Re: Intro and a few questions

[Guest guest]

Ramona,

Welcome to the group! I

have been on Lisinopril a little over a year now. When I first started taking

it I thought it was causing a bunch of problems-like headaches, etc. However,

when I first start on a new medication I always attribute every little problem I

get to the new medication when in reality, if I think back, I was having all the

" side effects " before I started the medication-they were just in the back of my

mind.

Another thing, when I was pregnant a couple years ago my doctor said I had

microscopic hematuria, but it was probably just a " fluke thing " . She told me

that 3 times in 9 months! Back then I just believed her and didn't request any

further tests or anything else! I was told not to worry too and so I didn't!

Again, welcome to the group! I hope you find it as much help and comfort as I

have.

~Dana

Intro and a few questions

Hello, I just found my way here from the " cafe " . I have not been

definitely dx'ed with IgAN, but it was suggested and I am waiting

for the results of my 24 hour urine and followup creatinine test.

In March my creatinine was 1.7, up from 0.9 in January. The

nephrologist is having a hard time believing that jump, so we are

hoping it was a lab error or something transient. However, I have

had microscopic hematuria for about 20 years, plus high blood

pressure since 1991. They have done all kinds of tests imaginable

to find the cause of my HBP, all to no avail (no family history). I

also have diabetes and a few other medical issues.

I am wondering how some of you " feel " , when your kidney function is

still decent? Do you have any outward sx's with the IgAN? For the

last year, I have had bouts of not feeling well, including weakness,

easily fatigued, cognitive issues, etc. I do have Peripheral

Neuropathy, but do not think it would have such effects. I am

assuming that, if I do have some kidney problems, my function is

still good, since my creatinine is not way off yet.

Also, does anyone have headaches with Lisinopril? If so, do they go

away after time? Mine are mostly at night, when I lay down. I do

not think they are bp related, although I have not checked my bp

while in bed! :-) I end up taking aceteminophen almost every night

now, after I go to bed.

Well, that is enough for now! Hopefully I will be able to come back

later and let you all know that my kidneys are perfect, once I get

those results! :-)

By the way, do doctors still say " You are just one of those people

who have microscopic hematuria and we don't know why! " I was told

that 20 years ago and every test I can every remember had the

hematuria, over the years. I didn't worry about it, though, because

I was " told " not to!

Blessings,

Ramona

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Thank you

[Guest guest]

Hi Ramona,

Welcome to the group. Sounds like your kidney function is still up

there and doing well if it's been 20 years.

I haven't had headaches from the Lisinopril that I've noticed anyhow.

My b/p was having a tendancy to go up quite a bit right before bed and was

causing me mild headaches. I was started on a second b/p med (Cardizem LA

180mg) on top of the Lisinopril and so far it has my b/p under control all

day and night now. You might want to check your b/p right before bed for

the next week or so and see if it is going up higher than you like it to be

prior to bed and then give your doctor a call and see if they want to do

anything about it.

I hope your 24 hour test shows you in good kidney health!

Amy

[Guest guest]

Hi Ramona,

Welcome to the group. Sounds like your kidney function is still up

there and doing well if it's been 20 years.

I haven't had headaches from the Lisinopril that I've noticed anyhow.

My b/p was having a tendancy to go up quite a bit right before bed and was

causing me mild headaches. I was started on a second b/p med (Cardizem LA

180mg) on top of the Lisinopril and so far it has my b/p under control all

day and night now. You might want to check your b/p right before bed for

the next week or so and see if it is going up higher than you like it to be

prior to bed and then give your doctor a call and see if they want to do

anything about it.

I hope your 24 hour test shows you in good kidney health!

Amy

[Guest guest]

Thank you, Dana, et al, for your welcome. I am curious, how did

they end up detecting your IgAN, Dana? Did you end up with high

serum creatinine eventually? Did your bp go up? What was the final

thing that sent you in for a biopsy?

Again, thanks for the welcome!

Ramona

> Ramona,

> Welcome to the group! I

> have been on Lisinopril a little over a year now. When I first

started taking it I thought it was causing a bunch of problems-like

headaches, etc. However, when I first start on a new medication I

always attribute every little problem I get to the new medication

when in reality, if I think back, I was having all the " side

effects " before I started the medication-they were just in the back

of my mind.

> Another thing, when I was pregnant a couple years ago my doctor

said I had microscopic hematuria, but it was probably just a " fluke

thing " . She told me that 3 times in 9 months! Back then I just

believed her and didn't request any further tests or anything else!

I was told not to worry too and so I didn't!

> Again, welcome to the group! I hope you find it as much help and

comfort as I have.

> ~Dana

>