Re: Re: RAI and pets & HUMANS

[Guest guest]

Hi Pam-

I had RAI at the age of 24 15 years ago. I've had problems ever since but

they weren't considered thyroid related and were attributed to many other

things. After 11 years, we found out that they were thyroid (or lack of

thyroid) related. It wasn't because they didn't try to find out what was

wrong with me. They did try. They just didn't know

I've always griped because the studies suggesting that RAI is safe don't

(and many can't be controlled) control variables. For example, that huge

(35K+ patient) study showing RAI is safe only looks at cancer mortality and

the average age of the patient is 49. That study doesn't apply to me yet

many endos will use something like that to validate what they're doing.

I haven't been able to find a study even close to my circumstances. There

are studies out there that say that RAI doesn't affect fertility but those

are mostly based on patients that try to get pregnant a couple of years

afterwards.

In all honesty, I haven't looked for anything in the past couple of years.

Maybe they have a study out now that's more applicable to someone like me.

I got tired of looking a long time ago.

Anyhow, I don't know your daughter's circumstances, but I know I wouldn't

choose RAI for my son either.

Take care,

> For and Jody,

>

> And in my case, we're trying to avoid RAI for our daughter, only 13. To

date

> we know of no long term studies of the effects of RAI on children. One

endo

> told me the risk for tumor doubles, but that since the risk is " so small "

to

> begin with, doubling small isn't that big a deal. Hmmm.

>

> This same doctor admitted that it's only been in the last 5-7 years that

> people have been more willing to let their children undergo this type of

> treatment. Oddly, there are studies out on adults who received RAI. My

> problem is this: if an adult say, in their mid 40s, receives RAI, then

> develops a tumor 30 years later, it might never be discovered due to

> mortality rates and other diseases that an elderly person might have. My

> daughter, on the other hand, would only be in her mid 40s in another 30

> years. She'd still have lots of life left and I don't want to risk that

> remaining life.

>

> Thanks for the input on cats and dosages. Still, we hope to never have to

> use RAI for our child.

>

> Pam

[Guest guest]

Hi Pam-

I had RAI at the age of 24 15 years ago. I've had problems ever since but

they weren't considered thyroid related and were attributed to many other

things. After 11 years, we found out that they were thyroid (or lack of

thyroid) related. It wasn't because they didn't try to find out what was

wrong with me. They did try. They just didn't know

I've always griped because the studies suggesting that RAI is safe don't

(and many can't be controlled) control variables. For example, that huge

(35K+ patient) study showing RAI is safe only looks at cancer mortality and

the average age of the patient is 49. That study doesn't apply to me yet

many endos will use something like that to validate what they're doing.

I haven't been able to find a study even close to my circumstances. There

are studies out there that say that RAI doesn't affect fertility but those

are mostly based on patients that try to get pregnant a couple of years

afterwards.

In all honesty, I haven't looked for anything in the past couple of years.

Maybe they have a study out now that's more applicable to someone like me.

I got tired of looking a long time ago.

Anyhow, I don't know your daughter's circumstances, but I know I wouldn't

choose RAI for my son either.

Take care,

> For and Jody,

>

> And in my case, we're trying to avoid RAI for our daughter, only 13. To

date

> we know of no long term studies of the effects of RAI on children. One

endo

> told me the risk for tumor doubles, but that since the risk is " so small "

to

> begin with, doubling small isn't that big a deal. Hmmm.

>

> This same doctor admitted that it's only been in the last 5-7 years that

> people have been more willing to let their children undergo this type of

> treatment. Oddly, there are studies out on adults who received RAI. My

> problem is this: if an adult say, in their mid 40s, receives RAI, then

> develops a tumor 30 years later, it might never be discovered due to

> mortality rates and other diseases that an elderly person might have. My

> daughter, on the other hand, would only be in her mid 40s in another 30

> years. She'd still have lots of life left and I don't want to risk that

> remaining life.

>

> Thanks for the input on cats and dosages. Still, we hope to never have to

> use RAI for our child.

>

> Pam

[Guest guest]

Hi Jody-

The pediatric endo at the July NGDF conference mentioned that she uses BRT

on children. She's in Nevada.

Take care,

> Hi Pam,

> >>>This same doctor admitted that it's only been in the last 5-7 years

that

> >>>people have been more willing to let their children undergo this type

of

> >>>treatment<<<

>

> I have to believe that the reason way to many are now recommending RAI for

> children is because of the cavalier attitude far to many doctors are

taking.

> If I were you, I would research your states laws on the RAI and pets,

how

> long they have to be isolated etc. print it up and keep it in a safe place

> ( maybe able to offer you some input on where to begin looking for

this.

>

> I say this because of what you had said regarding the first doctors really

> pushing this on you...all across this country, parents are being hauled

into

> court, after losing custody of their child(ren) becuase they have refused

to

> vaccinate, or refused traditional cancer treatments so they are deemed to

be

> abusive parents. This happens every day and I don't say it to scare you,

> only to make you aware, should some doctor down the road push this so far

it

> were to happen, you have one heck of an argument against them doing this

to

> your daughter, ever.

>

> Also, 2 years ago, my endo had told me that Buffalo Childrens Hospital in

> Buffalo NY was doing BRT (block and replace therapy) on children diagnosed

> with graves...I do not know if they still do it, but it may be something

to

> bring up to your new doctor as the success rate, in Europe is much higher

> than it is in the states just using ATD's. I know Buffalo is to far for

you

> to travel, but it may be something to bring up to your doctor and ask them

> to call and talk to someone at the hospital that does/or has done this. I

> see my doctor on Friday up in Buffalo (weather permitting) I will ask her

if

> she has the names of any of the doctors involved in this, if you would

like.

> Take care,

> Jody

>

>

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the

endorsement of

> the listowner. I have no input as to what ads are attached to emails.

> --------------------------------------------------------------------------

------------

>

>

[Guest guest]

Hi Jody-

The pediatric endo at the July NGDF conference mentioned that she uses BRT

on children. She's in Nevada.

Take care,

> Hi Pam,

> >>>This same doctor admitted that it's only been in the last 5-7 years

that

> >>>people have been more willing to let their children undergo this type

of

> >>>treatment<<<

>

> I have to believe that the reason way to many are now recommending RAI for

> children is because of the cavalier attitude far to many doctors are

taking.

> If I were you, I would research your states laws on the RAI and pets,

how

> long they have to be isolated etc. print it up and keep it in a safe place

> ( maybe able to offer you some input on where to begin looking for

this.

>

> I say this because of what you had said regarding the first doctors really

> pushing this on you...all across this country, parents are being hauled

into

> court, after losing custody of their child(ren) becuase they have refused

to

> vaccinate, or refused traditional cancer treatments so they are deemed to

be

> abusive parents. This happens every day and I don't say it to scare you,

> only to make you aware, should some doctor down the road push this so far

it

> were to happen, you have one heck of an argument against them doing this

to

> your daughter, ever.

>

> Also, 2 years ago, my endo had told me that Buffalo Childrens Hospital in

> Buffalo NY was doing BRT (block and replace therapy) on children diagnosed

> with graves...I do not know if they still do it, but it may be something

to

> bring up to your new doctor as the success rate, in Europe is much higher

> than it is in the states just using ATD's. I know Buffalo is to far for

you

> to travel, but it may be something to bring up to your doctor and ask them

> to call and talk to someone at the hospital that does/or has done this. I

> see my doctor on Friday up in Buffalo (weather permitting) I will ask her

if

> she has the names of any of the doctors involved in this, if you would

like.

> Take care,

> Jody

>

>

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the

endorsement of

> the listowner. I have no input as to what ads are attached to emails.

> --------------------------------------------------------------------------

------------

>

>

[Guest guest]

Hi Jody-

The pediatric endo at the July NGDF conference mentioned that she uses BRT

on children. She's in Nevada.

Take care,

> Hi Pam,

> >>>This same doctor admitted that it's only been in the last 5-7 years

that

> >>>people have been more willing to let their children undergo this type

of

> >>>treatment<<<

>

> I have to believe that the reason way to many are now recommending RAI for

> children is because of the cavalier attitude far to many doctors are

taking.

> If I were you, I would research your states laws on the RAI and pets,

how

> long they have to be isolated etc. print it up and keep it in a safe place

> ( maybe able to offer you some input on where to begin looking for

this.

>

> I say this because of what you had said regarding the first doctors really

> pushing this on you...all across this country, parents are being hauled

into

> court, after losing custody of their child(ren) becuase they have refused

to

> vaccinate, or refused traditional cancer treatments so they are deemed to

be

> abusive parents. This happens every day and I don't say it to scare you,

> only to make you aware, should some doctor down the road push this so far

it

> were to happen, you have one heck of an argument against them doing this

to

> your daughter, ever.

>

> Also, 2 years ago, my endo had told me that Buffalo Childrens Hospital in

> Buffalo NY was doing BRT (block and replace therapy) on children diagnosed

> with graves...I do not know if they still do it, but it may be something

to

> bring up to your new doctor as the success rate, in Europe is much higher

> than it is in the states just using ATD's. I know Buffalo is to far for

you

> to travel, but it may be something to bring up to your doctor and ask them

> to call and talk to someone at the hospital that does/or has done this. I

> see my doctor on Friday up in Buffalo (weather permitting) I will ask her

if

> she has the names of any of the doctors involved in this, if you would

like.

> Take care,

> Jody

>

>

>

>

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the

endorsement of

> the listowner. I have no input as to what ads are attached to emails.

> --------------------------------------------------------------------------

------------

>

>

[Guest guest]

Hey Doris,

I like the butterfly a lot. I don't suppose that they emerge without

difficulty. Maybe since we are all trying to remake ourselves and live in

changed bodies a butterfly is a good symbol. And, besides its lovely and

positive.

Maybe when we looked at the butterfly we might remember that the negativity does

pass sometimes.

Laurel

Re: Re: RAI and pets & HUMANS

Jody,

January is Thyroid Awareness Month....and the color for that is green. (I

think it's the AACE site that has something about Thyroid Awareness Month?)

I actually bought a butterfly pin that is made of polished stone that I wear

as my " thyroid statement " !!

Doris

[Guest guest]

Hey Doris,

I like the butterfly a lot. I don't suppose that they emerge without

difficulty. Maybe since we are all trying to remake ourselves and live in

changed bodies a butterfly is a good symbol. And, besides its lovely and

positive.

Maybe when we looked at the butterfly we might remember that the negativity does

pass sometimes.

Laurel

Re: Re: RAI and pets & HUMANS

Jody,

January is Thyroid Awareness Month....and the color for that is green. (I

think it's the AACE site that has something about Thyroid Awareness Month?)

I actually bought a butterfly pin that is made of polished stone that I wear

as my " thyroid statement " !!

Doris

[Guest guest]

Hey Doris,

I like the butterfly a lot. I don't suppose that they emerge without

difficulty. Maybe since we are all trying to remake ourselves and live in

changed bodies a butterfly is a good symbol. And, besides its lovely and

positive.

Maybe when we looked at the butterfly we might remember that the negativity does

pass sometimes.

Laurel

Re: Re: RAI and pets & HUMANS

Jody,

January is Thyroid Awareness Month....and the color for that is green. (I

think it's the AACE site that has something about Thyroid Awareness Month?)

I actually bought a butterfly pin that is made of polished stone that I wear

as my " thyroid statement " !!

Doris

[Guest guest]

Oh my gosh I'm dense today. I just got the other connection with the butterfly.

" The thyroid is a butterfly shaped gland " etc. Maybe if we did atomic

butterflies, ones that glow in the dark.

Laurel again

Re: Re: RAI and pets & HUMANS

Aww come on Doris, you can do it!

I'm going to pop up to JoAnn Fabric's this weekend and see what I can find

in glow in the dark...in green...I do think that color would do the best. I

believe those little radiation signs that do glow, glow in green.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

[Guest guest]

Oh my gosh I'm dense today. I just got the other connection with the butterfly.

" The thyroid is a butterfly shaped gland " etc. Maybe if we did atomic

butterflies, ones that glow in the dark.

Laurel again

Re: Re: RAI and pets & HUMANS

Aww come on Doris, you can do it!

I'm going to pop up to JoAnn Fabric's this weekend and see what I can find

in glow in the dark...in green...I do think that color would do the best. I

believe those little radiation signs that do glow, glow in green.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

[Guest guest]

Oh my gosh I'm dense today. I just got the other connection with the butterfly.

" The thyroid is a butterfly shaped gland " etc. Maybe if we did atomic

butterflies, ones that glow in the dark.

Laurel again

Re: Re: RAI and pets & HUMANS

Aww come on Doris, you can do it!

I'm going to pop up to JoAnn Fabric's this weekend and see what I can find

in glow in the dark...in green...I do think that color would do the best. I

believe those little radiation signs that do glow, glow in green.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

[Guest guest]

Jody,

I agree. Last year the AACE had a campaign about it complete with a media

kit on their site. (I think it was them) This year there was nothing about

it. I've never seen anything on TV about it or heard any PSA's on the radio.

Doris

[Guest guest]

Laurel,

LOL...you got it!! *smile*

Yep, the butterfly shaped gland. I pin it right there on my turtleneck!

How about a flourescent butterfly with the no nukes symbol on it???

Doris

[Guest guest]

Laurel,

LOL...you got it!! *smile*

Yep, the butterfly shaped gland. I pin it right there on my turtleneck!

How about a flourescent butterfly with the no nukes symbol on it???

Doris

[Guest guest]

Laurel,

LOL...you got it!! *smile*

Yep, the butterfly shaped gland. I pin it right there on my turtleneck!

How about a flourescent butterfly with the no nukes symbol on it???

Doris

[Guest guest]

And, of course, the thyroid is butterfly shaped.

Re: Re: RAI and pets & HUMANS

Hey Doris,

I like the butterfly a lot. I don't suppose that they emerge without

difficulty. Maybe since we are all trying to remake ourselves and live in

changed bodies a butterfly is a good symbol. And, besides its lovely and

positive.

Maybe when we looked at the butterfly we might remember that the negativity

does pass sometimes.

Laurel

Re: Re: RAI and pets & HUMANS

Jody,

January is Thyroid Awareness Month....and the color for that is green. (I

think it's the AACE site that has something about Thyroid Awareness Month?)

I actually bought a butterfly pin that is made of polished stone that I wear

as my " thyroid statement " !!

Doris

[Guest guest]

And, of course, the thyroid is butterfly shaped.

Re: Re: RAI and pets & HUMANS

Hey Doris,

I like the butterfly a lot. I don't suppose that they emerge without

difficulty. Maybe since we are all trying to remake ourselves and live in

changed bodies a butterfly is a good symbol. And, besides its lovely and

positive.

Maybe when we looked at the butterfly we might remember that the negativity

does pass sometimes.

Laurel

Re: Re: RAI and pets & HUMANS

Jody,

January is Thyroid Awareness Month....and the color for that is green. (I

think it's the AACE site that has something about Thyroid Awareness Month?)

I actually bought a butterfly pin that is made of polished stone that I wear

as my " thyroid statement " !!

Doris

[Guest guest]

And, of course, the thyroid is butterfly shaped.

Re: Re: RAI and pets & HUMANS

Hey Doris,

I like the butterfly a lot. I don't suppose that they emerge without

difficulty. Maybe since we are all trying to remake ourselves and live in

changed bodies a butterfly is a good symbol. And, besides its lovely and

positive.

Maybe when we looked at the butterfly we might remember that the negativity

does pass sometimes.

Laurel

Re: Re: RAI and pets & HUMANS

Jody,

January is Thyroid Awareness Month....and the color for that is green. (I

think it's the AACE site that has something about Thyroid Awareness Month?)

I actually bought a butterfly pin that is made of polished stone that I wear

as my " thyroid statement " !!

Doris

[Guest guest]

Whoops. I didn't read before I answered!

Re: Re: RAI and pets & HUMANS

Oh my gosh I'm dense today. I just got the other connection with the

butterfly. " The thyroid is a butterfly shaped gland " etc. Maybe if we did

atomic butterflies, ones that glow in the dark.

Laurel again

Re: Re: RAI and pets & HUMANS

Aww come on Doris, you can do it!

I'm going to pop up to JoAnn Fabric's this weekend and see what I can find

in glow in the dark...in green...I do think that color would do the best. I

believe those little radiation signs that do glow, glow in green.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

<http://messenger.msn.com>

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement

of

the listowner. I have no input as to what ads are attached to emails.

----------------------------------------------------------------------------

----------

[Guest guest]

Whoops. I didn't read before I answered!

Re: Re: RAI and pets & HUMANS

Oh my gosh I'm dense today. I just got the other connection with the

butterfly. " The thyroid is a butterfly shaped gland " etc. Maybe if we did

atomic butterflies, ones that glow in the dark.

Laurel again

Re: Re: RAI and pets & HUMANS

Aww come on Doris, you can do it!

I'm going to pop up to JoAnn Fabric's this weekend and see what I can find

in glow in the dark...in green...I do think that color would do the best. I

believe those little radiation signs that do glow, glow in green.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

<http://messenger.msn.com>

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement

of

the listowner. I have no input as to what ads are attached to emails.

----------------------------------------------------------------------------

----------

[Guest guest]

Whoops. I didn't read before I answered!

Re: Re: RAI and pets & HUMANS

Oh my gosh I'm dense today. I just got the other connection with the

butterfly. " The thyroid is a butterfly shaped gland " etc. Maybe if we did

atomic butterflies, ones that glow in the dark.

Laurel again

Re: Re: RAI and pets & HUMANS

Aww come on Doris, you can do it!

I'm going to pop up to JoAnn Fabric's this weekend and see what I can find

in glow in the dark...in green...I do think that color would do the best. I

believe those little radiation signs that do glow, glow in green.

Jody

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

<http://messenger.msn.com>

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement

of

the listowner. I have no input as to what ads are attached to emails.

----------------------------------------------------------------------------

----------

[Guest guest]

There was an article on fertility on Medscape from last summer's thyroid

conference. if you can't find it let me know. i printed it and stuffed it in

a stack for future articles.

[Guest guest]

,

What is her name? The endo for children at the conference?

Jody

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Hi Jody-

I can't remember and I can't find the itinerary. I can't find anything in

this #$% & * office. I've been trying to clean it for 3 years but am always

interupted!

You could try the NGDF site (not bulletin board) and if her name isn't

there, you could ask , Jake or Jan.

Take care,

> ,

> What is her name? The endo for children at the conference?

> Jody