NODDING/TWITCHING QUESTION

[Guest guest]

Ok, Max started doing something and I'm not sure if it is nothing or definitely

" something. " But I have learned in my brief time in CHARGEland that you always

have to ask questions and make certain, because you just never know!!!

In the past few days, he started " nodding/twitching " his head a bit...hard to

explain...kind of like when someone does the casual nod to say hello (but less

pronounced than that). It's just an ever so slight movement but it is

noticeable. He doesn't do it all the time...but occasionally if he is just

hanging out, he'll start his " nodding " . Hard to explain, but hopefully I am

making some sense.

Today someone noticed it when I was babbling with Maxwell and comment " how

sweet, he is nodding at you! " Then it was even funnier because the man's wife

then commented " oh wow, he just winked at me! " Little did they realize that the

" nod " was worrying me that something was wrong neurologically or with his

muscles AND his " wink " was actually due to his facial palsy! Too funny!

Then at the next store, someone said " wow look at your baby...he sure never

misses a meal..look how big and healthy he is!!! " I wanted to laugh and reply

" you're right, he never does miss a meal...he eats 15 hours a day! " But I

didn't...but it was SOOO wonderful to have people admire my baby, not because of

how much progress he has made...but solely because he is an adorable baby! (See

this is one of the first times he has been out and about without his O2 cannula

on. Usually they comment on that first.)

But ANYWAY, I digress...back to my original concern. Does this

" nodding/twitching " sound like anything? I already have an appointment with my

PCP tomorrow for his 9 month vaccines and I am going to ask him, but I have a

feeling he won't have a very good answer or reason...so I turn to you all...the

CHARGE experts.

Your thoughts?

Thanks everyone!!!

Amy McKinley

Mom to MIGHTY MAX (CHARGE, 9 months old, 7 months corrected)

maxupdate.blogspot.com

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