Re: Coming to terms with the new normal

[Guest guest]

Hi ,

I've been taking prednisone for almost 2 weeks now, and I've been

told by the pharmacist that the best time to take it is at the

beginning of the day, with breakfast.

They tell me it's because one side-effect is that it could make you

hyper...in which case taking it at night is not good.

I have never had a problem taking prednisone. Although my cheeks

are starting to get full now, which I don't like but am resigned to

it. I have been exercising lots too, doing lots of walking and

continuing with my ballroom dancing.

Sophia

> > Well it's been a rollercoaster ride the past 7 months since

my

> > diagnosis of IgAN. Today I'm feeling more informed and stronger

in

> my

> > convictions to live with this rather than let it rule my life.

I

> have

> > all of you here to thank for helping me thru some very dark

times.

> > This past week was the first time I've gone thru a flare up

without

> > sinking into an emotional, blubbering, depressed monster.

Instead I

> > worked with the flare up, doing what I could when I could and

> resting

> > when I needed to. Thank you all for helping to make me see that

> this IS

> > an O.K. approach to life. I'm finally feeling better today and

to

> > celebrate I took one more step to living with this, I bought

clothes

> > that fit!

> > I finally realized that if I'm going to be on the prednisone

> for

> > some time now, and my body is going to be swollen in places it

> normally

> > isn't swollen for as long as I'm on the stuff, having clothes

that

> fit

> > me the way I am RIGHT NOW, would be a nice thing. My husband

even

> came

> > with to help me pick out styles that hide the lovely swelling on

the

> > back of my neck and help hide the bloated stomach look I tend to

> get by

> > the end of the day. It also helped to have someone who sees me

the

> way

> > I really look...ya know I still have that picture in my head of

> what I

> > think I look like and for some strange reason it isn't the same

one

> that

> > shows up in the mirror. ) I didn't buy too much in hopes that

my

> old

> > clothes will fit me soon again but I bought enough to make it

thru a

> > week or more without having to wear things over and over again.

> Figure

> > if I have to live with this body I should at least dress it

nice.

> > So thank you all again for providing the strength needed to

> work

> > thru this. Knowing so many live and live well with IgA makes it

> much

> > easier to grasp life and live myself.

> >

> > Amy

[Guest guest]

Hi Amy, I am glad that you moving forward with this new attitude!

It is inspiring to me too. : )

Sophia

> Well it's been a rollercoaster ride the past 7 months since

my

> diagnosis of IgAN. Today I'm feeling more informed and stronger

in my

> convictions to live with this rather than let it rule my life. I

have

> all of you here to thank for helping me thru some very dark times.

> This past week was the first time I've gone thru a flare up without

> sinking into an emotional, blubbering, depressed monster. Instead

I

> worked with the flare up, doing what I could when I could and

resting

> when I needed to. Thank you all for helping to make me see that

this IS

> an O.K. approach to life. I'm finally feeling better today and to

> celebrate I took one more step to living with this, I bought

clothes

> that fit!

> I finally realized that if I'm going to be on the prednisone

for

> some time now, and my body is going to be swollen in places it

normally

> isn't swollen for as long as I'm on the stuff, having clothes that

fit

> me the way I am RIGHT NOW, would be a nice thing. My husband even

came

> with to help me pick out styles that hide the lovely swelling on

the

> back of my neck and help hide the bloated stomach look I tend to

get by

> the end of the day. It also helped to have someone who sees me

the way

> I really look...ya know I still have that picture in my head of

what I

> think I look like and for some strange reason it isn't the same

one that

> shows up in the mirror. ) I didn't buy too much in hopes that my

old

> clothes will fit me soon again but I bought enough to make it thru

a

> week or more without having to wear things over and over again.

Figure

> if I have to live with this body I should at least dress it

nice.

> So thank you all again for providing the strength needed to

work

> thru this. Knowing so many live and live well with IgA makes it

much

> easier to grasp life and live myself.

>

> Amy

[Guest guest]

Hi Amy, I am glad that you moving forward with this new attitude!

It is inspiring to me too. : )

Sophia

> Well it's been a rollercoaster ride the past 7 months since

my

> diagnosis of IgAN. Today I'm feeling more informed and stronger

in my

> convictions to live with this rather than let it rule my life. I

have

> all of you here to thank for helping me thru some very dark times.

> This past week was the first time I've gone thru a flare up without

> sinking into an emotional, blubbering, depressed monster. Instead

I

> worked with the flare up, doing what I could when I could and

resting

> when I needed to. Thank you all for helping to make me see that

this IS

> an O.K. approach to life. I'm finally feeling better today and to

> celebrate I took one more step to living with this, I bought

clothes

> that fit!

> I finally realized that if I'm going to be on the prednisone

for

> some time now, and my body is going to be swollen in places it

normally

> isn't swollen for as long as I'm on the stuff, having clothes that

fit

> me the way I am RIGHT NOW, would be a nice thing. My husband even

came

> with to help me pick out styles that hide the lovely swelling on

the

> back of my neck and help hide the bloated stomach look I tend to

get by

> the end of the day. It also helped to have someone who sees me

the way

> I really look...ya know I still have that picture in my head of

what I

> think I look like and for some strange reason it isn't the same

one that

> shows up in the mirror. ) I didn't buy too much in hopes that my

old

> clothes will fit me soon again but I bought enough to make it thru

a

> week or more without having to wear things over and over again.

Figure

> if I have to live with this body I should at least dress it

nice.

> So thank you all again for providing the strength needed to

work

> thru this. Knowing so many live and live well with IgA makes it

much

> easier to grasp life and live myself.

>

> Amy

[Guest guest]

Hi Amy, I am glad that you moving forward with this new attitude!

It is inspiring to me too. : )

Sophia

> Well it's been a rollercoaster ride the past 7 months since

my

> diagnosis of IgAN. Today I'm feeling more informed and stronger

in my

> convictions to live with this rather than let it rule my life. I

have

> all of you here to thank for helping me thru some very dark times.

> This past week was the first time I've gone thru a flare up without

> sinking into an emotional, blubbering, depressed monster. Instead

I

> worked with the flare up, doing what I could when I could and

resting

> when I needed to. Thank you all for helping to make me see that

this IS

> an O.K. approach to life. I'm finally feeling better today and to

> celebrate I took one more step to living with this, I bought

clothes

> that fit!

> I finally realized that if I'm going to be on the prednisone

for

> some time now, and my body is going to be swollen in places it

normally

> isn't swollen for as long as I'm on the stuff, having clothes that

fit

> me the way I am RIGHT NOW, would be a nice thing. My husband even

came

> with to help me pick out styles that hide the lovely swelling on

the

> back of my neck and help hide the bloated stomach look I tend to

get by

> the end of the day. It also helped to have someone who sees me

the way

> I really look...ya know I still have that picture in my head of

what I

> think I look like and for some strange reason it isn't the same

one that

> shows up in the mirror. ) I didn't buy too much in hopes that my

old

> clothes will fit me soon again but I bought enough to make it thru

a

> week or more without having to wear things over and over again.

Figure

> if I have to live with this body I should at least dress it

nice.

> So thank you all again for providing the strength needed to

work

> thru this. Knowing so many live and live well with IgA makes it

much

> easier to grasp life and live myself.

>

> Amy