Re: Re: New and looking for help with Graves/Hashimoto's

[Guest guest]

Have you checked out www.iincid.org yet? It has a lot of good info on

fertility and thyroid (autoimmune diseases really)

Amy D

[Guest guest]

Have you checked out www.iincid.org yet? It has a lot of good info on

fertility and thyroid (autoimmune diseases really)

Amy D

[Guest guest]

Hi ,

>>>Despite my numerous typos, I should correct one. I had a c-section

and not a D & C for delivery of my daughter.<<<

I have had 2 C-Sections also so figured that is what you meant

>>>I will do a search on Michele to see what's what about hair analysis.

>>>This is totally new to me. Since I've always been healthy I find it

>>>scary that a doctor isn't suggesting this or ordering it.<<<<

did a post to you last night, if you didn't see it, go to the home

page and click on messages, you should find it on the first page. She also

gave you lots of great information and some urls.

Being diagnosed with a chronic disease that by many is not taken as

seriously as it should be is a tough thing. It is tougher when many of the

old timers in the endo field stick to the old methods, but we are finding

more and more really good endos out there, and/or as in Terry's case (Terry

ding) she has educated her endo into new areas and he appears to be

accepting them. So we need to be involved in that too with all of our

docs...the down side is, some docs consider 14 years of school and a piece

of paper enough to make them an expert on everything and anyone without that

paper is not capable of making a valid point.

With this disease, the more you know, the more in charge of your disease,

your body and overall health and treatment you will become. It is a huge

factor for all of us. As is lifestyle changes...they are very very

important to us...learning to breath and relax and find a way of reducing

stress, eating right (do not eat shellfish right now as it is loaded with

iodine, something you do not need at this point!)

and other changes as you can make them.

I have a couple books on thyroid:

>>>>The Thyroid Sourcebook M. Sara Rosenthal<<<<

I am going out on a limb here, but I too started with this book and since

have put it in the garbage. It is not thorough, uses snipets of reports and

a lot of interpretation of medial reports that are her own. I lost a lot of

respect for Ms. Rosenthal when I read an article of hers on another web site

that she stated Armour Thyroid was to *new* to be considered useful...she

does NOT know her facts at all. Armour Thyroid has been around a whole lot

longer than ANY of the synthetics and for me, it has improved the quality of

my life in many ways...she also touts the wonderful benefits of synthroid,

which for me is what kept me into a hypO state for 4 years. I have also

heard how synthroid isn't working for many many people out there. You can

read more about this on Shomons about.com web site when you are ready.

Okay off my soapbox on this one, this woman irratates me so badly with a lot

of misperceptions on her part. She has no medical degree and she doesn't

have Graves.

and

>>>>Your Thyroid

Lawrence C. Wood, and E.Chester Ridgway<<<<

I haven't heard of this one at all.

>>>>However I will make is a point of going to Borders and checking into

>>>>these two:

Dr. Ridha (sp?) Arem The Thyroid Solution

Elaine Graves Disease; A Practical Guide<<<<

Elaines book will give you a good handle on labs and treatments, it has

become my bible for GD. Dr. Arems book is a wonderful overall book on

thyroids! I used it a lot in the past.

Ahhh Borders! It is my favorite bookstore in the whole world! We have to

go 2 hours to get to one, but since I see my docs in Buffalo, I get there

several times a year...and if they don't have either of these books (they

should have Dr. Arems) I know they will order them for you in a heartbeat!

>>>>I honestly don't know if the TSI antibody or TSI antibody test for

TSH blocking receptors was ever done. I've tried to keep a copy of

everything in blood work but I don't see anything for that. I also

had alot of blood work done for the M.S. possibility. I have partial

results since some was still pending. It's been completed so I'll

ask for all of what they did. I think that may have been on there.

I'll have to hunt around for it. They were the ones that took the 7

or 9 viles of blood. If I find it, I'll post it too.<<<<

My TSI's are usually on the bottom of the list of thyroid tests. I have had

trouble locating them too. You may want to consider getting a notebook, 3

ring paper punch and putting your labs in there as you get them so you have

them at hand. I now do that after misplacing way to many of them LOL.

Another thing you may want to do for now at least, is journal how your doing

each day, or a few times a week. Especially on the days when you have labs

done...it will be a wealth of information with you as you make this journey.

>>>>I am scheduled for a visual evoked potential test (VEP) ordered by my

>>>>neurologist on Decemeber 19th. I do have blurry vision at times and my

>>>>night vision such as driving at night is bad. I can no longer

accurately judge distances. When in the food store the lighting

drives me crazy. Alot of this could be because of age. Maybe the

VEP will indicate otherwise.<<<<

I have never heard of this, and would be very interested in hearing more as

you can offer it. Or anyone in group, if they can.

I am just now dealing with the eye disease, since April and it is the pits!

I have had the blurry vision (cleared up since new treatment). My night

vision has gotten so bad I no longer drive at night. I have started driving

again in the day time though. I had quit in June and just started again,

good feeling! The judging distance is the pits isn't it! My big thing has

been stairs...they all look like they are on the same level so I have been

very careful.

When I am shopping , I have to wear sunglasses in the stores. The

lighting in them is so hard on my eyes that it can cause physical pain. I

don't think it is age, your younger than I am...(49 here) and I'm not old!

LOL. Your symptoms do sound a lot like the Graves Eye disease and you

should probably get an appointment with an ophthamologist that is familiar

with treating graves eyes. To many don't know or understand this disease.

>>>>I really wonder more and more about the competency of the medical

field at large. We shouldn't have to ask one another for advice.

They should be forth coming with a diagnosis and be thorough in it.

Call me naieve but I fell like I'm going through a crash course in

thyroid and perimenapause.<<<<

I can understand your feelings. After being rushed into RAI and left to go

hypO with this disease and 2 endos and a primary who either wouldn't or

couldnt' answer my questions or passed off my symptoms as those needing

anti-depressants I have found an absolutely wonderful endo...she always

takes time with me, answers my questions, listens to my concerns, is open to

a lot of different treatment options and will read anything I bring into

her...as well as research the urls on the internet I take her. don't give

up hope , there are good docs out there...and we do need them. It is

great to have the internet for us though, it has brought so many good people

together who understand what we go through, who can offer good suggestions

or a shoulder to cry on if need be. I think most docs think it is a

nightmare because more and more patients (with all diseases) are making them

actually do work, and keep up on the newest treatments and reports...so we

make their lives a little more hectic. I know sometimes I drive my doc nuts

but she loves me

>>>I'll be doing some searching in the archives. I see there is alot of

>>>knowledgeable people here that may not want to wait months for

tidbits of information. That's another thing, everything take sooo

long. The MRI pointed out the potential M.S. problem. Prior to

calling My GP told me to ask for a certain person. When I called,

she wasn't available so I spoke to who was. The neuroologist is the

son-in-law of my GP. If I had scheduled with the first person I

would have had to have waited till October for my first appt.,

whereas following up with the other it was July 13. I'm fortunate

but what about others who have a progressive disease?<<<<

Reading, learning and questioning is the most powerful thing you can do for

yourself and your health. The more you know and learn, the more you will

understand and question. I pray you don't have M.S. along with

Graves...both are autoimmune diseases though, so it is a possibility.

Hang in here, things do get easier and better in time. What medicines do

they have you on right now? Beta Blockers and/or ATD's?

Take care and talk to you soon.

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi ,

>>>Despite my numerous typos, I should correct one. I had a c-section

and not a D & C for delivery of my daughter.<<<

I have had 2 C-Sections also so figured that is what you meant

>>>I will do a search on Michele to see what's what about hair analysis.

>>>This is totally new to me. Since I've always been healthy I find it

>>>scary that a doctor isn't suggesting this or ordering it.<<<<

did a post to you last night, if you didn't see it, go to the home

page and click on messages, you should find it on the first page. She also

gave you lots of great information and some urls.

Being diagnosed with a chronic disease that by many is not taken as

seriously as it should be is a tough thing. It is tougher when many of the

old timers in the endo field stick to the old methods, but we are finding

more and more really good endos out there, and/or as in Terry's case (Terry

ding) she has educated her endo into new areas and he appears to be

accepting them. So we need to be involved in that too with all of our

docs...the down side is, some docs consider 14 years of school and a piece

of paper enough to make them an expert on everything and anyone without that

paper is not capable of making a valid point.

With this disease, the more you know, the more in charge of your disease,

your body and overall health and treatment you will become. It is a huge

factor for all of us. As is lifestyle changes...they are very very

important to us...learning to breath and relax and find a way of reducing

stress, eating right (do not eat shellfish right now as it is loaded with

iodine, something you do not need at this point!)

and other changes as you can make them.

I have a couple books on thyroid:

>>>>The Thyroid Sourcebook M. Sara Rosenthal<<<<

I am going out on a limb here, but I too started with this book and since

have put it in the garbage. It is not thorough, uses snipets of reports and

a lot of interpretation of medial reports that are her own. I lost a lot of

respect for Ms. Rosenthal when I read an article of hers on another web site

that she stated Armour Thyroid was to *new* to be considered useful...she

does NOT know her facts at all. Armour Thyroid has been around a whole lot

longer than ANY of the synthetics and for me, it has improved the quality of

my life in many ways...she also touts the wonderful benefits of synthroid,

which for me is what kept me into a hypO state for 4 years. I have also

heard how synthroid isn't working for many many people out there. You can

read more about this on Shomons about.com web site when you are ready.

Okay off my soapbox on this one, this woman irratates me so badly with a lot

of misperceptions on her part. She has no medical degree and she doesn't

have Graves.

and

>>>>Your Thyroid

Lawrence C. Wood, and E.Chester Ridgway<<<<

I haven't heard of this one at all.

>>>>However I will make is a point of going to Borders and checking into

>>>>these two:

Dr. Ridha (sp?) Arem The Thyroid Solution

Elaine Graves Disease; A Practical Guide<<<<

Elaines book will give you a good handle on labs and treatments, it has

become my bible for GD. Dr. Arems book is a wonderful overall book on

thyroids! I used it a lot in the past.

Ahhh Borders! It is my favorite bookstore in the whole world! We have to

go 2 hours to get to one, but since I see my docs in Buffalo, I get there

several times a year...and if they don't have either of these books (they

should have Dr. Arems) I know they will order them for you in a heartbeat!

>>>>I honestly don't know if the TSI antibody or TSI antibody test for

TSH blocking receptors was ever done. I've tried to keep a copy of

everything in blood work but I don't see anything for that. I also

had alot of blood work done for the M.S. possibility. I have partial

results since some was still pending. It's been completed so I'll

ask for all of what they did. I think that may have been on there.

I'll have to hunt around for it. They were the ones that took the 7

or 9 viles of blood. If I find it, I'll post it too.<<<<

My TSI's are usually on the bottom of the list of thyroid tests. I have had

trouble locating them too. You may want to consider getting a notebook, 3

ring paper punch and putting your labs in there as you get them so you have

them at hand. I now do that after misplacing way to many of them LOL.

Another thing you may want to do for now at least, is journal how your doing

each day, or a few times a week. Especially on the days when you have labs

done...it will be a wealth of information with you as you make this journey.

>>>>I am scheduled for a visual evoked potential test (VEP) ordered by my

>>>>neurologist on Decemeber 19th. I do have blurry vision at times and my

>>>>night vision such as driving at night is bad. I can no longer

accurately judge distances. When in the food store the lighting

drives me crazy. Alot of this could be because of age. Maybe the

VEP will indicate otherwise.<<<<

I have never heard of this, and would be very interested in hearing more as

you can offer it. Or anyone in group, if they can.

I am just now dealing with the eye disease, since April and it is the pits!

I have had the blurry vision (cleared up since new treatment). My night

vision has gotten so bad I no longer drive at night. I have started driving

again in the day time though. I had quit in June and just started again,

good feeling! The judging distance is the pits isn't it! My big thing has

been stairs...they all look like they are on the same level so I have been

very careful.

When I am shopping , I have to wear sunglasses in the stores. The

lighting in them is so hard on my eyes that it can cause physical pain. I

don't think it is age, your younger than I am...(49 here) and I'm not old!

LOL. Your symptoms do sound a lot like the Graves Eye disease and you

should probably get an appointment with an ophthamologist that is familiar

with treating graves eyes. To many don't know or understand this disease.

>>>>I really wonder more and more about the competency of the medical

field at large. We shouldn't have to ask one another for advice.

They should be forth coming with a diagnosis and be thorough in it.

Call me naieve but I fell like I'm going through a crash course in

thyroid and perimenapause.<<<<

I can understand your feelings. After being rushed into RAI and left to go

hypO with this disease and 2 endos and a primary who either wouldn't or

couldnt' answer my questions or passed off my symptoms as those needing

anti-depressants I have found an absolutely wonderful endo...she always

takes time with me, answers my questions, listens to my concerns, is open to

a lot of different treatment options and will read anything I bring into

her...as well as research the urls on the internet I take her. don't give

up hope , there are good docs out there...and we do need them. It is

great to have the internet for us though, it has brought so many good people

together who understand what we go through, who can offer good suggestions

or a shoulder to cry on if need be. I think most docs think it is a

nightmare because more and more patients (with all diseases) are making them

actually do work, and keep up on the newest treatments and reports...so we

make their lives a little more hectic. I know sometimes I drive my doc nuts

but she loves me

>>>I'll be doing some searching in the archives. I see there is alot of

>>>knowledgeable people here that may not want to wait months for

tidbits of information. That's another thing, everything take sooo

long. The MRI pointed out the potential M.S. problem. Prior to

calling My GP told me to ask for a certain person. When I called,

she wasn't available so I spoke to who was. The neuroologist is the

son-in-law of my GP. If I had scheduled with the first person I

would have had to have waited till October for my first appt.,

whereas following up with the other it was July 13. I'm fortunate

but what about others who have a progressive disease?<<<<

Reading, learning and questioning is the most powerful thing you can do for

yourself and your health. The more you know and learn, the more you will

understand and question. I pray you don't have M.S. along with

Graves...both are autoimmune diseases though, so it is a possibility.

Hang in here, things do get easier and better in time. What medicines do

they have you on right now? Beta Blockers and/or ATD's?

Take care and talk to you soon.

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi ,

>>>Despite my numerous typos, I should correct one. I had a c-section

and not a D & C for delivery of my daughter.<<<

I have had 2 C-Sections also so figured that is what you meant

>>>I will do a search on Michele to see what's what about hair analysis.

>>>This is totally new to me. Since I've always been healthy I find it

>>>scary that a doctor isn't suggesting this or ordering it.<<<<

did a post to you last night, if you didn't see it, go to the home

page and click on messages, you should find it on the first page. She also

gave you lots of great information and some urls.

Being diagnosed with a chronic disease that by many is not taken as

seriously as it should be is a tough thing. It is tougher when many of the

old timers in the endo field stick to the old methods, but we are finding

more and more really good endos out there, and/or as in Terry's case (Terry

ding) she has educated her endo into new areas and he appears to be

accepting them. So we need to be involved in that too with all of our

docs...the down side is, some docs consider 14 years of school and a piece

of paper enough to make them an expert on everything and anyone without that

paper is not capable of making a valid point.

With this disease, the more you know, the more in charge of your disease,

your body and overall health and treatment you will become. It is a huge

factor for all of us. As is lifestyle changes...they are very very

important to us...learning to breath and relax and find a way of reducing

stress, eating right (do not eat shellfish right now as it is loaded with

iodine, something you do not need at this point!)

and other changes as you can make them.

I have a couple books on thyroid:

>>>>The Thyroid Sourcebook M. Sara Rosenthal<<<<

I am going out on a limb here, but I too started with this book and since

have put it in the garbage. It is not thorough, uses snipets of reports and

a lot of interpretation of medial reports that are her own. I lost a lot of

respect for Ms. Rosenthal when I read an article of hers on another web site

that she stated Armour Thyroid was to *new* to be considered useful...she

does NOT know her facts at all. Armour Thyroid has been around a whole lot

longer than ANY of the synthetics and for me, it has improved the quality of

my life in many ways...she also touts the wonderful benefits of synthroid,

which for me is what kept me into a hypO state for 4 years. I have also

heard how synthroid isn't working for many many people out there. You can

read more about this on Shomons about.com web site when you are ready.

Okay off my soapbox on this one, this woman irratates me so badly with a lot

of misperceptions on her part. She has no medical degree and she doesn't

have Graves.

and

>>>>Your Thyroid

Lawrence C. Wood, and E.Chester Ridgway<<<<

I haven't heard of this one at all.

>>>>However I will make is a point of going to Borders and checking into

>>>>these two:

Dr. Ridha (sp?) Arem The Thyroid Solution

Elaine Graves Disease; A Practical Guide<<<<

Elaines book will give you a good handle on labs and treatments, it has

become my bible for GD. Dr. Arems book is a wonderful overall book on

thyroids! I used it a lot in the past.

Ahhh Borders! It is my favorite bookstore in the whole world! We have to

go 2 hours to get to one, but since I see my docs in Buffalo, I get there

several times a year...and if they don't have either of these books (they

should have Dr. Arems) I know they will order them for you in a heartbeat!

>>>>I honestly don't know if the TSI antibody or TSI antibody test for

TSH blocking receptors was ever done. I've tried to keep a copy of

everything in blood work but I don't see anything for that. I also

had alot of blood work done for the M.S. possibility. I have partial

results since some was still pending. It's been completed so I'll

ask for all of what they did. I think that may have been on there.

I'll have to hunt around for it. They were the ones that took the 7

or 9 viles of blood. If I find it, I'll post it too.<<<<

My TSI's are usually on the bottom of the list of thyroid tests. I have had

trouble locating them too. You may want to consider getting a notebook, 3

ring paper punch and putting your labs in there as you get them so you have

them at hand. I now do that after misplacing way to many of them LOL.

Another thing you may want to do for now at least, is journal how your doing

each day, or a few times a week. Especially on the days when you have labs

done...it will be a wealth of information with you as you make this journey.

>>>>I am scheduled for a visual evoked potential test (VEP) ordered by my

>>>>neurologist on Decemeber 19th. I do have blurry vision at times and my

>>>>night vision such as driving at night is bad. I can no longer

accurately judge distances. When in the food store the lighting

drives me crazy. Alot of this could be because of age. Maybe the

VEP will indicate otherwise.<<<<

I have never heard of this, and would be very interested in hearing more as

you can offer it. Or anyone in group, if they can.

I am just now dealing with the eye disease, since April and it is the pits!

I have had the blurry vision (cleared up since new treatment). My night

vision has gotten so bad I no longer drive at night. I have started driving

again in the day time though. I had quit in June and just started again,

good feeling! The judging distance is the pits isn't it! My big thing has

been stairs...they all look like they are on the same level so I have been

very careful.

When I am shopping , I have to wear sunglasses in the stores. The

lighting in them is so hard on my eyes that it can cause physical pain. I

don't think it is age, your younger than I am...(49 here) and I'm not old!

LOL. Your symptoms do sound a lot like the Graves Eye disease and you

should probably get an appointment with an ophthamologist that is familiar

with treating graves eyes. To many don't know or understand this disease.

>>>>I really wonder more and more about the competency of the medical

field at large. We shouldn't have to ask one another for advice.

They should be forth coming with a diagnosis and be thorough in it.

Call me naieve but I fell like I'm going through a crash course in

thyroid and perimenapause.<<<<

I can understand your feelings. After being rushed into RAI and left to go

hypO with this disease and 2 endos and a primary who either wouldn't or

couldnt' answer my questions or passed off my symptoms as those needing

anti-depressants I have found an absolutely wonderful endo...she always

takes time with me, answers my questions, listens to my concerns, is open to

a lot of different treatment options and will read anything I bring into

her...as well as research the urls on the internet I take her. don't give

up hope , there are good docs out there...and we do need them. It is

great to have the internet for us though, it has brought so many good people

together who understand what we go through, who can offer good suggestions

or a shoulder to cry on if need be. I think most docs think it is a

nightmare because more and more patients (with all diseases) are making them

actually do work, and keep up on the newest treatments and reports...so we

make their lives a little more hectic. I know sometimes I drive my doc nuts

but she loves me

>>>I'll be doing some searching in the archives. I see there is alot of

>>>knowledgeable people here that may not want to wait months for

tidbits of information. That's another thing, everything take sooo

long. The MRI pointed out the potential M.S. problem. Prior to

calling My GP told me to ask for a certain person. When I called,

she wasn't available so I spoke to who was. The neuroologist is the

son-in-law of my GP. If I had scheduled with the first person I

would have had to have waited till October for my first appt.,

whereas following up with the other it was July 13. I'm fortunate

but what about others who have a progressive disease?<<<<

Reading, learning and questioning is the most powerful thing you can do for

yourself and your health. The more you know and learn, the more you will

understand and question. I pray you don't have M.S. along with

Graves...both are autoimmune diseases though, so it is a possibility.

Hang in here, things do get easier and better in time. What medicines do

they have you on right now? Beta Blockers and/or ATD's?

Take care and talk to you soon.

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi -

That is heartbreaking about your sister-in-law! But about her 5 year old

daughter-I can't even imagine the pain she must have gone through. Oh that

poor baby girl!

We live in Fresno and don't have access to the best in infertility medicine

here. I do have a very helpful fertility specialist though. He would never

dream of telling me I couldn't come in for a blood test on a Sunday. He's

available at almost all times and has the best success rates in our area.

That said, he's not a reproductive endocrinologist.

The REs I've read about do their residency in OB/GYN and then time

concentrating on reproductive endocrinology. They can then be board

certified as REs. A regular endocrinologist does the same kind of thing

almost. An endocrinologist does his/her residency in Internal Medicine and

then spends time concentrating on endocrinology (I forget how much but I

think it's another few years). They can then be board certified as

endocrinologists. Anyhow, if you could go to a real RE it would be ideal.

You can find a reference in your area (most big cities have them) at the

INCIID site.

I hope you're able to find someone to help you. The despair and longing for

children can be overwhelming especially when we don't have much time left.

I had the same longing the first time I tried to get pregnant when I was 30

but it's much more intense this time. It makes me almost frenetic

sometimes.

Take care,

> I'm very sorry to hear about your miscarrige. After three years of

> trying, becoming pregnant, that is a severe let down. Even still you

> have a goof ovarian reserve. I hope the next one will be successful.

>

> It's along story but I had my FHS and estradoil (sp) tested on Sat.

> at day 2 since day 3 was a sunday. It's a long story how I managed

> this since I was told by one doctor that it would be accurate because

> of the .01 TSH. Maybe it won't be but I wanted to know somehing of

> where I was. The infertility RN didn't want to do it till the TSH

> was in the normal range. I think the results should be available

> wednesay.

>

> I will check out that infertility site. I know because of my age

> conception is not in my favor but compelled to make certain. I'm

> curious as to how the FSH declines per month. Whether it is fast or

> slow at my age. I know I don't have alot of time left and have no

> idea on my reserve. I'm only hoping that since my daughter was born

> at 42 1/2 I might be lucky. I did have a miscarriage before her

> birth the previous year. All these miscarriages and my age aren't

> good signs.

>

> Is the difference beween a reproductive endo and a general endo the

> idea that infertility and endo problems are viewed together? If so,

> I may need to try one. I think we have one hereeee but not sure.

>

> You'll have to laugh at this. The doctor that did the " D & C " last

> Decemebr was an OBGYN and a fertiloity specialist. I'm afraid if

> this doctor can't properly do a D & C, I'd have no faith in any

> fertility work. Taht really shocked me to have a doctor despite my

> pelvin cramping dismiss me and never consider that maybe something

> went wrong with the D & C. They had an ultr sound machine there. It

> wouldn't have been a big deal. Humbling maybe when the results were

> viewed but you know, I wouldn't have been so angry if the problem was

> isolated and handled properly by the doctor that made the mistake.

>

> COnsider yourself lucky. I have no doubt that your husband will help

> you see the good ones and not waste time. Some of them out there have

> no business in the medical profession. I didn't know that till now.

> I've always been healthy ... except for when little I always had

> strept throats. They wanted to take my tonsils out and I wouldn't

> allow it. Now they aren't so wuick to take them out.

>

> Well, however things turn out, I will be grateful that I am around to

> raise my daughter. I have to remind myself that I have been

> fortunate.

>

> My sister-in-law was only 46 when progressive non hodgkins lymphoma

> devoured her. She left behind a daughter 22 and a son 12. She had

> another daughter after the one that was 22 and she died at age 5 of

> internal bleeding. They never figured out what caused it. She came

> home from school feeling " sick " . Asked to be excused from the dinner

> table to lie down. Later Clara (sister-in-law checked her and she

> had a life threatening high fever so they took her to the emergency

> room. The last words to her mom were, " mommy I'm scared " and went

> into a comma. I can't imagine how painful that was and there was

> nothing they could do. They tried everything but nothing worked. So,

> I know things could be alot worse.

>

> Thank you for your reply. I really appreciate it.

>

> Best Regards,

>

>

[Guest guest]

Hi -

That is heartbreaking about your sister-in-law! But about her 5 year old

daughter-I can't even imagine the pain she must have gone through. Oh that

poor baby girl!

We live in Fresno and don't have access to the best in infertility medicine

here. I do have a very helpful fertility specialist though. He would never

dream of telling me I couldn't come in for a blood test on a Sunday. He's

available at almost all times and has the best success rates in our area.

That said, he's not a reproductive endocrinologist.

The REs I've read about do their residency in OB/GYN and then time

concentrating on reproductive endocrinology. They can then be board

certified as REs. A regular endocrinologist does the same kind of thing

almost. An endocrinologist does his/her residency in Internal Medicine and

then spends time concentrating on endocrinology (I forget how much but I

think it's another few years). They can then be board certified as

endocrinologists. Anyhow, if you could go to a real RE it would be ideal.

You can find a reference in your area (most big cities have them) at the

INCIID site.

I hope you're able to find someone to help you. The despair and longing for

children can be overwhelming especially when we don't have much time left.

I had the same longing the first time I tried to get pregnant when I was 30

but it's much more intense this time. It makes me almost frenetic

sometimes.

Take care,

> I'm very sorry to hear about your miscarrige. After three years of

> trying, becoming pregnant, that is a severe let down. Even still you

> have a goof ovarian reserve. I hope the next one will be successful.

>

> It's along story but I had my FHS and estradoil (sp) tested on Sat.

> at day 2 since day 3 was a sunday. It's a long story how I managed

> this since I was told by one doctor that it would be accurate because

> of the .01 TSH. Maybe it won't be but I wanted to know somehing of

> where I was. The infertility RN didn't want to do it till the TSH

> was in the normal range. I think the results should be available

> wednesay.

>

> I will check out that infertility site. I know because of my age

> conception is not in my favor but compelled to make certain. I'm

> curious as to how the FSH declines per month. Whether it is fast or

> slow at my age. I know I don't have alot of time left and have no

> idea on my reserve. I'm only hoping that since my daughter was born

> at 42 1/2 I might be lucky. I did have a miscarriage before her

> birth the previous year. All these miscarriages and my age aren't

> good signs.

>

> Is the difference beween a reproductive endo and a general endo the

> idea that infertility and endo problems are viewed together? If so,

> I may need to try one. I think we have one hereeee but not sure.

>

> You'll have to laugh at this. The doctor that did the " D & C " last

> Decemebr was an OBGYN and a fertiloity specialist. I'm afraid if

> this doctor can't properly do a D & C, I'd have no faith in any

> fertility work. Taht really shocked me to have a doctor despite my

> pelvin cramping dismiss me and never consider that maybe something

> went wrong with the D & C. They had an ultr sound machine there. It

> wouldn't have been a big deal. Humbling maybe when the results were

> viewed but you know, I wouldn't have been so angry if the problem was

> isolated and handled properly by the doctor that made the mistake.

>

> COnsider yourself lucky. I have no doubt that your husband will help

> you see the good ones and not waste time. Some of them out there have

> no business in the medical profession. I didn't know that till now.

> I've always been healthy ... except for when little I always had

> strept throats. They wanted to take my tonsils out and I wouldn't

> allow it. Now they aren't so wuick to take them out.

>

> Well, however things turn out, I will be grateful that I am around to

> raise my daughter. I have to remind myself that I have been

> fortunate.

>

> My sister-in-law was only 46 when progressive non hodgkins lymphoma

> devoured her. She left behind a daughter 22 and a son 12. She had

> another daughter after the one that was 22 and she died at age 5 of

> internal bleeding. They never figured out what caused it. She came

> home from school feeling " sick " . Asked to be excused from the dinner

> table to lie down. Later Clara (sister-in-law checked her and she

> had a life threatening high fever so they took her to the emergency

> room. The last words to her mom were, " mommy I'm scared " and went

> into a comma. I can't imagine how painful that was and there was

> nothing they could do. They tried everything but nothing worked. So,

> I know things could be alot worse.

>

> Thank you for your reply. I really appreciate it.

>

> Best Regards,

>

>

[Guest guest]

Hi -

Make sure you check it out with your insurance. I had assumed that mine

wouldn't cover infertility (since so many don't) and was surprised to

discover they cover 50% of infertility treatments. I again assumed that

they didn't cover the injectibles (most really don't cover that) and I was

absolutely shocked when I called them and they told me that they covered

them at 50% too. Unbelieving, I repeated that I was talking about

INJECTIBLES (I think I yelled it). The rep. calmly replied that she had

heard me the first time and that they are covered as is IVF for 6 cycles.

Couldn't believe it! So make sure you check first. It's still expensive no

matter what but if insurance covers a percentage it's a help. This is an

HMO I'm talking about. Still can't believe it.

No matter what, don't go to any fertility specialist that strings you along

(many of them do that to make money). You need aggressive help at your age

if you're going to go this route. And it has to be the right help. For

example superovulation and IUI have to be done at almost exactly the right

time (with vaginal ultrasound). Same with IVF. Make sure you research the

success rates of the clinic you choose to go to especially if you end up

choosing IVF. It's overwhelming but you can get an idea of what's

acceptable treatment by searching INCIID (sorry if I sound like an ad). And

the doctor you choose should be forthcoming about your chances and not

condemn you to spending great amounts of money by choosing inappropriate

treatments.

Good luck and take care,

> A big thank you to you! I read through alot of what was at the

> http://www.inciid.org. It was very useful. I've been all over the

> web. I feel like I'm Custar making his last stand or something. The

> odds don't favor me but I'll pursue it till the numbers confirm it.

>

> I forgot ... about insurance well, we don't have such a good plan.

> If I don't use their doctors it's 80%. As for infertility, I doubt

> they cover it since their compilation of doctors doesn't allow for an

> infertility specialist. As fate would have it, my GP and Neurologist

> are not in theie list. So, it's 80% on us.

>

> The last neurologist bill was alittle less than 7K. I nearly fainted

> when I saw that. Still in my area, the University of Pa. is noted for

> their expertise in neurological problems. I'd rather bite the bullet

> and have them eventually diagnose me and then switch to a insurance

> covered doctor. It's a hassle going there since we live in north

> NJ. The only one covered is my endo at 100%.

>

> In the past I'd switch doctors to accomodate the plan and was

> disappointed each time. So, now we just pay the additional amount.

> Also I prefer the rapport and sense of continuity with one doctor who

> knows you as a person and your history.

>

> When pregnant with my daughter I sought treatment with a group that

> was all women. It was like a mill. I had a different one each time.

> They barely read where the other left off and missed a few things

> like the glucose test was taken in my 35th week, tested positive and

> then I had to go for the other test that tests it every half hour and

> that turned out ot be negative.

>

> It was too rushed and worse yet, another doctor unrelated to the

> practice was assigned to me for delivery. I don't know what the

> point was having me see all these doctors in the group when the big

> moment happened none showed up and they knew about it too. This is

> not a doctor that I would have seen for a problem. But, you just

> have to make the best of it.

>

> This is another reason why I stay with my GP and current neurologist

> and endo. I don't like being treated like a piece of furniture. I

> find it unsettling. Afterwards I found about about another doctor

> that does see one patient through the entire pregnancy. The only

> reason she might not be available is illness or vacation and you are

> introduced to the other doctor. If I'm very lucky, I'd sign up with

> that doctor.

>

> As I find out more, I'll post it. Thank you again.

>

> Best Regards,

>

>

[Guest guest]

Hi,

ATDs are anti thyroid drugs.....its too much to type out all the time:), and

then we

forget who we told this to sometimes.

TED causes blurry vision. But then does getting older. That's what I thought

was wrong

at first. New glasses, then more new glasses. Then a large lit magnifying glass

to read

smaller things like the newspaper.

I ended up with full blown eye disease, complete with the ugly bugged out

eyes. The

first year, they stayed the same, and were worse at times. But I did not have my

thyroid

levels under control yet. Time passes. After about a year of thyroid levels

being closer

to right , my eyes slowly went back into my head, and I can read the newspaper

without

glasses, but I do need good light, but only shining on the paper, not at my

eyes. Things

are still improving. And I am becoming a real stickler for keeping my levels

perfect, as

in my opinion, this affects my vision. I still can't swivel my eyes like I want,

but since

I still don't think my levels are perfect, I am not giving up hope on my eyes.

I can now drive at night again, but with caution. One thing I bought , was

this 'blue

blocker' thingie, from QVC. It attaches to my visor in the van, and can be

brought down

quickly when something bright hits me.

But distance perception is also still a problem, just better than it was.

Anyone driving and wondering about distance...check how far you parked from the

curb when

you get out. LOL

Should I have been driving while things were bad. NO ! But I am single, a

small business

owner, and work off site ! Did I go slower, stay in the right lane, and give

everybody

extra room...you betcha ! I still have my accident free premium, and it must

have been a

guardian angel. If you don't have to drive to survive...DON " T.

-Pam-

[Guest guest]

Hi,

ATDs are anti thyroid drugs.....its too much to type out all the time:), and

then we

forget who we told this to sometimes.

TED causes blurry vision. But then does getting older. That's what I thought

was wrong

at first. New glasses, then more new glasses. Then a large lit magnifying glass

to read

smaller things like the newspaper.

I ended up with full blown eye disease, complete with the ugly bugged out

eyes. The

first year, they stayed the same, and were worse at times. But I did not have my

thyroid

levels under control yet. Time passes. After about a year of thyroid levels

being closer

to right , my eyes slowly went back into my head, and I can read the newspaper

without

glasses, but I do need good light, but only shining on the paper, not at my

eyes. Things

are still improving. And I am becoming a real stickler for keeping my levels

perfect, as

in my opinion, this affects my vision. I still can't swivel my eyes like I want,

but since

I still don't think my levels are perfect, I am not giving up hope on my eyes.

I can now drive at night again, but with caution. One thing I bought , was

this 'blue

blocker' thingie, from QVC. It attaches to my visor in the van, and can be

brought down

quickly when something bright hits me.

But distance perception is also still a problem, just better than it was.

Anyone driving and wondering about distance...check how far you parked from the

curb when

you get out. LOL

Should I have been driving while things were bad. NO ! But I am single, a

small business

owner, and work off site ! Did I go slower, stay in the right lane, and give

everybody

extra room...you betcha ! I still have my accident free premium, and it must

have been a

guardian angel. If you don't have to drive to survive...DON " T.

-Pam-

[Guest guest]

Hi,

ATDs are anti thyroid drugs.....its too much to type out all the time:), and

then we

forget who we told this to sometimes.

TED causes blurry vision. But then does getting older. That's what I thought

was wrong

at first. New glasses, then more new glasses. Then a large lit magnifying glass

to read

smaller things like the newspaper.

I ended up with full blown eye disease, complete with the ugly bugged out

eyes. The

first year, they stayed the same, and were worse at times. But I did not have my

thyroid

levels under control yet. Time passes. After about a year of thyroid levels

being closer

to right , my eyes slowly went back into my head, and I can read the newspaper

without

glasses, but I do need good light, but only shining on the paper, not at my

eyes. Things

are still improving. And I am becoming a real stickler for keeping my levels

perfect, as

in my opinion, this affects my vision. I still can't swivel my eyes like I want,

but since

I still don't think my levels are perfect, I am not giving up hope on my eyes.

I can now drive at night again, but with caution. One thing I bought , was

this 'blue

blocker' thingie, from QVC. It attaches to my visor in the van, and can be

brought down

quickly when something bright hits me.

But distance perception is also still a problem, just better than it was.

Anyone driving and wondering about distance...check how far you parked from the

curb when

you get out. LOL

Should I have been driving while things were bad. NO ! But I am single, a

small business

owner, and work off site ! Did I go slower, stay in the right lane, and give

everybody

extra room...you betcha ! I still have my accident free premium, and it must

have been a

guardian angel. If you don't have to drive to survive...DON " T.

-Pam-

[Guest guest]

Hi ,

The Field Of Vision test is also used to monitor for glaucoma as well as the

pressure tests for it. I have to have them every 3 months now. Glaucoma

took my moms eyesight in one eye completely and most of it in the other eye.

My Ophtho says the graves eye disease can raise the glaucoma pressure and

vice versa. When you get to a good ophtho skilled in our eye disease you

will learn more than you ever wanted to know about eyes

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi ,

The Field Of Vision test is also used to monitor for glaucoma as well as the

pressure tests for it. I have to have them every 3 months now. Glaucoma

took my moms eyesight in one eye completely and most of it in the other eye.

My Ophtho says the graves eye disease can raise the glaucoma pressure and

vice versa. When you get to a good ophtho skilled in our eye disease you

will learn more than you ever wanted to know about eyes

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

Hi ,

The Field Of Vision test is also used to monitor for glaucoma as well as the

pressure tests for it. I have to have them every 3 months now. Glaucoma

took my moms eyesight in one eye completely and most of it in the other eye.

My Ophtho says the graves eye disease can raise the glaucoma pressure and

vice versa. When you get to a good ophtho skilled in our eye disease you

will learn more than you ever wanted to know about eyes

Jody

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

,

It sounds like you're getting a fast education. On the blurry eyes thing,

mine got very blurry and night vision horrible a couple years ago. Noticed

it on a college visit on an unfamiliar road in a rental car, and almost

scared myself to death. Turned out to be the natural aging and deterioration

of my vision that went along with age. Now I only drive with glasses, and

rarely wear them any other time, and have simply given up reading the score

of the game on TV from the next room. But I don't have GO, so far. So this

may all be irrelevant to you.

As for the q below, ATD stands for Anti Thyroid Drug, like PTU and Tapazole

(methimazole). That's all.

Terry

>

> Reply-To: graves_support

> Date: Thu, 06 Dec 2001 00:53:57 -0000

> To: graves_support

> Subject: Re: New and looking for help with Graves/Hashimoto's

>

> I don't knwo what an ATD is. I'm only on PTU.

[Guest guest]

,

It sounds like you're getting a fast education. On the blurry eyes thing,

mine got very blurry and night vision horrible a couple years ago. Noticed

it on a college visit on an unfamiliar road in a rental car, and almost

scared myself to death. Turned out to be the natural aging and deterioration

of my vision that went along with age. Now I only drive with glasses, and

rarely wear them any other time, and have simply given up reading the score

of the game on TV from the next room. But I don't have GO, so far. So this

may all be irrelevant to you.

As for the q below, ATD stands for Anti Thyroid Drug, like PTU and Tapazole

(methimazole). That's all.

Terry

>

> Reply-To: graves_support

> Date: Thu, 06 Dec 2001 00:53:57 -0000

> To: graves_support

> Subject: Re: New and looking for help with Graves/Hashimoto's

>

> I don't knwo what an ATD is. I'm only on PTU.

[Guest guest]

,

It sounds like you're getting a fast education. On the blurry eyes thing,

mine got very blurry and night vision horrible a couple years ago. Noticed

it on a college visit on an unfamiliar road in a rental car, and almost

scared myself to death. Turned out to be the natural aging and deterioration

of my vision that went along with age. Now I only drive with glasses, and

rarely wear them any other time, and have simply given up reading the score

of the game on TV from the next room. But I don't have GO, so far. So this

may all be irrelevant to you.

As for the q below, ATD stands for Anti Thyroid Drug, like PTU and Tapazole

(methimazole). That's all.

Terry

>

> Reply-To: graves_support

> Date: Thu, 06 Dec 2001 00:53:57 -0000

> To: graves_support

> Subject: Re: New and looking for help with Graves/Hashimoto's

>

> I don't knwo what an ATD is. I'm only on PTU.

[Guest guest]

Hi Pam-

I also had my eyes sink back into my head (upper lid retraction also

relaxed). I had severe TED and am so glad my ophthalmologist was

conservative. He just watched me very closely for the 1st 6 months after

RAI. Now my exophthalmus (popeyes) is mild and I only have a little lower

lid retraction.

I know that there are so many people that have no choice and have to have

surgery. But sometimes, they seem to rush patients into it when they might

be OK if they wait a while. When pressure gets too high, the patient has no

choice but to have surgery or risk losing his/her sight. And sometimes, the

patient doesn't get relief over time. That's different.

I know that there are many doctors that would have operated on my eyes but I

decided to wait. I'm glad I had an ophthalmologist that was supportive.

Take care,

> Hi,

> ATDs are anti thyroid drugs.....its too much to type out all the time:),

and then we

> forget who we told this to sometimes.

>

> TED causes blurry vision. But then does getting older. That's what I

thought was wrong

> at first. New glasses, then more new glasses. Then a large lit magnifying

glass to read

> smaller things like the newspaper.

> I ended up with full blown eye disease, complete with the ugly bugged

out eyes. The

> first year, they stayed the same, and were worse at times. But I did not

have my thyroid

> levels under control yet. Time passes. After about a year of thyroid

levels being closer

> to right , my eyes slowly went back into my head, and I can read the

newspaper without

> glasses, but I do need good light, but only shining on the paper, not at

my eyes. Things

> are still improving. And I am becoming a real stickler for keeping my

levels perfect, as

> in my opinion, this affects my vision. I still can't swivel my eyes like I

want, but since

> I still don't think my levels are perfect, I am not giving up hope on my

eyes.

> I can now drive at night again, but with caution. One thing I bought ,

was this 'blue

> blocker' thingie, from QVC. It attaches to my visor in the van, and can be

brought down

> quickly when something bright hits me.

> But distance perception is also still a problem, just better than it

was.

> Anyone driving and wondering about distance...check how far you parked

from the curb when

> you get out. LOL

> Should I have been driving while things were bad. NO ! But I am single,

a small business

> owner, and work off site ! Did I go slower, stay in the right lane, and

give everybody

> extra room...you betcha ! I still have my accident free premium, and it

must have been a

> guardian angel. If you don't have to drive to survive...DON " T.

> -Pam-

[Guest guest]

Hi Pam-

I also had my eyes sink back into my head (upper lid retraction also

relaxed). I had severe TED and am so glad my ophthalmologist was

conservative. He just watched me very closely for the 1st 6 months after

RAI. Now my exophthalmus (popeyes) is mild and I only have a little lower

lid retraction.

I know that there are so many people that have no choice and have to have

surgery. But sometimes, they seem to rush patients into it when they might

be OK if they wait a while. When pressure gets too high, the patient has no

choice but to have surgery or risk losing his/her sight. And sometimes, the

patient doesn't get relief over time. That's different.

I know that there are many doctors that would have operated on my eyes but I

decided to wait. I'm glad I had an ophthalmologist that was supportive.

Take care,

> Hi,

> ATDs are anti thyroid drugs.....its too much to type out all the time:),

and then we

> forget who we told this to sometimes.

>

> TED causes blurry vision. But then does getting older. That's what I

thought was wrong

> at first. New glasses, then more new glasses. Then a large lit magnifying

glass to read

> smaller things like the newspaper.

> I ended up with full blown eye disease, complete with the ugly bugged

out eyes. The

> first year, they stayed the same, and were worse at times. But I did not

have my thyroid

> levels under control yet. Time passes. After about a year of thyroid

levels being closer

> to right , my eyes slowly went back into my head, and I can read the

newspaper without

> glasses, but I do need good light, but only shining on the paper, not at

my eyes. Things

> are still improving. And I am becoming a real stickler for keeping my

levels perfect, as

> in my opinion, this affects my vision. I still can't swivel my eyes like I

want, but since

> I still don't think my levels are perfect, I am not giving up hope on my

eyes.

> I can now drive at night again, but with caution. One thing I bought ,

was this 'blue

> blocker' thingie, from QVC. It attaches to my visor in the van, and can be

brought down

> quickly when something bright hits me.

> But distance perception is also still a problem, just better than it

was.

> Anyone driving and wondering about distance...check how far you parked

from the curb when

> you get out. LOL

> Should I have been driving while things were bad. NO ! But I am single,

a small business

> owner, and work off site ! Did I go slower, stay in the right lane, and

give everybody

> extra room...you betcha ! I still have my accident free premium, and it

must have been a

> guardian angel. If you don't have to drive to survive...DON " T.

> -Pam-

[Guest guest]

Hi Pam-

I also had my eyes sink back into my head (upper lid retraction also

relaxed). I had severe TED and am so glad my ophthalmologist was

conservative. He just watched me very closely for the 1st 6 months after

RAI. Now my exophthalmus (popeyes) is mild and I only have a little lower

lid retraction.

I know that there are so many people that have no choice and have to have

surgery. But sometimes, they seem to rush patients into it when they might

be OK if they wait a while. When pressure gets too high, the patient has no

choice but to have surgery or risk losing his/her sight. And sometimes, the

patient doesn't get relief over time. That's different.

I know that there are many doctors that would have operated on my eyes but I

decided to wait. I'm glad I had an ophthalmologist that was supportive.

Take care,

> Hi,

> ATDs are anti thyroid drugs.....its too much to type out all the time:),

and then we

> forget who we told this to sometimes.

>

> TED causes blurry vision. But then does getting older. That's what I

thought was wrong

> at first. New glasses, then more new glasses. Then a large lit magnifying

glass to read

> smaller things like the newspaper.

> I ended up with full blown eye disease, complete with the ugly bugged

out eyes. The

> first year, they stayed the same, and were worse at times. But I did not

have my thyroid

> levels under control yet. Time passes. After about a year of thyroid

levels being closer

> to right , my eyes slowly went back into my head, and I can read the

newspaper without

> glasses, but I do need good light, but only shining on the paper, not at

my eyes. Things

> are still improving. And I am becoming a real stickler for keeping my

levels perfect, as

> in my opinion, this affects my vision. I still can't swivel my eyes like I

want, but since

> I still don't think my levels are perfect, I am not giving up hope on my

eyes.

> I can now drive at night again, but with caution. One thing I bought ,

was this 'blue

> blocker' thingie, from QVC. It attaches to my visor in the van, and can be

brought down

> quickly when something bright hits me.

> But distance perception is also still a problem, just better than it

was.

> Anyone driving and wondering about distance...check how far you parked

from the curb when

> you get out. LOL

> Should I have been driving while things were bad. NO ! But I am single,

a small business

> owner, and work off site ! Did I go slower, stay in the right lane, and

give everybody

> extra room...you betcha ! I still have my accident free premium, and it

must have been a

> guardian angel. If you don't have to drive to survive...DON " T.

> -Pam-

[Guest guest]

Pam,

I went through this eye thing. I had an astigmatism and near sighted before

GD. During the bad TED my eyes hurt so bad from light I didn't worry about

reading, had to wear sunglasses in the house during the day sometimes.

Going outside especially in the winter with the glare from the sun on the

snow was blinding. Many times my husband would help me get to the van,

there were times I was outside and the light was so bright I couldn't see

and someone would have to help me in the house. Then I went to not needing

glasses, before GD the eye doctor told me I was one of the lucky ones would

never need reading glasses.

I started using a reading glass to magnify words, but finally have my

reading glasses. My neighbor laughs at me, she said " you'll get to the

point you will just get the glasses to wear all the time with bifocals. I

also have had trouble with the depth perception going on, but that has been

better since I started testing in the normal range. I park where the lines

are and use the mirrors and someone is always with me to see how I do. I

don't like driving and hate it in busy areas. I would never survive the

city life. I think some of this comes from when I was really sick I would

go somewhere, get there or get home and not remember how I got where I was.

And at night forget it, those headlights are too much. I need to look on

QVC and get one of those visors.

I've been off ATDs for 17 months, still have trouble with night vision,

still have pains when I look sideways at times, but that could be from lack

of sleep too. For me, I've found that lack of sleep causes my eyes to bug

more and I seem to have some of the problems. So I really try to get the

sleep I need. Which in the last few months I've been getting that much

needed sleep and it has helped my eyes. I was on ATDs for 5.5 yrs. before

my thyroid levels tested normal. Looking in the mirror my eyes look normal

compared to what they used to look like.

Debbie R. <*;*>

[Guest guest]

Pam,

I went through this eye thing. I had an astigmatism and near sighted before

GD. During the bad TED my eyes hurt so bad from light I didn't worry about

reading, had to wear sunglasses in the house during the day sometimes.

Going outside especially in the winter with the glare from the sun on the

snow was blinding. Many times my husband would help me get to the van,

there were times I was outside and the light was so bright I couldn't see

and someone would have to help me in the house. Then I went to not needing

glasses, before GD the eye doctor told me I was one of the lucky ones would

never need reading glasses.

I started using a reading glass to magnify words, but finally have my

reading glasses. My neighbor laughs at me, she said " you'll get to the

point you will just get the glasses to wear all the time with bifocals. I

also have had trouble with the depth perception going on, but that has been

better since I started testing in the normal range. I park where the lines

are and use the mirrors and someone is always with me to see how I do. I

don't like driving and hate it in busy areas. I would never survive the

city life. I think some of this comes from when I was really sick I would

go somewhere, get there or get home and not remember how I got where I was.

And at night forget it, those headlights are too much. I need to look on

QVC and get one of those visors.

I've been off ATDs for 17 months, still have trouble with night vision,

still have pains when I look sideways at times, but that could be from lack

of sleep too. For me, I've found that lack of sleep causes my eyes to bug

more and I seem to have some of the problems. So I really try to get the

sleep I need. Which in the last few months I've been getting that much

needed sleep and it has helped my eyes. I was on ATDs for 5.5 yrs. before

my thyroid levels tested normal. Looking in the mirror my eyes look normal

compared to what they used to look like.

Debbie R. <*;*>

[Guest guest]

Pam,

I went through this eye thing. I had an astigmatism and near sighted before

GD. During the bad TED my eyes hurt so bad from light I didn't worry about

reading, had to wear sunglasses in the house during the day sometimes.

Going outside especially in the winter with the glare from the sun on the

snow was blinding. Many times my husband would help me get to the van,

there were times I was outside and the light was so bright I couldn't see

and someone would have to help me in the house. Then I went to not needing

glasses, before GD the eye doctor told me I was one of the lucky ones would

never need reading glasses.

I started using a reading glass to magnify words, but finally have my

reading glasses. My neighbor laughs at me, she said " you'll get to the

point you will just get the glasses to wear all the time with bifocals. I

also have had trouble with the depth perception going on, but that has been

better since I started testing in the normal range. I park where the lines

are and use the mirrors and someone is always with me to see how I do. I

don't like driving and hate it in busy areas. I would never survive the

city life. I think some of this comes from when I was really sick I would

go somewhere, get there or get home and not remember how I got where I was.

And at night forget it, those headlights are too much. I need to look on

QVC and get one of those visors.

I've been off ATDs for 17 months, still have trouble with night vision,

still have pains when I look sideways at times, but that could be from lack

of sleep too. For me, I've found that lack of sleep causes my eyes to bug

more and I seem to have some of the problems. So I really try to get the

sleep I need. Which in the last few months I've been getting that much

needed sleep and it has helped my eyes. I was on ATDs for 5.5 yrs. before

my thyroid levels tested normal. Looking in the mirror my eyes look normal

compared to what they used to look like.

Debbie R. <*;*>

[Guest guest]

Debbie,

Now that you're off ATD's, how often do you get levels tested? Just curious

as I'm probably going to be off soon. And, what tests? Do they follow your

TSI, or just go by TSH/FT's?

Terry

>

> Reply-To: graves_support

> Date: Thu, 06 Dec 2001 08:44:18 -0800

> To: <graves_support >

> Subject: Re: Re: New and looking for help with

> Graves/Hashimoto's

>

> I've been off ATDs for 17 months, still have trouble with night vision,

> still have pains when I look sideways at times, but that could be from lack

> of sleep too. For me, I've found that lack of sleep causes my eyes to bug

> more and I seem to have some of the problems. So I really try to get the

> sleep I need. Which in the last few months I've been getting that much

> needed sleep and it has helped my eyes. I was on ATDs for 5.5 yrs. before

> my thyroid levels tested normal. Looking in the mirror my eyes look normal

> compared to what they used to look like.

[Guest guest]

thanks Debbie,

The cookie tray sounds like a good idea! Maybe I'll try it too-.

Terry

>

> Reply-To: graves_support

> Date: Thu, 06 Dec 2001 12:03:34 -0800

> To: <graves_support >

> Subject: Re: Re: New and looking for help with

> Graves/Hashimoto's

>

> Terry,

>

> What great news that you will be off ATDs too!

>

> I see my doctor every three months and he does blood work every 6 months.

> Not sure on the tests he does. I need to have them make copies for me.

> I've started going back to my reg. doctor this past year. I was waiting to

> get copies of labs when my old records were sent and just have them do them

> then. But because my records are so big they just sent the most recent

> labs. I am hoping to drop off a cookie tray at the office for Christmas and

> I will ask the girls then if I can have copies of my labs they have. When

> I go to my ob/gyn this winter I am going to have him send all the files,

> they are about 6 inches thick or more. So there are tons of pages to be

> copied.

>

> Thanks for the info on the implants. I hate the idea of false teeth, but

> mine are ground so much that they look horrible. Just hate the thought of

> it. I do still clench my teeth at night. My teeth used to look so

> beautiful. Also my son that I was pregnant with when I had GD grinds his

> teeth.

>

>

>

> Debbie R. <*;*)

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list does not have the endorsement

> of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>