Re: Pardon my whine, but Prednisone sucks!

[Guest guest]

Thanks Connie!

Hope all is OK in your sector. I didn't say it earlier, but it is GREAT to hear

from you again.

Cy

Connie Sink wrote:

That is a great tip to share with the group. I've seen them in bulk at the

health food store and if I recall they're not even very expensive.

Thanks Cy I'll keep that in mind!

Connie

Re: Re: Pardon my whine, but Prednisone sucks!

Cy that is a great idea. They even make capsules for vegetarians out of

vegetable starch...I have some empty ones here that I use for herbals. I

think I might start using them with my pred. ) Thanks for the great

tip!

Amy

Re: Pardon my whine, but Prednisone sucks!

>

>

> > They need to put a 5 second coating over the prednisone. I noticed

> > that it desolves the second it hits your tongue and it took me 3

> > tries the first time to get them all down. I have had a lot of heart

> > burn since starting the prednisone last Friday but no upset tummy. I

> > can't take it at night or I feel like a fire breathing dragon. I

> > have noticed some anxiety and depression but I don't really blame the

> > prednisone for that. I have also noticed that I have a salt craving

> > like I've never had in my life.

> >

> > Good luck with the insurance co, my co won't give an inch on some

> > things. I'm supposed to be on an acid reducer for my reflux but it's

> > almost $100 for a 30 day supply and since it's not covered I sit and

> > chew a lot of rolaids.

> >

> > My boyfriend says he's " trading me in for a less crabby one " , I hope

> > she knows how to do my laundry. I figure he knew I had this 6 and a

> > half years when we met, he chooses to put up with me. (Now that's

> > either stupidity or love.)

> >

> > BRANDY

> >

> >

> > > I started my prednisone and first off it tastes horrible, secondly,

> > > it made my stomach so upset I couldn't eat for 4 days. Now I am

> > > told to try and take one in the morning and one at night. I also

> > > seem to be very " anxious " every little noise makes me jump, is that

> > > from the Prednisone? I am normally a relaxed person. One other

> > > vent, I was supposed to start my cortizone shots almost 3 weeks

> > ago,

> > > but my insurance company is dragging their feet. Isn't that

> > > horrible, they will pay for a transplant, but have issues when it

> > > comes to helping avoid one! Okay, enough complaining today. It

> > > must be the prednisone making me crabby :-)

> > >

> > > I hope everyone has a great day.

> > >

> > > Jill

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Thanks Connie!

Hope all is OK in your sector. I didn't say it earlier, but it is GREAT to hear

from you again.

Cy

Connie Sink wrote:

That is a great tip to share with the group. I've seen them in bulk at the

health food store and if I recall they're not even very expensive.

Thanks Cy I'll keep that in mind!

Connie

Re: Re: Pardon my whine, but Prednisone sucks!

Cy that is a great idea. They even make capsules for vegetarians out of

vegetable starch...I have some empty ones here that I use for herbals. I

think I might start using them with my pred. ) Thanks for the great

tip!

Amy

Re: Pardon my whine, but Prednisone sucks!

>

>

> > They need to put a 5 second coating over the prednisone. I noticed

> > that it desolves the second it hits your tongue and it took me 3

> > tries the first time to get them all down. I have had a lot of heart

> > burn since starting the prednisone last Friday but no upset tummy. I

> > can't take it at night or I feel like a fire breathing dragon. I

> > have noticed some anxiety and depression but I don't really blame the

> > prednisone for that. I have also noticed that I have a salt craving

> > like I've never had in my life.

> >

> > Good luck with the insurance co, my co won't give an inch on some

> > things. I'm supposed to be on an acid reducer for my reflux but it's

> > almost $100 for a 30 day supply and since it's not covered I sit and

> > chew a lot of rolaids.

> >

> > My boyfriend says he's " trading me in for a less crabby one " , I hope

> > she knows how to do my laundry. I figure he knew I had this 6 and a

> > half years when we met, he chooses to put up with me. (Now that's

> > either stupidity or love.)

> >

> > BRANDY

> >

> >

> > > I started my prednisone and first off it tastes horrible, secondly,

> > > it made my stomach so upset I couldn't eat for 4 days. Now I am

> > > told to try and take one in the morning and one at night. I also

> > > seem to be very " anxious " every little noise makes me jump, is that

> > > from the Prednisone? I am normally a relaxed person. One other

> > > vent, I was supposed to start my cortizone shots almost 3 weeks

> > ago,

> > > but my insurance company is dragging their feet. Isn't that

> > > horrible, they will pay for a transplant, but have issues when it

> > > comes to helping avoid one! Okay, enough complaining today. It

> > > must be the prednisone making me crabby :-)

> > >

> > > I hope everyone has a great day.

> > >

> > > Jill

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Thanks Connie!

Hope all is OK in your sector. I didn't say it earlier, but it is GREAT to hear

from you again.

Cy

Connie Sink wrote:

That is a great tip to share with the group. I've seen them in bulk at the

health food store and if I recall they're not even very expensive.

Thanks Cy I'll keep that in mind!

Connie

Re: Re: Pardon my whine, but Prednisone sucks!

Cy that is a great idea. They even make capsules for vegetarians out of

vegetable starch...I have some empty ones here that I use for herbals. I

think I might start using them with my pred. ) Thanks for the great

tip!

Amy

Re: Pardon my whine, but Prednisone sucks!

>

>

> > They need to put a 5 second coating over the prednisone. I noticed

> > that it desolves the second it hits your tongue and it took me 3

> > tries the first time to get them all down. I have had a lot of heart

> > burn since starting the prednisone last Friday but no upset tummy. I

> > can't take it at night or I feel like a fire breathing dragon. I

> > have noticed some anxiety and depression but I don't really blame the

> > prednisone for that. I have also noticed that I have a salt craving

> > like I've never had in my life.

> >

> > Good luck with the insurance co, my co won't give an inch on some

> > things. I'm supposed to be on an acid reducer for my reflux but it's

> > almost $100 for a 30 day supply and since it's not covered I sit and

> > chew a lot of rolaids.

> >

> > My boyfriend says he's " trading me in for a less crabby one " , I hope

> > she knows how to do my laundry. I figure he knew I had this 6 and a

> > half years when we met, he chooses to put up with me. (Now that's

> > either stupidity or love.)

> >

> > BRANDY

> >

> >

> > > I started my prednisone and first off it tastes horrible, secondly,

> > > it made my stomach so upset I couldn't eat for 4 days. Now I am

> > > told to try and take one in the morning and one at night. I also

> > > seem to be very " anxious " every little noise makes me jump, is that

> > > from the Prednisone? I am normally a relaxed person. One other

> > > vent, I was supposed to start my cortizone shots almost 3 weeks

> > ago,

> > > but my insurance company is dragging their feet. Isn't that

> > > horrible, they will pay for a transplant, but have issues when it

> > > comes to helping avoid one! Okay, enough complaining today. It

> > > must be the prednisone making me crabby :-)

> > >

> > > I hope everyone has a great day.

> > >

> > > Jill

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Thanks Connie!

Hope all is OK in your sector. I didn't say it earlier, but it is GREAT to hear

from you again.

Cy

Connie Sink wrote:

That is a great tip to share with the group. I've seen them in bulk at the

health food store and if I recall they're not even very expensive.

Thanks Cy I'll keep that in mind!

Connie

Re: Re: Pardon my whine, but Prednisone sucks!

Cy that is a great idea. They even make capsules for vegetarians out of

vegetable starch...I have some empty ones here that I use for herbals. I

think I might start using them with my pred. ) Thanks for the great

tip!

Amy

Re: Pardon my whine, but Prednisone sucks!

>

>

> > They need to put a 5 second coating over the prednisone. I noticed

> > that it desolves the second it hits your tongue and it took me 3

> > tries the first time to get them all down. I have had a lot of heart

> > burn since starting the prednisone last Friday but no upset tummy. I

> > can't take it at night or I feel like a fire breathing dragon. I

> > have noticed some anxiety and depression but I don't really blame the

> > prednisone for that. I have also noticed that I have a salt craving

> > like I've never had in my life.

> >

> > Good luck with the insurance co, my co won't give an inch on some

> > things. I'm supposed to be on an acid reducer for my reflux but it's

> > almost $100 for a 30 day supply and since it's not covered I sit and

> > chew a lot of rolaids.

> >

> > My boyfriend says he's " trading me in for a less crabby one " , I hope

> > she knows how to do my laundry. I figure he knew I had this 6 and a

> > half years when we met, he chooses to put up with me. (Now that's

> > either stupidity or love.)

> >

> > BRANDY

> >

> >

> > > I started my prednisone and first off it tastes horrible, secondly,

> > > it made my stomach so upset I couldn't eat for 4 days. Now I am

> > > told to try and take one in the morning and one at night. I also

> > > seem to be very " anxious " every little noise makes me jump, is that

> > > from the Prednisone? I am normally a relaxed person. One other

> > > vent, I was supposed to start my cortizone shots almost 3 weeks

> > ago,

> > > but my insurance company is dragging their feet. Isn't that

> > > horrible, they will pay for a transplant, but have issues when it

> > > comes to helping avoid one! Okay, enough complaining today. It

> > > must be the prednisone making me crabby :-)

> > >

> > > I hope everyone has a great day.

> > >

> > > Jill

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Thanks Cy and I really do appreciate your comment and all my friends here...

Connie

Re: Re: Pardon my whine, but Prednisone sucks!

Cy that is a great idea. They even make capsules for vegetarians out of

vegetable starch...I have some empty ones here that I use for herbals. I

think I might start using them with my pred. ) Thanks for the great

tip!

Amy

Re: Pardon my whine, but Prednisone sucks!

>

>

> > They need to put a 5 second coating over the prednisone. I noticed

> > that it desolves the second it hits your tongue and it took me 3

> > tries the first time to get them all down. I have had a lot of heart

> > burn since starting the prednisone last Friday but no upset tummy. I

> > can't take it at night or I feel like a fire breathing dragon. I

> > have noticed some anxiety and depression but I don't really blame the

> > prednisone for that. I have also noticed that I have a salt craving

> > like I've never had in my life.

> >

> > Good luck with the insurance co, my co won't give an inch on some

> > things. I'm supposed to be on an acid reducer for my reflux but it's

> > almost $100 for a 30 day supply and since it's not covered I sit and

> > chew a lot of rolaids.

> >

> > My boyfriend says he's " trading me in for a less crabby one " , I hope

> > she knows how to do my laundry. I figure he knew I had this 6 and a

> > half years when we met, he chooses to put up with me. (Now that's

> > either stupidity or love.)

> >

> > BRANDY

> >

> >

> > > I started my prednisone and first off it tastes horrible, secondly,

> > > it made my stomach so upset I couldn't eat for 4 days. Now I am

> > > told to try and take one in the morning and one at night. I also

> > > seem to be very " anxious " every little noise makes me jump, is that

> > > from the Prednisone? I am normally a relaxed person. One other

> > > vent, I was supposed to start my cortizone shots almost 3 weeks

> > ago,

> > > but my insurance company is dragging their feet. Isn't that

> > > horrible, they will pay for a transplant, but have issues when it

> > > comes to helping avoid one! Okay, enough complaining today. It

> > > must be the prednisone making me crabby :-)

> > >

> > > I hope everyone has a great day.

> > >

> > > Jill

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Thanks Cy and I really do appreciate your comment and all my friends here...

Connie

Re: Re: Pardon my whine, but Prednisone sucks!

Cy that is a great idea. They even make capsules for vegetarians out of

vegetable starch...I have some empty ones here that I use for herbals. I

think I might start using them with my pred. ) Thanks for the great

tip!

Amy

Re: Pardon my whine, but Prednisone sucks!

>

>

> > They need to put a 5 second coating over the prednisone. I noticed

> > that it desolves the second it hits your tongue and it took me 3

> > tries the first time to get them all down. I have had a lot of heart

> > burn since starting the prednisone last Friday but no upset tummy. I

> > can't take it at night or I feel like a fire breathing dragon. I

> > have noticed some anxiety and depression but I don't really blame the

> > prednisone for that. I have also noticed that I have a salt craving

> > like I've never had in my life.

> >

> > Good luck with the insurance co, my co won't give an inch on some

> > things. I'm supposed to be on an acid reducer for my reflux but it's

> > almost $100 for a 30 day supply and since it's not covered I sit and

> > chew a lot of rolaids.

> >

> > My boyfriend says he's " trading me in for a less crabby one " , I hope

> > she knows how to do my laundry. I figure he knew I had this 6 and a

> > half years when we met, he chooses to put up with me. (Now that's

> > either stupidity or love.)

> >

> > BRANDY

> >

> >

> > > I started my prednisone and first off it tastes horrible, secondly,

> > > it made my stomach so upset I couldn't eat for 4 days. Now I am

> > > told to try and take one in the morning and one at night. I also

> > > seem to be very " anxious " every little noise makes me jump, is that

> > > from the Prednisone? I am normally a relaxed person. One other

> > > vent, I was supposed to start my cortizone shots almost 3 weeks

> > ago,

> > > but my insurance company is dragging their feet. Isn't that

> > > horrible, they will pay for a transplant, but have issues when it

> > > comes to helping avoid one! Okay, enough complaining today. It

> > > must be the prednisone making me crabby :-)

> > >

> > > I hope everyone has a great day.

> > >

> > > Jill

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Thanks Cy and I really do appreciate your comment and all my friends here...

Connie

Re: Re: Pardon my whine, but Prednisone sucks!

Cy that is a great idea. They even make capsules for vegetarians out of

vegetable starch...I have some empty ones here that I use for herbals. I

think I might start using them with my pred. ) Thanks for the great

tip!

Amy

Re: Pardon my whine, but Prednisone sucks!

>

>

> > They need to put a 5 second coating over the prednisone. I noticed

> > that it desolves the second it hits your tongue and it took me 3

> > tries the first time to get them all down. I have had a lot of heart

> > burn since starting the prednisone last Friday but no upset tummy. I

> > can't take it at night or I feel like a fire breathing dragon. I

> > have noticed some anxiety and depression but I don't really blame the

> > prednisone for that. I have also noticed that I have a salt craving

> > like I've never had in my life.

> >

> > Good luck with the insurance co, my co won't give an inch on some

> > things. I'm supposed to be on an acid reducer for my reflux but it's

> > almost $100 for a 30 day supply and since it's not covered I sit and

> > chew a lot of rolaids.

> >

> > My boyfriend says he's " trading me in for a less crabby one " , I hope

> > she knows how to do my laundry. I figure he knew I had this 6 and a

> > half years when we met, he chooses to put up with me. (Now that's

> > either stupidity or love.)

> >

> > BRANDY

> >

> >

> > > I started my prednisone and first off it tastes horrible, secondly,

> > > it made my stomach so upset I couldn't eat for 4 days. Now I am

> > > told to try and take one in the morning and one at night. I also

> > > seem to be very " anxious " every little noise makes me jump, is that

> > > from the Prednisone? I am normally a relaxed person. One other

> > > vent, I was supposed to start my cortizone shots almost 3 weeks

> > ago,

> > > but my insurance company is dragging their feet. Isn't that

> > > horrible, they will pay for a transplant, but have issues when it

> > > comes to helping avoid one! Okay, enough complaining today. It

> > > must be the prednisone making me crabby :-)

> > >

> > > I hope everyone has a great day.

> > >

> > > Jill

> >

> >

> >

> >

> > To edit your settings for the group, go to our Yahoo Group

> > home page:

> > http://groups.yahoo.com/group/iga-nephropathy/

> >

> > To unsubcribe via email,

> > iga-nephropathy-unsubscribe

> > Visit our companion website at www.igan.ca. The site is entirely

supported

> by donations. If you would like to help, go to:

> > http://www.igan.ca/id62.htm

> >

> > Thank you

> >

[Guest guest]

Guess, you've had several replies! I was on 40mg, alternate days--At

first, I was awake most of the night if I took it in the evening; so

now, no later than 6 p.m. Also, I had lots of energy. My head felt a

little tight in the brain area! Then, I had the flushes with heat;

later, I had the deep, inner heat sensation. This has subsided since

now I'm on 30mg on alternate days.

However, now I just feel plain dull on the prednisone day and about

30 min after I take the 10mg tab, I have these flushes that disturb

my thinking; And at one of these times, if playing the piano, I

really forget where I am in the music!!

But the protein count is going DOWN, so that's good. I've been on

this regiment since Nov, 2003.

Let us know how you're feeling now!!

Phyllis

> I started my prednisone and first off it tastes horrible,

secondly,

> it made my stomach so upset I couldn't eat for 4 days. Now I am

> told to try and take one in the morning and one at night. I also

> seem to be very " anxious " every little noise makes me jump, is

that

> from the Prednisone? I am normally a relaxed person. One other

> vent, I was supposed to start my cortizone shots almost 3 weeks

ago,

> but my insurance company is dragging their feet. Isn't that

> horrible, they will pay for a transplant, but have issues when it

> comes to helping avoid one! Okay, enough complaining today. It

> must be the prednisone making me crabby :-)

>

> I hope everyone has a great day.

>

> Jill

[Guest guest]

Guess, you've had several replies! I was on 40mg, alternate days--At

first, I was awake most of the night if I took it in the evening; so

now, no later than 6 p.m. Also, I had lots of energy. My head felt a

little tight in the brain area! Then, I had the flushes with heat;

later, I had the deep, inner heat sensation. This has subsided since

now I'm on 30mg on alternate days.

However, now I just feel plain dull on the prednisone day and about

30 min after I take the 10mg tab, I have these flushes that disturb

my thinking; And at one of these times, if playing the piano, I

really forget where I am in the music!!

But the protein count is going DOWN, so that's good. I've been on

this regiment since Nov, 2003.

Let us know how you're feeling now!!

Phyllis

> I started my prednisone and first off it tastes horrible,

secondly,

> it made my stomach so upset I couldn't eat for 4 days. Now I am

> told to try and take one in the morning and one at night. I also

> seem to be very " anxious " every little noise makes me jump, is

that

> from the Prednisone? I am normally a relaxed person. One other

> vent, I was supposed to start my cortizone shots almost 3 weeks

ago,

> but my insurance company is dragging their feet. Isn't that

> horrible, they will pay for a transplant, but have issues when it

> comes to helping avoid one! Okay, enough complaining today. It

> must be the prednisone making me crabby :-)

>

> I hope everyone has a great day.

>

> Jill

[Guest guest]

Guess, you've had several replies! I was on 40mg, alternate days--At

first, I was awake most of the night if I took it in the evening; so

now, no later than 6 p.m. Also, I had lots of energy. My head felt a

little tight in the brain area! Then, I had the flushes with heat;

later, I had the deep, inner heat sensation. This has subsided since

now I'm on 30mg on alternate days.

However, now I just feel plain dull on the prednisone day and about

30 min after I take the 10mg tab, I have these flushes that disturb

my thinking; And at one of these times, if playing the piano, I

really forget where I am in the music!!

But the protein count is going DOWN, so that's good. I've been on

this regiment since Nov, 2003.

Let us know how you're feeling now!!

Phyllis

> I started my prednisone and first off it tastes horrible,

secondly,

> it made my stomach so upset I couldn't eat for 4 days. Now I am

> told to try and take one in the morning and one at night. I also

> seem to be very " anxious " every little noise makes me jump, is

that

> from the Prednisone? I am normally a relaxed person. One other

> vent, I was supposed to start my cortizone shots almost 3 weeks

ago,

> but my insurance company is dragging their feet. Isn't that

> horrible, they will pay for a transplant, but have issues when it

> comes to helping avoid one! Okay, enough complaining today. It

> must be the prednisone making me crabby :-)

>

> I hope everyone has a great day.

>

> Jill

[Guest guest]

Phyllis it's great to hear your protein levels are dropping too.

Oh and Jill when I was at my nephs today he commented on the redness of

my face. (this was the first time I've had a morning appointment with

him, he normally sees me late afternoon well after the pred has gotten

into my system.) He looked at me and said " wow you're really flushed

today. How long ago did you take your prednisone? " I said " under an

hour ago. " He said " Ah well that would explain the redness then. " So

my neph thinks there is a connection between the flushed face and the

pred anyhow.

Amy

Re: Pardon my whine, but Prednisone sucks!

Guess, you've had several replies! I was on 40mg, alternate days--At

first, I was awake most of the night if I took it in the evening; so

now, no later than 6 p.m. Also, I had lots of energy. My head felt a

little tight in the brain area! Then, I had the flushes with heat;

later, I had the deep, inner heat sensation. This has subsided since

now I'm on 30mg on alternate days.

However, now I just feel plain dull on the prednisone day and about

30 min after I take the 10mg tab, I have these flushes that disturb

my thinking; And at one of these times, if playing the piano, I

really forget where I am in the music!!

But the protein count is going DOWN, so that's good. I've been on

this regiment since Nov, 2003.

Let us know how you're feeling now!!

Phyllis

> I started my prednisone and first off it tastes horrible,

secondly,

> it made my stomach so upset I couldn't eat for 4 days. Now I am

> told to try and take one in the morning and one at night. I also

> seem to be very " anxious " every little noise makes me jump, is

that

> from the Prednisone? I am normally a relaxed person. One other

> vent, I was supposed to start my cortizone shots almost 3 weeks

ago,

> but my insurance company is dragging their feet. Isn't that

> horrible, they will pay for a transplant, but have issues when it

> comes to helping avoid one! Okay, enough complaining today. It

> must be the prednisone making me crabby :-)

>

> I hope everyone has a great day.

>

> Jill

To edit your settings for the group, go to our Yahoo Group

home page:

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[Guest guest]

Phyllis it's great to hear your protein levels are dropping too.

Oh and Jill when I was at my nephs today he commented on the redness of

my face. (this was the first time I've had a morning appointment with

him, he normally sees me late afternoon well after the pred has gotten

into my system.) He looked at me and said " wow you're really flushed

today. How long ago did you take your prednisone? " I said " under an

hour ago. " He said " Ah well that would explain the redness then. " So

my neph thinks there is a connection between the flushed face and the

pred anyhow.

Amy

Re: Pardon my whine, but Prednisone sucks!

Guess, you've had several replies! I was on 40mg, alternate days--At

first, I was awake most of the night if I took it in the evening; so

now, no later than 6 p.m. Also, I had lots of energy. My head felt a

little tight in the brain area! Then, I had the flushes with heat;

later, I had the deep, inner heat sensation. This has subsided since

now I'm on 30mg on alternate days.

However, now I just feel plain dull on the prednisone day and about

30 min after I take the 10mg tab, I have these flushes that disturb

my thinking; And at one of these times, if playing the piano, I

really forget where I am in the music!!

But the protein count is going DOWN, so that's good. I've been on

this regiment since Nov, 2003.

Let us know how you're feeling now!!

Phyllis

> I started my prednisone and first off it tastes horrible,

secondly,

> it made my stomach so upset I couldn't eat for 4 days. Now I am

> told to try and take one in the morning and one at night. I also

> seem to be very " anxious " every little noise makes me jump, is

that

> from the Prednisone? I am normally a relaxed person. One other

> vent, I was supposed to start my cortizone shots almost 3 weeks

ago,

> but my insurance company is dragging their feet. Isn't that

> horrible, they will pay for a transplant, but have issues when it

> comes to helping avoid one! Okay, enough complaining today. It

> must be the prednisone making me crabby :-)

>

> I hope everyone has a great day.

>

> Jill

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Phyllis it's great to hear your protein levels are dropping too.

Oh and Jill when I was at my nephs today he commented on the redness of

my face. (this was the first time I've had a morning appointment with

him, he normally sees me late afternoon well after the pred has gotten

into my system.) He looked at me and said " wow you're really flushed

today. How long ago did you take your prednisone? " I said " under an

hour ago. " He said " Ah well that would explain the redness then. " So

my neph thinks there is a connection between the flushed face and the

pred anyhow.

Amy

Re: Pardon my whine, but Prednisone sucks!

Guess, you've had several replies! I was on 40mg, alternate days--At

first, I was awake most of the night if I took it in the evening; so

now, no later than 6 p.m. Also, I had lots of energy. My head felt a

little tight in the brain area! Then, I had the flushes with heat;

later, I had the deep, inner heat sensation. This has subsided since

now I'm on 30mg on alternate days.

However, now I just feel plain dull on the prednisone day and about

30 min after I take the 10mg tab, I have these flushes that disturb

my thinking; And at one of these times, if playing the piano, I

really forget where I am in the music!!

But the protein count is going DOWN, so that's good. I've been on

this regiment since Nov, 2003.

Let us know how you're feeling now!!

Phyllis

> I started my prednisone and first off it tastes horrible,

secondly,

> it made my stomach so upset I couldn't eat for 4 days. Now I am

> told to try and take one in the morning and one at night. I also

> seem to be very " anxious " every little noise makes me jump, is

that

> from the Prednisone? I am normally a relaxed person. One other

> vent, I was supposed to start my cortizone shots almost 3 weeks

ago,

> but my insurance company is dragging their feet. Isn't that

> horrible, they will pay for a transplant, but have issues when it

> comes to helping avoid one! Okay, enough complaining today. It

> must be the prednisone making me crabby :-)

>

> I hope everyone has a great day.

>

> Jill

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Just had to concur about the prednisone. I was on it off an on for almost a

year. Finally I just refused to take anymore. I couldn't stand noises, any

noise would sound like fingernails on a chalk board.

It didn't hurt my stomach but it did make me ravenous. I would be standing

in front of the fridge telling myself to show a little self control. But I

truly felt like I was starving.

I felt pretty energetic for about two days and then the shaking started.

I told my hubby that if I ever have to take them again I am going to insist

on valuim to go with it and ear muffs.

Wow, I feel better for venting.

[Guest guest]

Just had to concur about the prednisone. I was on it off an on for almost a

year. Finally I just refused to take anymore. I couldn't stand noises, any

noise would sound like fingernails on a chalk board.

It didn't hurt my stomach but it did make me ravenous. I would be standing

in front of the fridge telling myself to show a little self control. But I

truly felt like I was starving.

I felt pretty energetic for about two days and then the shaking started.

I told my hubby that if I ever have to take them again I am going to insist

on valuim to go with it and ear muffs.

Wow, I feel better for venting.

[Guest guest]

Just had to concur about the prednisone. I was on it off an on for almost a

year. Finally I just refused to take anymore. I couldn't stand noises, any

noise would sound like fingernails on a chalk board.

It didn't hurt my stomach but it did make me ravenous. I would be standing

in front of the fridge telling myself to show a little self control. But I

truly felt like I was starving.

I felt pretty energetic for about two days and then the shaking started.

I told my hubby that if I ever have to take them again I am going to insist

on valuim to go with it and ear muffs.

Wow, I feel better for venting.

[Guest guest]

Hi ,

I did the same. I hope to never have to be on Prednisone again the rest of

my life. I just did not do well on it either. But, you can't argue the great

success so many of our members are having on it.

In a message dated 4/2/2004 3:03:33 PM Pacific Standard Time, catdial@...

writes:

> Just had to concur about the prednisone. I was on it off an on for almost

> a

> year. Finally I just refused to take anymore.

[Guest guest]

Hi ,

I did the same. I hope to never have to be on Prednisone again the rest of

my life. I just did not do well on it either. But, you can't argue the great

success so many of our members are having on it.

In a message dated 4/2/2004 3:03:33 PM Pacific Standard Time, catdial@...

writes:

> Just had to concur about the prednisone. I was on it off an on for almost

> a

> year. Finally I just refused to take anymore.

[Guest guest]

Hi ,

I did the same. I hope to never have to be on Prednisone again the rest of

my life. I just did not do well on it either. But, you can't argue the great

success so many of our members are having on it.

In a message dated 4/2/2004 3:03:33 PM Pacific Standard Time, catdial@...

writes:

> Just had to concur about the prednisone. I was on it off an on for almost

> a

> year. Finally I just refused to take anymore.