Re: more seizures// -

[Guest guest]

Has he had a growth spurt upwards then ? Sometimes a status quo in

weight in growing young children is the same as weight loss, they start to

slip down the weight percentile curve and you see later on that they had

maybe been in fact deficent in cals at that point.

BMI or growth/height ratio is the best method to use to assess cal needs -

it is the exact same time of the seizures each morn that has me swaying back

to poss a cal issue, like is his last meal of the day is always at the same

time? Perhaps he is 'running out' by 4.30 ish and maybe the last meal has to

be later at night, like just before bed if he isn't already having a meal at

this time?

Have you ever managed to get a blood sugar level prior to these 4.30 am

seizures? The fact his morn ketones have increased may say that he is going

too low in the glucose dept?

----- Original Message -----

> Hi -

> 's weight hasn't changed. Haven't adjusted

> calories - everything appears to be status quo. We

> are going on the 6th night having seizures every

> morning at 4:30. Am wondering if he's getting too hot

> at night and can't sleep well. I still think

> something isn't quite right and that's why he's having

> these seizures - whether it's his metabolism that is

> shifting due to coming off these meds - the final

> " hurrah " like you mentioned, him not feeling quite up

> to par, etc. I just don't know how long a

> " reasonable " time frame is if it is his metabolism

> and/or the elimination of medication. Odd that it is

> at the same time every morning. UUUGGGHHH. Other

> than that, he's great.

>

> thanks for chiming in - wish it was the final

> " hurrah " of the lamictal.

>

> Hope all is well w/ these days.

> (mom to )

>