call that denial. I am

looking for a miracle...however it comes I am always looking for it. It's

just today that I am having a bit of a set back...I recently started taking

aldactone and it has done nothing for me so far...I have tried many med's to

stop the acne but I really thought this one would do the trick...Darlene

[Guest guest]

Hazel, I sure hope you are right...I know the lady I described was extreme

but in her case it has been very active for at least 60 years.

I agree with you about focusing on the positive...I can't imagine myself

combating this crap forever either...some might call that denial. I am

looking for a miracle...however it comes I am always looking for it. It's

just today that I am having a bit of a set back...I recently started taking

aldactone and it has done nothing for me so far...I have tried many med's to

stop the acne but I really thought this one would do the trick...Darlene

[Guest guest]

Hazel, I sure hope you are right...I know the lady I described was extreme

but in her case it has been very active for at least 60 years.

I agree with you about focusing on the positive...I can't imagine myself

combating this crap forever either...some might call that denial. I am

looking for a miracle...however it comes I am always looking for it. It's

just today that I am having a bit of a set back...I recently started taking

aldactone and it has done nothing for me so far...I have tried many med's to

stop the acne but I really thought this one would do the trick...Darlene

[Guest guest]

Being the Eternal Optomist, I hate to question the theory that cea burns

itself out after a maxium 20 years or so and that " elderly " people don't

suffer from it.

My dear friend's mother, who is in her mid 80's, is suffering from a fairly

serious case of it. I do believe she had a late-in-life onset, though.

That may be the reason she still struggles with it.

Beth

[Guest guest]

Being the Eternal Optomist, I hate to question the theory that cea burns

itself out after a maxium 20 years or so and that " elderly " people don't

suffer from it.

My dear friend's mother, who is in her mid 80's, is suffering from a fairly

serious case of it. I do believe she had a late-in-life onset, though.

That may be the reason she still struggles with it.

Beth

[Guest guest]

Being the Eternal Optomist, I hate to question the theory that cea burns

itself out after a maxium 20 years or so and that " elderly " people don't

suffer from it.

My dear friend's mother, who is in her mid 80's, is suffering from a fairly

serious case of it. I do believe she had a late-in-life onset, though.

That may be the reason she still struggles with it.

Beth

[Guest guest]

I've read that as people age their allergies become less severe b/c the

immune system weakens with age. Could this be why old people don't have

rosacea -- that it's actually your immune system that " burns out, " not

rosacea itself?

--- Hazel Roots wrote:

> As regards the prognosis of people with rosacea, I prefer to look at it

> in a positive way. I do not want to think that I will have this

> condition forever and, certainly, all the dermatologists I have spoken

> to about it say the same thing - that you do not see old people with

> rosacea - and that rosacea eventually burns itself out. So, at the very

> least, we do not have to look forward to this condition in our twilight

> years! However, like , I have been told that the condition lasts

> loosely for between 6 months and 20 years. Not surprising as we have

> the same dermatologist!

>

> Some time ago, I asked if anyone was in remission and I received one

> reply from a person who had been in remission for a few months. That

> doesn't mean to say that there are not more. Having attained remission

> they might no longer be part of the support group. If there are any

> more, please e-mail the group and let us know. We could all do with

> some encouragement.

>

> There is an article in the archives by K Wilkin MD and he sums

> this question up very succinctly by saying, " I tell patients that cure

> is a 4-letter word and that remission is the goal of therapy. Sometimes

> the remission is PERMANENT " (my emphasis).

>

> So, please, anyone out there in either short-term or 'permanent'

> remission, LET US KNOW.

>

> Hazel

>

>

>

[Guest guest]

I've read that as people age their allergies become less severe b/c the

immune system weakens with age. Could this be why old people don't have

rosacea -- that it's actually your immune system that " burns out, " not

rosacea itself?

--- Hazel Roots wrote:

> As regards the prognosis of people with rosacea, I prefer to look at it

> in a positive way. I do not want to think that I will have this

> condition forever and, certainly, all the dermatologists I have spoken

> to about it say the same thing - that you do not see old people with

> rosacea - and that rosacea eventually burns itself out. So, at the very

> least, we do not have to look forward to this condition in our twilight

> years! However, like , I have been told that the condition lasts

> loosely for between 6 months and 20 years. Not surprising as we have

> the same dermatologist!

>

> Some time ago, I asked if anyone was in remission and I received one

> reply from a person who had been in remission for a few months. That

> doesn't mean to say that there are not more. Having attained remission

> they might no longer be part of the support group. If there are any

> more, please e-mail the group and let us know. We could all do with

> some encouragement.

>

> There is an article in the archives by K Wilkin MD and he sums

> this question up very succinctly by saying, " I tell patients that cure

> is a 4-letter word and that remission is the goal of therapy. Sometimes

> the remission is PERMANENT " (my emphasis).

>

> So, please, anyone out there in either short-term or 'permanent'

> remission, LET US KNOW.

>

> Hazel

>

>

>

[Guest guest]

I've read that as people age their allergies become less severe b/c the

immune system weakens with age. Could this be why old people don't have

rosacea -- that it's actually your immune system that " burns out, " not

rosacea itself?

--- Hazel Roots wrote:

> As regards the prognosis of people with rosacea, I prefer to look at it

> in a positive way. I do not want to think that I will have this

> condition forever and, certainly, all the dermatologists I have spoken

> to about it say the same thing - that you do not see old people with

> rosacea - and that rosacea eventually burns itself out. So, at the very

> least, we do not have to look forward to this condition in our twilight

> years! However, like , I have been told that the condition lasts

> loosely for between 6 months and 20 years. Not surprising as we have

> the same dermatologist!

>

> Some time ago, I asked if anyone was in remission and I received one

> reply from a person who had been in remission for a few months. That

> doesn't mean to say that there are not more. Having attained remission

> they might no longer be part of the support group. If there are any

> more, please e-mail the group and let us know. We could all do with

> some encouragement.

>

> There is an article in the archives by K Wilkin MD and he sums

> this question up very succinctly by saying, " I tell patients that cure

> is a 4-letter word and that remission is the goal of therapy. Sometimes

> the remission is PERMANENT " (my emphasis).

>

> So, please, anyone out there in either short-term or 'permanent'

> remission, LET US KNOW.

>

> Hazel

>

>

>

[Guest guest]

Darlene

Yes, I agree it would be depressing to have it until you are elderly but why

focus on the worst case scenario?

I also spoke to one of my dermatologist's secretaries who was very

sympathetic on the phone when I was feeling really down. She had had

rosacea and she was talking about it in the past tense and sounded quite

young. I said to her that I couldn't envisage myself taking Clonodine for

the rest of my life and she said I wouldn't have to because it would

eventually burn itself out. She went on to tell me about how when she had

it she wouldn't go out and could understand how I was feeling. Afterwards,

I wished I had asked her more but, at the time, wasn't really with it.

Also, the medical texts usually say it burns itself out. For instance, in

the British Medical Association's Complete Family Health Encyclopedia you

will read, " cea tends to recur for five to ten years and then

disappears " .

Hazel

[Guest guest]

Darlene

Yes, I agree it would be depressing to have it until you are elderly but why

focus on the worst case scenario?

I also spoke to one of my dermatologist's secretaries who was very

sympathetic on the phone when I was feeling really down. She had had

rosacea and she was talking about it in the past tense and sounded quite

young. I said to her that I couldn't envisage myself taking Clonodine for

the rest of my life and she said I wouldn't have to because it would

eventually burn itself out. She went on to tell me about how when she had

it she wouldn't go out and could understand how I was feeling. Afterwards,

I wished I had asked her more but, at the time, wasn't really with it.

Also, the medical texts usually say it burns itself out. For instance, in

the British Medical Association's Complete Family Health Encyclopedia you

will read, " cea tends to recur for five to ten years and then

disappears " .

Hazel

[Guest guest]

Darlene

Yes, I agree it would be depressing to have it until you are elderly but why

focus on the worst case scenario?

I also spoke to one of my dermatologist's secretaries who was very

sympathetic on the phone when I was feeling really down. She had had

rosacea and she was talking about it in the past tense and sounded quite

young. I said to her that I couldn't envisage myself taking Clonodine for

the rest of my life and she said I wouldn't have to because it would

eventually burn itself out. She went on to tell me about how when she had

it she wouldn't go out and could understand how I was feeling. Afterwards,

I wished I had asked her more but, at the time, wasn't really with it.

Also, the medical texts usually say it burns itself out. For instance, in

the British Medical Association's Complete Family Health Encyclopedia you

will read, " cea tends to recur for five to ten years and then

disappears " .

Hazel

[Guest guest]

I have had rosacea for at least 10 years now and it hasn't gotten any

better with any of the Metro products, but it also hasn't gotten any

worse (knock on wood). I do what a lot of the folks in the group do,

treat my skin gently and take lots of anti-oxidants. I usually just

try to ignore it - if I don't look in a mirror I seem to do much

better :-) I would like to think that it would eventually go away

but my skin doesn't seem to agree.

Also for those who feel this may be genetic, nobody in my immediate

family has rosacea. Just a statistic not an opinion. :-)

Judi

[Guest guest]

I have had rosacea for at least 10 years now and it hasn't gotten any

better with any of the Metro products, but it also hasn't gotten any

worse (knock on wood). I do what a lot of the folks in the group do,

treat my skin gently and take lots of anti-oxidants. I usually just

try to ignore it - if I don't look in a mirror I seem to do much

better :-) I would like to think that it would eventually go away

but my skin doesn't seem to agree.

Also for those who feel this may be genetic, nobody in my immediate

family has rosacea. Just a statistic not an opinion. :-)

Judi

[Guest guest]

I have had rosacea for at least 10 years now and it hasn't gotten any

better with any of the Metro products, but it also hasn't gotten any

worse (knock on wood). I do what a lot of the folks in the group do,

treat my skin gently and take lots of anti-oxidants. I usually just

try to ignore it - if I don't look in a mirror I seem to do much

better :-) I would like to think that it would eventually go away

but my skin doesn't seem to agree.

Also for those who feel this may be genetic, nobody in my immediate

family has rosacea. Just a statistic not an opinion. :-)

Judi

[Guest guest]

I've heard the same thing about the herpes virus... that it burns

itself out with time... I questioned a nurse about this and she told

me that what might actually be happening is that the body's immune

system learns how to keep the virus in check better as time goes

on... that the virus still hides in the body's nervous system, but

that it is basically rendered ineffective. I'm not trying to suggest

that rosacea is caused by a virus, but maybe something similiar

happens to the people who experience relief from it after a given

period of time... Their systems just learn how to deal with whatever

was aggravating it... On the other hand, maybe some people aren't as

fortunate as others and keep having to battle the thing... Another

idea might be that once you discover, and start avoiding, your major

triggers and start looking after your skin properly you have that

much better chance of being in the group where in time the condition

basically just dies down... whereas, if you don't get yourself

educated about the problem and just take whatever your GP prescribes

for you even though it doesn't work, and keep using products and what-

not that just seem to aggravate the condition you are just making it

all the harder for your body to learn to deal with... What do you

think?

> Being the Eternal Optomist, I hate to question the theory that

cea burns

> itself out after a maxium 20 years or so and that " elderly " people

don't

> suffer from it.

>

> My dear friend's mother, who is in her mid 80's, is suffering from

a fairly

> serious case of it. I do believe she had a late-in-life onset,

though.

> That may be the reason she still struggles with it.

>

> Beth

[Guest guest]

In a message dated 9-8-00 5:09:27 PM Eastern Daylight Time, kspeck1@...

writes:

<< I wish that were true. My father-in-law developed rosacea at 75 and within

two years is showing signs of rhynophyma. My aunt developed it at 60.

Maybe those of us who started young can still hope but it does hit a variety

of age groups.

Just a thought but maybe when it strikes in say person 60 and up than because

of age the immune system isn't functioning as well then it progress's more

rapidly...whereas younger persons have a slightly better fighting

chance...Darlene

[Guest guest]

I have an uncle (by marriage), who has had rosacea since he was in his early

thirties. He is now 74, has rhinophyma and still gets outbreaks of pustules

and redness. I'm hopeful that some people can have remission of symptoms,

but know that some suffer indefinitely. I would hope the odds are more in

favor of most people having improvement with age!

Cyd

Remission/Cure of cea?

> As regards the prognosis of people with rosacea, I prefer to look at it in

a positive way. I do not want to think that I will have this condition

forever and, certainly, all the dermatologists I have spoken to about it say

the same thing - that you do not see old people with rosacea - and that

rosacea eventually burns itself out. So, at the very least, we do not have

to look forward to this condition in our twilight years! However, like

, I have been told that the condition lasts loosely for between 6

months and 20 years. Not surprising as we have the same dermatologist!

>

> Some time ago, I asked if anyone was in remission and I received one reply

from a person who had been in remission for a few months. That doesn't mean

to say that there are not more. Having attained remission they might no

longer be part of the support group. If there are any more, please e-mail

the group and let us know. We could all do with some encouragement.

>

> There is an article in the archives by K Wilkin MD and he sums

this question up very succinctly by saying, " I tell patients that cure is a

4-letter word and that remission is the goal of therapy. Sometimes the

remission is PERMANENT " (my emphasis).

>

> So, please, anyone out there in either short-term or 'permanent'

remission, LET US KNOW.

>

> Hazel

>

>

>

[Guest guest]

I have an uncle (by marriage), who has had rosacea since he was in his early

thirties. He is now 74, has rhinophyma and still gets outbreaks of pustules

and redness. I'm hopeful that some people can have remission of symptoms,

but know that some suffer indefinitely. I would hope the odds are more in

favor of most people having improvement with age!

Cyd

Remission/Cure of cea?

> As regards the prognosis of people with rosacea, I prefer to look at it in

a positive way. I do not want to think that I will have this condition

forever and, certainly, all the dermatologists I have spoken to about it say

the same thing - that you do not see old people with rosacea - and that

rosacea eventually burns itself out. So, at the very least, we do not have

to look forward to this condition in our twilight years! However, like

, I have been told that the condition lasts loosely for between 6

months and 20 years. Not surprising as we have the same dermatologist!

>

> Some time ago, I asked if anyone was in remission and I received one reply

from a person who had been in remission for a few months. That doesn't mean

to say that there are not more. Having attained remission they might no

longer be part of the support group. If there are any more, please e-mail

the group and let us know. We could all do with some encouragement.

>

> There is an article in the archives by K Wilkin MD and he sums

this question up very succinctly by saying, " I tell patients that cure is a

4-letter word and that remission is the goal of therapy. Sometimes the

remission is PERMANENT " (my emphasis).

>

> So, please, anyone out there in either short-term or 'permanent'

remission, LET US KNOW.

>

> Hazel

>

>

>