Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 I don't have a transplant yet, but I can't say I didn't have the same reservations about the drugs that your husband has. But on the other hand, even if he ended up with all of those listed side effects (and he won't), a kidney transplant is still by far a better treatment for kidney failure than dialysis is. Maybe one thing would be to compare the drug side effects of a transplant with the long term adverse effects of dialysis. Now, as I said, I don't have a transplant yet, but I have many acquaintances that do and that I have seen regularly over the past year and a half, various ages from 20-somethings to 60-somethings. I can honestly say that they all look great, and compared to those of us on dialysis, they feel great. Not one of them looks like a fat-faced, zitty teenager. I just yesterday saw a friend of mine who got a transplant in January, and he looks just great. I didn't see any sign of moonface at all. In fact, none of the kidney transplant patients I know have a moonface, and none of them have turned into the wolfman ....and not a single one would trade the kidney for going back on dialysis either! I wouldn't say I don't worry sometimes about how I will feel with the drugs once I do get a kidney, but, just looking forward to eating more normally again easily overrides any concerns I have in that area. I have never had a fat face, or a fat anything my whole life, but, I think I'll risk the moonface in order to be able to be more normal again. All the other possible side effects are kind of like the list of side effects given for most medications, even aspirin. Possible, but not likely. Pierre Anti-rejection Medications > I have a question about the anti-rejection medication that my husband > will have to take once he gets his new kidney. The transplant > coordinator told him that he'll be on Predisone, Cellcept, and one > more that I can't remember the name of..it starts with the letter " N " . > > Anyway, my husband met with the social worker yesterday and she gave > him a list of the various meds that post-transplant patients take, > along with the potential side effects. He's all paranoid now, > thinking he's going to get fat, hairy, and have zits like a > teenager. I told him not to worry about it, because although those > side effects are listed as the most common ones, it does not mean > that EVERYONE has them. > > Has anyone in the group experienced any horrendous side effects with > their anti-rejection meds, or do you know anyone who has? I just > want to be able to calm my husband's fears. > > Thanks! > > ~*~Kim~*~ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Kim, Neoral (Cyclosporin) is probably the third medicine that starts with an n. The other one commonly used is Prograf. While the medicines do have side effects, I assure you they are nothing compared with Dialysis. I gained some weight, got some more hair, and now my face and hair are more shiny than they used to be, but I would hardly call them horrible. I'm pretty sure that even if they made me bald and purple I'd still take them. What is that status on your husbands transplant? > I have a question about the anti-rejection medication that my husband > will have to take once he gets his new kidney. The transplant > coordinator told him that he'll be on Predisone, Cellcept, and one > more that I can't remember the name of..it starts with the letter " N " . > > Anyway, my husband met with the social worker yesterday and she gave > him a list of the various meds that post-transplant patients take, > along with the potential side effects. He's all paranoid now, > thinking he's going to get fat, hairy, and have zits like a > teenager. I told him not to worry about it, because although those > side effects are listed as the most common ones, it does not mean > that EVERYONE has them. > > Has anyone in the group experienced any horrendous side effects with > their anti-rejection meds, or do you know anyone who has? I just > want to be able to calm my husband's fears. > > Thanks! > > ~*~Kim~*~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 Marty is in there too, looking good. Pierre Re: Anti-rejection Medications > Kim, > > Show your hubby pictures of and Tony. They look very good post transplant. It might help calm him down. > > Jing > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Oh no Pierre.... Hmmm, you say that cup didn't have a warning on it? What's the statute of limitations? Cy Re: Anti-rejection Medications > > > > Cy: > > > > Thank goodness you wrote that. I was just about to put the dry cleaning > bag over my head! Thanks again. Well, I'm going back to put this steaming > hot cup of coffee between my legs while I go driving around and make sharp > turns and quick stops... > > > > Actually, that was a great analogy. > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
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