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Re: finally got some hearing aids, useless

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Good morning Lesley

Flo asked the same question - Araldite is a make of strong glue. It predates

superglue.

Simon

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Guest guest

Good morning Lesley

Flo asked the same question - Araldite is a make of strong glue. It predates

superglue.

Simon

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Guest guest

Good morning Lesley

Flo asked the same question - Araldite is a make of strong glue. It predates

superglue.

Simon

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Guest guest

LOL xxxxxxx

>

> Good morning Lesley

>

> Flo asked the same question - Araldite is a make of strong glue. It

> predates

> superglue.

>

> Simon

>

>

>

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Guest guest

LOL xxxxxxx

>

> Good morning Lesley

>

> Flo asked the same question - Araldite is a make of strong glue. It

> predates

> superglue.

>

> Simon

>

>

>

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Guest guest

LOL xxxxxxx

>

> Good morning Lesley

>

> Flo asked the same question - Araldite is a make of strong glue. It

> predates

> superglue.

>

> Simon

>

>

>

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Guest guest

LOL LOL LOL

Simon

I bet you cant guess how many times a patient would come to the

practice, and say can you fix my crown back in?? when we couldnt find

a loose one, and asked which one is it, the replies were usually 'oh i

superglued it back in the meantime' and we could never get the bloody

things back out.

so on a lighter note i will skip the superglue, just in case I get

done for child abuse!!!!

lol les x

> Good morning Lesley

>

> Flo asked the same question - Araldite is a make of strong glue. It predates

> superglue.

>

> Simon

>

>

>

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Guest guest

LOL LOL LOL

Simon

I bet you cant guess how many times a patient would come to the

practice, and say can you fix my crown back in?? when we couldnt find

a loose one, and asked which one is it, the replies were usually 'oh i

superglued it back in the meantime' and we could never get the bloody

things back out.

so on a lighter note i will skip the superglue, just in case I get

done for child abuse!!!!

lol les x

> Good morning Lesley

>

> Flo asked the same question - Araldite is a make of strong glue. It predates

> superglue.

>

> Simon

>

>

>

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Guest guest

LOL LOL LOL

Simon

I bet you cant guess how many times a patient would come to the

practice, and say can you fix my crown back in?? when we couldnt find

a loose one, and asked which one is it, the replies were usually 'oh i

superglued it back in the meantime' and we could never get the bloody

things back out.

so on a lighter note i will skip the superglue, just in case I get

done for child abuse!!!!

lol les x

> Good morning Lesley

>

> Flo asked the same question - Araldite is a make of strong glue. It predates

> superglue.

>

> Simon

>

>

>

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Guest guest

Flo,

Hey, that's wicked awesome!

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

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Guest guest

Flo,

Hey, that's wicked awesome!

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

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Guest guest

Flo,

Hey, that's wicked awesome!

Bonnie, Mom to Kris 23, Patty CHARGE 21 and wife to

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Guest guest

Bonnie,

How or where can you get insurance on hearing aides/BAHA. I would love to

insure ours.

My son wears the BAHA he is 2. He hides it and throws it

frequently. Just the other day I could not find it anywhere in our house.

I spent 6 hours straight turning the house upside down looking for it.... I

found it that night in my daughter's school backpack. Apparently he scooted

over to the backpack which was on the floor by our front door. And before

she got on the bus he stuck it in the backpack to get rid of it for the

day........LOL.

(mom to 2 CHARGE, 5 1/2 years and wife to Pat)

New York

Re: finally got some hearing aids, useless

>I agree with everyone. Keep trying. Sounds like you have a spunky little

> one.

>

> And make sure you insure them. I can't tell you who many times Patty lost

> hers by throwing or hiding them or they broke because of throwing or

> hiding

> them!

>

>

> Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

>

>

>

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Guest guest

Bonnie,

How or where can you get insurance on hearing aides/BAHA. I would love to

insure ours.

My son wears the BAHA he is 2. He hides it and throws it

frequently. Just the other day I could not find it anywhere in our house.

I spent 6 hours straight turning the house upside down looking for it.... I

found it that night in my daughter's school backpack. Apparently he scooted

over to the backpack which was on the floor by our front door. And before

she got on the bus he stuck it in the backpack to get rid of it for the

day........LOL.

(mom to 2 CHARGE, 5 1/2 years and wife to Pat)

New York

Re: finally got some hearing aids, useless

>I agree with everyone. Keep trying. Sounds like you have a spunky little

> one.

>

> And make sure you insure them. I can't tell you who many times Patty lost

> hers by throwing or hiding them or they broke because of throwing or

> hiding

> them!

>

>

> Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

>

>

>

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Guest guest

Bonnie,

How or where can you get insurance on hearing aides/BAHA. I would love to

insure ours.

My son wears the BAHA he is 2. He hides it and throws it

frequently. Just the other day I could not find it anywhere in our house.

I spent 6 hours straight turning the house upside down looking for it.... I

found it that night in my daughter's school backpack. Apparently he scooted

over to the backpack which was on the floor by our front door. And before

she got on the bus he stuck it in the backpack to get rid of it for the

day........LOL.

(mom to 2 CHARGE, 5 1/2 years and wife to Pat)

New York

Re: finally got some hearing aids, useless

>I agree with everyone. Keep trying. Sounds like you have a spunky little

> one.

>

> And make sure you insure them. I can't tell you who many times Patty lost

> hers by throwing or hiding them or they broke because of throwing or

> hiding

> them!

>

>

> Bonnie, Mom to a 23, Patty CHARGE 21, and wife to

>

>

>

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Guest guest

Bonnie,

Before I noticed the sensible replies from everyone else, I was going to say

that Gromit is Wallace's dog, and now you are going to ask me who is

Wallace, right? Ahhh, cultural diversity is a great thing!

Flo

>

>

> Lesley,

>

> OK, so what in the world is a gromit?

>

> Also, what's a Dyson. Or should I say who?

>

> Bonnie

>

>

>

>

>

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Guest guest

Bonnie,

Before I noticed the sensible replies from everyone else, I was going to say

that Gromit is Wallace's dog, and now you are going to ask me who is

Wallace, right? Ahhh, cultural diversity is a great thing!

Flo

>

>

> Lesley,

>

> OK, so what in the world is a gromit?

>

> Also, what's a Dyson. Or should I say who?

>

> Bonnie

>

>

>

>

>

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Guest guest

Bonnie,

Before I noticed the sensible replies from everyone else, I was going to say

that Gromit is Wallace's dog, and now you are going to ask me who is

Wallace, right? Ahhh, cultural diversity is a great thing!

Flo

>

>

> Lesley,

>

> OK, so what in the world is a gromit?

>

> Also, what's a Dyson. Or should I say who?

>

> Bonnie

>

>

>

>

>

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Guest guest

Ahhh, Les, good old NHS I say! I look at the implant equipment and shudder

about the potential damage to £30,000 (around maybe $55,000?) worth of

equipment and shudder. Never mind her head that has bumped all over

the place with the potential of damaging the internal implant, she is quite

brutal with the external equipment too. Besides yanking it (and it is

amazing how relaxed the audios are about this!), we have been a little

concerned about the sound processor ending up in the toilet. She was given

a behind the ear processor but her little CHARGE ears are too small to hold

this so we opted for the body worn processor which lives in a belt round her

waist. Well, bless her little toilet skills, she pulls the belt down with

her trousers when she goes to the loo, which has the effect of pulling the

processor from the belt and she makes an appearance with the processor

dangling round her knees instead of in the belt! It is so funny to see.

How it has not ended up in the toilet already is a mystery. The only

consolation is in knowing that the hospital would provide us with another

one! I have taken to putting the belt round her chest. At next week's

appointment, we are asking for a harness! My mental health can't survive

this!

Flo

>

> Pam

>

> no worries on this score, thats one advantage of the good old NHS,

> everything for a child under 18 years is FREE in the UK !! although a

> lot of choice on better products may be removed, for example white

> fillings in back teeth the NHS wont fund cosmetics! so basically if

> she loses them 10 times over it wont cost me a penny.

>

> thank god Les x

>

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Ahhh, Les, good old NHS I say! I look at the implant equipment and shudder

about the potential damage to £30,000 (around maybe $55,000?) worth of

equipment and shudder. Never mind her head that has bumped all over

the place with the potential of damaging the internal implant, she is quite

brutal with the external equipment too. Besides yanking it (and it is

amazing how relaxed the audios are about this!), we have been a little

concerned about the sound processor ending up in the toilet. She was given

a behind the ear processor but her little CHARGE ears are too small to hold

this so we opted for the body worn processor which lives in a belt round her

waist. Well, bless her little toilet skills, she pulls the belt down with

her trousers when she goes to the loo, which has the effect of pulling the

processor from the belt and she makes an appearance with the processor

dangling round her knees instead of in the belt! It is so funny to see.

How it has not ended up in the toilet already is a mystery. The only

consolation is in knowing that the hospital would provide us with another

one! I have taken to putting the belt round her chest. At next week's

appointment, we are asking for a harness! My mental health can't survive

this!

Flo

>

> Pam

>

> no worries on this score, thats one advantage of the good old NHS,

> everything for a child under 18 years is FREE in the UK !! although a

> lot of choice on better products may be removed, for example white

> fillings in back teeth the NHS wont fund cosmetics! so basically if

> she loses them 10 times over it wont cost me a penny.

>

> thank god Les x

>

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Flo,

I love Wallace and Gromit and they were my first thought, too (given the

spelling in the post).

pam

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Gosh Flo

I will never complain again about the NHS, well not for a week or two

at least, but only because we are home.

I had no idea how much implants cost, quite amazed and ever more so

relieved, i live in the UK. cant wait to get ours!! not sure when that

will be, not a priority just yet.

I can only imagine your mental health state, and the and loo scenario.

Fleur threw my special watch a gift for my 30th bday (many years

ago!!) down the toilet and flushed it, i never saw it again, gutted!!

so now I have all this to look forward to with Amelie, she is finding

great use for her aids as teething blocks the rubber is cushioning

them just fine!!! My mental health is deteriorating fast and its early

doors yet for me!!

take care Les x

> Ahhh, Les, good old NHS I say! I look at the implant equipment and shudder

> about the potential damage to £30,000 (around maybe $55,000?) worth of

> equipment and shudder. Never mind her head that has bumped all over

> the place with the potential of damaging the internal implant, she is quite

> brutal with the external equipment too. Besides yanking it (and it is

> amazing how relaxed the audios are about this!), we have been a little

> concerned about the sound processor ending up in the toilet. She was given

> a behind the ear processor but her little CHARGE ears are too small to hold

> this so we opted for the body worn processor which lives in a belt round her

> waist. Well, bless her little toilet skills, she pulls the belt down with

> her trousers when she goes to the loo, which has the effect of pulling the

> processor from the belt and she makes an appearance with the processor

> dangling round her knees instead of in the belt! It is so funny to see.

> How it has not ended up in the toilet already is a mystery. The only

> consolation is in knowing that the hospital would provide us with another

> one! I have taken to putting the belt round her chest. At next week's

> appointment, we are asking for a harness! My mental health can't survive

> this!

>

> Flo

>

>

>

> >

> > Pam

> >

> > no worries on this score, thats one advantage of the good old NHS,

> > everything for a child under 18 years is FREE in the UK !! although a

> > lot of choice on better products may be removed, for example white

> > fillings in back teeth the NHS wont fund cosmetics! so basically if

> > she loses them 10 times over it wont cost me a penny.

> >

> > thank god Les x

> >

>

>

>

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Guest guest

Gosh Flo

I will never complain again about the NHS, well not for a week or two

at least, but only because we are home.

I had no idea how much implants cost, quite amazed and ever more so

relieved, i live in the UK. cant wait to get ours!! not sure when that

will be, not a priority just yet.

I can only imagine your mental health state, and the and loo scenario.

Fleur threw my special watch a gift for my 30th bday (many years

ago!!) down the toilet and flushed it, i never saw it again, gutted!!

so now I have all this to look forward to with Amelie, she is finding

great use for her aids as teething blocks the rubber is cushioning

them just fine!!! My mental health is deteriorating fast and its early

doors yet for me!!

take care Les x

> Ahhh, Les, good old NHS I say! I look at the implant equipment and shudder

> about the potential damage to £30,000 (around maybe $55,000?) worth of

> equipment and shudder. Never mind her head that has bumped all over

> the place with the potential of damaging the internal implant, she is quite

> brutal with the external equipment too. Besides yanking it (and it is

> amazing how relaxed the audios are about this!), we have been a little

> concerned about the sound processor ending up in the toilet. She was given

> a behind the ear processor but her little CHARGE ears are too small to hold

> this so we opted for the body worn processor which lives in a belt round her

> waist. Well, bless her little toilet skills, she pulls the belt down with

> her trousers when she goes to the loo, which has the effect of pulling the

> processor from the belt and she makes an appearance with the processor

> dangling round her knees instead of in the belt! It is so funny to see.

> How it has not ended up in the toilet already is a mystery. The only

> consolation is in knowing that the hospital would provide us with another

> one! I have taken to putting the belt round her chest. At next week's

> appointment, we are asking for a harness! My mental health can't survive

> this!

>

> Flo

>

>

>

> >

> > Pam

> >

> > no worries on this score, thats one advantage of the good old NHS,

> > everything for a child under 18 years is FREE in the UK !! although a

> > lot of choice on better products may be removed, for example white

> > fillings in back teeth the NHS wont fund cosmetics! so basically if

> > she loses them 10 times over it wont cost me a penny.

> >

> > thank god Les x

> >

>

>

>

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Guest guest

Gosh Flo

I will never complain again about the NHS, well not for a week or two

at least, but only because we are home.

I had no idea how much implants cost, quite amazed and ever more so

relieved, i live in the UK. cant wait to get ours!! not sure when that

will be, not a priority just yet.

I can only imagine your mental health state, and the and loo scenario.

Fleur threw my special watch a gift for my 30th bday (many years

ago!!) down the toilet and flushed it, i never saw it again, gutted!!

so now I have all this to look forward to with Amelie, she is finding

great use for her aids as teething blocks the rubber is cushioning

them just fine!!! My mental health is deteriorating fast and its early

doors yet for me!!

take care Les x

> Ahhh, Les, good old NHS I say! I look at the implant equipment and shudder

> about the potential damage to £30,000 (around maybe $55,000?) worth of

> equipment and shudder. Never mind her head that has bumped all over

> the place with the potential of damaging the internal implant, she is quite

> brutal with the external equipment too. Besides yanking it (and it is

> amazing how relaxed the audios are about this!), we have been a little

> concerned about the sound processor ending up in the toilet. She was given

> a behind the ear processor but her little CHARGE ears are too small to hold

> this so we opted for the body worn processor which lives in a belt round her

> waist. Well, bless her little toilet skills, she pulls the belt down with

> her trousers when she goes to the loo, which has the effect of pulling the

> processor from the belt and she makes an appearance with the processor

> dangling round her knees instead of in the belt! It is so funny to see.

> How it has not ended up in the toilet already is a mystery. The only

> consolation is in knowing that the hospital would provide us with another

> one! I have taken to putting the belt round her chest. At next week's

> appointment, we are asking for a harness! My mental health can't survive

> this!

>

> Flo

>

>

>

> >

> > Pam

> >

> > no worries on this score, thats one advantage of the good old NHS,

> > everything for a child under 18 years is FREE in the UK !! although a

> > lot of choice on better products may be removed, for example white

> > fillings in back teeth the NHS wont fund cosmetics! so basically if

> > she loses them 10 times over it wont cost me a penny.

> >

> > thank god Les x

> >

>

>

>

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Guest guest

Based on my experiences as a teacher of deaf/deafblind infants for

many years, I agree with . Give her a reason to want to keep the

aid(s) in and eventually she will. Initially keep 'hearing aid time'

special - short, sweet, positive and FUN! Give her interesting things

to listen to (like your voice singing hello as soon as aids go in)

and things to do with her hands to keep them occupied (and away from

aids!), without bombarding her with too much.

Fingerplays are great too.

Good luck...slowly, slowly, catchy monkey!

hugs, Sharon from West Oz

>Stick with it stick with it stick with it...don't give up! Kennedy got hers

>first at 9months...we started with a goal of 15 minutes, playing with her

>hands, new little games/toys to occupy her, then built on from there. It is

>HARD at first but don't give up - she will realize soon that they DO help

>and will want them on. We had a special bag of little toys we used for

>'Hearing Aid time " ; she only could see/play with them during that time so

>they were new and interesting. Once she made the connection that they

>helped, she LOVED them. It was really hard at first....perservere!!!!

>Good luck, you'll get there...

>

>

>

>

>>

>> Amelie finally got a pair that fit!! BUT she wont keep them in, i have

>> tried huggies bands, hair bands and tape, this cheeky chanette has

>> decided shes not wearing them end of!!, I am fed up of trying and its

>> only been three days, what do you suggest?

>>

>> I think if they had managed it much earlier she would have been used

>> to them, but shes getting a little minx of a personality, and no way

>> is she having this one!!

>>

>> all my worrying about getting some sound in may be useless without her

>> tolerating them!

>>

>> love Les and chanettes x 4 (one cheeky monkey)

>>

>>

>>

>>

>>

>>

>>

>> CHARGE SYNDROME LISTSERV PHOTO PAGE:

>> http://www.imagestation.com/album/?id=2117043995

>>

>> Membership of this email support group does not constitute membership in

>> the CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

>> Foundation or to become a member (and get the newsletter),

>> please contact marion@... or visit

>> the web site at http://www.chargesyndrome.org

>>

>> 8th International

>> CHARGE Syndrome Conference, July, 2007. Information will be available at

>> www.chargesyndrome.org or by calling 1-.

>>

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