Jump to content
RemedySpot.com
Sign in to follow this  
Guest guest

new to group

Rate this topic

Recommended Posts

Guest guest

Welcome, Tiffini

It sure does sound like you have fibro, This is the place to be. Don't ever

feel like your whining. We all do at times. We are here to help each other.

Kathy D.

Diagnosed in 98

Live in Western Massachusetts

Married for almost 19yrs, to a sweetheart

Mother to 16 and 14

My Rottie dog Shelby

Spooky the cat

Hobbies: Boating, Learning this computer

Arts & Crafts, and a passionate reader

Share this post


Link to post
Share on other sites
Guest guest

Welcome, Tiffini

It sure does sound like you have fibro, This is the place to be. Don't ever

feel like your whining. We all do at times. We are here to help each other.

Kathy D.

Diagnosed in 98

Live in Western Massachusetts

Married for almost 19yrs, to a sweetheart

Mother to 16 and 14

My Rottie dog Shelby

Spooky the cat

Hobbies: Boating, Learning this computer

Arts & Crafts, and a passionate reader

Share this post


Link to post
Share on other sites
Guest guest

I am new to the board as well. I have also struggled with weight gain since

having CFS/FMS. It is " normal " for libido to be decreased because of the

decrease in seratonin levels in the brain. I don't have answers to your

other questions, but I do look forward to reading the responses from others.

Welcome to the group. :-)

Meshell

Share this post


Link to post
Share on other sites
Guest guest

I am new to the board as well. I have also struggled with weight gain since

having CFS/FMS. It is " normal " for libido to be decreased because of the

decrease in seratonin levels in the brain. I don't have answers to your

other questions, but I do look forward to reading the responses from others.

Welcome to the group. :-)

Meshell

Share this post


Link to post
Share on other sites
Guest guest

In a message dated 11/07/2001 1:22:48 PM US Eastern Standard Time,

CoveredWoman@... writes:

> . I have also struggled with weight gain since

> having CFS/FMS

Golly me too..I wonder what the heck is causing this poopy...

Share this post


Link to post
Share on other sites
Guest guest

In a message dated 11/07/2001 1:22:48 PM US Eastern Standard Time,

CoveredWoman@... writes:

> . I have also struggled with weight gain since

> having CFS/FMS

Golly me too..I wonder what the heck is causing this poopy...

Share this post


Link to post
Share on other sites
Guest guest

> > . I have also struggled with weight gain since

> > having CFS/FMS

>

I have struggled with my weight from the time I was a Junior in High School.

I got pneumonia and since that was before the day of antibiotics, I almost

died. I always was way to skinny but after that I gained weight to easily.

The doctors told me that my metabolism changed during this illness. I would

have preferred it to stay the same as it was.

But I have lost 20 pounds and I don't know why or how. I am not trying and I

have been checked for diabetes so why I don't know but from the way things

have gone lately, I probably have some other illness that there isn't a cure

for. :-))

Take care,

Irene

Share this post


Link to post
Share on other sites
Guest guest

Somewhere I have read that FM causes carbohydrate cravings. If you don't

realize what is going on the weight packs on. Then - attempting to get the

weight back off is very slow, but not impossible.

If one of your symptoms is fluid retention in the body tissues - that doesn't

help. You can't judge how you are doing by the way your clothes fit.

I wish I could remember where I came across this information.

Jo

Share this post


Link to post
Share on other sites
Guest guest

lov2dogs@... wrote:

> - is anyone in the group on hormone-replacement therapy, and do

> your doctors feel that hormone problems are the cause of your

> symptoms?

> - does anyone experience a serious lack of libido that is not

> associated with any prescription medication?

I'm not on hrt, but am on bc pills. I don't think they have a thing to

do with my problems. In fact, they help to slow the growth of my endo

down!!

I do have a serious lack of libido that isn't caused by a prescription

medicine. It's slightly helped along by my antidepressant, but even

when I wasn't on it, I didn't have the kind of libido that I use to

have.

Darcy

Share this post


Link to post
Share on other sites
Guest guest

Hi ,

Glad you found this group. You'll find lots of people experienced in using

anti-thyroid drugs as well as other treatment options here. Good luck, Elaine

Share this post


Link to post
Share on other sites
Guest guest

Hi ,

Glad you found this group. You'll find lots of people experienced in using

anti-thyroid drugs as well as other treatment options here. Good luck, Elaine

Share this post


Link to post
Share on other sites
Guest guest

Hi ,

Glad you found this group. You'll find lots of people experienced in using

anti-thyroid drugs as well as other treatment options here. Good luck, Elaine

Share this post


Link to post
Share on other sites
Guest guest

Hi, ,

We're new to the group, too, but I can tell you if we have to opt for either

RAI or surgery, it's definitely surgery for our daughter. Thankfully, we've

found a doctor who supports us in our stand against RAI and he knows of a

couple good surgeons who do great work with thyroid surgery. Hang in there.

Amy's Pam

In a message dated 3/1/2002 8:47:19 AM Central Standard Time,

tan_1500@... writes:

> Hi, I'm new to this group, I got diagnosed with graves this past

> summer after feeling badly for about a year before, I've tried the

> anti-thyroid drugs but was allergic, I'm now just on beta-blockers.

> My endo. is in the process of scheduling RAI, but after alot of

> thought and research, and talking to others who've had RAI, including

> my sister, I've decided on surgery instead. I know this is a big

> decision, but I think this is the best choice for me, I'm telling my

> endo. today about my change of mind, I just don't feel comfortable

> about the RAI and have a bad feeling about it. My family is

> supportive of my decision, especially my sister, who had RAI in the

> 1980's and has had a very bad time ever since. I'm hoping I'm making

> the right decision!

>

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

Share this post


Link to post
Share on other sites
Guest guest

Hi, ,

We're new to the group, too, but I can tell you if we have to opt for either

RAI or surgery, it's definitely surgery for our daughter. Thankfully, we've

found a doctor who supports us in our stand against RAI and he knows of a

couple good surgeons who do great work with thyroid surgery. Hang in there.

Amy's Pam

In a message dated 3/1/2002 8:47:19 AM Central Standard Time,

tan_1500@... writes:

> Hi, I'm new to this group, I got diagnosed with graves this past

> summer after feeling badly for about a year before, I've tried the

> anti-thyroid drugs but was allergic, I'm now just on beta-blockers.

> My endo. is in the process of scheduling RAI, but after alot of

> thought and research, and talking to others who've had RAI, including

> my sister, I've decided on surgery instead. I know this is a big

> decision, but I think this is the best choice for me, I'm telling my

> endo. today about my change of mind, I just don't feel comfortable

> about the RAI and have a bad feeling about it. My family is

> supportive of my decision, especially my sister, who had RAI in the

> 1980's and has had a very bad time ever since. I'm hoping I'm making

> the right decision!

>

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

Share this post


Link to post
Share on other sites
Guest guest

Hi, ,

We're new to the group, too, but I can tell you if we have to opt for either

RAI or surgery, it's definitely surgery for our daughter. Thankfully, we've

found a doctor who supports us in our stand against RAI and he knows of a

couple good surgeons who do great work with thyroid surgery. Hang in there.

Amy's Pam

In a message dated 3/1/2002 8:47:19 AM Central Standard Time,

tan_1500@... writes:

> Hi, I'm new to this group, I got diagnosed with graves this past

> summer after feeling badly for about a year before, I've tried the

> anti-thyroid drugs but was allergic, I'm now just on beta-blockers.

> My endo. is in the process of scheduling RAI, but after alot of

> thought and research, and talking to others who've had RAI, including

> my sister, I've decided on surgery instead. I know this is a big

> decision, but I think this is the best choice for me, I'm telling my

> endo. today about my change of mind, I just don't feel comfortable

> about the RAI and have a bad feeling about it. My family is

> supportive of my decision, especially my sister, who had RAI in the

> 1980's and has had a very bad time ever since. I'm hoping I'm making

> the right decision!

>

I want to be the kind of friend Jesus would call, at the end of the day, just

to talk about nothing.-Wayne

Share this post


Link to post
Share on other sites
Guest guest

Hi ,

That's a very good point Laurel makes and one I hadn't even thought of when

we talked. It really is quite odd to be allergic to both meds and rash doesn'

count as a true allergic reaction without hives. Even with mild hives many

patients are put on low dose antihistamines until their body gets use to the

meds. Now if you had a low white blood cell count or elevated liver enzymes

that's a different story.

Share this post


Link to post
Share on other sites
Guest guest

Hi ,

That's a very good point Laurel makes and one I hadn't even thought of when

we talked. It really is quite odd to be allergic to both meds and rash doesn'

count as a true allergic reaction without hives. Even with mild hives many

patients are put on low dose antihistamines until their body gets use to the

meds. Now if you had a low white blood cell count or elevated liver enzymes

that's a different story.

Share this post


Link to post
Share on other sites
Guest guest

Hi ,

That's a very good point Laurel makes and one I hadn't even thought of when

we talked. It really is quite odd to be allergic to both meds and rash doesn'

count as a true allergic reaction without hives. Even with mild hives many

patients are put on low dose antihistamines until their body gets use to the

meds. Now if you had a low white blood cell count or elevated liver enzymes

that's a different story.

Share this post


Link to post
Share on other sites
Guest guest

Welcome to the group !

You are absolutely right, treatment choice is *your* decision...and obviously

one that you are not taking lightly. Good for you!! So glad that you found

us here. I hope that this list is as helpful to you as it has been to me.

Doris

Share this post


Link to post
Share on other sites
Guest guest

Welcome ,

Can you elaborate on your " allergy " to ATD's? I was pushed to RAI because I got

some mild itching and, as I understand it, itching is not an uncommon side

effect. Did you have hives or difficulty breathing?

Congrats on your decision.

Laurel

New to group

Hi, I'm new to this group, I got diagnosed with graves this past

summer after feeling badly for about a year before, I've tried the

anti-thyroid drugs but was allergic, I'm now just on beta-blockers.

My endo. is in the process of scheduling RAI, but after alot of

thought and research, and talking to others who've had RAI, including

my sister, I've decided on surgery instead. I know this is a big

decision, but I think this is the best choice for me, I'm telling my

endo. today about my change of mind, I just don't feel comfortable

about the RAI and have a bad feeling about it. My family is

supportive of my decision, especially my sister, who had RAI in the

1980's and has had a very bad time ever since. I'm hoping I'm making

the right decision!

:-}

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

Share this post


Link to post
Share on other sites
Guest guest

Welcome ,

Can you elaborate on your " allergy " to ATD's? I was pushed to RAI because I got

some mild itching and, as I understand it, itching is not an uncommon side

effect. Did you have hives or difficulty breathing?

Congrats on your decision.

Laurel

New to group

Hi, I'm new to this group, I got diagnosed with graves this past

summer after feeling badly for about a year before, I've tried the

anti-thyroid drugs but was allergic, I'm now just on beta-blockers.

My endo. is in the process of scheduling RAI, but after alot of

thought and research, and talking to others who've had RAI, including

my sister, I've decided on surgery instead. I know this is a big

decision, but I think this is the best choice for me, I'm telling my

endo. today about my change of mind, I just don't feel comfortable

about the RAI and have a bad feeling about it. My family is

supportive of my decision, especially my sister, who had RAI in the

1980's and has had a very bad time ever since. I'm hoping I'm making

the right decision!

:-}

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

Share this post


Link to post
Share on other sites
Guest guest

Welcome ,

Can you elaborate on your " allergy " to ATD's? I was pushed to RAI because I got

some mild itching and, as I understand it, itching is not an uncommon side

effect. Did you have hives or difficulty breathing?

Congrats on your decision.

Laurel

New to group

Hi, I'm new to this group, I got diagnosed with graves this past

summer after feeling badly for about a year before, I've tried the

anti-thyroid drugs but was allergic, I'm now just on beta-blockers.

My endo. is in the process of scheduling RAI, but after alot of

thought and research, and talking to others who've had RAI, including

my sister, I've decided on surgery instead. I know this is a big

decision, but I think this is the best choice for me, I'm telling my

endo. today about my change of mind, I just don't feel comfortable

about the RAI and have a bad feeling about it. My family is

supportive of my decision, especially my sister, who had RAI in the

1980's and has had a very bad time ever since. I'm hoping I'm making

the right decision!

:-}

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

Share this post


Link to post
Share on other sites
Guest guest

Hi :

Welcome to the group. There are lots of people here with a lot of knowledge. I

can only tell you from my personal experience that I think you have made a wise

decision. I had RAI in 1997, and only now have been able to get my medication

right. It has been a hard couple of years on me and my husband and children

because of this. The most important thing is not to let your doc change your

mind or make you feel like you're making a bad decision. This is your treatment

and your body. There are others in this group who have had the surgery done and

have been happy with their decision. Everyone is very open here in sharing

their experiences, both good and bad.

Good luck and keep us posted,

Beverly

New to group

Hi, I'm new to this group, I got diagnosed with graves this past

summer after feeling badly for about a year before, I've tried the

anti-thyroid drugs but was allergic, I'm now just on beta-blockers.

My endo. is in the process of scheduling RAI, but after alot of

thought and research, and talking to others who've had RAI, including

my sister, I've decided on surgery instead. I know this is a big

decision, but I think this is the best choice for me, I'm telling my

endo. today about my change of mind, I just don't feel comfortable

about the RAI and have a bad feeling about it. My family is

supportive of my decision, especially my sister, who had RAI in the

1980's and has had a very bad time ever since. I'm hoping I'm making

the right decision!

:-}

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list does not have the endorsement

of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------

Share this post


Link to post
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
Sign in to follow this  

×
×
  • Create New...