Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 I'm going to make this as short as possible. My first endo (as some of you know) Really messed me up. I didn't know how badly until today. At first my new endo asked me what dr. I was leaving and why? I told him her name........and called her one as well and he said... " Oh come on..I know her and she is a wonderful woman " . I said oh yeah, she's so sweet but, not helping me at all...... He began to look over all of my records, as far back as May (when I began to see my old endo)... He stated to me that I have both Graves and Hashi's......and that my levels have been somewhat masked by all of the meds I have been taken and could not tell how serious I have become without antibodies testing. He then proceded to read my reports from my hospitalization in June.... Now, In the beginning of June, I began to feel very bad. Vomited for 15 days and severe shaking....anyway..ended up in the hospital in very bad shape. He began to shake his head and say, " I don't understand this...You were put on tapazol " ? Yes, I stated and had severe diarrhea so I stopped taking it. (I was on it for 3 days)..... He said, " SO they put you on PTU? " , Yes, I said. and then he began to ask who some Dr. was that was on the report... I said he was a liver specialits called in to check my report. He then asked me If I knew why? A specialist was called in and I said, no..........I was so sick, I don't remember much.......He said.... " well, I'm going to tell you why......You are not only allergic to tapazol, IT ALMOST KILLED YOU, and you have no Idea how dangerously close your levels were to fatal, do you?. " Stating that only two more days on tapazol would have definately killed me and thank GOD you stopped taking it dispite your dr's advise to continue. Now, He said that PTU should have NEVER,EVER been an option for me as It can cause Irreversable damage to the liver in someone with the levels of emzimes I was releasing... WHY DID THE DR'S NOT CHECK THE LABS I JUST HAD DONE IN THE HOSPITAL! He could see the results 8 months later. No other options were ever discussed..... He ordered STAT blood work on my liver and had the resutls back within hours. I am in serious trouble. MY liver is failing and my levels returning to where they were in June, and I can no longer continue on PTU as it is the cause of my Liver problem. I asked him to do some more labs on me and he said it is DANGEROUSLY passed the labs phase and I am in NEED OF MY THYROID REMOVED or RAI, IMMEDIATELY! My liver is now failing and I must focus on that. He scheduled me for my Uptake scan on Monday and My RAI to follow. I was so happy to get some answers finally but, it's now hitting home just how sick I am. I am thankful to the Dr. for seeing me so quickly as My original apt. was for Feb. 16th. He did state to me that If I have stayed on the PTU till then, I would most likely DIE! My liver is so poisoned and does not understand why my old endo did not follow my liver progress. THE ANSWERS WERE RIGHT IN FRONT OF HER! I can say he changed his tune about her VERY QUICKLY! And all my old Endo had to say at last weeks phone call was...Oh, just keep taking your PTU and I'll see you in six weeks. I have NEVER been so happy and so SCARED in my life as I am at this moment. I am so scared and have no choice and I don't know what to do or say or feel..... I was so happy to FINALLY find someone to help me and now, I have this Liver hurdle to take on. Oh, I'm so Scared right now. I feel so alone. Quote Link to comment Share on other sites More sharing options...
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