Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Laurel, Well something florescent that would be the sign for radiation, maybe with that triangular symbol used for radiation...I would do it! Honestly, I think the BIG thing that we have been talking about, that needs to find a way to someone who could expose this and throw a monkey works into the whole shabang is the way our cats are dealt with after being given much lower doses of I-131. But people are being laughed at when asking if it is dangerous by their own doctors...and I have recently read 2 accounts of this! If, as in Minnesota where lives, the state law is so strict with our pets and isolation...why are they not so strict with humans. Something in this does not make sense, and is stuck in my head as something that is very very very important! Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hey , They might eventually! After all, there are some actors out there that are gravesians too! Wouldn't have to be limited to just those of us who have had RAI, but those who chose not to because of it's danger. Anyhow, just a thought Jody _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hey , They might eventually! After all, there are some actors out there that are gravesians too! Wouldn't have to be limited to just those of us who have had RAI, but those who chose not to because of it's danger. Anyhow, just a thought Jody _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hey , They might eventually! After all, there are some actors out there that are gravesians too! Wouldn't have to be limited to just those of us who have had RAI, but those who chose not to because of it's danger. Anyhow, just a thought Jody _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hi Pam, >>>This same doctor admitted that it's only been in the last 5-7 years that >>>people have been more willing to let their children undergo this type of >>>treatment<<< I have to believe that the reason way to many are now recommending RAI for children is because of the cavalier attitude far to many doctors are taking. If I were you, I would research your states laws on the RAI and pets, how long they have to be isolated etc. print it up and keep it in a safe place ( maybe able to offer you some input on where to begin looking for this. I say this because of what you had said regarding the first doctors really pushing this on you...all across this country, parents are being hauled into court, after losing custody of their child(ren) becuase they have refused to vaccinate, or refused traditional cancer treatments so they are deemed to be abusive parents. This happens every day and I don't say it to scare you, only to make you aware, should some doctor down the road push this so far it were to happen, you have one heck of an argument against them doing this to your daughter, ever. Also, 2 years ago, my endo had told me that Buffalo Childrens Hospital in Buffalo NY was doing BRT (block and replace therapy) on children diagnosed with graves...I do not know if they still do it, but it may be something to bring up to your new doctor as the success rate, in Europe is much higher than it is in the states just using ATD's. I know Buffalo is to far for you to travel, but it may be something to bring up to your doctor and ask them to call and talk to someone at the hospital that does/or has done this. I see my doctor on Friday up in Buffalo (weather permitting) I will ask her if she has the names of any of the doctors involved in this, if you would like. Take care, Jody _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hi Pam, >>>This same doctor admitted that it's only been in the last 5-7 years that >>>people have been more willing to let their children undergo this type of >>>treatment<<< I have to believe that the reason way to many are now recommending RAI for children is because of the cavalier attitude far to many doctors are taking. If I were you, I would research your states laws on the RAI and pets, how long they have to be isolated etc. print it up and keep it in a safe place ( maybe able to offer you some input on where to begin looking for this. I say this because of what you had said regarding the first doctors really pushing this on you...all across this country, parents are being hauled into court, after losing custody of their child(ren) becuase they have refused to vaccinate, or refused traditional cancer treatments so they are deemed to be abusive parents. This happens every day and I don't say it to scare you, only to make you aware, should some doctor down the road push this so far it were to happen, you have one heck of an argument against them doing this to your daughter, ever. Also, 2 years ago, my endo had told me that Buffalo Childrens Hospital in Buffalo NY was doing BRT (block and replace therapy) on children diagnosed with graves...I do not know if they still do it, but it may be something to bring up to your new doctor as the success rate, in Europe is much higher than it is in the states just using ATD's. I know Buffalo is to far for you to travel, but it may be something to bring up to your doctor and ask them to call and talk to someone at the hospital that does/or has done this. I see my doctor on Friday up in Buffalo (weather permitting) I will ask her if she has the names of any of the doctors involved in this, if you would like. Take care, Jody _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hi Pam, >>>This same doctor admitted that it's only been in the last 5-7 years that >>>people have been more willing to let their children undergo this type of >>>treatment<<< I have to believe that the reason way to many are now recommending RAI for children is because of the cavalier attitude far to many doctors are taking. If I were you, I would research your states laws on the RAI and pets, how long they have to be isolated etc. print it up and keep it in a safe place ( maybe able to offer you some input on where to begin looking for this. I say this because of what you had said regarding the first doctors really pushing this on you...all across this country, parents are being hauled into court, after losing custody of their child(ren) becuase they have refused to vaccinate, or refused traditional cancer treatments so they are deemed to be abusive parents. This happens every day and I don't say it to scare you, only to make you aware, should some doctor down the road push this so far it were to happen, you have one heck of an argument against them doing this to your daughter, ever. Also, 2 years ago, my endo had told me that Buffalo Childrens Hospital in Buffalo NY was doing BRT (block and replace therapy) on children diagnosed with graves...I do not know if they still do it, but it may be something to bring up to your new doctor as the success rate, in Europe is much higher than it is in the states just using ATD's. I know Buffalo is to far for you to travel, but it may be something to bring up to your doctor and ask them to call and talk to someone at the hospital that does/or has done this. I see my doctor on Friday up in Buffalo (weather permitting) I will ask her if she has the names of any of the doctors involved in this, if you would like. Take care, Jody _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Jody, Probably more important than we can imagine. At least at this time in history. I did submit the RAI lack of informed consent story to 20/20 using the ABC website. Figured my kid had other fish to fry. But if someone else wants to send in the Minnesota laws for pets that might add more fuel to the fire. In fact if a bunch of us submitted the same story line, along with all the various stories we are getting from docs, well who knows what might happen. And, the fact that this abomination is not just done in the States might make it less of a hot potato for the network. So where are we going to find an environmentally sound place to manufacture our symbols? Northern Sun comes to mind (not that I'd want to offend any conservatives out there). On the other hand we could just start with T shirts. Glow in the dark paint on shirts could work. We could each manufacture our own. Might be handy to collect the online names of all of us who have undergone this " sound " procedure and add them to a list on the back of the shirts. I'm picturing black shirts rather like the Viet Nam wall. Same statement when you think about it. Who invented this damn " procedure " anyway? Anybody know? Laurel Re: Re: RAI and pets & HUMANS Laurel, Well something florescent that would be the sign for radiation, maybe with that triangular symbol used for radiation...I would do it! Honestly, I think the BIG thing that we have been talking about, that needs to find a way to someone who could expose this and throw a monkey works into the whole shabang is the way our cats are dealt with after being given much lower doses of I-131. But people are being laughed at when asking if it is dangerous by their own doctors...and I have recently read 2 accounts of this! If, as in Minnesota where lives, the state law is so strict with our pets and isolation...why are they not so strict with humans. Something in this does not make sense, and is stuck in my head as something that is very very very important! Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 The s! I like it very much. Wasn't the woman who played Corky Sherwood Forest on Brown fighting Graves? Thought I read that somewhere. It would be very cool to have a celebrity spokesperson. (Not that Elaine is not now a celebrity) How about the " no nukes " sign hung around a neck? On a shirt I mean. Laurel Re: Re: RAI and pets & HUMANS >Hi Laurel, >Sure, I WANT everyone making money off of RAI while hurting us to lose >money, lose their liscense to practice, be held libel and on and on and >on...but since that is not going to happen, especially since radiation on >humans is legal and deemed safe by our government...I think the ribbon is a >great idea...we already have a National thyroid month...isn't it in Feb. ><someone?>? > >I would do the ribbons, but I think they should be the glow in the dark >ones, but what color...red, green, hmmmm what is the glowing color of >radiation? > >Also, do we put a poll out there for others to see if we can make this take >off? Comments please. >Jody > > > >_________________________________________________________________ >Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > >------------------------------------- >The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. >Please consult your doctor before changing or trying new treatments. >---------------------------------------- > DISCLAIMER > >Advertisments placed on this yahoo groups list does not have the endorsement of >the listowner. I have no input as to what ads are attached to emails. >--------------------------------------------------------------------------- ----------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 I believe, if you go to the Atomic Womens group there is a link there to the radioactive museum and the information on who did come up with this might be there...I do know has so many articles and links to the bad things it causes. She really has put together some good stuff. Jody _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Jody, should I laugh of cry with this one? I think glow-in-the-dark ribbons would be right! But how to get the word out past our group? And maybe a " supportive " glow ribbon for those of us who didn't do it, braided up with a bright...um...green maybe? to symbolize that we've managed our GD with less medical " overkill " ? Terry who's by the way, been back on 1.25 mg. approximately of methimazole now for a couple weeks, and feeling much, much better. > > Reply-To: graves_support > Date: Tue, 26 Feb 2002 18:01:28 -0500 > To: graves_support > Subject: Re: Re: RAI and pets & HUMANS > > Hi Laurel, > Sure, I WANT everyone making money off of RAI while hurting us to lose > money, lose their liscense to practice, be held libel and on and on and > on...but since that is not going to happen, especially since radiation on > humans is legal and deemed safe by our government...I think the ribbon is a > great idea...we already have a National thyroid month...isn't it in Feb. > <someone?>? > > I would do the ribbons, but I think they should be the glow in the dark > ones, but what color...red, green, hmmmm what is the glowing color of > radiation? > > Also, do we put a poll out there for others to see if we can make this take > off? Comments please. > Jody > > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement > of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Jody, should I laugh of cry with this one? I think glow-in-the-dark ribbons would be right! But how to get the word out past our group? And maybe a " supportive " glow ribbon for those of us who didn't do it, braided up with a bright...um...green maybe? to symbolize that we've managed our GD with less medical " overkill " ? Terry who's by the way, been back on 1.25 mg. approximately of methimazole now for a couple weeks, and feeling much, much better. > > Reply-To: graves_support > Date: Tue, 26 Feb 2002 18:01:28 -0500 > To: graves_support > Subject: Re: Re: RAI and pets & HUMANS > > Hi Laurel, > Sure, I WANT everyone making money off of RAI while hurting us to lose > money, lose their liscense to practice, be held libel and on and on and > on...but since that is not going to happen, especially since radiation on > humans is legal and deemed safe by our government...I think the ribbon is a > great idea...we already have a National thyroid month...isn't it in Feb. > <someone?>? > > I would do the ribbons, but I think they should be the glow in the dark > ones, but what color...red, green, hmmmm what is the glowing color of > radiation? > > Also, do we put a poll out there for others to see if we can make this take > off? Comments please. > Jody > > > > _________________________________________________________________ > Chat with friends online, try MSN Messenger: http://messenger.msn.com > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement > of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 LOL...I know Terry, this thing started out being my smart mouth, but I really wonder if it couldn't work. We could get the word out to other graves groups also, posting on their boards, there are literally hundreds out there...and if we just wore them in our communities, people are going to ask why...so we tell them. Somehow it will get picked up and noticed somewhere down the road, maybe not right away, but we have persevered in our treatment options, and getting quality back in our lives beyond RAI. I do think they should all be the same though. Those of you who chose not to do RAI because of the questions, dangers, complications of others or whatever reason, would be making the same statement...NO MORE RAI. At the very least it would create awareness, and who knows how many currently undiagnosed it people would become aware to not chose this treatment beforehand. Just a thought. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 LOL...I know Terry, this thing started out being my smart mouth, but I really wonder if it couldn't work. We could get the word out to other graves groups also, posting on their boards, there are literally hundreds out there...and if we just wore them in our communities, people are going to ask why...so we tell them. Somehow it will get picked up and noticed somewhere down the road, maybe not right away, but we have persevered in our treatment options, and getting quality back in our lives beyond RAI. I do think they should all be the same though. Those of you who chose not to do RAI because of the questions, dangers, complications of others or whatever reason, would be making the same statement...NO MORE RAI. At the very least it would create awareness, and who knows how many currently undiagnosed it people would become aware to not chose this treatment beforehand. Just a thought. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 LOL...I know Terry, this thing started out being my smart mouth, but I really wonder if it couldn't work. We could get the word out to other graves groups also, posting on their boards, there are literally hundreds out there...and if we just wore them in our communities, people are going to ask why...so we tell them. Somehow it will get picked up and noticed somewhere down the road, maybe not right away, but we have persevered in our treatment options, and getting quality back in our lives beyond RAI. I do think they should all be the same though. Those of you who chose not to do RAI because of the questions, dangers, complications of others or whatever reason, would be making the same statement...NO MORE RAI. At the very least it would create awareness, and who knows how many currently undiagnosed it people would become aware to not chose this treatment beforehand. Just a thought. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Aww come on Doris, you can do it! I'm going to pop up to JoAnn Fabric's this weekend and see what I can find in glow in the dark...in green...I do think that color would do the best. I believe those little radiation signs that do glow, glow in green. Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Aww come on Doris, you can do it! I'm going to pop up to JoAnn Fabric's this weekend and see what I can find in glow in the dark...in green...I do think that color would do the best. I believe those little radiation signs that do glow, glow in green. Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Aww come on Doris, you can do it! I'm going to pop up to JoAnn Fabric's this weekend and see what I can find in glow in the dark...in green...I do think that color would do the best. I believe those little radiation signs that do glow, glow in green. Jody _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doris, I wonder if we want to change it a bit then, so as not to confuse it with AACE statement. Ours is to make a statement about RAI and the dangers and awareness of this...well maybe green will work if it is florescent? Jody PS I love butterflies, but I really wouldn't want them associated with this kind of a statement, I don't think. _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doris, I wonder if we want to change it a bit then, so as not to confuse it with AACE statement. Ours is to make a statement about RAI and the dangers and awareness of this...well maybe green will work if it is florescent? Jody PS I love butterflies, but I really wouldn't want them associated with this kind of a statement, I don't think. _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doris, I wonder if we want to change it a bit then, so as not to confuse it with AACE statement. Ours is to make a statement about RAI and the dangers and awareness of this...well maybe green will work if it is florescent? Jody PS I love butterflies, but I really wouldn't want them associated with this kind of a statement, I don't think. _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doris, Me again, how sad that thyroid awareness month is so silent that even many of us weren't aware of when it was, that it gets no coverage in the media or nothing...we do need to do something. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doris, Me again, how sad that thyroid awareness month is so silent that even many of us weren't aware of when it was, that it gets no coverage in the media or nothing...we do need to do something. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Doris, Me again, how sad that thyroid awareness month is so silent that even many of us weren't aware of when it was, that it gets no coverage in the media or nothing...we do need to do something. Jody _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hi Pam- I had RAI at the age of 24 15 years ago. I've had problems ever since but they weren't considered thyroid related and were attributed to many other things. After 11 years, we found out that they were thyroid (or lack of thyroid) related. It wasn't because they didn't try to find out what was wrong with me. They did try. They just didn't know I've always griped because the studies suggesting that RAI is safe don't (and many can't be controlled) control variables. For example, that huge (35K+ patient) study showing RAI is safe only looks at cancer mortality and the average age of the patient is 49. That study doesn't apply to me yet many endos will use something like that to validate what they're doing. I haven't been able to find a study even close to my circumstances. There are studies out there that say that RAI doesn't affect fertility but those are mostly based on patients that try to get pregnant a couple of years afterwards. In all honesty, I haven't looked for anything in the past couple of years. Maybe they have a study out now that's more applicable to someone like me. I got tired of looking a long time ago. Anyhow, I don't know your daughter's circumstances, but I know I wouldn't choose RAI for my son either. Take care, > For and Jody, > > And in my case, we're trying to avoid RAI for our daughter, only 13. To date > we know of no long term studies of the effects of RAI on children. One endo > told me the risk for tumor doubles, but that since the risk is " so small " to > begin with, doubling small isn't that big a deal. Hmmm. > > This same doctor admitted that it's only been in the last 5-7 years that > people have been more willing to let their children undergo this type of > treatment. Oddly, there are studies out on adults who received RAI. My > problem is this: if an adult say, in their mid 40s, receives RAI, then > develops a tumor 30 years later, it might never be discovered due to > mortality rates and other diseases that an elderly person might have. My > daughter, on the other hand, would only be in her mid 40s in another 30 > years. She'd still have lots of life left and I don't want to risk that > remaining life. > > Thanks for the input on cats and dosages. Still, we hope to never have to > use RAI for our child. > > Pam Quote Link to comment Share on other sites More sharing options...
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