Re: 's CT followup and our decision- Deborah B/Frances/sorca

[Guest guest]

Hi Frances. Please don't second guess your decision. You said that

you would always wonder about it if you didn't do the band. He is in

it now and I would just do it! Just think, it will be over soon and

you will never second guess it again. We do have a script for the

band and are working on insurance if we decide to do it, but at the

moment we are waiting till the end of July when we see our

neurosurgeon from CHOP who does band children and we totally trust

her. How is he doing in the band. I would see how things look in a

few weeks and when you see progress you will not think twice about.

Please keep me posted. Regarding from CT, I know Sorca was

going to e-mail her and ask her about her experience. From what

everyone says, CT orthos are highly trained, so dont' worry too

much. Take care, Debbie and brielle

> > > > > Well, we took (3 months this week) to CT for another

> > > follow

> > > > up

> > > > > today. She said she can really see great results from the

> > > repo. I

> > > > > asked her to take measurements and she said that he has 11

mm

> > of

> > > > > asymmetry. I asked her what she would do and I begged her

to

> > be

> > > > > honest with me. She thinks that since has responded

> to

> > > repo

> > > > so

> > > > > well, he will really do well in a band. I told her that I

> was

> > > > > concerned that the slope of his head did not seem to be

> > > improving

> > > > with

> > > > > repo, but that the ear assymetry and the flatness in the

back

> > is

> > > > > getting a lot better. She said that she thinks a band will

> > help

> > > > the

> > > > > whole head to round out. Sooooo, we made a casting

> appointment

> > > for

> > > > > 7/12 (we are going on vacation for 2 weeks on Friday and

they

> > > > couldn't

> > > > > do the cast this week). Then, he will come in for his

> fitting

> > > on

> > > > > 7/22. He will be 4 months on 7/23. She thinks he will

only

> > > need

> > > > it

> > > > > for about 6 weeks. I think we are doing the right thing.

I

> > > would

> > > > > hate to always wonder, what if.... The neurologist might

be

> > mad

> > > at

> > > > me

> > > > > when I go for the follow up. He did not think there was a

> > > need.

> > > > > Soooo, soon, I will have a doc banded baby. Did I do the

> > right

> > > > > thing?

> > >

> > >

> > >

> > >

> > > For more plagio info