Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 > -----Original Message----- > --- wrote: > > Right now this just seems like a lot to deal with...but knowing how close we came to loosig him I can totally accept and deal with a hearing loss. it will just take a bit of time < < Hello . I've been on list for quite a while but I confess I've been no-mail for a while due to computer problems. Your message struck a chord with me though. My son was born late, with meconium aspiration, cord wrapped, dehydrated, not breathing, heart in defibrillation, seizure,...and so on. He's a fine, healthy 11 year old now, but with moderate sloping to severe bilateral hearing impairment. Whenever I get upset about the hearing impairments I picture how bad things could have been. He faked responses in the booth from clues he got from use, so he was diagnosed during an ABR when he was about 12 or 13 months old, and was wearing loaner aids from Audiology within 3 or 4 weeks. Do ask them to try to do the earmold impressions while he's sedated, it's much easier on all involved. They'll give you all sorts of plans and warnings for how to get him to wear the aids but we found that so long as the molds didn't hurt him, would cry for them if they weren't on. Our biggest challenge was getting him to take them off to go to bed! He now is talking just very slightly below his age level, and only Speech Pathologists and the very best teachers are able to identify him as hearing impaired. > > I am almost 100% sure our insurance will not cover hearign aids, is there any kind of program that helps cover the cost? < < We had to arrange payment ourselves too. Be frank with your audiologist. If there are sources around for funding, they will know of them and may be able to connect you. His first set, I believe, came with assistance from a program here called Maternal and Infant Care or something like that. He is now using his second set (Digifocus II), and as we were doing better financially ourselves, we paid for most of them a very little help that came from a community food bank. If you have to ask for funding, remember that a few dollars spent fitting your child with hearing aids and getting early help with speech and learning will save many hundreds over his life. Remind agencies of that if you have too! Floyd tfloyd@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 > -----Original Message----- > --- wrote: > > Right now this just seems like a lot to deal with...but knowing how close we came to loosig him I can totally accept and deal with a hearing loss. it will just take a bit of time < < Hello . I've been on list for quite a while but I confess I've been no-mail for a while due to computer problems. Your message struck a chord with me though. My son was born late, with meconium aspiration, cord wrapped, dehydrated, not breathing, heart in defibrillation, seizure,...and so on. He's a fine, healthy 11 year old now, but with moderate sloping to severe bilateral hearing impairment. Whenever I get upset about the hearing impairments I picture how bad things could have been. He faked responses in the booth from clues he got from use, so he was diagnosed during an ABR when he was about 12 or 13 months old, and was wearing loaner aids from Audiology within 3 or 4 weeks. Do ask them to try to do the earmold impressions while he's sedated, it's much easier on all involved. They'll give you all sorts of plans and warnings for how to get him to wear the aids but we found that so long as the molds didn't hurt him, would cry for them if they weren't on. Our biggest challenge was getting him to take them off to go to bed! He now is talking just very slightly below his age level, and only Speech Pathologists and the very best teachers are able to identify him as hearing impaired. > > I am almost 100% sure our insurance will not cover hearign aids, is there any kind of program that helps cover the cost? < < We had to arrange payment ourselves too. Be frank with your audiologist. If there are sources around for funding, they will know of them and may be able to connect you. His first set, I believe, came with assistance from a program here called Maternal and Infant Care or something like that. He is now using his second set (Digifocus II), and as we were doing better financially ourselves, we paid for most of them a very little help that came from a community food bank. If you have to ask for funding, remember that a few dollars spent fitting your child with hearing aids and getting early help with speech and learning will save many hundreds over his life. Remind agencies of that if you have too! Floyd tfloyd@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 > -----Original Message----- > --- wrote: > > Right now this just seems like a lot to deal with...but knowing how close we came to loosig him I can totally accept and deal with a hearing loss. it will just take a bit of time < < Hello . I've been on list for quite a while but I confess I've been no-mail for a while due to computer problems. Your message struck a chord with me though. My son was born late, with meconium aspiration, cord wrapped, dehydrated, not breathing, heart in defibrillation, seizure,...and so on. He's a fine, healthy 11 year old now, but with moderate sloping to severe bilateral hearing impairment. Whenever I get upset about the hearing impairments I picture how bad things could have been. He faked responses in the booth from clues he got from use, so he was diagnosed during an ABR when he was about 12 or 13 months old, and was wearing loaner aids from Audiology within 3 or 4 weeks. Do ask them to try to do the earmold impressions while he's sedated, it's much easier on all involved. They'll give you all sorts of plans and warnings for how to get him to wear the aids but we found that so long as the molds didn't hurt him, would cry for them if they weren't on. Our biggest challenge was getting him to take them off to go to bed! He now is talking just very slightly below his age level, and only Speech Pathologists and the very best teachers are able to identify him as hearing impaired. > > I am almost 100% sure our insurance will not cover hearign aids, is there any kind of program that helps cover the cost? < < We had to arrange payment ourselves too. Be frank with your audiologist. If there are sources around for funding, they will know of them and may be able to connect you. His first set, I believe, came with assistance from a program here called Maternal and Infant Care or something like that. He is now using his second set (Digifocus II), and as we were doing better financially ourselves, we paid for most of them a very little help that came from a community food bank. If you have to ask for funding, remember that a few dollars spent fitting your child with hearing aids and getting early help with speech and learning will save many hundreds over his life. Remind agencies of that if you have too! Floyd tfloyd@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 In a message dated 8/19/2004 9:27:28 AM Eastern Daylight Time, AFIBsupport writes: Date: Thu, 19 Aug 2004 10:24:12 -0000 Subject: Ablation Therapy - update Hi Everyone. I lasted in sinus rhythm after my PVI for about 32 hours. As I write to you I am in full blown A-Fib and have been for over 3 hours now. To say I am disappointed is putting it mildly. After 21 years of various arrythmias I was hoping,just hoping that this would give me life back. I have sent off an email to my EP explaining my current situation and I am waiting for a reply. Is there anyone out there who has experienced these problems after a PVI and found after a while that they returned and stayed in a Sinus rhythm ? I had ablation at U of M Hospital (Dr Marady) last May. I entered the ablation procedure in afib but came out in NSR. NSR lasted 2 days and I then returned to afib continuously up to my 3 month review this month. At review it was confirmed I was in afib and I was determined to be a candidate for 2nd procedure. At this review I was also taken off Amiodarone, Irbesartan and diltiaxem; and put on Toprol xl. The next day I went into NSR and while I have occasionally slipped into afib - for the most part during last 15 days I have been in NSR. Don't give up - changes may take longer than expected. I'm still a candadate for 2nd procedure, but the current status and outlook is getting better. Terry McHoskey MSW Senior Program Consultant Children's Research Center Phone 517/285-4385 Fax 517/323-9237 www.nccd-crc.org Quote Link to comment Share on other sites More sharing options...
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