Colonscopy and Transplant list

[Guest guest]

Finally found a GI in Ft Lauderdale familiar with PSC and my daughter Lynna Grace (7 years old) had her first appt w/him yesterday. One of the first things he asked was is did we have her on a transplant list. This confused me - I didn't think you were put on a list until the end and it was necessary at that point. He explained to me that at some point she will more than likely require a transplant and that the longer she is on a list the better her chances are. He said we should put her on several lists - any suggestions on this from anyone? He also asked if she has had a colonscopy done - I informed him no - he suggest that she have one done in the near future. This has hit me hard and I am nervous for my little girl - hate that she has to go thru so much at such a young age. She has so many issues from health to mental - we have an appointment next week for her to see a psychiatrist as she has been diagnosed by

several to have ADHD and ODD - she has strong self control issues - needless to say we are having a hard time with all this. Any information is greatly appreciated. mother of Lynna Grace 7 years old diagnosed w/PSC 4/06; ADHD/0DD 03,05

How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.